{"id":"https://openalex.org/W2414196897","doi":null,"title":"Patient autonomy in highly technological care environments from a caring perspective","display_name":"Patient autonomy in highly technological care environments from a caring perspective","publication_year":2016,"publication_date":"2016-01-01","ids":{"openalex":"https://openalex.org/W2414196897","mag":"2414196897"},"language":"en","primary_location":{"id":"pmh:oai:lup.lub.lu.se:2daff1db-74a7-4cb3-9241-907721ca2ee1","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","pdf_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/doctoralThesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5043363948","display_name":"Catharina Lindberg","orcid":"https://orcid.org/0000-0001-7552-2717","observed_orcids":["https://orcid.org/0000-0001-7552-2717"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Catharina Lindberg","raw_affiliation_strings":["Care in high technological environments"],"raw_orcid":"https://orcid.org/0000-0001-7552-2717","affiliations":[{"raw_affiliation_string":"Care in high technological environments","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5043363948"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.44920000433921814,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.44920000433921814,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.26100000739097595,"subfield":{"id":"https://openalex.org/subfields/2910","display_name":"Issues, ethics and legal aspects"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.0731000006198883,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-autonomy","display_name":"patient autonomy","score":1.0},{"id":"https://openalex.org/keywords/24-hour-home-care","display_name":"24-hour home care","score":0.8799999952316284},{"id":"https://openalex.org/keywords/informal-caregivers","display_name":"informal caregivers","score":0.6179999709129333},{"id":"https://openalex.org/keywords/professional-caregivers","display_name":"professional caregivers","score":0.6340000033378601},{"id":"https://openalex.org/keywords/critical-care","display_name":"intensive care","score":0.4320000112056732},{"id":"https://openalex.org/keywords/activities-of-daily-living","display_name":"activities of daily living","score":0.722000002861023},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.6010000109672546}],"concepts":[{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.72270268201828},{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.6714718341827393},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.40282517671585083},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.34795352816581726},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.335299015045166},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.23988765478134155},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.22464993596076965},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.2098318338394165},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.08676004409790039},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:lup.lub.lu.se:2daff1db-74a7-4cb3-9241-907721ca2ee1","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","pdf_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"pmh:oai:DiVA.org:bth-16941","doi":null,"is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:bth-16941","pdf_url":null,"source":{"id":"https://openalex.org/S4306400653","display_name":"Diva portal (Dalarna University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:2414196897","doi":null,"is_oa":false,"landing_page_url":"http://portal.research.lu.se/portal/files/7718604/2016_Lindberg_Thesis_160502c_hel.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:lup.lub.lu.se:2daff1db-74a7-4cb3-9241-907721ca2ee1","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","pdf_url":"https://lup.lub.lu.se/record/2daff1db-74a7-4cb3-9241-907721ca2ee1","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"score":0.8048999905586243,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320321806","display_name":"Lunds Universitet","ror":"https://ror.org/012a77v79"},{"id":"https://openalex.org/F4320323521","display_name":"Malm\u00f6 H\u00f6gskola","ror":"https://ror.org/05wp7an13"},{"id":"https://openalex.org/F4320323802","display_name":"Blekinge Tekniska H\u00f6gskola","ror":"https://ror.org/0093a8w51"},{"id":"https://openalex.org/F4320335189","display_name":"Medicinska Fakulteten, Lunds Universitet","ror":"https://ror.org/012a77v79"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2414196897.pdf","grobid_xml":"https://content.openalex.org/works/W2414196897.grobid-xml"},"referenced_works_count":123,"referenced_works":["https://openalex.org/W75285703","https://openalex.org/W107727620","https://openalex.org/W115394847","https://openalex.org/W260023816","https://openalex.org/W330433351","https://openalex.org/W337068301","https://openalex.org/W360662306","https://openalex.org/W614732466","https://openalex.org/W642900393","https://openalex.org/W643056562","https://openalex.org/W1494568009","https://openalex.org/W1501227081","https://openalex.org/W1502456417","https://openalex.org/W1518124940","https://openalex.org/W1521578411","https://openalex.org/W1526281386","https://openalex.org/W1529883169","https://openalex.org/W1551305098","https://openalex.org/W1563617400","https://openalex.org/W1730782518","https://openalex.org/W1737924424","https://openalex.org/W1758493054","https://openalex.org/W1781499648","https://openalex.org/W1795124264","https://openalex.org/W1818108526","