{"id":"https://openalex.org/W2180137952","doi":null,"title":"One Size Doesn\u2019t Fit All: Showing Adolescents the Respect They Deserve as Research Participants","display_name":"One Size Doesn\u2019t Fit All: Showing Adolescents the Respect They Deserve as Research Participants","publication_year":2015,"publication_date":"2015-09-09","ids":{"openalex":"https://openalex.org/W2180137952","mag":"2180137952"},"language":"en","primary_location":{"id":"pmh:oai:d-scholarship.pitt.edu:25939","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","pdf_url":"http://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5108440180","display_name":"Judith L. Navratil","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Judith Navratil","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5108440180"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9541000127792358,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9541000127792358,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11506","display_name":"Children's Rights and Participation","score":0.02759999968111515,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.016100000590085983,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.9589999914169312},{"id":"https://openalex.org/keywords/parental-permission","display_name":"parental permission","score":0.9039999842643738},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.4000000059604645},{"id":"https://openalex.org/keywords/minimal-risk-research","display_name":"minimal risk research","score":0.6809999942779541},{"id":"https://openalex.org/keywords/adolescent-autonomy","display_name":"adolescent autonomy","score":0.5669999718666077},{"id":"https://openalex.org/keywords/cognitive-development","display_name":"cognitive development","score":0.527999997138977},{"id":"https://openalex.org/keywords/vulnerable-populations","display_name":"vulnerable populations","score":0.7200000286102295},{"id":"https://openalex.org/keywords/marginalized-youth","display_name":"marginalized youth","score":0.7319999933242798},{"id":"https://openalex.org/keywords/youth-mental-health","display_name":"youth mental health","score":0.3709999918937683},{"id":"https://openalex.org/keywords/observational-studies","display_name":"observational studies","score":0.5019999742507935}],"concepts":[{"id":"https://openalex.org/C2779089604","wikidata":"https://www.wikidata.org/wiki/Q7169333","display_name":"Permission","level":2,"score":0.8083071708679199},{"id":"https://openalex.org/C2779171700","wikidata":"https://www.wikidata.org/wiki/Q7136783","display_name":"Parental consent","level":4,"score":0.6358669996261597},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6240203380584717},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5289442539215088},{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.48277202248573303},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.44530385732650757},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.41947492957115173},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.39226022362709045},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.33815738558769226},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.2342253029346466},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2172570824623108},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.19326943159103394},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.1758250594139099},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.11681261658668518},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:d-scholarship.pitt.edu:25939","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","pdf_url":"http://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},{"id":"mag:2180137952","doi":null,"is_oa":false,"landing_page_url":"http://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:d-scholarship.pitt.edu:25939","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","pdf_url":"http://d-scholarship.pitt.edu/25939/1/NAVRATIL_FINAL_8.13.15_2.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2180137952.pdf","grobid_xml":"https://content.openalex.org/works/W2180137952.grobid-xml"},"referenced_works_count":43,"referenced_works":["https://openalex.org/W67686062","https://openalex.org/W199774776","https://openalex.org/W379409632","https://openalex.org/W577954089","https://openalex.org/W1508894207","https://openalex.org/W1533897165","https://openalex.org/W1548391677","https://openalex.org/W1554550405","https://openalex.org/W1561266988","https://openalex.org/W1567743864","https://openalex.org/W1978148270","https://openalex.org/W1978909111","https://openalex.org/W1982279161","https://openalex.org/W1987080046","https://openalex.org/W1991891931","https://openalex.org