{"id":"https://openalex.org/W2344682155","doi":null,"title":"Adherence to Self-Care Management of Sickle Cell Disease Among Caregivers","display_name":"Adherence to Self-Care Management of Sickle Cell Disease Among Caregivers","publication_year":2016,"publication_date":"2016-01-01","ids":{"openalex":"https://openalex.org/W2344682155","mag":"2344682155"},"language":"en","primary_location":{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-3360","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/2257","pdf_url":"https://scholarworks.waldenu.edu/dissertations/2257","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://scholarworks.waldenu.edu/dissertations/2257","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5034662681","display_name":"Muinah Adenike Fowora","orcid":"https://orcid.org/0000-0001-7140-2689","observed_orcids":["https://orcid.org/0000-0001-7140-2689"]},"institutions":[{"id":"https://openalex.org/I80046288","display_name":"Walden University","ror":"https://ror.org/02qp2hh41","country_code":"US","type":"education","lineage":["https://openalex.org/I80046288"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Muinah Fowora","raw_affiliation_strings":["Walden University"],"raw_orcid":"https://orcid.org/0000-0001-7140-2689","affiliations":[{"raw_affiliation_string":"Walden University","institution_ids":["https://openalex.org/I80046288"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5034662681"],"corresponding_institution_ids":["https://openalex.org/I80046288"],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":3,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.9926999807357788,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.9926999807357788,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11620","display_name":"Medication Adherence and Compliance","score":0.0015999999595806003,"subfield":{"id":"https://openalex.org/subfields/2714","display_name":"Family Practice"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.00139999995008111,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sickle-cell-disease","display_name":"sickle cell disease","score":1.0},{"id":"https://openalex.org/keywords/self-care-management","display_name":"self-care management","score":0.9319999814033508},{"id":"https://openalex.org/keywords/adherence","display_name":"adherence","score":0.48399999737739563},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.8489999771118164},{"id":"https://openalex.org/keywords/children-with-sickle-cell-disease","display_name":"children with sickle cell disease","score":0.8939999938011169},{"id":"https://openalex.org/keywords/health-belief-model","display_name":"Health Belief Model","score":0.902999997138977},{"id":"https://openalex.org/keywords/perceived-susceptibility","display_name":"perceived susceptibility","score":0.7620000243186951},{"id":"https://openalex.org/keywords/perceived-severity","display_name":"perceived severity","score":0.9649999737739563},{"id":"https://openalex.org/keywords/perceived-benefits","display_name":"perceived benefits","score":0.6840000152587891},{"id":"https://openalex.org/keywords/religiosity","display_name":"religiosity","score":0.8399999737739563},{"id":"https://openalex.org/keywords/barriers-to-adherence","display_name":"barriers to adherence","score":0.8579999804496765},{"id":"https://openalex.org/keywords/lagos","display_name":"Lagos","score":0.6669999957084656}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6591982245445251},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.5644084811210632},{"id":"https://openalex.org/C64341305","wikidata":"https://www.wikidata.org/wiki/Q4919225","display_name":"Bivariate analysis","level":2,"score":0.5299768447875977},{"id":"https://openalex.org/C151956035","wikidata":"https://www.wikidata.org/wiki/Q1132755","display_name":"Logistic regression","level":2,"score":0.5241518020629883},{"id":"https://openalex.org/C38180746","wikidata":"https://www.wikidata.org/wiki/Q1952580","display_name":"Multivariate analysis","level":2,"score":0.4876500368118286},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.48467305302619934},{"id":"https://openalex.org/C110131835","wikidata":"https://www.wikidata.org/wiki/Q1153659","display_name":"Self-efficacy","level":2,"score":0.45522722601890564},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4538404643535614},{"id":"https://openalex.org/C2982889124","wikidata":"https://www.wikidata.org/wiki/Q107439039","display_name":"Disease management","level":4,"score":0.45093876123428345},{"id":"https://openalex.org/C2776933761","wikidata":"https://www.wikidata.org/wiki/Q4117674","display_name":"Self-management","level":2,"score":0.4431028962135315},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.36424362659454346},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.32358819246292114},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.26993656158447266},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.11682784557342529},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C2779734285","wikidata":"https://www.wikidata.org/wiki/Q11085","display_name":"Parkinson's