{"id":"https://openalex.org/W2181000951","doi":"https://doi.org/10.18061/dsq.v35i3.4934","title":"\u201cMost of Them Are Amateurs\u201d: Women with Spinal Cord Injury Experience the Lack of Education and Training among Medical Providers While Seeking Gynecological Care","display_name":"\u201cMost of Them Are Amateurs\u201d: Women with Spinal Cord Injury Experience the Lack of Education and Training among Medical Providers While Seeking Gynecological Care","publication_year":2015,"publication_date":"2015-09-02","ids":{"openalex":"https://openalex.org/W2181000951","doi":"https://doi.org/10.18061/dsq.v35i3.4934","mag":"2181000951"},"language":"en","primary_location":{"id":"doi:10.18061/dsq.v35i3.4934","doi":"https://doi.org/10.18061/dsq.v35i3.4934","is_oa":true,"landing_page_url":"https://doi.org/10.18061/dsq.v35i3.4934","pdf_url":null,"source":{"id":"https://openalex.org/S2736787023","display_name":"Disability Studies Quarterly","issn_l":"1041-5718","issn":["1041-5718","2159-8371"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","norway-1"],"host_organization":"https://openalex.org/P4310316018","host_organization_name":"The Ohio State University Libraries","host_organization_lineage":["https://openalex.org/P4310316018"],"host_organization_lineage_names":["The Ohio State University Libraries"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Disability Studies Quarterly","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"https://doi.org/10.18061/dsq.v35i3.4934","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5084724501","display_name":"Heather Elise Dillaway","orcid":"https://orcid.org/0000-0002-8104-2696","observed_orcids":["https://orcid.org/0000-0002-8104-2696"]},"institutions":[{"id":"https://openalex.org/I185443292","display_name":"Wayne State University","ror":"https://ror.org/01070mq45","country_code":"US","type":"education","lineage":["https://openalex.org/I185443292"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Heather Elise Dillaway","raw_affiliation_strings":["Wayne State University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Wayne State University","institution_ids":["https://openalex.org/I185443292"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5112210188","display_name":"Catherine L. Lysack","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Catherine L. Lysack","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.9128,"has_fulltext":false,"cited_by_count":17,"citation_normalized_percentile":{"value":0.91726445,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":"35","issue":"3","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.9520999789237976,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.9520999789237976,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10925","display_name":"Spinal Cord Injury Research","score":0.01119999960064888,"subfield":{"id":"https://openalex.org/subfields/2734","display_name":"Pathology and Forensic Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12948","display_name":"Inclusion and Disability in Education and Sport","score":0.006800000090152025,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/spinal-cord-injury","display_name":"spinal cord injury","score":0.9739999771118164},{"id":"https://openalex.org/keywords/women-with-disabilities","display_name":"women with disabilities","score":0.8640000224113464},{"id":"https://openalex.org/keywords/gynecological-care","display_name":"gynecological care","score":0.9879999756813049},{"id":"https://openalex.org/keywords/healthcare-access-disparities","display_name":"health care access disparities","score":0.6499999761581421},{"id":"https://openalex.org/keywords/health-seeking-behavior","display_name":"health-seeking behavior","score":0.578000009059906},{"id":"https://openalex.org/keywords/structural-barriers-to-care","display_name":"structural barriers to care","score":0.6880000233650208}],"concepts":[{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5858246684074402},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5334121584892273},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.509402334690094},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.4579867124557495},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.37735557556152344},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.35169413685798645},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.14981341361999512},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.11781641840934753},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.18061/dsq.v35i3.4934","doi":"https://doi.org/10.18061/dsq.v35i3.4934","is_oa":true,"landing_page_url":"https://doi.org/10.18061/dsq.v35i3.4934","pdf_url":null,"source":{"id":"https://openalex.org/S2736787023","display_name":"Disability