{"id":"https://openalex.org/W2767995481","doi":"https://doi.org/10.1007/s10803-017-3350-7","title":"The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention","display_name":"The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention","publication_year":2017,"publication_date":"2017-11-17","ids":{"openalex":"https://openalex.org/W2767995481","doi":"https://doi.org/10.1007/s10803-017-3350-7","mag":"2767995481","pmid":"https://pubmed.ncbi.nlm.nih.gov/29150738","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/5861155"},"language":"en","primary_location":{"id":"doi:10.1007/s10803-017-3350-7","doi":"https://doi.org/10.1007/s10803-017-3350-7","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s10803-017-3350-7","pdf_url":"https://link.springer.com/content/pdf/10.1007/s10803-017-3350-7.pdf","source":{"id":"https://openalex.org/S181451930","display_name":"Journal of Autism and Developmental Disorders","issn_l":"0162-3257","issn":["0162-3257","1573-3432"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","erih-plus","jufo-2","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Autism and Developmental Disorders","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","datacite","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://link.springer.com/content/pdf/10.1007/s10803-017-3350-7.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5041946569","display_name":"Kathy Leadbitter","orcid":"https://orcid.org/0000-0002-0744-2800","observed_orcids":["https://orcid.org/0000-0002-0744-2800"]},"institutions":[{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Kathy Leadbitter","raw_affiliation_strings":["Social Development Research Group, University of Manchester, Room 3.312, Jean McFarlane Building, Oxford Rd., Manchester, M13 9PL, UK. Kathy.leadbitter@manchester.ac.uk","University of Manchester, Manchester, UK. Kathy.leadbitter@manchester.ac.uk","University of Manchester, Manchester, UK"],"raw_orcid":"https://orcid.org/0000-0002-0744-2800","affiliations":[{"raw_affiliation_string":"Social Development Research Group, University of Manchester, Room 3.312, Jean McFarlane Building, Oxford Rd., Manchester, M13 9PL, UK. Kathy.leadbitter@manchester.ac.uk","institution_ids":["https://openalex.org/I28407311"]},{"raw_affiliation_string":"University of Manchester, Manchester, UK. Kathy.leadbitter@manchester.ac.uk","institution_ids":["https://openalex.org/I28407311"]},{"raw_affiliation_string":"University of Manchester, Manchester, UK","institution_ids":["https://openalex.org/I28407311"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035321242","display_name":"Catherine R. Aldred","orcid":"https://orcid.org/0000-0002-9686-8685","observed_orcids":["https://orcid.org/0000-0002-9686-8685"]},"institutions":[{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Catherine Aldred","raw_affiliation_strings":["University of Manchester, Manchester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Manchester, Manchester, UK","institution_ids":["https://openalex.org/I28407311"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070950963","display_name":"Helen McConachie","orcid":"https://orcid.org/0000-0002-0713-3987","observed_orcids":["https://orcid.org/0000-0002-0713-3987"]},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Helen McConachie","raw_affiliation_strings":["Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5067460528","display_name":"Ann S. Le Couteur","orcid":"https://orcid.org/0000-0001-9991-3608","observed_orcids":["https://orcid.org/0000-0001-9991-3608"]},"institutions":[{"id":"https://openalex.org/I240202130","display_name":"Cumbria Northumberland Tyne and Wear NHS Foundation Trust","ror":"https://ror.org/01ajv0n48","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I240202130"]},{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Ann Le Couteur","raw_affiliation_strings":["Newcastle University, Newcastle upon Tyne, UK","Northumberland, Tyne & Wear NHS Foundation Trust, Newcastle upon Tyne, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]},{"raw_affiliation_string":"Northumberland, Tyne & Wear NHS Foundation Trust, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I240202130"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030419165","display_name":"Dharmi Kapadia","orcid":"https://orcid.org/0000-0003-4007-1981","observed_orcids":["https://orcid.org/0000-0003-4007-1981"]},"institutions":[{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Dharmi Kapadia","raw_affiliation_strings":["University of Manchester, Manchester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Manchester, Manchester, UK","institution_ids":["https://openalex.org/I28407311"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036347925","display_name":"Tony Charman","orcid":"https://orcid.org/0000-0003-1993-6549","observed_orcids":["https://orcid.org/0000-0003-1993-6549"]},"institutions":[{"id":"https://openalex.org/I183935753","display_name":"King's