{"id":"https://openalex.org/W2575258392","doi":"https://doi.org/10.1016/j.pmrj.2016.11.007","title":"Prognosis Disclosure in Spinal Cord Injury","display_name":"Prognosis Disclosure in Spinal Cord Injury","publication_year":2017,"publication_date":"2017-01-01","ids":{"openalex":"https://openalex.org/W2575258392","doi":"https://doi.org/10.1016/j.pmrj.2016.11.007","mag":"2575258392","pmid":"https://pubmed.ncbi.nlm.nih.gov/28086999"},"language":"en","primary_location":{"id":"doi:10.1016/j.pmrj.2016.11.007","doi":"https://doi.org/10.1016/j.pmrj.2016.11.007","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.pmrj.2016.11.007","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1016/j.pmrj.2016.11.007","source":{"id":"https://openalex.org/S46247591","display_name":"PM&R","issn_l":"1934-1482","issn":["1934-1482","1934-1563"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"PM&R","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1016/j.pmrj.2016.11.007","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5074171024","display_name":"Joyce Fichtenbaum","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1335195914","display_name":"Kessler Institute for Rehabilitation","ror":"https://ror.org/05xysjr32","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1335195914"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joyce Fichtenbaum","raw_affiliation_strings":["Kessler Institute for Rehabilitation, West Orange, NJ(\u2217)","Disclosure: nothing to disclose"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Kessler Institute for Rehabilitation, West Orange, NJ(\u2217)","institution_ids":["https://openalex.org/I1335195914"]},{"raw_affiliation_string":"Disclosure: nothing to disclose","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038949736","display_name":"Steven Kirshblum","orcid":"https://orcid.org/0000-0003-2824-9214","observed_orcids":["https://orcid.org/0000-0003-2824-9214"]},"institutions":[{"id":"https://openalex.org/I1335195914","display_name":"Kessler Institute for Rehabilitation","ror":"https://ror.org/05xysjr32","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1335195914"]},{"id":"https://openalex.org/I4402554120","display_name":"Rutgers New Jersey Medical School","ror":"https://ror.org/014ye1258","country_code":"US","type":"education","lineage":["https://openalex.org/I102322142","https://openalex.org/I4390039302","https://openalex.org/I4402554120"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Steven Kirshblum","raw_affiliation_strings":["Kessler Institute for Rehabilitation, West Orange, NJ; Rutgers New Jersey Medical School, Newark, NJ(\u2020)","Disclosure: nothing to disclose","Kessler Institute for Rehabilitation, West Orange, NJ","Rutgers New Jersey Medical School, Newark, NJ"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Kessler Institute for Rehabilitation, West Orange, NJ; Rutgers New Jersey Medical School, Newark, NJ(\u2020)","institution_ids":["https://openalex.org/I1335195914","https://openalex.org/I4402554120"]},{"raw_affiliation_string":"Disclosure: nothing to disclose","institution_ids":[]},{"raw_affiliation_string":"Kessler Institute for Rehabilitation, West Orange, NJ","institution_ids":["https://openalex.org/I1335195914"]},{"raw_affiliation_string":"Rutgers New Jersey Medical School, Newark, NJ","institution_ids":["https://openalex.org/I4402554120"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015952228","display_name":"Lisa Marie Ruppert","orcid":"https://orcid.org/0000-0003-3751-8500","observed_orcids":["https://orcid.org/0000-0003-3751-8500"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lisa Ruppert","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY; Weill Cornell Medical College, New York, NY(\u2021)","Disclosure: nothing to disclose","Memorial Sloan Kettering Cancer Center, New York, NY","Weill Cornell Medical College, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY; Weill Cornell Medical College, New York, NY(\u2021)","institution_ids":["https://openalex.org/I1334819555"]},{"raw_affiliation_string":"Disclosure: nothing to disclose","institution_ids":[]},{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]},{"raw_affiliation_string":"Weill Cornell Medical College, New York, NY","institution_ids":["https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072398580","display_name":"Thea Flaum","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Thea Flaum","raw_affiliation_strings":["President, Hill Foundation and FacingDisability.com, Chicago, IL(\u00a7)","Disclosures outside this publication: board membership, RIC Hospital MSKTC