{"id":"https://openalex.org/W2332540558","doi":"https://doi.org/10.1097/dbp.0000000000000167","title":"Health and Functioning of Families of Children With Special Health Care Needs Cared for in Home Care, Long-term Care, and Medical Day Care Settings","display_name":"Health and Functioning of Families of Children With Special Health Care Needs Cared for in Home Care, Long-term Care, and Medical Day Care Settings","publication_year":2015,"publication_date":"2015-05-01","ids":{"openalex":"https://openalex.org/W2332540558","doi":"https://doi.org/10.1097/dbp.0000000000000167","mag":"2332540558","pmid":"https://pubmed.ncbi.nlm.nih.gov/25933227"},"language":"en","primary_location":{"id":"doi:10.1097/dbp.0000000000000167","doi":"https://doi.org/10.1097/dbp.0000000000000167","is_oa":false,"landing_page_url":"https://doi.org/10.1097/dbp.0000000000000167","pdf_url":null,"source":{"id":"https://openalex.org/S116305490","display_name":"Journal of Developmental & Behavioral Pediatrics","issn_l":"0196-206X","issn":["0196-206X","1536-7312"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","erih-plus","jufo-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Developmental &amp; Behavioral Pediatrics","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5026915561","display_name":"Carmen Caicedo","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I19700959","display_name":"Florida International University","ror":"https://ror.org/02gz6gg07","country_code":"US","type":"education","lineage":["https://openalex.org/I19700959"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Carmen Caicedo","raw_affiliation_strings":["Undergraduate Nursing Department, Nicole Wertheim College of Nursing and Health Sciences, Florida International University, Miami, FL","Accepted March , 2015","Address for reprints: Carmen Caicedo, PhD, RN, Nicole Wertheim College of Nursing and Health Sciences, AHC 3, Room 326, Florida International University, 11200 SW 8th St, Miami, FL, 33199","Disclosure: The author declares no conflict of interest","Received October , 2014","Supported by Florida Nurses Foundation 2012 Undine Sams and Friends, Research Grant (District 5 Charitable Trust) and Florida International University, University Graduate School, Fall 2012, Doctoral Evidence Acquisition (DEA) Fellowship","e-mail: [email\u00a0protected]"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Undergraduate Nursing Department, Nicole Wertheim College of Nursing and Health Sciences, Florida International University, Miami, FL","institution_ids":["https://openalex.org/I19700959"]},{"raw_affiliation_string":"Accepted March , 2015","institution_ids":[]},{"raw_affiliation_string":"Address for reprints: Carmen Caicedo, PhD, RN, Nicole Wertheim College of Nursing and Health Sciences, AHC 3, Room 326, Florida International University, 11200 SW 8th St, Miami, FL, 33199","institution_ids":["https://openalex.org/I19700959"]},{"raw_affiliation_string":"Disclosure: The author declares no conflict of interest","institution_ids":[]},{"raw_affiliation_string":"Received October , 2014","institution_ids":[]},{"raw_affiliation_string":"Supported by Florida Nurses Foundation 2012 Undine Sams and Friends, Research Grant (District 5 Charitable Trust) and Florida International University, University Graduate School, Fall 2012, Doctoral Evidence Acquisition (DEA) Fellowship","institution_ids":["https://openalex.org/I19700959"]},{"raw_affiliation_string":"e-mail: [email\u00a0protected]","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5026915561"],"corresponding_institution_ids":["https://openalex.org/I19700959"],"apc_list":null,"apc_paid":null,"fwci":5.8603,"has_fulltext":false,"cited_by_count":52,"citation_normalized_percentile":{"value":0.95710585,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"36","issue":"5","first_page":"352","last_page":"361"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9185000061988831,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9185000061988831,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.05310000106692314,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.004999999888241291,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/children-with-special-health-care-needs","display_name":"children