{"id":"https://openalex.org/W2393556282","doi":"https://doi.org/10.3109/13668250.2016.1175551","title":"Fumblings and faux pas: Reflections on attempting to engage in participatory research with people with an intellectual disability","display_name":"Fumblings and faux pas: Reflections on attempting to engage in participatory research with people with an intellectual disability","publication_year":2016,"publication_date":"2016-05-11","ids":{"openalex":"https://openalex.org/W2393556282","doi":"https://doi.org/10.3109/13668250.2016.1175551","mag":"2393556282"},"language":"en","primary_location":{"id":"doi:10.3109/13668250.2016.1175551","doi":"https://doi.org/10.3109/13668250.2016.1175551","is_oa":false,"landing_page_url":"https://doi.org/10.3109/13668250.2016.1175551","pdf_url":null,"source":{"id":"https://openalex.org/S19769454","display_name":"Journal of Intellectual & Developmental Disability","issn_l":"0045-0634","issn":["0045-0634","0159-9011","0726-3864","1366-8250","1469-9532"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","erih-plus","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320449","host_organization_name":"Informa","host_organization_lineage":["https://openalex.org/P4310320449"],"host_organization_lineage_names":["Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Intellectual & Developmental Disability","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://espace.curtin.edu.au/bitstream/20.500.11937/37445/2/240769_240769.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033020125","display_name":"Kate P. Dorozenko","orcid":"https://orcid.org/0000-0002-8411-099X","observed_orcids":["https://orcid.org/0000-0002-8411-099X"]},"institutions":[{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":true,"raw_author_name":"Kate P. Dorozenko","raw_affiliation_strings":["School of Psychology and Speech Pathology, Curtin University, Perth, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Psychology and Speech Pathology, Curtin University, Perth, Australia","institution_ids":["https://openalex.org/I205640436"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011856058","display_name":"Brian John Bishop","orcid":"https://orcid.org/0009-0007-2214-8523","observed_orcids":["https://orcid.org/0009-0007-2214-8523"]},"institutions":[{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Brian J. Bishop","raw_affiliation_strings":["School of Psychology and Speech Pathology, Curtin University, Perth, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Psychology and Speech Pathology, Curtin University, Perth, Australia","institution_ids":["https://openalex.org/I205640436"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5060551104","display_name":"Lynne D. Roberts","orcid":"https://orcid.org/0000-0003-0085-9213","observed_orcids":["https://orcid.org/0000-0003-0085-9213","https://orcid.org/0000-0002-3746-1930"]},"institutions":[{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Lynne D. Roberts","raw_affiliation_strings":["School of Psychology and Speech Pathology, Curtin University, Perth, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Psychology and Speech Pathology, Curtin University, Perth, Australia","institution_ids":["https://openalex.org/I205640436"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5033020125"],"corresponding_institution_ids":["https://openalex.org/I205640436"],"apc_list":null,"apc_paid":null,"fwci":6.5131,"has_fulltext":true,"cited_by_count":26,"citation_normalized_percentile":{"value":0.95964002,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"41","issue":"3","first_page":"197","last_page":"208"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.6044999957084656,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.6044999957084656,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11981","display_name":"Qualitative Research Methods and Ethics","score":0.22179999947547913,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11944","display_name":"Participatory Visual Research Methods","score":0.1655000001192093,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/participatory-research","display_name":"participatory research","score":0.9580000042915344},{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.9929999709129333},{"id":"https://openalex.org/keywords/reflexivity","display_name":"reflexivity","score":0.9660000205039978},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.5950000286102295},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.9409999847412109},{"id":"https://openalex.org/keywords/power-relations","display_name":"power relations","score":0.671999990940094},{"id":"https://openalex.org/keywords/disability-research","display_name":"disability