{"id":"https://openalex.org/W2338518872","doi":"https://doi.org/10.1177/1556264616638965","title":"Using Cognitive Testing to Develop Items for Surveying Asian American Cancer Patients and Their Caregivers as a Pathway to Culturally Competent Care","display_name":"Using Cognitive Testing to Develop Items for Surveying Asian American Cancer Patients and Their Caregivers as a Pathway to Culturally Competent Care","publication_year":2016,"publication_date":"2016-02-01","ids":{"openalex":"https://openalex.org/W2338518872","doi":"https://doi.org/10.1177/1556264616638965","mag":"2338518872","pmid":"https://pubmed.ncbi.nlm.nih.gov/27106891"},"language":"en","primary_location":{"id":"doi:10.1177/1556264616638965","doi":"https://doi.org/10.1177/1556264616638965","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1556264616638965","pdf_url":null,"source":{"id":"https://openalex.org/S57033397","display_name":"Journal of Empirical Research on Human Research Ethics","issn_l":"1556-2646","issn":["1556-2646","1556-2654"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Empirical Research on Human Research Ethics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5023723858","display_name":"Dragana Bolcic\u2010Jankovic","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I33434090","display_name":"University of Massachusetts Boston","ror":"https://ror.org/04ydmy275","country_code":"US","type":"education","lineage":["https://openalex.org/I33434090"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Dragana Bolcic-Jankovic","raw_affiliation_strings":["University of Massachusetts Boston, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Massachusetts Boston, USA","institution_ids":["https://openalex.org/I33434090"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024400506","display_name":"Fengxin Lu","orcid":"https://orcid.org/0000-0002-9357-311X","observed_orcids":["https://orcid.org/0000-0002-9357-311X"]},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Fengxin Lu","raw_affiliation_strings":["Beth Israel Deaconess Medical Center, Boston, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Beth Israel Deaconess Medical Center, Boston, USA","institution_ids":["https://openalex.org/I1316535847"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069718530","display_name":"Mary Ellen Colten","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I33434090","display_name":"University of Massachusetts Boston","ror":"https://ror.org/04ydmy275","country_code":"US","type":"education","lineage":["https://openalex.org/I33434090"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mary Ellen Colten","raw_affiliation_strings":["University of Massachusetts Boston, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Massachusetts Boston, USA","institution_ids":["https://openalex.org/I33434090"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5080356855","display_name":"Ellen P. McCarthy","orcid":"https://orcid.org/0000-0003-1705-6249","observed_orcids":["https://orcid.org/0000-0003-1705-6249"]},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ellen P. McCarthy","raw_affiliation_strings":["Beth Israel Deaconess Medical Center, Boston, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Beth Israel Deaconess Medical Center, Boston, USA","institution_ids":["https://openalex.org/I1316535847"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5023723858"],"corresponding_institution_ids":["https://openalex.org/I33434090"],"apc_list":{"value":3650,"currency":"USD","value_usd":3650},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.03587741,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"11","issue":"1","first_page":"57","last_page":"66"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.44510000944137573,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.44510000944137573,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12194","display_name":"Cultural Competency in Health Care","score":0.39989998936653137,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13117","display_name":"Health Education and Validation","score":0.03500000014901161,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cancer-caregivers","display_name":"cancer caregivers","score":0.7319999933242798},{"id":"https://openalex.org/keywords/culturally-competent-care","display_name":"culturally competent care","score":0.7950000166893005},{"id":"https://openalex.org/keywords/survey-item-development","display_name":"survey item development","score":0.7940000295639038},{"id":"https://openalex.org/keywords/cognitive-interviewing","display_name":"cognitive interviewing","score":0.8809999823570251},{"id":"https://openalex.org/keywords/advanced-cancer","display_name":"advanced cancer","score":0.9020000100135803},{"id":"https://openalex.org/keywords/chinese-americans","display_name":"Chinese Americans","score":0.6470000147819519},{"id":"https://openalex.org/keywords/vietnamese-americans","display_name":"Vietnamese Americans","score":1.0},{"id":"https://openalex.org/keywords/acculturation","display_name":"acculturation","score":0.9350000023841858},{"id":"https://openalex.org/keywords/language-proficiency","display_name":"language proficiency","score":0.9330000281333923}],"concepts":[{"id":"https://openalex.org/C103621254","wikidata":"https://www.wikidata.org/wiki/Q9199","display_name":"Vietnamese","level":2,"score":0.8447821140289307},{"id":"https://openalex.org/C137403100","wikidata":"https://www.wikidata.org/wiki/Q41710","display_name":"Ethnic group","level":2,"score":0.6408926844596863},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.6198870539665222},{"id":"https://openalex.org/C90048612","wikidata":"https://www.wikidata.org/wiki/Q192989","display_name":"Acculturation","level":3,"score":0.6085633635520935},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.547370970249176},{"id":"https://openalex.org/C3019166669","wikidata":"https://www.wikidata.org/wiki/Q727928","display_name":"Asian