disease","level":3,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-3360","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/2257","pdf_url":"https://scholarworks.waldenu.edu/dissertations/2257","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"},{"id":"mag:2344682155","doi":null,"is_oa":false,"landing_page_url":"https://scholarworks.waldenu.edu/cgi/viewcontent.cgi?article=3360&context=dissertations","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-3360","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/2257","pdf_url":"https://scholarworks.waldenu.edu/dissertations/2257","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2344682155.pdf","grobid_xml":"https://content.openalex.org/works/W2344682155.grobid-xml"},"referenced_works_count":176,"referenced_works":["https://openalex.org/W39581401","https://openalex.org/W66811992","https://openalex.org/W112288907","https://openalex.org/W114454532","https://openalex.org/W143387850","https://openalex.org/W220226666","https://openalex.org/W242090125","https://openalex.org/W1511111740","https://openalex.org/W1521913965","https://openalex.org/W1531743502","https://openalex.org/W1567082773","https://openalex.org/W1573234480","https://openalex.org/W1575717606","https://openalex.org/W1763433851","https://openalex.org/W1833339163","https://openalex.org/W1887253310","https://openalex.org/W1961807282","https://openalex.org/W1966651742","https://openalex.org/W1968060248","https://openalex.org/W1975405570","https://openalex.org/W1975670209","https://openalex.org/W1976489165","https://openalex.org/W1978325610","https://openalex.org/W1979226091","https://openalex.org/W1980127925","https://openalex.org/W1981403169","https://openalex.org/W1981572602","https://openalex.org/W1982989569","https://openalex.org/W1987058597","https://openalex.org/W1992349722","https://openalex.org/W1993485263","https://openalex.org/W1996873997","https://openalex.org/W1998432478","https://openalex.org/W1999555482","https://openalex.org/W1999936817","https://openalex.org/W2000148691","https://openalex.org/W2003655799","https://openalex.org/W2005129162","https://openalex.org/W2005484559","https://openalex.org/W2009779571","https://openalex.org/W2012049059","https://openalex.org/W2013103926","https://openalex.org/W2014838778","https://openalex.org/W2017768812","https://openalex.org/W2019001445","https://openalex.org/W2019018139","https://openalex.org/W2019580959","https://openalex.org/W2020708888","https://openalex.org/W2025723371","https://openalex.org/W2027662398","https://openalex.org/W2027669442","https://openalex.org/W2028664173","https://openalex.org/W2031039743","https://openalex.org/W2031535070","https://openalex.org/W2033040678","https://openalex.org/W2033129462","https://openalex.org/W2035353809","https://openalex.org/W2035821477","https://openalex.org/W2037439664","https://openalex.org/W2038819195","https://openalex.org/W2039327271","https://openalex.org/W2039601121","https://openalex.org/W2040352603","https://openalex.org/W2040983608","https://openalex.org/W2041638907","https://openalex.org/W2044235358","https://openalex.org/W2045769945","https://openalex.org/W2047221402","https://openalex.org/W2047264930","https://openalex.org/W2052072275","https://openalex.org/W2053495832","https://openalex.org/W2053876119","https://openalex.org/W2054903745","https://openalex.org/W2056264901","https://openalex.org/W2058699947","https://openalex.org/W2059438671","https://openalex.org/W2060273019","https://openalex.org/W2060285087","https://openalex.org/W2063981024","https://openalex.org/W2065444741","https://openalex.org/W2066275473","https://openalex.org/W2067064224","https://openalex.org/W2068439680","https://openalex.org/W2069024392","https://openalex.org/W2069711294","https://openalex.org/W2071186203","https://openalex.org/W2073246847","https://openalex.org/W2073853004","https://openalex.org/W2074858698","https://openalex.org/W2075072883","https://openalex.org/W2076203442","https://openalex.org/W2079065998","https://openalex.org/W2080498973","https://openalex.org/W2081867302","https://openalex.org/W2082103274","https://openalex.org/W2082492768","https://openalex.org/W2082820995","https://openalex.org/W2087484885","https://openalex.org/W2088259679","https://openalex.org/W2092398994","https://openalex.org/W2092425839","https://openalex.org/W2092958186","https://openalex.org/W2093070017","https://openalex.org/W2095002215","https://openalex.org/W2095608013","https://openalex.org/W2095731312","https://openalex.org/W2095826134","https://openalex.org/W2097805484","https://openalex.org/W2098326705","https://openalex.org/W2100639034","https://openalex.org/W2102573626","https://openalex.org/W2106675399","https://openalex.org/W2107031757","https://openalex.org/W2107617324","https://openalex.org/W2110356839","https://openalex.org/W2110461849","