{"id":"https://openalex.org/W2290628107","doi":null,"title":"To know or not to know? Attitudes towards receiving genetic information among patients and the general public.","display_name":"To know or not to know? Attitudes towards receiving genetic information among patients and the general public.","publication_year":2010,"publication_date":"2010-11-16","ids":{"openalex":"https://openalex.org/W2290628107","mag":"2290628107"},"language":"en","primary_location":{"id":"pmh:oai:bora.uib.no:1956/4449","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/1956/4449","pdf_url":"https://bora.uib.no/bora-xmlui/bitstream/1956/4449/1/Dr.thesis_Katharina%20Wolff.pdf","source":{"id":"https://openalex.org/S7407064446","display_name":"NORA - Norwegian Open Research Archives","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://bora.uib.no/bora-xmlui/bitstream/1956/4449/1/Dr.thesis_Katharina%20Wolff.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073984781","display_name":"Katharina Wolff","orcid":"https://orcid.org/0000-0002-3616-0482","observed_orcids":["https://orcid.org/0000-0002-3616-0482","https://orcid.org/0009-0009-9180-3549"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Katharina Wolff","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5073984781"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.2409999966621399,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.2409999966621399,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13275","display_name":"Medical and Health Sciences Research","score":0.2337999939918518,"subfield":{"id":"https://openalex.org/subfields/3308","display_name":"Law"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.22290000319480896,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/genetic-testing-uptake","display_name":"genetic testing uptake","score":0.734000027179718},{"id":"https://openalex.org/keywords/genetic-disorders","display_name":"genetic disorders","score":0.7459999918937683},{"id":"https://openalex.org/keywords/genetic-counseling","display_name":"genetic counseling","score":0.6909999847412109},{"id":"https://openalex.org/keywords/breach-of-confidentiality","display_name":"breach of confidentiality","score":0.6909999847412109},{"id":"https://openalex.org/keywords/disease-penetrance","display_name":"disease penetrance","score":0.753000020980835},{"id":"https://openalex.org/keywords/uncertainty-avoidance","display_name":"uncertainty avoidance","score":0.7459999918937683},{"id":"https://openalex.org/keywords/theory-of-planned-behavior","display_name":"theory of planned behavior","score":0.8489999771118164},{"id":"https://openalex.org/keywords/self-efficacy","display_name":"self-efficacy","score":0.8349999785423279},{"id":"https://openalex.org/keywords/genetic-knowledge","display_name":"genetic knowledge","score":0.5759999752044678}],"concepts":[{"id":"https://openalex.org/C2778519782","wikidata":"https://www.wikidata.org/wiki/Q1974060","display_name":"Need to know","level":2,"score":0.5685582756996155},{"id":"https://openalex.org/C61326887","wikidata":"https://www.wikidata.org/wiki/Q7333687","display_name":"Right to know","level":2,"score":0.44919347763061523},{"id":"https://openalex.org/C2780673598","wikidata":"https://www.wikidata.org/wiki/Q285223","display_name":"Genetic testing","level":2,"score":0.4451342523097992},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.42482253909111023},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3759458661079407},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3479158878326416},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.34116673469543457},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.3370758891105652},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3308091163635254},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.28494971990585327},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.27400216460227966},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.2667790651321411},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.1645740270614624},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.13636931777000427}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:bora.uib.no:1956/4449","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/1956/4449","pdf_url":"https://bora.uib.no/bora-xmlui/bitstream/1956/4449/1/Dr.thesis_Katharina%20Wolff.pdf","source":{"id":"https://openalex.org/S7407064446","display_name":"NORA - Norwegian Open Research Archives","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:2290628107","doi":null,"is_oa":false,"landing_page_url":"https://bora.uib.no/handle/1956/4449","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:bora.uib.no:1956/4449","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/1956/4449","pdf_url":"https://bora.uib.no/bora-xmlui/bitstream/1956/4449/1/Dr.thesis_Katharina%20Wolff.pdf","source":{"id":"https://openalex.org/S7407064446","display_name":"NORA - Norwegian Open Research Archives","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"score":0.9476000070571899,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320323299","display_name":"Norges