{"id":"https://openalex.org/W2394731580","doi":null,"title":"An analysis of research guidelines on the collection and use of human biological materials from American Indian and Alaskan Native communities.","display_name":"An analysis of research guidelines on the collection and use of human biological materials from American Indian and Alaskan Native communities.","publication_year":2002,"publication_date":"2002-01-01","ids":{"openalex":"https://openalex.org/W2394731580","mag":"2394731580","pmid":"https://pubmed.ncbi.nlm.nih.gov/15119331"},"language":"en","primary_location":{"id":"pmid:15119331","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15119331","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Jurimetrics","raw_type":"Journal Article"},"volume":null,"type":"article","indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5035716030","display_name":"Richard R. Sharp","orcid":"https://orcid.org/0000-0001-5441-2084","observed_orcids":["https://orcid.org/0000-0001-5441-2084"]},"institutions":[{"id":"https://openalex.org/I4210095140","display_name":"National Institute of Environmental Health Sciences","ror":"https://ror.org/00j4k1h63","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210095140"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Richard R Sharp","raw_affiliation_strings":["Program in Environmental Health Policy and Ethics, National Institute of Environmental Health Sciences, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Program in Environmental Health Policy and Ethics, National Institute of Environmental Health Sciences, USA","institution_ids":["https://openalex.org/I4210095140"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5109051343","display_name":"Morris W. Foster","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Morris W Foster","raw_affiliation_strings":["Cancer Prevention and Control"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cancer Prevention and Control","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.3942,"has_fulltext":false,"cited_by_count":18,"citation_normalized_percentile":{"value":0.84119804,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":96},"biblio":{"volume":"42","issue":"2","first_page":"165","last_page":"86"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9556000232696533,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9556000232696533,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10348","display_name":"Indigenous Health, Education, and Rights","score":0.03420000150799751,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12749","display_name":"Race, Genetics, and Society","score":0.006200000178068876,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/american-indian-and-alaska-native-communities","display_name":"American Indian and Alaska Native communities","score":0.8709999918937683},{"id":"https://openalex.org/keywords/human-biological-material","display_name":"human biological material","score":0.8970000147819519},{"id":"https://openalex.org/keywords/research-guidelines","display_name":"research guidelines","score":0.7720000147819519},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.6370000243186951},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.5329999923706055},{"id":"https://openalex.org/keywords/indigenous-peoples","display_name":"indigenous peoples","score":0.39800000190734863},{"id":"https://openalex.org/keywords/best-practices","display_name":"best practices","score":0.5730000138282776},{"id":"https://openalex.org/keywords/sample-collection-and-storage","display_name":"sample collection and storage","score":0.6000000238418579},{"id":"https://openalex.org/keywords/historically-disadvantaged-communities","display_name":"historically disadvantaged communities","score":0.7379999756813049}],"concepts":[{"id":"https://openalex.org/C55958113","wikidata":"https://www.wikidata.org/wiki/Q169480","display_name":"Indigenous","level":2,"score":0.7540543079376221},{"id":"https://openalex.org/C2777363581","wikidata":"https://www.wikidata.org/wiki/Q15098235","display_name":"Harm","level":2,"score":0.6993641257286072},{"id":"https://openalex.org/C2780623907","wikidata":"https://www.wikidata.org/wiki/Q106394435","display_name":"Disadvantaged","level":2,"score":0.5422099828720093},{"id":"https://openalex.org/C2984787389","wikidata":"https://www.wikidata.org/wiki/Q4915000","display_name":"Biological materials","level":2,"score":0.4663694500923157},{"id":"https://openalex.org/C514011633","wikidata":"https://www.wikidata.org/wiki/Q1428168","display_name":"Traditional knowledge","level":3,"score":0.4613931179046631},{"id":"https://openalex.org/C2992135444","wikidata":"https://www.wikidata.org/wiki/Q4232928","display_name":"Native