College London","ror":"https://ror.org/0220mzb33","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I183935753"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Tony Charman","raw_affiliation_strings":["Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK","institution_ids":["https://openalex.org/I183935753"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039541341","display_name":"Wendy Macdonald","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I15704514","display_name":"Greater Manchester Mental Health NHS Foundation Trust","ror":"https://ror.org/05sb89p83","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I15704514"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Wendy Macdonald","raw_affiliation_strings":["Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK","institution_ids":["https://openalex.org/I15704514"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5060404297","display_name":"Erica Salomone","orcid":"https://orcid.org/0000-0002-8083-5942","observed_orcids":["https://orcid.org/0000-0002-8083-5942"]},"institutions":[{"id":"https://openalex.org/I183935753","display_name":"King's College London","ror":"https://ror.org/0220mzb33","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I183935753"]},{"id":"https://openalex.org/I55143463","display_name":"University of Turin","ror":"https://ror.org/048tbm396","country_code":"IT","type":"education","lineage":["https://openalex.org/I55143463"]}],"countries":["GB","IT"],"is_corresponding":false,"raw_author_name":"Erica Salomone","raw_affiliation_strings":["Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK","University of Turin, Turin, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK","institution_ids":["https://openalex.org/I183935753"]},{"raw_affiliation_string":"University of Turin, Turin, Italy","institution_ids":["https://openalex.org/I55143463"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5053708270","display_name":"Richard Emsley","orcid":"https://orcid.org/0000-0002-1218-675X","observed_orcids":["https://orcid.org/0000-0002-1218-675X"]},"institutions":[{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Richard Emsley","raw_affiliation_strings":["University of Manchester, Manchester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Manchester, Manchester, UK","institution_ids":["https://openalex.org/I28407311"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5100755203","display_name":"Jonathan Green","orcid":"https://orcid.org/0000-0002-0143-181X","observed_orcids":["https://orcid.org/0000-0002-0143-181X"]},"institutions":[{"id":"https://openalex.org/I15704514","display_name":"Greater Manchester Mental Health NHS Foundation Trust","ror":"https://ror.org/05sb89p83","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I15704514"]},{"id":"https://openalex.org/I2799725268","display_name":"Manchester Academic Health Science Centre","ror":"https://ror.org/04rrkhs81","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799725268"]},{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]},{"id":"https://openalex.org/I4210160221","display_name":"Royal Manchester Children's Hospital","ror":"https://ror.org/052vjje65","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4210092852","https://openalex.org/I4210160221"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Jonathan Green","raw_affiliation_strings":["Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK","Manchester Academic Health Sciences Centre, Royal Manchester Children's Hospital, Manchester, UK","University of Manchester, Manchester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK","institution_ids":["https://openalex.org/I15704514"]},{"raw_affiliation_string":"Manchester Academic Health Sciences Centre, Royal Manchester Children's Hospital, Manchester, UK","institution_ids":["https://openalex.org/I2799725268","https://openalex.org/I4210160221"]},{"raw_affiliation_string":"University of Manchester, Manchester, UK","institution_ids":["https://openalex.org/I28407311"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":8,"corresponding_author_ids":["https://openalex.org/A5041946569"],"corresponding_institution_ids":["https://openalex.org/I28407311"],"apc_list":{"value":3190,"currency":"USD","value_usd":3190},"apc_paid":{"value":3190,"currency":"USD","value_usd":3190},"fwci":2.3382,"has_fulltext":true,"cited_by_count":101,"citation_normalized_percentile":{"value":0.88604765,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":100},"biblio":{"volume":"48","issue":"4","first_page":"1052","last_page":"1062"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.5922999978065491,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.5922999978065491,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.39719998836517334,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13393","display_name":"Child