{"id":"https://openalex.org/W2503520511","doi":"https://doi.org/10.1017/cbo9780511584183.005","title":"Tracing genealogies of non-disclosure","display_name":"Tracing genealogies of non-disclosure","publication_year":2005,"publication_date":"2005-02-17","ids":{"openalex":"https://openalex.org/W2503520511","doi":"https://doi.org/10.1017/cbo9780511584183.005","mag":"2503520511"},"language":"en","primary_location":{"id":"doi:10.1017/cbo9780511584183.005","doi":"https://doi.org/10.1017/cbo9780511584183.005","is_oa":false,"landing_page_url":"https://doi.org/10.1017/cbo9780511584183.005","pdf_url":null,"source":{"id":"https://openalex.org/S4306462995","display_name":"Cambridge University Press eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Narrating the New Predictive Genetics","raw_type":"book-chapter"},"volume":{"id":"https://openalex.org/W4206733694","display_name":"Narrating the New Predictive Genetics"},"type":"book-chapter","is_traditional":true,"indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5083467249","display_name":"Monica Konrad","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I241749","display_name":"University of Cambridge","ror":"https://ror.org/013meh722","country_code":"GB","type":"education","lineage":["https://openalex.org/I241749"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Monica Konrad","raw_affiliation_strings":["University of Cambridge"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cambridge","institution_ids":["https://openalex.org/I241749"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5083467249"],"corresponding_institution_ids":["https://openalex.org/I241749"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":"87","last_page":"106"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.6338000297546387,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.6338000297546387,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13275","display_name":"Medical and Health Sciences Research","score":0.36079999804496765,"subfield":{"id":"https://openalex.org/subfields/3308","display_name":"Law"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.0019000000320374966,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/genetic-counseling","display_name":"genetic counseling","score":0.7620000243186951},{"id":"https://openalex.org/keywords/disclosure-to-family","display_name":"family disclosure","score":0.4259999990463257},{"id":"https://openalex.org/keywords/genetic-privacy","display_name":"genetic privacy","score":0.5529999732971191},{"id":"https://openalex.org/keywords/patient-confidentiality","display_name":"patient confidentiality","score":0.9359999895095825},{"id":"https://openalex.org/keywords/genetic-susceptibility","display_name":"genetic susceptibility","score":0.5199999809265137},{"id":"https://openalex.org/keywords/bioethics","display_name":"bioethics","score":0.5950000286102295},{"id":"https://openalex.org/keywords/right-to-privacy","display_name":"right to privacy","score":0.4869999885559082},{"id":"https://openalex.org/keywords/general-medical-council","display_name":"General Medical Council","score":0.46700000762939453}],"concepts":[{"id":"https://openalex.org/C71745522","wikidata":"https://www.wikidata.org/wiki/Q2476929","display_name":"Confidentiality","level":2,"score":0.5657521486282349},{"id":"https://openalex.org/C153180980","wikidata":"https://www.wikidata.org/wiki/Q19776675","display_name":"Commit","level":2,"score":0.55622398853302},{"id":"https://openalex.org/C144348335","wikidata":"https://www.wikidata.org/wiki/Q171318","display_name":"Kinship","level":2,"score":0.4966755509376526},{"id":"https://openalex.org/C2778447849","wikidata":"https://www.wikidata.org/wiki/Q2648051","display_name":"Obligation","level":2,"score":0.48975110054016113},{"id":"https://openalex.org/C2779103253","wikidata":"https://www.wikidata.org/wiki/Q878070","display_name":"Duty","level":2,"score":0.439167320728302},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.42976799607276917},{"id":"https://openalex.org/C61326887","wikidata":"https://www.wikidata.org/wiki/Q7333687","display_name":"Right to know","level":2,"score":0.42577776312828064},{"id":"https://openalex.org/C2777617010","wikidata":"https://www.wikidata.org/wiki/Q18957","display_name":"Mainstream","level":2,"score":0.4180395007133484},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.36082199215888977},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1017/cbo9780511584183.005","doi":"https://doi.org/10.1017/cbo9780511584183.005","is_oa":false,"landing_page_url":"https://doi.org/10.1017/cbo9780511584183.005","pdf_url":null,"source":{"id":"https://openalex.org/S4306462995","display_name":"Cambridge University Press eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Narrating