with special health care needs","score":0.9959999918937683},{"id":"https://openalex.org/keywords/home-care","display_name":"home care","score":0.6650000214576721},{"id":"https://openalex.org/keywords/long-term-care","display_name":"long-term care","score":0.9990000128746033},{"id":"https://openalex.org/keywords/child-health-outcomes","display_name":"child health outcomes","score":0.6520000100135803},{"id":"https://openalex.org/keywords/family-functioning","display_name":"family functioning","score":0.734000027179718},{"id":"https://openalex.org/keywords/children-s-quality-of-life","display_name":"children's quality of life","score":0.6790000200271606},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.5139999985694885},{"id":"https://openalex.org/keywords/comparison-of-care-settings","display_name":"comparison of care settings","score":0.6880000233650208}],"concepts":[{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.576846718788147},{"id":"https://openalex.org/C2779978724","wikidata":"https://www.wikidata.org/wiki/Q1436482","display_name":"Worry","level":3,"score":0.5727519392967224},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.5717988014221191},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.5285657644271851},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5137258768081665},{"id":"https://openalex.org/C82479568","wikidata":"https://www.wikidata.org/wiki/Q7315937","display_name":"Respite care","level":2,"score":0.509280800819397},{"id":"https://openalex.org/C2778804116","wikidata":"https://www.wikidata.org/wiki/Q6806546","display_name":"Medical home","level":3,"score":0.4893607497215271},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.4673248827457428},{"id":"https://openalex.org/C2776680780","wikidata":"https://www.wikidata.org/wiki/Q15964604","display_name":"Guardian","level":2,"score":0.4480859339237213},{"id":"https://openalex.org/C2780233487","wikidata":"https://www.wikidata.org/wiki/Q6672123","display_name":"Long-term care","level":2,"score":0.44017359614372253},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3891077935695648},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.36646151542663574},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3567241132259369},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.35110703110694885},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.28321516513824463},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000066498","descriptor_name":"Emotional Adjustment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000203","descriptor_name":"Activities of Daily Living","qualifier_ui":"Q000145","qualifier_name":"classification","is_major_topic":false},{"descriptor_ui":"D000203","descriptor_name":"Activities of Daily Living","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003631","descriptor_name":"Day Care, Medical","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005431","descriptor_name":"Florida","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006304","descriptor_name":"Health Status","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006701","descriptor_name":"Home Nursing","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008134","descriptor_name":"Long-Term Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D012917","descriptor_name":"Social Adjustment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D018458","descriptor_name":"Persistent Vegetative State","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D019988","descriptor_name":"Children with Disabilities","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1097/dbp.0000000000000167","doi":"https://doi.org/10.1097/dbp.0000000000000167","is_oa":false,"landing_page_url":"https://doi.org/10.1097/dbp.0000000000000167","pdf_url":null,"source":{"id":"https://openalex.org/S116305490","display_name":"Journal of Developmental & Behavioral Pediatrics","issn_l":"0196-206X","issn":["0196-206X","1536-7312"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","erih-plus","jufo-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Developmental &amp; Behavioral