Nutrition and Feeding Issues","score":0.0017999999690800905,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/autism-spectrum-disorder","display_name":"autism spectrum disorder","score":0.9879999756813049},{"id":"https://openalex.org/keywords/family-experiences","display_name":"family experiences","score":0.8519999980926514},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.9860000014305115},{"id":"https://openalex.org/keywords/early-intervention","display_name":"early intervention","score":0.8939999938011169},{"id":"https://openalex.org/keywords/parent-implemented-intervention","display_name":"parent-mediated intervention","score":0.972000002861023},{"id":"https://openalex.org/keywords/parental-mental-health","display_name":"parental mental health","score":0.671999990940094},{"id":"https://openalex.org/keywords/parental-well-being","display_name":"parental well-being","score":0.9620000123977661}],"concepts":[{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.8759994506835938},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6782137155532837},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.6693278551101685},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.6462975740432739},{"id":"https://openalex.org/C2778538070","wikidata":"https://www.wikidata.org/wiki/Q1436063","display_name":"Autism spectrum disorder","level":3,"score":0.6080623269081116},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.5962157249450684},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5778657793998718},{"id":"https://openalex.org/C2776793905","wikidata":"https://www.wikidata.org/wiki/Q7623268","display_name":"Strengths and Difficulties Questionnaire","level":3,"score":0.5064007043838501},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.5045980215072632},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.4268849790096283},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.4104061722755432},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.36009693145751953},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.23966652154922485},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.09291538596153259},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.07345041632652283}],"mesh":[{"descriptor_ui":"D000067877","descriptor_name":"Autism Spectrum Disorder","qualifier_ui":"Q000451","qualifier_name":"nursing","is_major_topic":false},{"descriptor_ui":"D000067877","descriptor_name":"Autism Spectrum Disorder","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D000067877","descriptor_name":"Autism Spectrum Disorder","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003256","descriptor_name":"Community Participation","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D005192","descriptor_name":"Family Health","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005500","descriptor_name":"Follow-Up Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016896","descriptor_name":"Treatment Outcome","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D061345","descriptor_name":"Early Medical Intervention","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":9,"locations":[{"id":"doi:10.1007/s10803-017-3350-7","doi":"https://doi.org/10.1007/s10803-017-3350-7","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s10803-017-3350-7","pdf_url":"https://link.springer.com/content/pdf/10.1007/s10803-017-3350-7.pdf","source":{"id":"https://openalex.org/S181451930","display_name":"Journal of Autism and Developmental Disorders","issn_l":"0162-3257","issn":["0162-3257","1573-3432"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","erih-plus","jufo-2","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Autism and Developmental Disorders","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:5861155","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/5861155","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"J Autism Dev Disord","raw_type":"Text"},{"id":"pmid:29150738","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/29150738","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of autism and developmental disorders","raw_type":"Journal Article"},{"id":"pmh:oai:pure.atira.dk:openaire/117ce473-88f2-42e0-aca5-8d9bae7de132","doi":null,"is_oa":true,"landing_page_url":"https://research.manchester.ac.uk/en/publications/117ce473-88f2-42e0-aca5-8d9bae7de132","pdf_url":null,"source":{"id":"https://openalex.org/S4306400662","display_name":"Research Explorer (The University of Manchester)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28407311","host_organization_name":"University of Manchester","host_organization_lineage":["https://openalex.org/I28407311"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Leadbitter, K, Aldred, C, McConachie, H, Le Couteur, A, Kapadia, D, Charman, T, Macdonald, W, Salomone, E, Emsley, R & Green, J 2017, 'The Autism Family