research","score":0.45100000500679016},{"id":"https://openalex.org/keywords/photovoice","display_name":"photovoice","score":0.7110000252723694},{"id":"https://openalex.org/keywords/stereotypes","display_name":"stereotypes","score":0.4860000014305115},{"id":"https://openalex.org/keywords/oppression","display_name":"oppression","score":0.46299999952316284}],"concepts":[{"id":"https://openalex.org/C140988679","wikidata":"https://www.wikidata.org/wiki/Q7140444","display_name":"Participatory action research","level":2,"score":0.8102232813835144},{"id":"https://openalex.org/C2781095836","wikidata":"https://www.wikidata.org/wiki/Q7187937","display_name":"Photovoice","level":2,"score":0.8043897151947021},{"id":"https://openalex.org/C13200473","wikidata":"https://www.wikidata.org/wiki/Q2747831","display_name":"Reflexivity","level":2,"score":0.7990773916244507},{"id":"https://openalex.org/C108170787","wikidata":"https://www.wikidata.org/wiki/Q3951828","display_name":"Agency (philosophy)","level":2,"score":0.5632158517837524},{"id":"https://openalex.org/C2776526686","wikidata":"https://www.wikidata.org/wiki/Q252000","display_name":"Oppression","level":3,"score":0.5629321932792664},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.5499958395957947},{"id":"https://openalex.org/C24845683","wikidata":"https://www.wikidata.org/wiki/Q178651","display_name":"Interview","level":2,"score":0.5224860310554504},{"id":"https://openalex.org/C2776810005","wikidata":"https://www.wikidata.org/wiki/Q627208","display_name":"Disability studies","level":2,"score":0.5174165964126587},{"id":"https://openalex.org/C53173841","wikidata":"https://www.wikidata.org/wiki/Q1897444","display_name":"Action research","level":2,"score":0.46120256185531616},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.4485260546207428},{"id":"https://openalex.org/C2775977372","wikidata":"https://www.wikidata.org/wiki/Q17147499","display_name":"Visual research","level":2,"score":0.419875830411911},{"id":"https://openalex.org/C163258240","wikidata":"https://www.wikidata.org/wiki/Q25342","display_name":"Power (physics)","level":2,"score":0.4160270094871521},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37568119168281555},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3590226173400879},{"id":"https://openalex.org/C107993555","wikidata":"https://www.wikidata.org/wiki/Q1662673","display_name":"Gender studies","level":1,"score":0.2534356713294983},{"id":"https://openalex.org/C19417346","wikidata":"https://www.wikidata.org/wiki/Q7922","display_name":"Pedagogy","level":1,"score":0.2506660223007202},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.17186486721038818},{"id":"https://openalex.org/C94625758","wikidata":"https://www.wikidata.org/wiki/Q7163","display_name":"Politics","level":2,"score":0.14796563982963562},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.14573639631271362},{"id":"https://openalex.org/C153349607","wikidata":"https://www.wikidata.org/wiki/Q36649","display_name":"Visual arts","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C142362112","wikidata":"https://www.wikidata.org/wiki/Q735","display_name":"Art","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.3109/13668250.2016.1175551","doi":"https://doi.org/10.3109/13668250.2016.1175551","is_oa":false,"landing_page_url":"https://doi.org/10.3109/13668250.2016.1175551","pdf_url":null,"source":{"id":"https://openalex.org/S19769454","display_name":"Journal of Intellectual & Developmental Disability","issn_l":"0045-0634","issn":["0045-0634","0159-9011","0726-3864","1366-8250","1469-9532"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","erih-plus","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320449","host_organization_name":"Informa","host_organization_lineage":["https://openalex.org/P4310320449"],"host_organization_lineage_names":["Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Intellectual & Developmental Disability","raw_type":"journal-article"},{"id":"pmh:oai:espace.curtin.edu.au:20.500.11937/37445","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/20.500.11937/37445","pdf_url":"https://espace.curtin.edu.au/bitstream/20.500.11937/37445/2/240769_240769.pdf","source":{"id":"https://openalex.org/S4306401790","display_name":"eSpace (Curtin University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I205640436","host_organization_name":"Curtin University","host_organization_lineage":["https://openalex.org/I205640436"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal Article"}],"best_oa_location":{"id":"pmh:oai:espace.curtin.edu.au:20.500.11937/37445","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/20.500.11937/37445","pdf_url":"https://espace.curtin.edu.au/bitstream/20.500.11937/37445/2/240769_240769.pdf","source":{"id":"https://openalex.org/S4306401790","display_name":"eSpace (Curtin University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I205640436","host_organization_name":"Curtin University","host_organization_lineage":["https://openalex.org/I205640436"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal Article"},"sustainable_development_goals":[{"score":0.7390999794006348,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320320987","display_name":"Curtin University of Technology","ror":"https://ror.org/02n415q13"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2393556282.pdf","grobid_xml":"https://content.openalex.org/works/W2393556282.grobid-xml"},"referenced_works_count":58,"referenced_works":["https://openalex.org/W79229537","https://openalex.org/W436454826","https://openalex.org/W572136678","https://openalex.org/W1503866691","https://openalex.org/W1522899536","https://openalex.org/W1781458262","https://openalex.org/W1813884997","https://openalex.org/W1947609857","https://openalex.org/W1965944695","https://openalex.org/W1967916703","https://openalex.org/W1974657416","https://openalex.org/W1998817052","https://openalex.org/W2009057366","https://openalex.org/W2015233049","https://openalex.org/W2022768097","https://openalex.org/W2031159423","https://openalex.org/W2037939020","https://openalex.org/W2037974201","https://openalex.org/W2043845924","https://openalex.org/W2047343353","https://openalex.org/W2047445523","https://openalex.org/W2048276495","https://openalex.org/W2052529812","https://openalex.org/W2052592348","https://openalex.org/W2053329853","https://openalex.org/W2053346919","https://openalex.org/W2054172148","https://openalex.org/W2054249398","https://openalex.org/W2066241361","https://openalex.org/W2067720873","https://openalex.org/W2073423309","https://openalex.org/W2074194123","https://openalex.org/W2074197295","https://openalex.org/W2086382181","https://openalex.org/W2088547574","https://openalex.org/W2098891663","https://openalex.org/W2103099631","https://openalex.org/W2104365387","https://openalex.org/W2106618426","https://openalex.org/W2115343912","https://openalex.org/W2118559486","https://openalex.org/W2118594822","https://openalex.org/W2127743294","https://openalex.org/W2129285801","https://openalex.org/W2130234863","https://openalex.org/W2139534627","https://openalex.org/W2140621938","https://openalex.org/W2150527895","https://openalex.org/W2158890759","https://openalex.org/W2173181394","https://openalex.org/W2321769409","https://openalex.org/W2334203744","https://openalex.org/W2484120588","https://openalex.org/W2568476927","https://openalex.org/W2712217359","https://openalex.org/W4241346999","https://openalex.org/W4280641743","https://openalex.org/W4297361601"],"related_works":["https://openalex.org/W2001419976","https://openalex.org/W2073423309","https://openalex.org/W2285325691","https://openalex.org/W2032482857","https://openalex.org/W2031159423","https://openalex.org/W3130755889","https://openalex.org/W7042592066","https://openalex.org/W2884636724","https://openalex.org/W4403465827","https://openalex.org/W2626441044"],"abstract_inverted_index":{"Background":[0],"Reflexivity":[1],"is":[2,12,122],"fundamental":[3],"to":[4,57,124],"developing":[5],"methodologically":[6],"and":[7,11,54,61,76,93,111,119],"ethically":[8],"sound":[9],"research":[10,31,49,81,134,143],"particularly":[13],"important":[14],"for":[15,71],"researchers":[16],"exploring":[17],"experiences":[18],"of":[19,27,47,64,67,90,98],"oppression.Method":[20],"We":[21],"offer":[22],"reflections":[23],"on":[24],"the":[25,45,59,80,96,99,109,127,142],"process":[26],"engaging":[28],"in":[29,106,131],"participatory":[30,87],"with":[32,34,73,108],"people":[33,72],"an":[35,68],"intellectual":[36],"disability":[37,133],"(ID).":[38],"A":[39],"reflexive":[40],"journal":[41],"was":[42],"maintained":[43],"throughout":[44,79],"duration":[46],"a":[48],"project":[50],"that":[51,126],"used":[52],"photovoice":[53],"conversational":[55],"interviewing":[56],"explore":[58],"identities":[60,114],"social":[62,102],"roles":[63],"18":[65],"members":[66],"advocacy":[69],"agency":[70],"ID.Results":[74],"Challenges":[75],"tensions":[77,94],"arose":[78],"process,":[82],"including":[83],"difficulties":[84],"reproducing":[85],"\u201cideal\u201d":[86],"research,":[88],"issues":[89],"informed":[91],"consent,":[92],"surrounding":[95],"beneficiaries":[97],"research.":[100],"Broader":[101],"processes":[103],"were":[104,115],"mirrored":[105],"interactions":[107],"members,":[110],"damaging":[112],"stereotyped":[113],"unknowingly":[116],"imposed.Conclusions":[117],"Self-awareness":[118],"critical":[120],"reflection":[121],"necessary":[123],"ensure":[125],"existing":[128],"power":[129],"relations":[130],"traditional":[132],"(and":[135],"wider":[136],"society)":[137],"are":[138],"not":[139],"replicated":[140],"during":[141],"process.":[144]},"counts_by_year":[{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":3},{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":5},{"year":2019,"cited_by_count":3},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":3},{"year":2015,"cited_by_count":1}],"updated_date":"2026-10-16T09:59:22.235173","created_date":"2016-06-24T00:00:00"}