the New Predictive Genetics","raw_type":"book-chapter"}],"best_oa_location":null,"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":299,"referenced_works":["https://openalex.org/W20160332","https://openalex.org/W34129854","https://openalex.org/W46942351","https://openalex.org/W70391858","https://openalex.org/W134169187","https://openalex.org/W135893421","https://openalex.org/W177941933","https://openalex.org/W181132972","https://openalex.org/W331799489","https://openalex.org/W578754558","https://openalex.org/W578838036","https://openalex.org/W580343720","https://openalex.org/W586593618","https://openalex.org/W587611280","https://openalex.org/W592511698","https://openalex.org/W595011233","https://openalex.org/W595843285","https://openalex.org/W597681605","https://openalex.org/W598170858","https://openalex.org/W598636766","https://openalex.org/W601168806","https://openalex.org/W615911085","https://openalex.org/W624655689","https://openalex.org/W624973821","https://openalex.org/W631419893","https://openalex.org/W638777757","https://openalex.org/W640700074","https://openalex.org/W647486602","https://openalex.org/W652028447","https://openalex.org/W1115200224","https://openalex.org/W1480223781","https://openalex.org/W1483292923","https://openalex.org/W1488111828","https://openalex.org/W1497177130","https://openalex.org/W1498373163","https://openalex.org/W1499931754","https://openalex.org/W1500829183","https://openalex.org/W1503903813","https://openalex.org/W1511334778","https://openalex.org/W1516862245","https://openalex.org/W1521027945","https://openalex.org/W1535683191","https://openalex.org/W1539390256","https://openalex.org/W1542305406","https://openalex.org/W1543112203","https://openalex.org/W1549246124","https://openalex.org/W1555110181","https://openalex.org/W1555408764","https://openalex.org/W1555424550","https://openalex.org/W1559834747","https://openalex.org/W1569494747","https://openalex.org/W1573125137","https://openalex.org/W1574547333","https://openalex.org/W1576372720","https://openalex.org/W1577244769","https://openalex.org/W1580192647","https://openalex.org/W1582448988","https://openalex.org/W1594291205","https://openalex.org/W1605196119","https://openalex.org/W1650019883","https://openalex.org/W1673940534","https://openalex.org/W1700422379","https://openalex.org/W1713405122","https://openalex.org/W1821089594","https://openalex.org/W1880656054","https://openalex.org/W1892874968","https://openalex.org/W1943122965","https://openalex.org/W1966213573","https://openalex.org/W1967752064","https://openalex.org/W1969463345","https://openalex.org/W1971646616","https://openalex.org/W1972071626","https://openalex.org/W1972815783","https://openalex.org/W1974711072","https://openalex.org/W1977101709","https://openalex.org/W1978981002","https://openalex.org/W1979332985","https://openalex.org/W1979746622","https://openalex.org/W1980881300","https://openalex.org/W1981727733","https://openalex.org/W1982186177","https://openalex.org/W1991616851","https://openalex.org/W1993833795","https://openalex.org/W1994049103","https://openalex.org/W1994264880","https://openalex.org/W1994859057","https://openalex.org/W1995669801","https://openalex.org/W1997544135","https://openalex.org/W1999078176","https://openalex.org/W2002277520","https://openalex.org/W2002520967","https://openalex.org/W2004433228","https://openalex.org/W2006295676","https://openalex.org/W2007441553","https://openalex.org/W2008413904","https://openalex.org/W2008475733","https://openalex.org/W2008982090","https://openalex.org/W2010719192","https://openalex.org/W2011229249","https://openalex.org/W2011366149","https://openalex.org/W2011572927","https://openalex.org/W2012014972","https://openalex.org/W2012657367","https://openalex.org/W2012758517","https://openalex.org/W2014163288","https://openalex.org/W2016028423","https://openalex.org/W2016038013","https://openalex.org/W2016755611","https://openalex.org/W2016992973","https://openalex.org/W2020058814","https://openalex.org/W2020665721","https://openalex.org/W2024508797","https://openalex.org/W2026560489","https://openalex.org/W2028533923","https://openalex.org/W2028770837","https://openalex.org/W2028780962","https://openalex.org/W2030243970","https://openalex.org/W2031369095","https://openalex.org/W2031895031","https://openalex.org/W2033985767","https://openalex.org/W2034110233","https://openalex.org/W2040668627","https://openalex.org/W2042813863","https://openalex.org/W2044509498","https://openalex.org/W2046422685","https://openalex.org/W2048799188","https://openalex.org/W2051110977","https://openalex.org/W2051700667","https://openalex.org/W2054002220","https://openalex.org/W2054501544","https://openalex.org/W2058607431","https://openalex.org/W2059775