Forskningsr\u00e5d","ror":"https://ror.org/00epmv149"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2290628107.pdf","grobid_xml":"https://content.openalex.org/works/W2290628107.grobid-xml"},"referenced_works_count":84,"referenced_works":["https://openalex.org/W10901881","https://openalex.org/W25494255","https://openalex.org/W64636523","https://openalex.org/W600051722","https://openalex.org/W1508763140","https://openalex.org/W1517229207","https://openalex.org/W1562208008","https://openalex.org/W1565218197","https://openalex.org/W1756431552","https://openalex.org/W1964110787","https://openalex.org/W1965616733","https://openalex.org/W1969755430","https://openalex.org/W1974947077","https://openalex.org/W1979871502","https://openalex.org/W1980361844","https://openalex.org/W1982813521","https://openalex.org/W1991160028","https://openalex.org/W1992892066","https://openalex.org/W1995860932","https://openalex.org/W1999041903","https://openalex.org/W2000528609","https://openalex.org/W2001866454","https://openalex.org/W2001992481","https://openalex.org/W2004785453","https://openalex.org/W2005320215","https://openalex.org/W2008719596","https://openalex.org/W2011744324","https://openalex.org/W2013820329","https://openalex.org/W2015527530","https://openalex.org/W2016263967","https://openalex.org/W2017956796","https://openalex.org/W2024006092","https://openalex.org/W2024509488","https://openalex.org/W2032409796","https://openalex.org/W2035721753","https://openalex.org/W2036116526","https://openalex.org/W2039387158","https://openalex.org/W2039397613","https://openalex.org/W2045174686","https://openalex.org/W2045257904","https://openalex.org/W2049655125","https://openalex.org/W2052540148","https://openalex.org/W2054706461","https://openalex.org/W2055642223","https://openalex.org/W2064891444","https://openalex.org/W2071290111","https://openalex.org/W2072358807","https://openalex.org/W2077269515","https://openalex.org/W2078881280","https://openalex.org/W2081376201","https://openalex.org/W2081393164","https://openalex.org/W2085382058","https://openalex.org/W2087547100","https://openalex.org/W2089459906","https://openalex.org/W2091504428","https://openalex.org/W2094418162","https://openalex.org/W2099697766","https://openalex.org/W2109381932","https://openalex.org/W2111346103","https://openalex.org/W2117960734","https://openalex.org/W2119403113","https://openalex.org/W2125634133","https://openalex.org/W2127670722","https://openalex.org/W2128315509","https://openalex.org/W2134966170","https://openalex.org/W2141794590","https://openalex.org/W2145424175","https://openalex.org/W2145877753","https://openalex.org/W2152285041","https://openalex.org/W2152520342","https://openalex.org/W2152690388","https://openalex.org/W2152693543","https://openalex.org/W2153130616","https://openalex.org/W2154765346","https://openalex.org/W2160304138","https://openalex.org/W2167373805","https://openalex.org/W2167382894","https://openalex.org/W2168274334","https://openalex.org/W2181371578","https://openalex.org/W2223788267","https://openalex.org/W2313987504","https://openalex.org/W2401725968","https://openalex.org/W2415252440","https://openalex.org/W2637540089"],"related_works":["https://openalex.org/W2057292266","https://openalex.org/W2063887519","https://openalex.org/W2180273924","https://openalex.org/W2073098991","https://openalex.org/W2562319124","https://openalex.org/W2015527530","https://openalex.org/W4408102723","https://openalex.org/W4412780073","https://openalex.org/W1992892066","https://openalex.org/W1991357103"],"abstract_inverted_index":{"Progress":[0],"in":[1,99,132,218],"the":[2,38,53,63,80,104,107,118,121,144,150,230,236,238,244,247,250,276],"field":[3],"of":[4,21,28,52,65,82,109,120,143,149,154,181,186,232,246,273],"molecular":[5],"genetics":[6],"has":[7],"made":[8],"it":[9],"possible":[10],"to":[11,34,47,57,76,96,117,224,261],"identify":[12],"individuals":[13],"with":[14,111,162,212],"an":[15,178],"increased":[16],"risk":[17,135,223,268],"for":[18,204],"a":[19],"variety":[20],"hereditary":[22,83,112],"diseases.":[23],"To":[24],"ensure":[25],"successful":[26],"implementation":[27],"genetic":[29,66,134,213,222,267],"testing":[30,43],"and":[31,40,88,146,170,210,249,270],"counselling":[32],"according":[33],"patients":[35,110],"best":[36],"interests":[37],"attitudes":[39,108,119],"motives":[41],"behind":[42],"intentions":[44],"are":[45],"important":[46,240,252],"consider.":[48],"The":[49,152],"main":[50],"aim":[51],"current":[54],"thesis":[55,105],"was":[56,128,157,229,243,255],"investigate":[58],"factors":[59,173],"which":[60,90],"might":[61],"facilitate":[62],"uptake":[64],"testing.":[67,214],"Furthermore":[68],"this":[69],"research":[70],"investigated":[71,175],"whether":[72],"potential":[73],"relatives":[74],"want":[75,93],"be":[77,101,138,225,262],"informed":[78],"about":[79,208,220],"existence":[81],"conditions":[84,91,113],"within":[85,114],"their":[86,115],"family,":[87],"under":[89],"they":[92],"healthcare":[94],"providers":[95],"breach":[97],"confidentiality":[98,233,274],"order":[100],"informed.":[102],"Finally,":[103],"compares":[106],"family":[116],"general":[122,277],"public":[123],"concerning":[124],"these":[125],"issues.":[126],"It":[127],"hypothesized":[129],"that":[130],"interest":[131,217],"receiving":[133,266],"information":[136,269],"would":[137],"influenced":[139],"by":[140,147,159,176],"both":[141],"characteristics":[142,148,156],"individual":[145,193,253],"disease.":[151],"role":[153],"disease":[155,165,241],"studied":[158],"using":[160,177],"scenarios":[161],"systematically":[163],"varied":[164],"features,":[166],"namely":[167],"fatality,":[168],"treatability":[169,245],"penetrance.":[171],"Individual":[172],"were":[174,259],"extended":[179],"version":[180],"Ajzen\u2019s":[182],"(1985;":[183],"1991)":[184],"Theory":[185],"Planned":[187],"Behaviour,":[188],"as":[189,191,197,228],"well":[190],"several":[192],"difference":[194],"measures":[195],"such":[196],"uncertainty":[198,256],"avoidance,":[199],"worry,":[200],"coping,":[201],"self-efficacy,":[202],"consideration":[203],"future":[205],"consequences,":[206],"knowledge":[207],"genetics,":[209],"familiarity":[211],"Results":[215],"showed":[216],"learning":[219],"ones":[221],"relatively":[226],"high,":[227],"acceptance":[231],"breaches.":[234],"Among":[235],"predictors":[237],"most":[239,251],"characteristic":[242],"disease,":[248],"predictor":[254],"avoidance.":[257],"Patients":[258],"found":[260],"more":[263],"positive":[264],"towards":[265,271],"breaches":[272],"then":[275],"population.":[278]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
