{"id":"https://openalex.org/W2520045014","doi":null,"title":"Perinatal hospice. Comprehensive care for the family of the fetus with a lethal condition.","display_name":"Perinatal hospice. Comprehensive care for the family of the fetus with a lethal condition.","publication_year":2003,"publication_date":"2003-05-01","ids":{"openalex":"https://openalex.org/W2520045014","mag":"2520045014","pmid":"https://pubmed.ncbi.nlm.nih.gov/12815907"},"language":"en","primary_location":{"id":"pmid:12815907","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12815907","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of reproductive medicine","raw_type":"Evaluation Study"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5106028149","display_name":"Byron C. Calhoun","orcid":"https://orcid.org/0000-0002-2169-3737","observed_orcids":["https://orcid.org/0000-0002-2169-3737"]},"institutions":[{"id":"https://openalex.org/I1330654748","display_name":"Madigan Army Medical Center","ror":"https://ror.org/01sfyq865","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330347796","https://openalex.org/I1330654748","https://openalex.org/I2800250139","https://openalex.org/I2800386880"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Byron C Calhoun","raw_affiliation_strings":["Departments of Obstetrics and Gynecology and of Nursing, Madigan Army Medical Center, Tacoma, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Departments of Obstetrics and Gynecology and of Nursing, Madigan Army Medical Center, Tacoma, Washington, USA","institution_ids":["https://openalex.org/I1330654748"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077190152","display_name":"Peter G. Napolitano","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Peter Napolitano","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032115938","display_name":"Melissa V. Terry","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Melissa Terry","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000963272","display_name":"Carie G. Bussey","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Carie Bussey","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5085812324","display_name":"Nathan Hoeldtke","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nathan J Hoeldtke","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.5821,"has_fulltext":false,"cited_by_count":70,"citation_normalized_percentile":{"value":0.8944415,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":99},"biblio":{"volume":"48","issue":"5","first_page":"343","last_page":"8"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10978","display_name":"Prenatal Screening and Diagnostics","score":0.5189999938011169,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10978","display_name":"Prenatal Screening and Diagnostics","score":0.5189999938011169,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.25270000100135803,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.05000000074505806,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/perinatal-hospice","display_name":"perinatal hospice","score":0.9909999966621399},{"id":"https://openalex.org/keywords/lethal-congenital-anomalies","display_name":"lethal congenital anomalies","score":0.8920000195503235},{"id":"https://openalex.org/keywords/prenatal-diagnosis","display_name":"prenatal diagnosis","score":0.9259999990463257},{"id":"https://openalex.org/keywords/family-support","display_name":"family support","score":0.5889999866485596},{"id":"https://openalex.org/keywords/multidisciplinary-care","display_name":"multidisciplinary care","score":0.8220000267028809},{"id":"https://openalex.org/keywords/intrauterine-fetal-death","display_name":"intrauterine fetal death","score":0.9509999752044678},{"id":"https://openalex.org/keywords/live-birth-outcomes","display_name":"live birth outcomes","score":0.5899999737739563},{"id":"https://openalex.org/keywords/neonatal-mortality","display_name":"neonatal mortality","score":0.5529999732971191},{"id":"https://openalex.org/keywords/obstetric-management","display_name":"obstetric management","score":0.3370000123977661}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8819602727890015},{"id":"https://openalex.org/C2779234561","wikidata":"https://www.wikidata.org/wiki/Q11995","display_name":"Pregnancy","level":2,"score":0.6683253049850464},{"id":"https://openalex.org/C172680121","wikidata":"https://www.wikidata.org/wiki/Q26513","display_name":"Fetus","level":3,"score":0.6268987655639648},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5936681628227234},{"id":"https://openalex.org/C131872663","wikidata":"https://www.wikidata.org/wiki/Q5284418","display_name":"Obstetrics","level":1,"score":0.5292481780052185},{"id":"https://openalex.org/C2778408130","wikidata":"https://www.wikidata.org/wiki/Q6679974","display_name":"Vaginal