{"id":"https://openalex.org/W2411225017","doi":null,"title":"Family-centered care and the anticipated death of a newborn.","display_name":"Family-centered care and the anticipated death of a newborn.","publication_year":1997,"publication_date":"1997-03-01","ids":{"openalex":"https://openalex.org/W2411225017","mag":"2411225017","pmid":"https://pubmed.ncbi.nlm.nih.gov/9165935"},"language":"en","primary_location":{"id":"pmid:9165935","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9165935","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric nursing","raw_type":"Case Reports"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"L Pearson","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I126218986","display_name":"Children's Hospital of Wisconsin","ror":"https://ror.org/049cbmb74","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I126218986"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"L Pearson","raw_affiliation_strings":["Children's Hospital, Milwaukee, WI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Children's Hospital, Milwaukee, WI, USA","institution_ids":["https://openalex.org/I126218986"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I126218986"],"apc_list":null,"apc_paid":null,"fwci":1.6968,"has_fulltext":false,"cited_by_count":51,"citation_normalized_percentile":{"value":0.86309085,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":93},"biblio":{"volume":"23","issue":"2","first_page":"178","last_page":"82"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.4912000000476837,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.4912000000476837,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.1632000058889389,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.15780000388622284,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-centered-care","display_name":"family-centered care","score":0.9959999918937683},{"id":"https://openalex.org/keywords/neonatal-death","display_name":"neonatal death","score":0.7599999904632568},{"id":"https://openalex.org/keywords/family-support","display_name":"family support","score":0.6119999885559082},{"id":"https://openalex.org/keywords/family-planning","display_name":"family planning","score":0.6359999775886536},{"id":"https://openalex.org/keywords/child-life-specialists","display_name":"child life specialists","score":0.6669999957084656},{"id":"https://openalex.org/keywords/family-involvement-in-care","display_name":"family involvement in care","score":0.5870000123977661}],"concepts":[{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.6176049709320068},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.5875170230865479},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4724369943141937},{"id":"https://openalex.org/C2780888467","wikidata":"https://www.wikidata.org/wiki/Q2858904","display_name":"Family centered care","level":3,"score":0.46397289633750916},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.44518938660621643},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.42063772678375244},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3929777443408966},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0786309540271759},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003643","descriptor_name":"Death","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D006301","descriptor_name":"Health Services Needs and Demand","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007231","descriptor_name":"Infant, Newborn","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010347","descriptor_name":"Patient Care Planning","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017283","descriptor_name":"Neonatal Nursing","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D018636","descriptor_name":"Hypoplastic Left Heart Syndrome","qualifier_ui":"Q000451","qualifier_name":"nursing","is_major_topic":true},{"descriptor_ui":"D018802","descriptor_name":"Patient-Centered Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"pmid:9165935","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9165935","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric nursing","raw_type":"Case Reports"},{"id":"mag:2411225017","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9165935","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9476000070571899,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W3002165067","https://openalex.org/W4248861485","https://openalex.org/W2201894858","https://openalex.org/W2019451868","https://openalex.org/W1988514043","https://openalex.org/W2466442536","https://openalex.org/W2402621499","https://openalex.org/W2472267838","https://openalex.org/W4210708265","https://openalex.org/W2200790891"],"abstract_inverted_index":{"Providing":[0],"support":[1],"for":[2,60,68,116],"a":[3],"family":[4,74],"whose":[5],"infant":[6],"is":[7],"expected":[8],"to":[9],"die":[10],"requires":[11],"planning":[12,59],"and":[13,34,71,82,90,103],"coordinated":[14],"intervention":[15],"by":[16,87],"members":[17],"of":[18,28,43,47,79,105,110],"the":[19,26,29,31,48,61,65,69,73,77,80,96,101,106],"health":[20,49],"care":[21,50],"team.":[22],"From":[23],"diagnosis":[24],"until":[25],"death":[27,81,104],"infant,":[30],"family's":[32,97,112],"choices":[33],"needs":[35],"must":[36],"be":[37],"integrated":[38],"into":[39],"an":[40],"acceptable":[41],"plan":[42],"care.":[44],"The":[45],"role":[46],"team":[51],"in":[52,100],"this":[53],"process":[54],"includes":[55],"four":[56],"principal":[57],"phases:":[58],"baby's":[62],"birth,":[63],"preparing":[64],"siblings,":[66],"caring":[67],"baby,":[70],"supporting":[72],"both":[75],"at":[76],"time":[78],"afterward.":[83],"Specific":[84],"strategies":[85],"used":[86],"physicians,":[88],"nurses,":[89],"child":[91],"life":[92],"specialists":[93],"can":[94],"encourage":[95],"full":[98],"participation":[99],"birth":[102],"infant.":[107],"A":[108],"description":[109],"one":[111],"experiences":[113],"highlights":[114],"implications":[115],"family-centered":[117],"practice.":[118]},"counts_by_year":[{"year":2015,"cited_by_count":1},{"year":2012,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}