{"id":"https://openalex.org/W2493481028","doi":null,"title":"Accessing Supportive Services: Parents Caring for Children with Autism Spectrum Disorder","display_name":"Accessing Supportive Services: Parents Caring for Children with Autism Spectrum Disorder","publication_year":2016,"publication_date":"2016-01-01","ids":{"openalex":"https://openalex.org/W2493481028","mag":"2493481028"},"language":"en","primary_location":{"id":"pmh:oai:ir.stthomas.edu:ssw_mstrp-1549","doi":null,"is_oa":true,"landing_page_url":"https://ir.stthomas.edu/ssw_mstrp/550","pdf_url":"https://ir.stthomas.edu/ssw_mstrp/550","source":{"id":"https://openalex.org/S4377196573","display_name":"UST Research Online (University of St. Thomas - Minnesota)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I161515732","host_organization_name":"University of St. Thomas - Minnesota","host_organization_lineage":["https://openalex.org/I161515732"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Social Work Master\u2019s Clinical Research Papers","raw_type":"text"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://ir.stthomas.edu/ssw_mstrp/550","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Karen Keegan","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Karen Keegan","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":93},"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.000699999975040555,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/autism-spectrum-disorder","display_name":"autism spectrum disorder","score":0.9980000257492065},{"id":"https://openalex.org/keywords/parents-of-children-with-autism","display_name":"parents of autistic children","score":0.8450000286102295},{"id":"https://openalex.org/keywords/service-navigation","display_name":"service navigation","score":0.75},{"id":"https://openalex.org/keywords/caregiver-challenges","display_name":"caregiver challenges","score":0.4819999933242798},{"id":"https://openalex.org/keywords/service-gaps","display_name":"service gaps","score":0.5109999775886536},{"id":"https://openalex.org/keywords/service-coordination","display_name":"service coordination","score":0.7179999947547913},{"id":"https://openalex.org/keywords/service-costs","display_name":"service costs","score":0.7379999756813049},{"id":"https://openalex.org/keywords/social-work-advocacy","display_name":"social work advocacy","score":0.7710000276565552},{"id":"https://openalex.org/keywords/family-support","display_name":"family support","score":0.4050000011920929}],"concepts":[{"id":"https://openalex.org/C2778538070","wikidata":"https://www.wikidata.org/wiki/Q1436063","display_name":"Autism spectrum disorder","level":3,"score":0.7986791133880615},{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.4975772202014923},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.49210065603256226},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.37362736463546753},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.34333184361457825}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:ir.stthomas.edu:ssw_mstrp-1549","doi":null,"is_oa":true,"landing_page_url":"https://ir.stthomas.edu/ssw_mstrp/550","pdf_url":"https://ir.stthomas.edu/ssw_mstrp/550","source":{"id":"https://openalex.org/S4377196573","display_name":"UST Research Online (University of St. Thomas - Minnesota)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I161515732","host_organization_name":"University of St. Thomas - Minnesota","host_organization_lineage":["https://openalex.org/I161515732"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Social Work Master\u2019s Clinical Research Papers","raw_type":"text"},{"id":"pmh:oai:sophia.stkate.edu:msw_papers-1615","doi":null,"is_oa":false,"landing_page_url":"https://sophia.stkate.edu/msw_papers/612","pdf_url":null,"source":{"id":"https://openalex.org/S4377196708","display_name":"SOPHIA (St. Catherine University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I142767807","host_organization_name":"St. Catherine University","host_organization_lineage":["https://openalex.org/I142767807"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Master of Social Work Clinical Research Papers","raw_type":"text"},{"id":"mag:2493481028","doi":null,"is_oa":false,"landing_page_url":"https://ir.stthomas.edu/cgi/viewcontent.cgi?article=1549&context=ssw_mstrp","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:ir.stthomas.edu:ssw_mstrp-1549","doi":null,"is_oa":true,"landing_page_url":"https://ir.stthomas.edu/ssw_mstrp/550","pdf_url":"https://ir.stthomas.edu/ssw_mstrp/550","source":{"id":"https://openalex.org/S4377196573","display_name":"UST