/W1997431796","https://openalex.org/W2012542655","https://openalex.org/W2024012873","https://openalex.org/W2025816539","https://openalex.org/W2036899807","https://openalex.org/W2056075139","https://openalex.org/W2059989936","https://openalex.org/W2063131947","https://openalex.org/W2066913220","https://openalex.org/W2068616441","https://openalex.org/W2070431452","https://openalex.org/W2074294301","https://openalex.org/W2080203542","https://openalex.org/W2091109405","https://openalex.org/W2108410586","https://openalex.org/W2116201584","https://openalex.org/W2136414372","https://openalex.org/W2141643941","https://openalex.org/W2142556532","https://openalex.org/W2142862769","https://openalex.org/W2150060517","https://openalex.org/W2155641495","https://openalex.org/W2156890975","https://openalex.org/W2173514600","https://openalex.org/W2272511544","https://openalex.org/W2399512320","https://openalex.org/W2405792798","https://openalex.org/W4244520000"],"related_works":["https://openalex.org/W3087423450","https://openalex.org/W3125404456","https://openalex.org/W86473885","https://openalex.org/W1989674568","https://openalex.org/W2136414372","https://openalex.org/W4246627026","https://openalex.org/W7045383573","https://openalex.org/W2063131947","https://openalex.org/W3116514699","https://openalex.org/W4250055887"],"abstract_inverted_index":{"In":[0],"this":[1],"paper":[2],"I":[3,28,109,210],"argue":[4],"that":[5,22,30,111,129,200,214,272],"adolescents":[6,159,174,215,283],"should":[7,154,196],"be":[8,155,197],"asked":[9,220,251],"directly":[10],"for":[11,33,104,149],"informed":[12],"consent":[13],"to":[14,55,78,94,146,157,171,184,203,221,252,257,266,276,287],"participate":[15,267],"in":[16,37,144,169,261,268],"minimal":[17],"risk":[18,47],"research":[19,39,46,116,134,180,226,270],"about":[20],"behaviors":[21],"impact":[23],"adolescent":[24,77],"health":[25,235],"and":[26,48,102,135,290,299,304],"well-being.":[27],"demonstrate":[29],"parental":[31,71,150,187],"permission":[32,72,188],"an":[34,76,122,190,285],"adolescent\u2019s":[35,53],"participation":[36],"such":[38],"does":[40],"not":[41],"provide":[42,277,282],"additional":[43,177],"protection":[44],"from":[45,218,249,292],"is":[49,189],"disrespectful":[50],"of":[51,62,68,99,107,133,141,207,247],"the":[52,63,82,92,105,112,139,147,204,212,262],"capacity":[54],"choose":[56],"based":[57,120],"on":[58,121],"his":[59,100],"own":[60],"assessment":[61],"risks,":[64],"discomforts":[65],"or":[66,193,239],"inconveniences":[67],"participation.":[69],"Requiring":[70],"while":[73],"merely":[74],"asking":[75],"\u201cassent\u201d":[79],"also":[80,281],"undermines":[81],"moral":[83],"benefit":[84,106,217],"he":[85],"might":[86],"attain":[87],"because":[88],"it":[89],"denies":[90],"him":[91],"opportunity":[93,286],"voluntarily":[95],"make":[96],"a":[97,161,245],"contribution":[98],"time":[101],"effort":[103],"others.":[108],"show":[110],"federal":[113],"regulations":[114,153],"governing":[115],"with":[117,225,284,301],"children":[118,137],"are":[119,201,273,296],"inappropriate":[123],"\u201cone":[124],"size":[125],"fits":[126],"all\u201d":[127],"perspective":[128],"treats":[130],"all":[131,136],"kinds":[132],"under":[138],"age":[140],"18":[142],"similarly":[143],"regard":[145],"requirement":[148],"permission.":[151],"The":[152],"amended":[156],"recognize":[158],"as":[160,179],"distinct":[162],"population,":[163],"\u201ccharacterized":[164],"by":[165],"developing":[166],"cognitive":[167],"capacities":[168],"addition":[170],"judgment.\u201d":[172],"While":[173],"may":[175,216,243,280],"need":[176,183],"protections":[178,199,279],"participants,":[181],"IRBs":[182],"ask":[185],"whether":[186,194],"appropriate":[191,278],"protection,":[192],"there":[195],"other":[198,240,259],"tailored":[202],"actual":[205],"vulnerabilities":[206],"adolescents.":[208],"Finally,":[209],"discuss":[211],"possibility":[213],"being":[219,250],"share":[222],"their":[223,254],"stories":[224],"investigators.":[227],"Marginalized":[228],"youth,":[229],"including":[230],"those":[231],"who":[232,295],"have":[233],"mental":[234],"problems,":[236],"drug":[237],"addiction":[238],"stigmatizing":[241],"conditions,":[242],"gain":[244],"sense":[246],"self-respect":[248],"contribute":[253],"personal":[255],"experiences":[256],"help":[258],"youth":[260,265],"future.":[263],"Allowing":[264],"observational":[269],"projects":[271],"carefully":[274],"constructed":[275],"obtain":[288],"guidance":[289],"support":[291],"adult":[293],"professionals":[294],"sympathetic,":[297],"nonjudgmental,":[298],"experienced":[300],"adolescents\u2019":[302],"problems":[303],"behaviors.":[305]},"counts_by_year":[],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2016-06-24T00:00:00"}