185","https://openalex.org/W2062633129","https://openalex.org/W2063792498","https://openalex.org/W2064922621","https://openalex.org/W2066327574","https://openalex.org/W2068555231","https://openalex.org/W2069134555","https://openalex.org/W2072107919","https://openalex.org/W2072599461","https://openalex.org/W2076233096","https://openalex.org/W2078016745","https://openalex.org/W2079884154","https://openalex.org/W2081394568","https://openalex.org/W2082085143","https://openalex.org/W2082174643","https://openalex.org/W2083213068","https://openalex.org/W2085005286","https://openalex.org/W2085232140","https://openalex.org/W2085650708","https://openalex.org/W2086041919","https://openalex.org/W2092117305","https://openalex.org/W2096090228","https://openalex.org/W2097222053","https://openalex.org/W2097764953","https://openalex.org/W2101587408","https://openalex.org/W2107940640","https://openalex.org/W2108268730","https://openalex.org/W2108538194","https://openalex.org/W2113479788","https://openalex.org/W2116551900","https://openalex.org/W2117306860","https://openalex.org/W2118541345","https://openalex.org/W2119062709","https://openalex.org/W2121642311","https://openalex.org/W2122359478","https://openalex.org/W2123565690","https://openalex.org/W2125125593","https://openalex.org/W2127230663","https://openalex.org/W2132644974","https://openalex.org/W2132737604","https://openalex.org/W2135411986","https://openalex.org/W2152132383","https://openalex.org/W2152400927","https://openalex.org/W2152987649","https://openalex.org/W2153051030","https://openalex.org/W2154371614","https://openalex.org/W2158480151","https://openalex.org/W2160499004","https://openalex.org/W2161475700","https://openalex.org/W2169229212","https://openalex.org/W2169978321","https://openalex.org/W2251262226","https://openalex.org/W2252485433","https://openalex.org/W2256716393","https://openalex.org/W2261212114","https://openalex.org/W2312515356","https://openalex.org/W2316969885","https://openalex.org/W2319077694","https://openalex.org/W2320454444","https://openalex.org/W2324563052","https://openalex.org/W2325585496","https://openalex.org/W2328086914","https://openalex.org/W2328855231","https://openalex.org/W2410892121","https://openalex.org/W2425892984","https://openalex.org/W2476783553","https://openalex.org/W2481809297","https://openalex.org/W2489781825","https://openalex.org/W2494685208","https://openalex.org/W2495116523","https://openalex.org/W2500394570","https://openalex.org/W2503822895","https://openalex.org/W2505308765","https://openalex.org/W2524355969","https://openalex.org/W2590775499","https://openalex.org/W2601157152","https://openalex.org/W2748664597","https://openalex.org/W2769888961","https://openalex.org/W2789724363","https://openalex.org/W2795839658","https://openalex.org/W2798557018","https://openalex.org/W2798585899","https://openalex.org/W2800661498","https://openalex.org/W2915192087","https://openalex.org/W2998817284","https://openalex.org/W3000533566","https://openalex.org/W3044274846","https://openalex.org/W3100366248","https://openalex.org/W3125490675","https://openalex.org/W3127702745","https://openalex.org/W3203931103","https://openalex.org/W4207081475","https://openalex.org/W4213007167","https://openalex.org/W4229893953","https://openalex.org/W4230253640","https://openalex.org/W4230476588","https://openalex.org/W4231671087","https://openalex.org/W4232065101","https://openalex.org/W4234087482","https://openalex.org/W4236928391","https://openalex.org/W4236928688","https://openalex.org/W4237440129","https://openalex.org/W4240346482","https://openalex.org/W4243204288","https://openalex.org/W4245163827","https://openalex.org/W4246924241","https://openalex.org/W4247095251","https://openalex.org/W4247321322","https://openalex.org/W4248551236","https://openalex.org/W4251475812","https://openalex.org/W4251606277","https://openalex.org/W4254110988","https://openalex.org/W4254282282","https://openalex.org/W4254574065","https://openalex.org/W4254915797","https://openalex.org/W4255019059","https://openalex.org/W4255502875","https://openalex.org/W4285719527","https://openalex.org/W4298309871","https://openalex.org/W4388066864","https://openalex.org/W4388285823","https://openalex.org/W4388359000","https://openalex.org/W4389695184","https://openalex.org/W4392810530","https://openalex.org/W4403298601","https://openalex.org/W6601964678","https://openalex.org/W6602497640","https://openalex.org/W6603026990","https://openalex.org/W6603617501","https://openalex.org/W6603823982","https://openalex.org/W6606189858","https://openalex.org/W6610419330","https://openalex.org/W6615560940","https://openalex.org/W6616808537","https://openalex.org/W6630147267","https://openalex.org/W6633468821","https://openalex.org/W6634433