https://openalex.org/W1832269656","https://openalex.org/W1854007762","https://openalex.org/W1876468334","https://openalex.org/W1897910390","https://openalex.org/W1956305629","https://openalex.org/W1965744767","https://openalex.org/W1972450888","https://openalex.org/W1974192454","https://openalex.org/W1976404358","https://openalex.org/W1976569373","https://openalex.org/W1981653122","https://openalex.org/W1982166786","https://openalex.org/W1994772931","https://openalex.org/W1996055918","https://openalex.org/W2000006361","https://openalex.org/W2000189306","https://openalex.org/W2000975783","https://openalex.org/W2003562430","https://openalex.org/W2004779221","https://openalex.org/W2007565970","https://openalex.org/W2007747359","https://openalex.org/W2011184140","https://openalex.org/W2013907208","https://openalex.org/W2015650321","https://openalex.org/W2015775995","https://openalex.org/W2018082787","https://openalex.org/W2019354963","https://openalex.org/W2027592705","https://openalex.org/W2028770837","https://openalex.org/W2032112640","https://openalex.org/W2033146377","https://openalex.org/W2033952602","https://openalex.org/W2042385804","https://openalex.org/W2043758039","https://openalex.org/W2047728139","https://openalex.org/W2050021177","https://openalex.org/W2051665553","https://openalex.org/W2060036508","https://openalex.org/W2067404301","https://openalex.org/W2068612051","https://openalex.org/W2069714885","https://openalex.org/W2072655527","https://openalex.org/W2073652104","https://openalex.org/W2076266284","https://openalex.org/W2077542711","https://openalex.org/W2077813679","https://openalex.org/W2082655573","https://openalex.org/W2087089872","https://openalex.org/W2087271687","https://openalex.org/W2089037899","https://openalex.org/W2092068888","https://openalex.org/W2097341864","https://openalex.org/W2098389703","https://openalex.org/W2098887659","https://openalex.org/W2102849997","https://openalex.org/W2105983924","https://openalex.org/W2107819237","https://openalex.org/W2116060050","https://openalex.org/W2116540558","https://openalex.org/W2118105399","https://openalex.org/W2121292074","https://openalex.org/W2123329023","https://openalex.org/W2126726163","https://openalex.org/W2126818168","https://openalex.org/W2128810989","https://openalex.org/W2133395868","https://openalex.org/W2137821596","https://openalex.org/W2142225512","https://openalex.org/W2143023968","https://openalex.org/W2143315546","https://openalex.org/W2143836636","https://openalex.org/W2144195145","https://openalex.org/W2150052475","https://openalex.org/W2152134706","https://openalex.org/W2152272995","https://openalex.org/W2153250045","https://openalex.org/W2159738893","https://openalex.org/W2159983377","https://openalex.org/W2162598204","https://openalex.org/W2163293762","https://openalex.org/W2164843028","https://openalex.org/W2169083805","https://openalex.org/W2170471379","https://openalex.org/W2171247689","https://openalex.org/W2243130221","https://openalex.org/W2276071375","https://openalex.org/W2317203793","https://openalex.org/W2338884106","https://openalex.org/W2406259006","https://openalex.org/W2408834133","https://openalex.org/W2480093726","https://openalex.org/W2582514223","https://openalex.org/W2592772787","https://openalex.org/W2790841064","https://openalex.org/W2953401705","https://openalex.org/W2980048202","https://openalex.org/W2993948862","https://openalex.org/W3027818905"],"related_works":["https://openalex.org/W1822394165","https://openalex.org/W4249764071","https://openalex.org/W2316449328","https://openalex.org/W1876468334","https://openalex.org/W2423460543","https://openalex.org/W2411508362","https://openalex.org/W7167386141","https://openalex.org/W205166913","https://openalex.org/W4385010661","https://openalex.org/W2162589499"],"abstract_inverted_index":{"Advanced":[0],"home":[1,5,86,128,133],"careCare":[2],"provided":[3,22,83,131],"at":[4,45,126,132],"including":[6,91],"advanced":[7],"medical":[8],"technology,":[9],"either":[10],"managed":[11],"by":[12,23,88],"the":[13,28,32,37,46,48,52,56,58,85,102,121],"patient,":[14,57],"with":[15],"support":[16],"from":[17],"formal/informal":[18,24],"caregivers,":[19,90,135],"or":[20,41,125],"fully":[21],"caregivers.Responsible":[25],"authority":[26,100],"is":[27,34,101],"municipality,":[29],"or,":[30],"if":[31],"care":[33,39,53,81,123,129,138],"linked":[35],"to":[36,42,137],"palliative":[38],"team":[40],"nurse-led":[43],"clinics":[44],"hospital,":[47],"county":[49],"councils/regions.Depending":[50],"on":[51],"needs":[54,139,141],"of":[55,93,108,116,142],"responsibility":[59],"could":[60],"also":[61],"be":[62],"divided":[63],"between":[64],"these":[65],"two":[66],"authorities.Carer":[67],"RNs,":[68,70],"specialist":[69],"auxiliary":[71],"nurses,":[72],"HC":[73],"assistants,":[74],"physiotherapist":[75],"Formal":[76],"carer":[77,79,104],"see":[78],"Home":[80],"Care":[82,130],"in":[84,114,120],"environment":[87],"employed":[89],"Activities":[92],"Daily":[94],"Living":[95],"(ADL)":[96],"and":[97,147],"health":[98],"care.Responsible":[99],"municipality.Informal":[103],"family":[105],"member,":[106],"next":[107],"kin":[109],"Patient":[110],"An":[111],"adult":[112],"person":[113],"need":[115],"highly":[117],"technological":[118],"care,":[119],"intensive":[122],"unit":[124],"home.24-hour":[127],"when":[134],"due":[136],"and/or":[140],"surveillance,":[143],"are":[144],"required":[145],"day":[146],"night.":[148]},"counts_by_year":[{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2016-06-24T00:00:00"}