{"id":"https://openalex.org/W2292807993","doi":null,"title":"Self-management in patients with adrenal insufficiency","display_name":"Self-management in patients with adrenal insufficiency","publication_year":2011,"publication_date":"2011-04-01","ids":{"openalex":"https://openalex.org/W2292807993","mag":"2292807993"},"language":"en","primary_location":{"id":"mag:2292807993","doi":null,"is_oa":false,"landing_page_url":"https://www.endocrine-abstracts.org/ea/0026/ea0026p7","pdf_url":null,"source":{"id":"https://openalex.org/S4306497218","display_name":"13th European Congress of Endocrinology","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"13th European Congress of Endocrinology","raw_type":null},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5075207424","display_name":"Eck J P van","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Eck J P van","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030959350","display_name":"Robbert J.J. Gobbens","orcid":"https://orcid.org/0000-0003-0689-4191","observed_orcids":["https://orcid.org/0000-0003-0689-4191"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Robbert Gobbens","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0003-0689-4191","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077007778","display_name":"Joke Beukers","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Joke Beukers","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032449274","display_name":"Wanda Geilvoet","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Wanda Geilvoet","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035972317","display_name":"der Lely Aart Jan van","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"der Lely Aart Jan van","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5061013077","display_name":"Sebastian J C M M Neggers","orcid":"https://orcid.org/0000-0002-7698-0282","observed_orcids":["https://orcid.org/0000-0002-7698-0282"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"S J C M M Neggers","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.24211929,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"26","issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12421","display_name":"Adrenal Hormones and Disorders","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12421","display_name":"Adrenal Hormones and Disorders","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10793","display_name":"Diabetes Management and Education","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11620","display_name":"Medication Adherence and Compliance","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2714","display_name":"Family Practice"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/adrenal-insufficiency","display_name":"adrenal insufficiency","score":0.9929999709129333},{"id":"https://openalex.org/keywords/self-management","display_name":"self-management","score":0.9739999771118164},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.6039999723434448},{"id":"https://openalex.org/keywords/adrenal-crisis","display_name":"adrenal crisis","score":0.8240000009536743},{"id":"https://openalex.org/keywords/stress-dose-glucocorticoids","display_name":"stress dose glucocorticoids","score":0.7599999904632568},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.9559999704360962},{"id":"https://openalex.org/keywords/endocrine-nursing","display_name":"endocrine nursing","score":0.7509999871253967},{"id":"https://openalex.org/keywords/patient-associations","display_name":"patient associations","score":0.7580000162124634},{"id":"https://openalex.org/keywords/addison-s-disease","display_name":"Addison's disease","score":0.7149999737739563},{"id":"https://openalex.org/keywords/secondary-adrenal-insufficiency","display_name":"secondary adrenal insufficiency","score":0.9990000128746033}],"concepts":[{"id":"https://openalex.org/C2778129406","wikidata":"https://www.wikidata.org/wiki/Q2507454","display_name":"Adrenal insufficiency","level":2,"score":0.7866230010986328},{"id":"https://openalex.org/C2778808452","wikidata":"https://www.wikidata.org/wiki/Q4057453","display_name":"Adrenal crisis","level":3,"score":0.7627568244934082},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7624831199645996},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.6697243452072144},{"id":"https://openalex.org/C46699223","wikidata":"https://www.wikidata.org/wiki/Q11078","display_name":"Endocrine system","level":3,"score":0.5974195599555969},{"id":"https://openalex.org/C2778709874","wikidata":"https://www.wikidata.org/wiki/Q190875","display_name":"Hydrocortisone","level":2,"score":0.5300982594490051},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.48243340849876404},{"id":"https://openalex.org/C2777929519","wikidata":"https://www.wikidata.org/wiki/Q7144988","display_name":"Patient