586","https://openalex.org/W6634963830","https://openalex.org/W6635256476","https://openalex.org/W6645163782","https://openalex.org/W6657425063","https://openalex.org/W6658659540","https://openalex.org/W6687452916","https://openalex.org/W6687646576","https://openalex.org/W6688229076","https://openalex.org/W6698027897","https://openalex.org/W6716714327","https://openalex.org/W6751014594","https://openalex.org/W6755293483","https://openalex.org/W6758744580","https://openalex.org/W6784950723","https://openalex.org/W6801977433","https://openalex.org/W6806468717","https://openalex.org/W6808533516","https://openalex.org/W6811449864","https://openalex.org/W6816343013","https://openalex.org/W6827856188","https://openalex.org/W6857927992","https://openalex.org/W6987048395","https://openalex.org/W6987280813","https://openalex.org/W6991388917","https://openalex.org/W7009786183","https://openalex.org/W7011741825","https://openalex.org/W7014253274","https://openalex.org/W7020495812","https://openalex.org/W7034347761","https://openalex.org/W7062432749","https://openalex.org/W7066466757"],"related_works":["https://openalex.org/W1959992307","https://openalex.org/W2168694756","https://openalex.org/W7097440673","https://openalex.org/W1526960633","https://openalex.org/W2031369095","https://openalex.org/W2219759880","https://openalex.org/W2138146185","https://openalex.org/W2223788267","https://openalex.org/W2160271201","https://openalex.org/W7212641164"],"abstract_inverted_index":{"Dilemmas":[0],"of":[1,11,45,107,120,124,188,204,210,227],"truth":[2],"telling":[3],"in":[4,97,132,241,254],"conventional":[5],"bioethics":[6],"Despite":[7],"the":[8,102,108,155,159,181,186,189,196,198,235,242,245],"declared":[9],"ideals":[10],"\u2018non-directive\u2019":[12],"genetic":[13,54,211],"counselling,":[14],"testees":[15],"with":[16],"a":[17,42,121,147,168],"detected":[18],"predisposition":[19],"may":[20,40,135,251],"often":[21],"find":[22],"themselves":[23,74],"encouraged":[24],"by":[25,94,234,244],"practitioners":[26],"to":[27,33,52,56,77,110,128,139,146,167,192,214,231],"believe":[28],"it":[29,89,134],"would":[30],"be":[31,136,215,232,252,260],"best":[32],"inform":[34],"direct":[35],"\u2018blood\u2019":[36],"relatives":[37],"they":[38],"too":[39],"face":[41],"shared":[43],"risk":[44],"developing":[46],"future":[47],"illness.":[48],"This":[49,115],"purported":[50],"\u2018obligation\u2019":[51],"disclose":[53,140],"information":[55,141],"other":[57,197],"family":[58],"members":[59],"is,":[60],"however,":[61],"more":[62,236],"presumed":[63,137],"an":[64,68],"ethical":[65],"virtue":[66],"than":[67],"indigenously":[69],"formulated":[70],"kinship":[71],"duty":[72],"people":[73],"are":[75,222],"moved":[76],"articulate":[78],"(see":[79],"Suter":[80],"1993;":[81],"Zimmerli":[82],"1990;":[83],"Higgs":[84],"1998;":[85],"Jackson":[86],"2001).":[87],"Moreover":[88],"is":[90,143,185],"one":[91,182],"underscored":[92],"institutionally":[93],"converging":[95],"debates":[96],"mainstream":[98],"biomedical":[99],"ethics":[100],"on":[101,195],"social":[103],"responsibility":[104],"or":[105],"otherwise":[106],"clinician":[109],"commit":[111],"so-called":[112],"\u2018unsolicited":[113],"disclosure\u2019.":[114],"latter":[116],"principle":[117],"evolves":[118],"out":[119],"particular":[122],"rationale":[123],"decision-making":[125],"that":[126,142,175,220,249],"seeks":[127],"identify":[129],"those":[130],"circumstances":[131],"which":[133],"right":[138,191,203],"genetically":[144],"relevant":[145],"relative":[148],"(for":[149],"example,":[150],"siblings":[151],"and":[152,194,201],"cousins)":[153],"without":[154],"prior":[156],"consent":[157],"from":[158,262],"original":[160],"testee.":[161],"In":[162],"this":[163],"sense,":[164],"unsolicited":[165],"disclosure":[166],"third":[169],"party":[170],"sets":[171],"up":[172],"moral":[173],"dilemmas":[174],"quite":[176],"obviously":[177],"divide":[178],"persons.":[179],"On":[180],"hand":[183],"there":[184,221],"assumption":[187],"testee's":[190],"privacy,":[193],"competing":[199],"interests":[200],"assumed":[202],"untested":[205],"kin,":[206],"as":[207],"prospective":[208],"recipients":[209],"information,":[212],"not":[213],"told.":[216],"The":[217],"absolutist":[218],"view":[219],"no":[223],"instances":[224],"justifying":[225],"breaches":[226],"medical":[228],"confidentiality":[229],"appears":[230],"mitigated":[233],"widely":[237],"supported":[238],"stance,":[239],"endorsed":[240],"UK":[243],"General":[246],"Medical":[247],"Council,":[248],"exceptions":[250],"permissible":[253],"cases":[255],"where":[256],"somebody":[257],"else":[258],"will":[259],"protected":[261],"serious":[263],"harm.":[264]},"counts_by_year":[],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-08-23T00:00:00"}