{"id":"https://openalex.org/W2404886802","doi":null,"title":"The challenge of caring together End-of-life care for people with intellectual disabilities","display_name":"The challenge of caring together End-of-life care for people with intellectual disabilities","publication_year":2016,"publication_date":"2016-06-22","ids":{"openalex":"https://openalex.org/W2404886802","mag":"2404886802"},"language":"en","primary_location":{"id":"pmh:oai:dare.ubvu.vu.nl:1871/54431","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1871/54431","pdf_url":"http://hdl.handle.net/1871/54431","source":{"id":"https://openalex.org/S4306400546","display_name":"Digital Academic REpository of VU University Amsterdam (Vrije Universiteit Amsterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I865915315","host_organization_name":"Vrije Universiteit Amsterdam","host_organization_lineage":["https://openalex.org/I865915315"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Doctoral thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/1871/54431","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5044884455","display_name":"Nienke Bekkema","orcid":"https://orcid.org/0000-0002-3430-0103","observed_orcids":["https://orcid.org/0000-0002-3430-0103"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Nienke Bekkema","raw_affiliation_strings":["General practice"],"raw_orcid":"https://orcid.org/0000-0002-3430-0103","affiliations":[{"raw_affiliation_string":"General practice","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5044884455"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8740000128746033,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8740000128746033,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.06369999796152115,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.01810000091791153,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.9959999918937683},{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.9259999990463257},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.8100000023841858},{"id":"https://openalex.org/keywords/care-coordination","display_name":"care coordination","score":0.5019999742507935},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.5350000262260437},{"id":"https://openalex.org/keywords/advance-care-planning","display_name":"advance care planning","score":0.5180000066757202}],"concepts":[{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.6204596757888794},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.49131813645362854},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.46144619584083557},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4348777234554291},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3827148973941803},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3165706396102905},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.21070492267608643},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.15839096903800964}],"mesh":[],"locations_count":6,"locations":[{"id":"pmh:oai:dare.ubvu.vu.nl:1871/54431","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1871/54431","pdf_url":"http://hdl.handle.net/1871/54431","source":{"id":"https://openalex.org/S4306400546","display_name":"Digital Academic REpository of VU University Amsterdam (Vrije Universiteit Amsterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I865915315","host_organization_name":"Vrije Universiteit Amsterdam","host_organization_lineage":["https://openalex.org/I865915315"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Doctoral thesis"},{"id":"pmh:oai:pure.amsterdamumc.nl:openaire_cris_publications/835010e6-9503-489b-9c05-95175ddaca79","doi":null,"is_oa":true,"landing_page_url":"https://pure.amsterdamumc.nl/en/publications/835010e6-9503-489b-9c05-95175ddaca79","pdf_url":"https://pure.amsterdamumc.nl/ws/files/111412500/cover.pdf","source":{"id":"https://openalex.org/S7407055222","display_name":"Pure Amsterdam UMC","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Bekkema, N 2016, 'The challenge of caring together End-of-life care for people with intellectual disabilities', Doctor of Philosophy, VU University.","raw_type":"info:eu-repo/semantics/other"},{"id":"pmh:vumc:oai:pure.atira.dk:publications/b9163c9b-3959-4014-be4b-93bad1c9d8d2","doi":null,"is_oa":true,"landing_page_url":"https://research.vumc.nl/en/publications/b9163c9b-3959-4014-be4b-93bad1c9d8d2","pdf_url":"https://research.vumc.nl/en/publications/b9163c9b-3959-4014-be4b-93bad1c9d8d2","source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralthesis"},{"id":"pmh:nivel:publicat:1002925","doi":null,"is_oa":true,"landing_page_url":"https://www.nivel.nl/nl/publicaties/1002925","pdf_url":null,"source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":null},{"id":"pmh:vu:oai:research.vu.nl:publications/eba04b1f-5987-45c4-b03b-a5c9f5188baf","doi":null,"is_oa":true,"landing_page_url":"https://research.vu.nl/en/publications/eba04b1f-5987-45c4-b03b-a5c9f5188baf","pdf_url":null,"source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralthesis"},{"id":"mag:2404886802","doi":null,"is_oa":false,"landing_page_url":"https://research.vu.nl/ws/files/42158248/cover.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:dare.ubvu.vu.nl:1871/54431","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1871/54431","pdf_url":"http://hdl.handle.net/1871/54431","source":{"id":"https://openalex.org/S4306400546","display_name":"Digital Academic REpository of VU University Amsterdam (Vrije Universiteit Amsterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I865915315","host_organization_name":"Vrije Universiteit Amsterdam","host_organization_lineage":["https://openalex.org/I865915315"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Doctoral thesis"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2404886802.pdf","grobid_xml":"https://content.openalex.org/works/W2404886802.grobid-xml"},"referenced_works_count":57,"referenced_works":["https://openalex.org/W87671497","https://openalex.org/W647401798","https://openalex.org/W1499488732","https://openalex.org/W1519302612","https://openalex.org/W1562724318","https://openalex.org/W1657990885","https://openalex.org/W1896282806","https://openalex.org/W1922073626","https://openalex.org/W1931266317","https://openalex.org/W1968248966","https://openalex.org/W1976000522","https://openalex.org/W1976933332","https://openalex.org/W1977444176","https://openalex.org/W1996056272","https://openalex.org/W2015676214","https://openalex.org/W2018939793","https://openalex.org/W2021201846","https://openalex.org/W2029912636","https://openalex.org/W2038658198","https://openalex.org/W2045244070","https://openalex.org/W2046503950","https://openalex.org/W2051911613","https://openalex.org/W2053998747","https://openalex.org/W2064637865","https://openalex.org/W2065293171","https://openalex.org/W2082708734","https://openalex.org/W2090043267","https://openalex.org/W2096292446","https://openalex.org/W2098658171","https://openalex.org/W2101874224","https://openalex.org/W2106037840","https://openalex.org/W2107586965","https://openalex.org/W2113118460","https://openalex.org/W2114568860","https://openalex.org/W2115940849","https://openalex.org/W2117693644","https://openalex.org/W2118239967","https://openalex.org/W2119142419","https://openalex.org/W2122555597","https://openalex.org/W2125126305","https://openalex.org/W2136670154","https://openalex.org/W2141579070","https://openalex.org/W2144327345","https://openalex.org/W2144483425","https://openalex.org/W2147170937","https://openalex.org/W2162465953","https://openalex.org/W2163364337","https://openalex.org/W2163667765","https://openalex.org/W2168475473","https://openalex.org/W2170513936","https://openalex.org/W2172937406","https://openalex.org/W2196235423","https://openalex.org/W2316922808","https://openalex.org/W2329457746","https://openalex.org/W2394859780","https://openalex.org/W2590874900","https://openalex.org/W2971157838"],"related_works":["https://openalex.org/W2245714075","https://openalex.org/W2279784436","https://openalex.org/W2248227336","https://openalex.org/W7135639623","https://openalex.org/W1918696220","https://openalex.org/W2162465953","https://openalex.org/W7019062942","https://openalex.org/W6945692264","https://openalex.org/W2999154052","https://openalex.org/W2243824096"],"abstract_inverted_index":null,"counts_by_year":[],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2016-06-24T00:00:00"}