Advisory Board (unpaid)"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"President, Hill Foundation and FacingDisability.com, Chicago, IL(\u00a7)","institution_ids":[]},{"raw_affiliation_string":"Disclosures outside this publication: board membership, RIC Hospital MSKTC Advisory Board (unpaid)","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071364600","display_name":"Gayle R. Spill","orcid":"https://orcid.org/0000-0003-3337-5629","observed_orcids":["https://orcid.org/0000-0003-3337-5629"]},"institutions":[{"id":"https://openalex.org/I111979921","display_name":"Northwestern University","ror":"https://ror.org/000e0be47","country_code":"US","type":"education","lineage":["https://openalex.org/I111979921"]},{"id":"https://openalex.org/I1324242722","display_name":"Shirley Ryan AbilityLab","ror":"https://ror.org/02ja0m249","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1324242722"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Gayle R. Spill","raw_affiliation_strings":["Northwestern University Feinberg School of Medicine, Rehabilitation Institute of Chicago, Chicago, IL(\u00b6)","Disclosure: nothing to disclose"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Northwestern University Feinberg School of Medicine, Rehabilitation Institute of Chicago, Chicago, IL(\u00b6)","institution_ids":["https://openalex.org/I111979921","https://openalex.org/I1324242722"]},{"raw_affiliation_string":"Disclosure: nothing to disclose","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5012010527","display_name":"Debjani Mukherjee","orcid":"https://orcid.org/0000-0002-8233-8608","observed_orcids":["https://orcid.org/0000-0002-8233-8608"]},"institutions":[{"id":"https://openalex.org/I111979921","display_name":"Northwestern University","ror":"https://ror.org/000e0be47","country_code":"US","type":"education","lineage":["https://openalex.org/I111979921"]},{"id":"https://openalex.org/I1324242722","display_name":"Shirley Ryan AbilityLab","ror":"https://ror.org/02ja0m249","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1324242722"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Debjani Mukherjee","raw_affiliation_strings":["Rehabilitation Institute of Chicago and Northwestern University Feinberg School of Medicine, Chicago, IL 60611(\u2016). Electronic address: dmukherjee@ric.org","Disclosure: nothing to disclose","Rehabilitation Institute of Chicago and Northwestern University Feinberg School of Medicine, Chicago, IL 60611"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Rehabilitation Institute of Chicago and Northwestern University Feinberg School of Medicine, Chicago, IL 60611(\u2016). Electronic address: dmukherjee@ric.org","institution_ids":["https://openalex.org/I111979921","https://openalex.org/I1324242722"]},{"raw_affiliation_string":"Disclosure: nothing to disclose","institution_ids":[]},{"raw_affiliation_string":"Rehabilitation Institute of Chicago and Northwestern University Feinberg School of Medicine, Chicago, IL 60611","institution_ids":["https://openalex.org/I111979921","https://openalex.org/I1324242722"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5012010527"],"corresponding_institution_ids":["https://openalex.org/I111979921","https://openalex.org/I1324242722"],"apc_list":{"value":3470,"currency":"USD","value_usd":3470},"apc_paid":null,"fwci":0.2564,"has_fulltext":true,"cited_by_count":4,"citation_normalized_percentile":{"value":0.59672852,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":94},"biblio":{"volume":"9","issue":"1","first_page":"76","last_page":"82"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.7645999789237976,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.7645999789237976,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.07150000333786011,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.06360000371932983,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/prognosis-disclosure","display_name":"prognosis disclosure","score":0.9909999966621399},{"id":"https://openalex.org/keywords/spinal-cord-injury","display_name":"spinal cord injury","score":0.9980000257492065},{"id":"https://openalex.org/keywords/medical-ethics","display_name":"medical ethics","score":0.6729999780654907},{"id":"https://openalex.org/keywords/patient-communication","display_name":"patient communication","score":0.6299999952316284},{"id":"https://openalex.org/keywords/barriers-to-disclosure","display_name":"barriers to disclosure","score":0.8960000276565552},{"id":"https://openalex.org/keywords/doctor-patient-communication","display_name":"physician-patient