Studies Quarterly","issn_l":"1041-5718","issn":["1041-5718","2159-8371"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","norway-1"],"host_organization":"https://openalex.org/P4310316018","host_organization_name":"The Ohio State University Libraries","host_organization_lineage":["https://openalex.org/P4310316018"],"host_organization_lineage_names":["The Ohio State University Libraries"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Disability Studies Quarterly","raw_type":"journal-article"},{"id":"pmh:oai:doaj.org/article:831f8b9f71bb48e5aae071dfa35245a3","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/831f8b9f71bb48e5aae071dfa35245a3","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Disability Studies Quarterly, Vol 35, Iss 3 (2015)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.18061/dsq.v35i3.4934","doi":"https://doi.org/10.18061/dsq.v35i3.4934","is_oa":true,"landing_page_url":"https://doi.org/10.18061/dsq.v35i3.4934","pdf_url":null,"source":{"id":"https://openalex.org/S2736787023","display_name":"Disability Studies Quarterly","issn_l":"1041-5718","issn":["1041-5718","2159-8371"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","norway-1"],"host_organization":"https://openalex.org/P4310316018","host_organization_name":"The Ohio State University Libraries","host_organization_lineage":["https://openalex.org/P4310316018"],"host_organization_lineage_names":["The Ohio State University Libraries"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Disability Studies Quarterly","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.9629999995231628},{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9476000070571899},{"id":"https://metadata.un.org/sdg/5","display_name":"Gender equality","score":0.6025999784469604}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2489120003","https://openalex.org/W2986647869","https://openalex.org/W2129764504","https://openalex.org/W2416762289","https://openalex.org/W3020689995","https://openalex.org/W2888290066","https://openalex.org/W2119586300","https://openalex.org/W2053917805","https://openalex.org/W7161134164","https://openalex.org/W2990079886"],"abstract_inverted_index":{"Although":[0],"the":[1,39,112,126,132,144],"American":[2],"Disabilities":[3],"Act":[4],"(ADA,":[5],"1990)":[6],"became":[7],"federal":[8],"law":[9],"more":[10],"than":[11],"two":[12],"decades":[13],"ago,":[14],"individuals":[15],"with":[16,56,60,84],"disabilities":[17],"continue":[18],"to":[19,27,118],"experience":[20],"substandard":[21],"healthcare.":[22],"We":[23],"use":[24],"this":[25,48,93],"article":[26],"hone":[28],"in":[29,64],"on":[30,97],"disabled":[31],"women's":[32,98],"experiences":[33,101],"of":[34,80,128,134,146,161],"seeking":[35],"gynecological":[36,89,99,167],"care":[37,86],"and":[38,76,88,102,105,107,115,148,159],"access":[40],"disparities":[41],"they":[42],"still":[43],"face.":[44],"The":[45],"data":[46],"for":[47],"qualitative":[49],"study":[50],"were":[51],"gathered":[52],"using":[53],"in-depth":[54],"interviews":[55],"20":[57],"women":[58,109,164],"living":[59],"spinal":[61],"cord":[62],"injuries":[63],"or":[65],"around":[66],"Detroit,":[67],"Michigan.":[68],"Each":[69],"interviewee":[70],"was":[71],"questioned":[72],"about":[73,125],"overall":[74],"health":[75,85],"physical":[77],"functioning,":[78],"accessibility":[79],"doctor":[81],"offices,":[82,130],"interactions":[83],"providers,":[87],"health-seeking":[90],"behaviors.":[91],"In":[92],"paper":[94],"we":[95],"report":[96],"healthcare":[100],"related":[103],"attitudes":[104],"practices,":[106],"what":[108],"see":[110],"as":[111],"primary":[113],"structural":[114],"social":[116,157],"barriers":[117],"comprehensive":[119],"care.":[120,168],"Findings":[121],"echo":[122],"past":[123],"literature":[124],"inaccessibility":[127],"doctor's":[129],"including":[131],"lack":[133,145],"suitable":[135],"exam":[136],"tables.":[137],"However,":[138],"our":[139],"findings":[140],"also":[141],"suggest":[142],"that":[143],"education":[147],"training":[149],"among":[150],"medical":[151],"providers":[152],"could":[153],"be":[154],"a":[155],"key":[156],"barrier":[158],"determinant":[160],"whether":[162],"individual":[163],"actually":[165],"secure":[166]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":3},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2015,"cited_by_count":1}],"updated_date":"2026-09-22T06:50:58.402377","created_date":"2016-06-24T00:00:00"}