https://openalex.org/W2111145559","https://openalex.org/W2111787672","https://openalex.org/W2115562245","https://openalex.org/W2115816379","https://openalex.org/W2116523969","https://openalex.org/W2117826271","https://openalex.org/W2118834096","https://openalex.org/W2119490214","https://openalex.org/W2122295735","https://openalex.org/W2124354966","https://openalex.org/W2125129891","https://openalex.org/W2126256784","https://openalex.org/W2128855640","https://openalex.org/W2129538972","https://openalex.org/W2130880789","https://openalex.org/W2134543755","https://openalex.org/W2134740567","https://openalex.org/W2138719823","https://openalex.org/W2139032091","https://openalex.org/W2140364356","https://openalex.org/W2142150409","https://openalex.org/W2143927179","https://openalex.org/W2144502111","https://openalex.org/W2146648664","https://openalex.org/W2147182596","https://openalex.org/W2147895892","https://openalex.org/W2150434366","https://openalex.org/W2154215662","https://openalex.org/W2155266203","https://openalex.org/W2157586798","https://openalex.org/W2158216255","https://openalex.org/W2161044162","https://openalex.org/W2161625498","https://openalex.org/W2166427615","https://openalex.org/W2167349833","https://openalex.org/W2167575052","https://openalex.org/W2167914656","https://openalex.org/W2169980283","https://openalex.org/W2170086069","https://openalex.org/W2171352201","https://openalex.org/W2184520094","https://openalex.org/W2195280390","https://openalex.org/W2249595199","https://openalex.org/W2275637460","https://openalex.org/W2298566784","https://openalex.org/W2313541759","https://openalex.org/W2330393631","https://openalex.org/W2334263927","https://openalex.org/W2487468808","https://openalex.org/W2539297736","https://openalex.org/W2614482940","https://openalex.org/W2616788595","https://openalex.org/W2914437448","https://openalex.org/W3107886583","https://openalex.org/W3109794539","https://openalex.org/W3109877818","https://openalex.org/W3126395612","https://openalex.org/W3144957394","https://openalex.org/W4241872112","https://openalex.org/W4255920910"],"related_works":["https://openalex.org/W2606203685","https://openalex.org/W2028664173","https://openalex.org/W3144435259","https://openalex.org/W7222866148","https://openalex.org/W2000148691","https://openalex.org/W2988509014","https://openalex.org/W2567064087","https://openalex.org/W1506212365","https://openalex.org/W7135082084","https://openalex.org/W7208757057"],"abstract_inverted_index":{"The":[0,20,46,74],"self-care":[1,15,37,69,138,156,194,222],"management":[2,16,38,70,139,157,223],"of":[3,22,42,56,67,89,136,143,154,172,179,206],"sickle":[4,94,226],"cell":[5,95,227],"disease":[6],"(SCD)":[7],"improves":[8],"mortality":[9],"rate;":[10],"however,":[11],"compliance":[12,34],"with":[13,35,44,91,145],"SCD":[14,36,68,92,137,155,193,221],"remains":[17],"a":[18,77,109,129,170],"problem.":[19],"purpose":[21],"this":[23,57],"study":[24,75],"was":[25,50,84,104,148],"to":[26,86,183,192,216],"examine":[27],"the":[28,53,141,161,164,204],"knowledge":[29,135,153,168],"and":[30,65,113,122,158,174,176,212],"factors":[31],"that":[32,60],"influence":[33,72,190],"recommendations":[39],"among":[40,140],"caregivers":[41,88,142],"children":[43,90,144],"SCD.":[45,146],"health":[47,186,207,209,214],"belief":[48],"model":[49],"used":[51,76],"as":[52,169,181],"theoretical":[54],"foundation":[55],"study,":[58],"theorizing":[59],"caregivers'":[61],"perceived":[62],"susceptibility,":[63],"severity,":[64],"benefits":[66],"will":[71],"compliance.":[73],"quantitative":[78],"research":[79],"design.":[80],"A":[81],"cross-sectional":[82],"survey":[83],"administered":[85],"100":[87],"attending":[93],"clinics":[96],"in":[97],"Lagos,":[98],"Nigeria":[99],"using":[100,108,117],"convenience":[101],"sampling.":[102],"Information":[103],"obtained":[105],"from":[106,163],"participants":[107],"structured":[110],"interviewer-administered":[111],"questionnaire,":[112],"data":[114],"were":[115],"analyzed":[116],"descriptive":[118],"statistics,":[119],"bivariate":[120],"correlations,":[121],"binary":[123],"logistic":[124],"regression":[125],"techniques.":[126],"Findings":[127],"confirmed":[128],"high":[130],"adherence":[131,173,191],"rate":[132],"but":[133],"low":[134],"There":[147],"no":[149],"significant":[150],"correlation":[151],"between":[152],"adherence.":[159,184],"However,":[160],"findings":[162,197],"multivariate":[165],"analysis":[166],"identified":[167],"predictor":[171],"religiosity":[175],"total":[177],"number":[178],"barriers":[180,182],"Parental":[185],"beliefs":[187],"did":[188],"not":[189],"management.":[195],"These":[196],"have":[198],"social":[199],"change":[200],"implications":[201],"by":[202],"guiding":[203],"work":[205],"educators,":[208],"care":[210],"providers,":[211],"public":[213],"practitioners":[215],"incorporate":[217],"group":[218],"counseling":[219],"on":[220],"at":[224],"every":[225],"clinic.":[228]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}