americans","level":3,"score":0.530673086643219},{"id":"https://openalex.org/C3017937568","wikidata":"https://www.wikidata.org/wiki/Q1146100","display_name":"Chinese americans","level":3,"score":0.52567058801651},{"id":"https://openalex.org/C125209646","wikidata":"https://www.wikidata.org/wiki/Q1338878","display_name":"Cultural diversity","level":2,"score":0.5032445788383484},{"id":"https://openalex.org/C2777267654","wikidata":"https://www.wikidata.org/wiki/Q3519023","display_name":"Test (biology)","level":2,"score":0.484693318605423},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.46560317277908325},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.43988245725631714},{"id":"https://openalex.org/C75969862","wikidata":"https://www.wikidata.org/wiki/Q5141215","display_name":"Cognitive interview","level":3,"score":0.4261651039123535},{"id":"https://openalex.org/C47602998","wikidata":"https://www.wikidata.org/wiki/Q2588869","display_name":"Language barrier","level":2,"score":0.41390255093574524},{"id":"https://openalex.org/C3018149544","wikidata":"https://www.wikidata.org/wiki/Q5188450","display_name":"Culturally sensitive","level":2,"score":0.4121888279914856},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3811858296394348},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3478773534297943},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.1726704239845276},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.12179997563362122},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.11933845281600952},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000069","descriptor_name":"Acculturation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001213","descriptor_name":"Asian","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D002681","descriptor_name":"China","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003071","descriptor_name":"Cognition","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007802","descriptor_name":"Language","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D014744","descriptor_name":"Vietnam","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D054521","descriptor_name":"Cultural Competency","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D065246","descriptor_name":"Culturally Competent Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1177/1556264616638965","doi":"https://doi.org/10.1177/1556264616638965","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1556264616638965","pdf_url":null,"source":{"id":"https://openalex.org/S57033397","display_name":"Journal of Empirical Research on Human Research Ethics","issn_l":"1556-2646","issn":["1556-2646","1556-2654"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Empirical Research on Human Research Ethics","raw_type":"journal-article"},{"id":"pmid:27106891","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/27106891","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of empirical research on human research ethics : JERHRE","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9537000060081482},{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.4074000120162964}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320313188","display_name":"University of Massachusetts Boston","ror":"https://ror.org/04ydmy275"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":12,"referenced_works":["https://openalex.org/W197263560","https://openalex.org/W1484298347","https://openalex.org/W1564392956","https://openalex.org/W1596634490","https://openalex.org/W1989219672","https://openalex.org/W2066838503","https://openalex.org/W2104662184","https://openalex.org/W2138119030","https://openalex.org/W2142740547","https://openalex.org/W2146672944","https://openalex.org/W2156634966","https://openalex.org/W4247849097"],"related_works":["https://openalex.org/W128535699","https://openalex.org/W2154010916","https://openalex.org/W2140469032","https://openalex.org/W2004414627","https://openalex.org/W2990944320","https://openalex.org/W4401998298","https://openalex.org/W7098060214","https://openalex.org/W7096535744","https://openalex.org/W2755566891","https://openalex.org/W2983459702"],"abstract_inverted_index":{"We":[0,14,60],"report":[1],"the":[2,31,135],"results":[3],"from":[4],"cognitive":[5,32],"interviews":[6,33],"with":[7,50],"Asian":[8,25,47,81,121,137],"American":[9,48,122,138],"patients":[10,20,49,123,140],"and":[11,18,72,78,87,101,107,124,126],"their":[12],"caregivers.":[13],"interviewed":[15],"seven":[16],"caregivers":[17],"six":[19],"who":[21,53],"were":[22,61],"all":[23],"bilingual":[24],"Americans.":[26],"The":[27],"main":[28],"goal":[29],"of":[30,46,85,99,104],"was":[34],"to":[35,64],"test":[36],"a":[37,42],"survey":[38],"instrument":[39],"developed":[40],"for":[41,120],"study":[43],"about":[44,110,134],"perspectives":[45],"advanced":[51],"cancer":[52,139],"are":[54,75,118],"facing":[55],"decisions":[56],"around":[57],"end-of-life":[58],"care.":[59],"particularly":[62],"interested":[63],"see":[65],"whether":[66],"items":[67],"commonly":[68],"used":[69],"in":[70,80],"White":[71],"Black":[73],"populations":[74],"culturally":[76],"meaningful":[77],"equivalent":[79],"populations,":[82],"primarily":[83],"those":[84],"Chinese":[86],"Vietnamese":[88],"ethnicity.":[89],"Our":[90],"exploration":[91],"shows":[92],"that":[93,117],"understanding":[94],"respondents'":[95],"language":[96],"proficiency,":[97],"degree":[98],"acculturation,":[100],"cultural":[102],"context":[103],"receiving,":[105],"processing,":[106],"communicating":[108],"information":[109],"medical":[111],"care":[112,136],"can":[113,128],"help":[114,129],"design":[115],"questions":[116],"appropriate":[119],"caregivers,":[125],"therefore":[127],"researchers":[130],"obtain":[131],"quality":[132],"data":[133],"receive.":[141]},"counts_by_year":[],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}