delivery","level":3,"score":0.4681931436061859},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.43934938311576843},{"id":"https://openalex.org/C2775887326","wikidata":"https://www.wikidata.org/wiki/Q3308829","display_name":"Prenatal care","level":3,"score":0.41998639702796936},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000013","descriptor_name":"Congenital Abnormalities","qualifier_ui":"Q000473","qualifier_name":"pathology","is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001601","descriptor_name":"Bereavement","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002585","descriptor_name":"Cesarean Section","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005313","descriptor_name":"Fetal Death","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007231","descriptor_name":"Infant, Newborn","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011256","descriptor_name":"Pregnancy Outcome","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011379","descriptor_name":"Prognosis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017051","descriptor_name":"Hospice Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018743","descriptor_name":"Perinatal Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"pmid:12815907","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12815907","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of reproductive medicine","raw_type":"Evaluation Study"},{"id":"mag:2520045014","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12815907","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2334718504","https://openalex.org/W2012924322","https://openalex.org/W1988225059","https://openalex.org/W2048237162","https://openalex.org/W2070177279","https://openalex.org/W4407378679","https://openalex.org/W2905924230","https://openalex.org/W2600785821","https://openalex.org/W2999660818","https://openalex.org/W4240845315"],"abstract_inverted_index":{"OBJECTIVE:":[0],"To":[1],"describe":[2],"our":[3],"experience":[4],"in":[5,103,127,168],"providing":[6,205],"a":[7,21,29,45,52,67,114,117,145,202,213,226,229],"program":[8,33,69,204],"of":[9,16,38,51,62,70,77,92,100,110,201],"structured":[10,203],"interdisciplinary":[11],"care":[12,37,73,211],"for":[13,34,85,171,223],"the":[14,35,60,75,97,128,149],"families":[15,39],"fetuses":[17,41],"prenatally":[18],"diagnosed":[19],"with":[20,40,59,116,228],"lethal":[22,46,53,120,230],"congenital":[23,231],"anomaly.":[24,121],"STUDY":[25],"DESIGN:":[26],"We":[27,88],"developed":[28],"comprehensive":[30],"\"perinatal":[31],"hospice\"":[32],"supportive":[36,72,209],"known":[42],"to":[43,125,190,218],"have":[44],"condition.":[47,232],"Upon":[48],"prenatal":[49],"diagnosis":[50],"fetal":[54,139],"condition,":[55],"parents":[56],"were":[57,152,194],"presented":[58],"option":[61],"elective":[63,220],"pregnancy":[64,221],"termination":[65,222],"versus":[66],"multi-disciplinary":[68],"ongoing":[71],"until":[74,81],"time":[76],"spontaneous":[78],"labor":[79],"or":[80,164],"delivery":[82,170],"was":[83],"required":[84],"obstetric":[86],"indications.":[87],"evaluated":[89],"patient":[90],"use":[91],"this":[93,104],"new":[94],"service":[95],"and":[96,141,158,176,215],"natural":[98],"history":[99],"pregnancies":[101],"managed":[102],"fashion.":[105],"RESULTS:":[106],"The":[107,199],"population":[108],"consisted":[109],"33":[111],"patients":[112,224],"carrying":[113,225],"fetus":[115,227],"clearly":[118],"delineated":[119],"Twenty-eight":[122],"(85%)":[123],"chose":[124],"participate":[126],"perinatal":[129,210],"hospice":[130],"program.":[131],"Of":[132],"these,":[133],"11/28":[134],"(39%)":[135],"had":[136],"an":[137],"intrauterine":[138],"death":[140],"17/28":[142],"(61%)":[143],"delivered":[144],"live-born":[146,150,184],"infant.":[147],"Among":[148],"infants":[151,185],"12":[153],"vaginal":[154],"deliveries,":[155],"4":[156,174],"preterm":[157,175],"8":[159],"at":[160,178],"term.":[161],"Obstetric":[162],"indications":[163],"maternal":[165,196],"request":[166],"resulted":[167],"cesarean":[169],"5/28":[172],"(18%),":[173],"1":[177],"term,":[179],"all":[180],"live":[181],"born.":[182],"All":[183],"died":[186],"within":[187],"20":[188],"minutes":[189],"2":[191],"months.":[192],"There":[193],"no":[195],"complications.":[197],"CONCLUSION:":[198],"availability":[200],"ongoing,":[206],"comprehensive,":[207],"multidisciplinary,":[208],"offers":[212],"tangible":[214],"safe":[216],"alternative":[217],"early":[219]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":1},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":6},{"year":2019,"cited_by_count":3},{"year":2017,"cited_by_count":3},{"year":2016,"cited_by_count":10},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":5},{"year":2013,"cited_by_count":6},{"year":2012,"cited_by_count":5}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-09-23T00:00:00"}