Pediatrics","raw_type":"journal-article"},{"id":"pmid:25933227","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/25933227","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of developmental and behavioral pediatrics : JDBP","raw_type":"Comparative Study"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":14,"referenced_works":["https://openalex.org/W1565294096","https://openalex.org/W1974063634","https://openalex.org/W2022543208","https://openalex.org/W2023084917","https://openalex.org/W2024962757","https://openalex.org/W2044356534","https://openalex.org/W2060399849","https://openalex.org/W2115323331","https://openalex.org/W2119060123","https://openalex.org/W2121097142","https://openalex.org/W2124122897","https://openalex.org/W2162053478","https://openalex.org/W2166123574","https://openalex.org/W2169742106"],"related_works":["https://openalex.org/W1480687560","https://openalex.org/W2111256915","https://openalex.org/W2103837737","https://openalex.org/W2322429730","https://openalex.org/W2263943868","https://openalex.org/W6996341213","https://openalex.org/W3203582320","https://openalex.org/W3173472847","https://openalex.org/W2029506966","https://openalex.org/W1996653323"],"abstract_inverted_index":{"OBJECTIVES:":[0],"To":[1],"examine":[2],"and":[3,6,11,36,70,104,124,191,199,212,218,247],"compare":[4],"child":[5,69],"parent":[7],"or":[8,65,188],"guardian":[9],"physical":[10,120,167,208],"mental":[12,122],"health":[13,21,72,152,168,209,223],"outcomes":[14,73],"in":[15,30,118,136,141,144,222,235],"families":[16],"with":[17,19,196,210],"children":[18,45,127,134,143],"special":[20],"care":[22,34,39,50,60,129,154,163,224,232,234],"needs":[23,29],"who":[24],"have":[25],"medically":[26,47,87],"complex":[27,48,88],"technology-dependent":[28,49,89],"home":[31,62,137,162,238],"care,":[32,63],"long-term":[33],"(LTC),":[35],"medical":[37],"day":[38],"(MDC)":[40],"settings.":[41],"The":[42],"number":[43],"of":[44,68,97,126],"requiring":[46],"has":[51],"grown":[52],"exponentially.":[53],"In":[54],"this":[55],"study,":[56],"options":[57],"for":[58,91,214],"their":[59],"are":[61,244],"LTC,":[64],"MDC.":[66],"Comparison":[67],"parent/guardian":[71],"is":[74],"unknown.":[75],"METHODS:":[76],"Using":[77],"repeated":[78],"measures":[79],"data":[80,240],"were":[81,114,135],"collected":[82],"from":[83,161,203,230],"84":[84],"dyads":[85],"(parent/guardian,":[86],"child)":[90],"5":[92],"months":[93],"using":[94],"Pediatric":[95],"Quality":[96],"Life":[98],"Inventory":[99],"Generic":[100],"Core":[101],"Module":[102,107],"4.0":[103],"Family":[105],"Impact":[106],"Data":[108],"analysis:":[109],"\u03c7(2),":[110],"RM-ANCOVA.":[111],"RESULTS:":[112],"There":[113],"no":[115],"significant":[116],"differences":[117],"overall":[119],"health,":[121,123],"functioning":[125],"by":[128],"setting.":[130],"Most":[131],"severely":[132],"disabled":[133,140],"care;":[138],"moderately":[139],"MDC;":[142],"vegetative":[145],"state":[146],"LTC;":[147],"however,":[148],"parents":[149],"perceived":[150],"children's":[151],"across":[153],"setting":[155],"as":[156],"good":[157],"to":[158,177,183,233],"excellent.":[159],"Parents/guardians":[160,202],"reported":[164,205],"the":[165,173,179,206,236],"poorest":[166],"including":[169],"being":[170],"tired":[171,176],"during":[172],"day,":[174],"too":[175],"do":[178],"things":[180],"they":[181],"like":[182],"do,":[184],"feeling":[185,189],"physically":[186],"weak,":[187],"sick":[190],"had":[192],"cognitive":[193],"difficulties,":[194],"difficulties":[195],"worry,":[197],"communication,":[198],"daily":[200],"activities.":[201],"LTC":[204,231],"best":[207],"time":[211],"energy":[213],"a":[215,227],"social":[216],"life":[217],"employment.":[219],"CONCLUSIONS:":[220],"Trends":[221],"policy":[225],"indicate":[226,241],"movement":[228],"away":[229],"family":[237],"where":[239],"these":[242],"parents/guardians":[243],"already":[245],"mentally":[246],"functionally":[248],"challenged.":[249]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":8},{"year":2021,"cited_by_count":6},{"year":2019,"cited_by_count":5},{"year":2018,"cited_by_count":4},{"year":2017,"cited_by_count":8},{"year":2016,"cited_by_count":4}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
