{"id":"https://openalex.org/W2496936907","doi":"https://doi.org/10.2190/fae","title":"Fading Away: The Experience of Transition in Families With Terminal Illness","display_name":"Fading Away: The Experience of Transition in Families With Terminal Illness","publication_year":1995,"publication_date":"1995-01-01","ids":{"openalex":"https://openalex.org/W2496936907","doi":"https://doi.org/10.2190/fae","mag":"2496936907"},"language":"en","primary_location":{"id":"doi:10.2190/fae","doi":"https://doi.org/10.2190/fae","is_oa":false,"landing_page_url":"https://doi.org/10.2190/fae","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":null,"raw_type":"monograph"},"volume":null,"type":"book","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5112201515","display_name":"Bettty Davies","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bettty Davies","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111761827","display_name":"Joanne Chekryn Reimer","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Joanne Chekryn Reimer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"pamela Brown","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"pamela Brown","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5097970518","display_name":"Nola Marten","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nola Marten","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":4.8688,"has_fulltext":false,"cited_by_count":38,"citation_normalized_percentile":{"value":0.94679565,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":96},"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.5835000276565552,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.5835000276565552,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.22120000422000885,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.11190000176429749,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/terminal-illness","display_name":"terminal illness","score":0.9819999933242798},{"id":"https://openalex.org/keywords/cancer","display_name":"cancer","score":0.7979999780654907},{"id":"https://openalex.org/keywords/family-transitions","display_name":"family transitions","score":0.6179999709129333},{"id":"https://openalex.org/keywords/family-coping","display_name":"family coping","score":0.4659999907016754},{"id":"https://openalex.org/keywords/spouses","display_name":"spouses","score":0.46399998664855957},{"id":"https://openalex.org/keywords/adult-children","display_name":"adult children","score":0.9200000166893005},{"id":"https://openalex.org/keywords/family-systems","display_name":"family systems","score":0.5479999780654907},{"id":"https://openalex.org/keywords/grief","display_name":"grief","score":0.37700000405311584},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.6909999847412109},{"id":"https://openalex.org/keywords/family-support-services","display_name":"family support services","score":0.4620000123977661}],"concepts":[{"id":"https://openalex.org/C2779664074","wikidata":"https://www.wikidata.org/wiki/Q3518405","display_name":"Terminal (telecommunication)","level":2,"score":0.7687336802482605},{"id":"https://openalex.org/C81978471","wikidata":"https://www.wikidata.org/wiki/Q1196572","display_name":"Fading","level":3,"score":0.7252885103225708},{"id":"https://openalex.org/C194232998","wikidata":"https://www.wikidata.org/wiki/Q1606712","display_name":"Transition (genetics)","level":3,"score":0.640031635761261},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.40440914034843445},{"id":"https://openalex.org/C76155785","wikidata":"https://www.wikidata.org/wiki/Q418","display_name":"Telecommunications","level":1,"score":0.36223304271698},{"id":"https://openalex.org/C53553401","wikidata":"https://www.wikidata.org/wiki/Q47307","display_name":"Genealogy","level":1,"score":0.33069050312042236},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.23541930317878723},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.22592556476593018},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.15192747116088867},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.10512033104896545},{"id":"https://openalex.org/C104317684","wikidata":"https://www.wikidata.org/wiki/Q7187","display_name":"Gene","level":2,"score":0.0},{"id":"https://openalex.org/C57273362","wikidata":"https://www.wikidata.org/wiki/Q576722","display_name":"Decoding methods","level":2,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.2190/fae","doi":"https://doi.org/10.2190/fae","is_oa":false,"landing_page_url":"https://doi.org/10.2190/fae","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":null,"raw_type":"monograph"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/879886","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10822/879886","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"eweb:148026","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.6240000128746033}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4238421231","https://openalex.org/W6995843444","https://openalex.org/W2409441056","https://openalex.org/W7119332050","https://openalex.org/W2519513931","https://openalex.org/W2801537500","https://openalex.org/W4247499132","https://openalex.org/W4241077352","https://openalex.org/W7135846777","https://openalex.org/W4388358337"],"abstract_inverted_index":{"This":[0],"book":[1,95],"comes":[2],"out":[3],"of":[4,9,12,21,31,51,60,72,77,86,121],"an":[5],"in-depth,":[6],"qualitative":[7],"study":[8,24],"the":[10,29,35,49,73,75,106,111,118],"experiences":[11,123],"twenty-three":[13],"families":[14,125,139],"in":[15,84],"which":[16,89],"one":[17],"parent":[18],"was":[19,80],"dying":[20],"cancer.":[22,133],"The":[23,94,134],"attempted":[25],"to":[26,41,54,91,116,141,146],"better":[27],"understand":[28],"impact":[30],"terminal":[32,130],"illness":[33],"on":[34],"entire":[36],"family":[37],"system":[38],"and":[39,52,65,82],"sought":[40],"develop":[42],"a":[43,58,98],"theoretical":[44],"framework":[45],"that":[46,108,124],"would":[47],"guide":[48],"assessment":[50],"services":[53],"such":[55,153],"families.":[56,154],"As":[57],"result":[59],"interviews":[61],"with":[62,113,129,152],"patients,":[63],"spouses":[64],"their":[66],"adult":[67],"children":[68],"over":[69],"three":[70],"phases":[71,88],"study,":[74,112],"process":[76],"fading":[78],"away":[79],"identified":[81],"conceptualized":[83],"terms":[85],"various":[87],"contributed":[90],"this":[92],"process.":[93],"is":[96],"not":[97],"research":[99],"report":[100],"but":[101],"rather":[102],"presents":[103],"more":[104],"generally":[105],"ideas":[107],"developed":[109],"from":[110],"two":[114],"purposes:":[115],"increase":[117],"reader's":[119],"understanding":[120],"particular":[122],"encounter":[126],"when":[127],"dealing":[128],"illness,":[131],"specifically":[132],"intended":[135],"readership":[136],"also":[137],"includes":[138],"themselves:":[140],"propose":[142],"guidelines":[143],"for":[144],"care":[145],"be":[147],"considered":[148],"by":[149],"practitioners":[150],"working":[151]},"counts_by_year":[{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":1},{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":2},{"year":2012,"cited_by_count":2}],"updated_date":"2026-10-14T16:39:01.820549","created_date":"2016-08-23T00:00:00"}