communication","score":0.628000020980835}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8768320679664612},{"id":"https://openalex.org/C2778334475","wikidata":"https://www.wikidata.org/wiki/Q1415275","display_name":"Spinal cord injury","level":3,"score":0.708486795425415},{"id":"https://openalex.org/C99508421","wikidata":"https://www.wikidata.org/wiki/Q2678675","display_name":"Physical medicine and rehabilitation","level":1,"score":0.46944093704223633},{"id":"https://openalex.org/C2780775167","wikidata":"https://www.wikidata.org/wiki/Q9606","display_name":"Spinal cord","level":2,"score":0.4208029508590698},{"id":"https://openalex.org/C42219234","wikidata":"https://www.wikidata.org/wiki/Q131130","display_name":"Anesthesia","level":1,"score":0.3301279544830322},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.13280653953552246}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011379","descriptor_name":"Prognosis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013119","descriptor_name":"Spinal Cord Injuries","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":false},{"descriptor_ui":"D013119","descriptor_name":"Spinal Cord Injuries","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D014342","descriptor_name":"Truth Disclosure","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true},{"descriptor_ui":"D028701","descriptor_name":"Patient Rights","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1016/j.pmrj.2016.11.007","doi":"https://doi.org/10.1016/j.pmrj.2016.11.007","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.pmrj.2016.11.007","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1016/j.pmrj.2016.11.007","source":{"id":"https://openalex.org/S46247591","display_name":"PM&R","issn_l":"1934-1482","issn":["1934-1482","1934-1563"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"PM&R","raw_type":"journal-article"},{"id":"pmid:28086999","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/28086999","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"PM & R : the journal of injury, function, and rehabilitation","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1016/j.pmrj.2016.11.007","doi":"https://doi.org/10.1016/j.pmrj.2016.11.007","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.pmrj.2016.11.007","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1016/j.pmrj.2016.11.007","source":{"id":"https://openalex.org/S46247591","display_name":"PM&R","issn_l":"1934-1482","issn":["1934-1482","1934-1563"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"PM&R","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.5683000087738037,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.6700000166893005,"display_name":"Gender equality","id":"https://metadata.un.org/sdg/5"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2575258392.pdf","grobid_xml":"https://content.openalex.org/works/W2575258392.grobid-xml"},"referenced_works_count":14,"referenced_works":["https://openalex.org/W86678509","https://openalex.org/W637892595","https://openalex.org/W1965380313","https://openalex.org/W1965971489","https://openalex.org/W2029098570","https://openalex.org/W2052953098","https://openalex.org/W2061056382","https://openalex.org/W2123892838","https://openalex.org/W2179992916","https://openalex.org/W2185798207","https://openalex.org/W2322430653","https://openalex.org/W2341570835","https://openalex.org/W4245499040","https://openalex.org/W4300876283"],"related_works":["https://openalex.org/W1767709288","https://openalex.org/W4238652562","https://openalex.org/W6966820436","https://openalex.org/W2181776075","https://openalex.org/W3111099867","https://openalex.org/W3104469684","https://openalex.org/W2884977458","https://openalex.org/W1878817636","https://openalex.org/W4242353122","https://openalex.org/W2016984257"],"abstract_inverted_index":{"The":[0],"ethical":[1],"issues":[2],"around":[3],"prognosis":[4,37],"disclosure":[5,22],"raise":[6],"interesting":[7],"questions":[8],"about":[9,31],"how,":[10],"when,":[11],"and":[12,23,47],"why":[13],"we":[14,26],"disclose":[15],"medical":[16],"information.What":[17],"are":[18],"the":[19,32,52],"barriers":[20],"to":[21,35,50],"how":[24],"can":[25],"learn":[27],"from":[28],"each":[29],"other":[30],"best":[33],"ways":[34],"discuss":[36],"with":[38],"our":[39],"patients?Gayle":[40],"Spill,":[41],"MD,":[42],"has":[43],"edited":[44],"this":[45,55],"column":[46],"invited":[48],"guests":[49],"consider":[51],"complexities":[53],"of":[54],"issue.":[56]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2018,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2017-01-26T00:00:00"}