american","level":2,"score":0.4352133870124817},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.33533918857574463},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3346881866455078},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.30744677782058716},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.289326012134552},{"id":"https://openalex.org/C18903297","wikidata":"https://www.wikidata.org/wiki/Q7150","display_name":"Ecology","level":1,"score":0.15494206547737122},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.12589621543884277},{"id":"https://openalex.org/C2549261","wikidata":"https://www.wikidata.org/wiki/Q43455","display_name":"Ethnology","level":1,"score":0.10210087895393372},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.07676753401756287},{"id":"https://openalex.org/C136229726","wikidata":"https://www.wikidata.org/wiki/Q327092","display_name":"Biomedical engineering","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003466","descriptor_name":"Cultural Characteristics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004930","descriptor_name":"Inuit","qualifier_ui":"Q000235","qualifier_name":"genetics","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006805","descriptor_name":"Human Experimentation","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D006805","descriptor_name":"Human Experimentation","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true},{"descriptor_ui":"D007198","descriptor_name":"Indians, North American","qualifier_ui":"Q000235","qualifier_name":"genetics","is_major_topic":true},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D012106","descriptor_name":"Research","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D012107","descriptor_name":"Research Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017408","descriptor_name":"Guidelines as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D035842","descriptor_name":"Research Subjects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D035844","descriptor_name":"Researcher-Subject Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036281","descriptor_name":"Genetic Research","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true}],"locations_count":3,"locations":[{"id":"pmid:15119331","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15119331","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Jurimetrics","raw_type":"Journal Article"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/522154","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10822/522154","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"252377","raw_type":null},{"id":"mag:2394731580","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15119331","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.4043000042438507,"display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/16","score":0.699999988079071,"display_name":"Peace, justice, and strong institutions"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W67914875","https://openalex.org/W1993104742","https://openalex.org/W7000802317","https://openalex.org/W2162973153","https://openalex.org/W3094915480","https://openalex.org/W7098206543","https://openalex.org/W2010066815","https://openalex.org/W7033705105","https://openalex.org/W2505496678","https://openalex.org/W6922590671"],"abstract_inverted_index":{"American":[0,52,118],"Indian":[1,119],"and":[2,24,41,59,87,110,120,124],"Alaskan":[3,121],"Native":[4,122],"communities":[5,54,123,133],"have":[6,20],"expressed":[7],"concern":[8],"about":[9],"the":[10,56],"use":[11],"of":[12,61,96,108,117],"human":[13,62,112],"biological":[14,63,113],"materials":[15,64,114],"in":[16,55,76,104],"research.":[17,66],"These":[18,67],"concerns":[19],"prompted":[21],"research":[22,39,97],"sponsors":[23],"professional":[25],"organizations":[26],"to":[27,92,129],"develop":[28],"guidelines":[29,40],"for":[30,48,65],"investigators":[31],"working":[32,49],"with":[33,50,85],"these":[34],"communities.":[35],"This":[36],"paper":[37],"reviews":[38],"presents":[42],"recommendations":[43,68,100],"that":[44],"reflect":[45],"\"best":[46],"practices\"":[47],"North":[51],"indigenous":[53],"collection,":[57],"storage,":[58],"distribution":[60],"strike":[69],"a":[70,94],"reasonable":[71],"balance":[72],"between":[73],"three":[74],"imperatives":[75],"research:":[77],"(1)":[78],"minimizing":[79],"harm,":[80],"(2)":[81],"treating":[82],"sample":[83],"contributors":[84],"respect,":[86],"(3)":[88],"promoting":[89],"intellectual":[90],"freedom":[91],"pursue":[93],"range":[95],"questions.":[98],"The":[99],"can":[101],"be":[102,127],"used":[103],"designing":[105],"appropriate":[106],"methods":[107],"collecting":[109],"using":[111],"from":[115],"members":[116],"will":[125],"likely":[126],"applicable":[128],"other":[130],"historically":[131],"disadvantaged":[132],"as":[134],"well.":[135]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2022,"cited_by_count":2},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":1},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":2},{"year":2013,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}