education","level":2,"score":0.4657934904098511},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.44058066606521606},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.41947704553604126},{"id":"https://openalex.org/C71315377","wikidata":"https://www.wikidata.org/wiki/Q11364","display_name":"Hormone","level":2,"score":0.3971577286720276},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.37434858083724976},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.3336026668548584},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.1969803273677826}],"mesh":[],"locations_count":1,"locations":[{"id":"mag:2292807993","doi":null,"is_oa":false,"landing_page_url":"https://www.endocrine-abstracts.org/ea/0026/ea0026p7","pdf_url":null,"source":{"id":"https://openalex.org/S4306497218","display_name":"13th European Congress of Endocrinology","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"13th European Congress of Endocrinology","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":6,"referenced_works":["https://openalex.org/W1484987496","https://openalex.org/W2018890758","https://openalex.org/W2113107736","https://openalex.org/W2132382547","https://openalex.org/W2148763233","https://openalex.org/W2167065183"],"related_works":["https://openalex.org/W2318871574","https://openalex.org/W1939040113","https://openalex.org/W2586531425","https://openalex.org/W2774353398","https://openalex.org/W3036289893","https://openalex.org/W4409348216","https://openalex.org/W4242611509","https://openalex.org/W2312902436","https://openalex.org/W2140875330","https://openalex.org/W2795189220"],"abstract_inverted_index":{"References":[0],"In":[1,169,192],"conclusion":[2],"this":[3,198,224],"study":[4],"contributes":[5],"to":[6,21,40,43,57,94,110,128,131,204,288],"the":[7,48,71,100,111,133,148,151,164,172,177,231,273,277,290,314,317,320],"limited":[8],"knowledge":[9],"that":[10,38],"is":[11,25,55,92,163,180],"available":[12],"about":[13],"self-management":[14],"in":[15,47,99,118,239,247],"patients":[16,75,120,193,252,270,315],"with":[17,195,253,258,280],"adrenal":[18,145,178,196,228,232,244,284],"insufficiency.":[19],"Adherence":[20],"daily":[22],"substitution":[23,155,219,292],"therapy":[24,156],"better":[26],"then":[27],"expected.":[28],"En":[29],"route":[30],"precautions":[31],"and":[32,52,89,105,116,143,188,222,255,298],"dose":[33,293],"adaptation":[34],"are":[35,286,306],"two":[36],"topics":[37],"need":[39],"be":[41,95,129,205],"improved":[42],"prevent":[44],"life-threatening":[45],"situations":[46],"future.":[49],"Low":[50],"education-level":[51],"increased":[53,181],"age":[54],"related":[56],"good":[58],"quality":[59],"of":[60,73,81,86,102,113,135,150,174,201,251,262,276,294,319],"self-management,":[61],"al":[62],"well":[63],"as":[64],"sex.":[65],"No":[66],"relation":[67],"was":[68],"found":[69],"for":[70],"number":[72],"years":[74,267],"have":[76],"been":[77,122],"diagnosed":[78,194,271],"or":[79,282],"membership":[80],"a":[82,96,161,212,248],"patient":[83,103,114,213,266],"association.":[84],"Involvement":[85],"endocrine":[87],"nurses":[88],"nurse":[90],"practitioners":[91],"likely":[93],"key":[97],"factor":[98],"effectiveness":[101,112],"education":[104,115],"training.":[106],"However,":[107,303],"little":[108],"research":[109,127],"training":[117],"these":[119,304],"has":[121],"done.":[123],"We":[124],"recommend":[125],"further":[126],"done,":[130],"investigate":[132],"effect":[134],"educational":[136],"interventions.":[137],"Patients":[138],"who":[139],"suffer":[140],"from":[141],"primary":[142,254,281],"secondary":[144,256,283],"insufficiency,":[146,197],"lack":[147],"production":[149,173],"hormone":[152],"cortisol.":[153],"Standard":[154],"by":[157,176,207],"Hydrocortisone":[158],"20":[159],"mg":[160],"day":[162],"golden":[165],"standard":[166],"currently":[167],"[1].":[168],"healthy":[170],"subjects,":[171],"cortisol":[175,202],"glands":[179],"during":[182,220,296],"disease,":[183],"fever,":[184],"strain,":[185,223],"medical":[186],"interventions":[187],"severe":[189],"psychological":[190],"stress.":[191],"automatic":[199],"increase":[200],"needs":[203],"mimiced,":[206],"taking":[208],"additional":[209,217],"glucocorticoids.":[210],"If":[211],"does":[214],"not":[215,307],"take":[216],"glucocorticoids":[218,295],"stress":[221,297],"will":[225,237],"evoke":[226],"an":[227,259],"crisis.":[229],"When":[230],"crisis":[233,245],"remains":[234],"untreated,":[235],"it":[236],"result":[238],"death":[240],"[2].":[241],"These":[242],"acute":[243],"occur":[246],"substantial":[249],"proportion":[250],"insufficiency":[257,285],"overall":[260],"frequency":[261],"6.3":[263],"per":[264],"100":[265],"[3].":[268],"The":[269],"on":[272],"endocrinology":[274],"department":[275],"Erasmus":[278],"MC":[279],"instructed":[287],"double":[289],"regular":[291],"strain":[299],"at":[300,311],"own":[301],"initiative.":[302],"advices":[305],"always":[308],"adequately":[309],"followed":[310],"home,":[312],"because":[313],"underestimate":[316],"severity":[318],"situation.":[321]},"counts_by_year":[],"updated_date":"2026-09-26T08:19:03.415552","created_date":"2016-06-24T00:00:00"}