Experience Questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention', Journal of Autism and Developmental Disorders, vol. 48, no. 4, pp. 1052-1062. https://doi.org/10.1007/s10803-017-3350-7","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:iris.unito.it:2318/1654214","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2318/1654214","pdf_url":"https://iris.unito.it/bitstream/2318/1654214/1/Leadbitter_et_al_2017.pdf","source":{"id":"https://openalex.org/S4306400637","display_name":"Institutional Research Information System University of Turin (University of Turin)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I55143463","host_organization_name":"University of Turin","host_organization_lineage":["https://openalex.org/I55143463"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:boa.unimib.it:10281/216136","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10281/216136","pdf_url":null,"source":{"id":"https://openalex.org/S4306401259","display_name":"BOA (University of Milano-Bicocca)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I66752286","host_organization_name":"University of Milano-Bicocca","host_organization_lineage":["https://openalex.org/I66752286"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:kclpure.kcl.ac.uk:openaire/f5e85bac-283c-47f9-8b49-08704fb50efc","doi":null,"is_oa":true,"landing_page_url":"https://kclpure.kcl.ac.uk/portal/en/publications/f5e85bac-283c-47f9-8b49-08704fb50efc","pdf_url":null,"source":{"id":"https://openalex.org/S4306400216","display_name":"Research Portal (King's College London)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I183935753","host_organization_name":"King's College London","host_organization_lineage":["https://openalex.org/I183935753"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Leadbitter, K, Aldred, C, McConachie, H, Le Couteur, A, Charman, T, McDonald, W, Salomone, E, Emsley, R, Green, J 2017, 'The Autism Family Experience Questionnaire (AFEQ) : An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention', Journal of Autism and Developmental Disorders, pp. 1-11. https://doi.org/10.1007/s10803-017-3350-7","raw_type":"info:eu-repo/semantics/article"},{"id":"doi:10.25405/ncl.34341798","doi":"https://doi.org/10.25405/ncl.34341798","is_oa":true,"landing_page_url":"https://doi.org/10.25405/ncl.34341798","pdf_url":null,"source":{"id":"https://openalex.org/S4306402485","display_name":"Newcastle University ePrints (Newcastle Univesity)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I84884186","host_organization_name":"Newcastle University","host_organization_lineage":["https://openalex.org/I84884186"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},{"id":"doi:10.25405/ncl.34341798.v1","doi":"https://doi.org/10.25405/ncl.34341798.v1","is_oa":true,"landing_page_url":"https://doi.org/10.25405/ncl.34341798.v1","pdf_url":null,"source":{"id":"https://openalex.org/S4306402485","display_name":"Newcastle University ePrints (Newcastle Univesity)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I84884186","host_organization_name":"Newcastle University","host_organization_lineage":["https://openalex.org/I84884186"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"}],"best_oa_location":{"id":"doi:10.1007/s10803-017-3350-7","doi":"https://doi.org/10.1007/s10803-017-3350-7","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s10803-017-3350-7","pdf_url":"https://link.springer.com/content/pdf/10.1007/s10803-017-3350-7.pdf","source":{"id":"https://openalex.org/S181451930","display_name":"Journal of Autism and Developmental Disorders","issn_l":"0162-3257","issn":["0162-3257","1573-3432"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","erih-plus","jufo-2","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Autism and Developmental Disorders","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.98580002784729,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G2937709844","display_name":"NIHR Senior Investigator Award","funder_award_id":"NF-SI-0617-10168","funder_id":"https://openalex.org/F4320319990","funder_display_name":"National Institute for Health and Care Research"},{"id":"https://openalex.org/G6142139155","display_name":"Pre-school autism intervention and autism development: a longitudinal follow up of the Preschool Autism Communication Trial (PACT)","funder_award_id":"MR/K005863/1","funder_id":"https://openalex.org/F4320334626","funder_display_name":"Medical Research Council"},{"id":"https://openalex.org/G7853574040","display_name":null,"funder_award_id":"G0401546","funder_id":"https://openalex.org/F4320334626","funder_display_name":"Medical Research Council"},{"id":"https://openalex.org/G8191720244","display_name":"Communication-centered Parent-mediated treatment for Autism Spectrum Disorder in South Asia (COMPASS).","funder_award_id":"MR/R006164/1","funder_id":"https://openalex.org/F4320334626","funder_display_name":"Medical