Research Online (University of St. Thomas - Minnesota)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I161515732","host_organization_name":"University of St. Thomas - Minnesota","host_organization_lineage":["https://openalex.org/I161515732"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Social Work Master\u2019s Clinical Research Papers","raw_type":"text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.8048999905586243,"display_name":"Good health and well-being"},{"id":"https://metadata.un.org/sdg/10","score":0.7578999996185303,"display_name":"Reduced inequalities"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2493481028.pdf","grobid_xml":"https://content.openalex.org/works/W2493481028.grobid-xml"},"referenced_works_count":21,"referenced_works":["https://openalex.org/W1594891231","https://openalex.org/W1606592567","https://openalex.org/W1974410820","https://openalex.org/W1990655907","https://openalex.org/W2000923790","https://openalex.org/W2028026249","https://openalex.org/W2036335868","https://openalex.org/W2040102552","https://openalex.org/W2051903180","https://openalex.org/W2057903950","https://openalex.org/W2060637777","https://openalex.org/W2077271076","https://openalex.org/W2092060359","https://openalex.org/W2097220050","https://openalex.org/W2106494608","https://openalex.org/W2110585924","https://openalex.org/W2120181870","https://openalex.org/W2133652908","https://openalex.org/W2141742777","https://openalex.org/W2154650119","https://openalex.org/W3217456081"],"related_works":["https://openalex.org/W7019150815","https://openalex.org/W3189439136","https://openalex.org/W2169968033","https://openalex.org/W7171317294","https://openalex.org/W3162780550","https://openalex.org/W4412127624","https://openalex.org/W2998396513","https://openalex.org/W2942376782","https://openalex.org/W7056309214","https://openalex.org/W2409345701"],"abstract_inverted_index":{"This":[0,71],"qualitative":[1],"research":[2,31],"study":[3],"focuses":[4],"on":[5],"exploring":[6],"parent's":[7],"strengths,":[8],"challenges,":[9],"and":[10,40,59,64,100,115,119,126,152,159,189,193],"experiences":[11],"of":[12,68,88,95,98,117,187,198],"accessing":[13,139],"supportive":[14,37,140],"services":[15],"when":[16,46],"caring":[17],"for":[18,44,50,107,122,128,162],"a":[19,66,108,133,170],"child":[20,52],"with":[21,53,82,90,113],"Autism":[22],"Spectrum":[23],"Disorder":[24],"(ASD),":[25],"also":[26,166],"known":[27],"as":[28,136],"autism.":[29],"Previous":[30],"has":[32],"discovered":[33],"gaps":[34,78],"involving":[35],"resource":[36],"services,":[38,96,118],"navigation,":[39],"formal":[41],"support":[42,194],"systems":[43,186],"parents":[45],"seeking":[47],"additional":[48],"care":[49,92,192],"their":[51],"ASD.":[54,131],"Four":[55],"caregivers":[56],"(three":[57],"women":[58],"one":[60],"man)":[61],"were":[62],"recruited":[63],"completed":[65],"series":[67],"interview":[69],"questions.":[70],"study's":[72],"findings":[73],"suggest":[74],"that":[75],"the":[76,86,105,120,148,154,174,184,195],"above":[77],"remain":[79],"present":[80],"along":[81],"challenges":[83],"ranging":[84],"from":[85,103],"difficulties":[87],"interacting":[89],"other":[91],"systems,":[93],"cost":[94],"lack":[97],"knowledge":[99],"service":[101,141,160],"delivery":[102],"professionals,":[104],"need":[106,167],"key":[109],"worker":[110],"to":[111,137,150,168,179],"assist":[112,144],"navigation":[114],"coordination":[116],"desire":[121],"more":[123],"general":[124],"awareness":[125],"empathy":[127],"those":[129],"managing":[130],"Acquiring":[132],"better":[134],"perspective":[135],"what":[138],"involves":[142],"will":[143],"professionals":[145],"working":[146],"within":[147,173],"field":[149],"advocate":[151],"identify":[153],"most":[155],"effective":[156],"treatment":[157],"options":[158],"needs":[161,197],"families.":[163],"Social":[164],"workers":[165],"have":[169],"louder":[171],"voice":[172],"ASD":[175],"community":[176],"in":[177,183],"order":[178],"help":[180],"create":[181],"change":[182],"larger":[185],"medical":[188],"metal":[190],"health":[191],"individual":[196],"all":[199],"families":[200],"served.":[201]},"counts_by_year":[{"year":2020,"cited_by_count":1}],"updated_date":"2026-09-29T14:09:16.559479","created_date":"2016-08-23T00:00:00"}