{"id":"https://openalex.org/W2321090213","doi":null,"title":"Privacy in Canadian Paediatric Biobanks: A Changing Landscape","display_name":"Privacy in Canadian Paediatric Biobanks: A Changing Landscape","publication_year":2011,"publication_date":"2011-01-01","ids":{"openalex":"https://openalex.org/W2321090213","mag":"2321090213"},"language":"en","primary_location":{"id":"mag:2321090213","doi":null,"is_oa":false,"landing_page_url":"http://www.micyrn.ca/PDF/ReviewofVariationsinPrivacyLegislationacrossCanadaandHowTheseAffectBiobanks.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},"volume":null,"type":"article","indexed_in":[],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008530700","display_name":"Edward S. Dove","orcid":"https://orcid.org/0000-0003-4095-3677","observed_orcids":["https://orcid.org/0000-0003-4095-3677"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Edward S. Dove","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0003-4095-3677","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110324635","display_name":"Lee J. Black","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lee Black","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111903274","display_name":"Denise M. Avard","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Denise Avard","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5013672213","display_name":"Bartha Maria Knoppers","orcid":"https://orcid.org/0000-0001-7004-2722","observed_orcids":["https://orcid.org/0000-0001-7004-2722"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bartha Maria Knoppers","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-7004-2722","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.3143,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":{"value":0.69618802,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9800000190734863,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9800000190734863,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14029","display_name":"Thoreau and American Literature","score":0.0032999999821186066,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.00279999990016222,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/privacy","display_name":"privacy","score":0.7540000081062317},{"id":"https://openalex.org/keywords/data-protection","display_name":"data protection","score":0.6169999837875366},{"id":"https://openalex.org/keywords/biobank-regulation","display_name":"biobank regulation","score":0.4950000047683716},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.4959999918937683},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.48399999737739563}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.8719684481620789},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.5990474820137024},{"id":"https://openalex.org/C2910417920","wikidata":"https://www.wikidata.org/wiki/Q4116434","display_name":"Patient privacy","level":3,"score":0.46192947030067444},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.4208594560623169},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4023648202419281},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.37213635444641113},{"id":"https://openalex.org/C91375879","wikidata":"https://www.wikidata.org/wiki/Q15473274","display_name":"Environmental planning","level":1,"score":0.3332512378692627},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.32562923431396484},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3168463408946991},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.2989231050014496},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.2682115435600281},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.15320229530334473},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.09781429171562195},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.09440073370933533},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.08728158473968506}],"mesh":[],"locations_count":1,"locations":[{"id":"mag:2321090213","doi":null,"is_oa":false,"landing_page_url":"http://www.micyrn.ca/PDF/ReviewofVariationsinPrivacyLegislationacrossCanadaandHowTheseAffectBiobanks.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":10,"referenced_works":["https://openalex.org/W129201312","https://openalex.org/W148629503","https://openalex.org/W198863369","https://openalex.org/W1591620048","https://openalex.org/W2035715268","https://openalex.org/W2040776825","https://openalex.org/W2116680047","https://openalex.org/W2143113543","https://openalex.org/W2157105761","https://openalex.org/W2205415211"],"related_works":["https://openalex.org/W2520359882","https://openalex.org/W2949899453","https://openalex.org/W7061526057","https://openalex.org/W2196807990","https://openalex.org/W7098608019","https://openalex.org/W2294526081","https://openalex.org/W2425407032","https://openalex.org/W2522239860","https://openalex.org/W2066822185","https://openalex.org/W7220689141"],"abstract_inverted_index":null,"counts_by_year":[{"year":2012,"cited_by_count":1}],"updated_date":"2026-09-22T06:50:58.402377","created_date":"2016-06-24T00:00:00"}