Research Council"}],"funders":[{"id":"https://openalex.org/F4320319990","display_name":"National Institute for Health and Care Research","ror":"https://ror.org/0187kwz08"},{"id":"https://openalex.org/F4320320291","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27"},{"id":"https://openalex.org/F4320322024","display_name":"Department for Children, Schools and Families","ror":"https://ror.org/0320bge18"},{"id":"https://openalex.org/F4320333687","display_name":"Manchester Biomedical Research Centre","ror":"https://ror.org/05njkjr15"},{"id":"https://openalex.org/F4320334626","display_name":"Medical Research Council","ror":"https://ror.org/03x94j517"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2767995481.pdf","grobid_xml":"https://content.openalex.org/works/W2767995481.grobid-xml"},"referenced_works_count":54,"referenced_works":["https://openalex.org/W35493269","https://openalex.org/W1503378164","https://openalex.org/W1514742912","https://openalex.org/W1597860757","https://openalex.org/W1915712406","https://openalex.org/W1980309199","https://openalex.org/W1981760840","https://openalex.org/W1983492774","https://openalex.org/W1993568408","https://openalex.org/W2001911865","https://openalex.org/W2003733876","https://openalex.org/W2018995282","https://openalex.org/W2029997282","https://openalex.org/W2036373468","https://openalex.org/W2037716870","https://openalex.org/W2045147308","https://openalex.org/W2053756604","https://openalex.org/W2069698478","https://openalex.org/W2082563645","https://openalex.org/W2095338998","https://openalex.org/W2097696839","https://openalex.org/W2099484012","https://openalex.org/W2104916848","https://openalex.org/W2108996609","https://openalex.org/W2111818224","https://openalex.org/W2116642049","https://openalex.org/W2123071616","https://openalex.org/W2123552131","https://openalex.org/W2128616610","https://openalex.org/W2131099228","https://openalex.org/W2138429326","https://openalex.org/W2144446993","https://openalex.org/W2145610206","https://openalex.org/W2146691185","https://openalex.org/W2149107263","https://openalex.org/W2155427676","https://openalex.org/W2156204418","https://openalex.org/W2167744683","https://openalex.org/W2172253007","https://openalex.org/W2172276237","https://openalex.org/W2200249075","https://openalex.org/W2206594262","https://openalex.org/W2232388721","https://openalex.org/W2314780373","https://openalex.org/W2323149989","https://openalex.org/W2329395632","https://openalex.org/W2500438885","https://openalex.org/W2529271484","https://openalex.org/W2537346844","https://openalex.org/W2623254001","https://openalex.org/W2889920862","https://openalex.org/W2937678484","https://openalex.org/W6764906472","https://openalex.org/W6885063946"],"related_works":["https://openalex.org/W4401629533","https://openalex.org/W2887805336","https://openalex.org/W2999430039","https://openalex.org/W4251415767","https://openalex.org/W2960940041","https://openalex.org/W186318757","https://openalex.org/W4230018405","https://openalex.org/W2338895531","https://openalex.org/W2296363908","https://openalex.org/W2991300627"],"abstract_inverted_index":{"There":[0],"is":[1],"a":[2,102],"lack":[3],"of":[4,11,13,25,32,61,84],"measures":[5,83],"that":[6,21],"reflect":[7],"the":[8,23,59,65],"intervention":[9,104],"priorities":[10],"parents":[12,60],"children":[14,62,107],"with":[15,48,81,108],"autism":[16],"spectrum":[17],"disorder":[18],"(ASD)":[19],"and":[20,30,45,50,70,91],"assess":[22],"impact":[24],"interventions":[26],"on":[27],"family":[28],"experience":[29],"quality":[31],"life.":[33],"The":[34,75],"Autism":[35,67],"Family":[36],"Experience":[37],"Questionnaire":[38],"(AFEQ)":[39],"was":[40,55,95],"developed":[41],"through":[42],"focus":[43],"groups":[44],"online":[46],"consultation":[47],"parents,":[49],"reflected":[51],"parental":[52,88,92],"priorities.":[53],"It":[54,94],"then":[56],"administered":[57],"to":[58,97,101],"enrolled":[63],"in":[64,99],"Pre-school":[66],"Communication":[68],"Trial":[69],"its":[71],"6-year":[72],"follow-up":[73],"study.":[74],"AFEQ":[76],"showed":[77],"good":[78],"convergent":[79],"validity":[80],"well-established":[82],"child":[85],"adaptive":[86],"functioning,":[87],"mental":[89],"health":[90],"wellbeing.":[93],"sensitive":[96],"change":[98],"response":[100],"parent-mediated":[103],"for":[105],"young":[106],"autism,":[109],"showing":[110],"treatment":[111,114],"effect":[112],"at":[113,118],"endpoint":[115],"which":[116],"increased":[117],"six-year":[119],"follow-up.":[120]},"counts_by_year":[{"year":2026,"cited_by_count":10},{"year":2025,"cited_by_count":19},{"year":2024,"cited_by_count":16},{"year":2023,"cited_by_count":12},{"year":2022,"cited_by_count":12},{"year":2021,"cited_by_count":15},{"year":2020,"cited_by_count":7},{"year":2019,"cited_by_count":8},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2017-11-17T00:00:00"}
