{"id":"https://openalex.org/W2169687003","doi":null,"title":"Patient innovation : its prevalence, antecedents and impact","display_name":"Patient innovation : its prevalence, antecedents and impact","publication_year":2013,"publication_date":"2013-01-01","ids":{"openalex":"https://openalex.org/W2169687003","mag":"2169687003"},"language":"en","primary_location":{"id":"pmh:oai:repositorio.ucp.pt:10400.14/15396","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10400.14/15396","pdf_url":"http://hdl.handle.net/10400.14/15396","source":{"id":"https://openalex.org/S4306402433","display_name":"Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"master thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/10400.14/15396","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5047190539","display_name":"M Czernin","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I25169866","display_name":"Universidade Cat\u00f3lica Portuguesa","ror":"https://ror.org/03b9snr86","country_code":"PT","type":"education","lineage":["https://openalex.org/I25169866"]}],"countries":["PT"],"is_corresponding":true,"raw_author_name":"Czernin, Matilde","raw_affiliation_strings":["Universidade Cat\u00f3lica Portuguesa ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Cat\u00f3lica Portuguesa ,","institution_ids":["https://openalex.org/I25169866"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5047190539"],"corresponding_institution_ids":["https://openalex.org/I25169866"],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.6294000148773193,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.6294000148773193,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14389","display_name":"Innovation, Technology, and Society","score":0.04520000144839287,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11114","display_name":"Service and Product Innovation","score":0.03880000114440918,"subfield":{"id":"https://openalex.org/subfields/1406","display_name":"Marketing"},"field":{"id":"https://openalex.org/fields/14","display_name":"Business, Management and Accounting"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-innovation","display_name":"patient innovation","score":0.9879999756813049},{"id":"https://openalex.org/keywords/rare-diseases","display_name":"rare diseases","score":0.8659999966621399},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.7940000295639038},{"id":"https://openalex.org/keywords/health-care-innovation","display_name":"healthcare innovation","score":0.9100000262260437},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.8989999890327454},{"id":"https://openalex.org/keywords/educational-attainment","display_name":"educational attainment","score":0.42399999499320984},{"id":"https://openalex.org/keywords/marital-status","display_name":"marital status","score":0.7200000286102295},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.35100001096725464}],"concepts":[{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.6379945278167725},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5273265242576599},{"id":"https://openalex.org/C151956035","wikidata":"https://www.wikidata.org/wiki/Q1132755","display_name":"Logistic regression","level":2,"score":0.44596824049949646},{"id":"https://openalex.org/C39896193","wikidata":"https://www.wikidata.org/wiki/Q380344","display_name":"Descriptive statistics","level":2,"score":0.4365350008010864},{"id":"https://openalex.org/C182306322","wikidata":"https://www.wikidata.org/wiki/Q1779371","display_name":"Order (exchange)","level":2,"score":0.4284176528453827},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.41285285353660583},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4074828326702118},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.37298035621643066},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.3728443384170532},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.36304354667663574},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.12794291973114014},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.12648189067840576},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.12219458818435669},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"pmh:oai:repositorio.ucp.pt:10400.14/15396","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10400.14/15396","pdf_url":"http://hdl.handle.net/10400.14/15396","source":{"id":"https://openalex.org/S4306402433","display_name":"Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"master thesis"}],"best_oa_location":{"id":"pmh:oai:repositorio.ucp.pt:10400.14/15396","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10400.14/15396","pdf_url":"http://hdl.handle.net/10400.14/15396","source":{"id":"https://openalex.org/S4306402433","display_name":"Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"master thesis"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320307856","display_name":"World Health Organization","ror":"https://ror.org/01f80g185"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2169687003.pdf","grobid_xml":"https://content.openalex.org/works/W2169687003.grobid-xml"},"referenced_works_count":67,"referenced_works":["https://openalex.org/W16553250","https://openalex.org/W96201705","https://openalex.org/W104975946","https://openalex.org/W828027084","https://openalex.org/W1168035040","https://openalex.org/W1484151964","https://openalex.org/W1492267869","https://openalex.org/W1517481628","https://openalex.org/W1552480497","https://openalex.org/W1562772622","https://openalex.org/W1573234480","https://openalex.org/W1601885767","https://openalex.org/W1696650694","https://openalex.org/W1726133870","https://openalex.org/W1965862247","https://openalex.org/W1969272687","https://openalex.org/W1973601042","https://openalex.org/W1973980643","https://openalex.org/W1978868323","https://openalex.org/W1985100089","https://openalex.org/W1998581510","https://openalex.org/W2007965578","https://openalex.org/W2009353549","https://openalex.org/W2010983744","https://openalex.org/W2013386523","https://openalex.org/W2019326547","https://openalex.org/W2027994865","https://openalex.org/W2036888086","https://openalex.org/W2045106647","https://openalex.org/W2046991340","https://openalex.org/W2050698050","https://openalex.org/W2060612466","https://openalex.org/W2068026016","https://openalex.org/W2082298179","https://openalex.org/W2083861826","https://openalex.org/W2090703308","https://openalex.org/W2093499889","https://openalex.org/W2105752956","https://openalex.org/W2115800520","https://openalex.org/W2117165349","https://openalex.org/W2118243939","https://openalex.org/W2121175754","https://openalex.org/W2124946950","https://openalex.org/W2125050661","https://openalex.org/W2129604246","https://openalex.org/W2132223925","https://openalex.org/W2132265655","https://openalex.org/W2136403567","https://openalex.org/W2139362405","https://openalex.org/W2139729261","https://openalex.org/W2155030706","https://openalex.org/W2156035463","https://openalex.org/W2166043165","https://openalex.org/W2166550586","https://openalex.org/W2167142086","https://openalex.org/W2288173445","https://openalex.org/W2315976467","https://openalex.org/W2324878130","https://openalex.org/W2517100999","https://openalex.org/W2617895008","https://openalex.org/W2773812869","https://openalex.org/W2807379839","https://openalex.org/W2991805941","https://openalex.org/W3122407922","https://openalex.org/W3124973809","https://openalex.org/W3125388582","https://openalex.org/W3126004373"],"related_works":["https://openalex.org/W2110319441","https://openalex.org/W2332664988","https://openalex.org/W2013021238","https://openalex.org/W7042244013","https://openalex.org/W2960671653","https://openalex.org/W2090703308","https://openalex.org/W2955492434","https://openalex.org/W2757565423","https://openalex.org/W2295017237","https://openalex.org/W3138671386"],"abstract_inverted_index":{"In":[0,86],"order":[1],"to":[2,39,61,66,77,82,95,100,142,158,178,245,269],"maintain":[3],"the":[4,31,47,83,89,98,122,125,135,140,159,162,171,196,221,224,233,243,259,264,266,287,296,311,325],"level":[5,208],"of":[6,24,33,91,105,115,127,138,153,170,184,191,202,209,220,261,263,273,290,298,327],"healthcare":[7,69,316],"that":[8,22,189,198,284,301,310],"we":[9,165],"now":[10],"associate":[11],"with":[12,43,134,223,249],"developed":[13,49],"countries,":[14],"innovation":[15,48,84],"is":[16,52,65,94],"imperative.":[17],"Previous":[18],"literature":[19],"has":[20,238],"shown":[21],"patients":[23,51,73,102,150,279,322],"chronic":[25],"diseases":[26,107,156],"are":[27,278,285,323],"often":[28,53],"involved":[29],"in":[30,253],"development":[32],"new":[34],"treatments":[35],"and":[36,74,103,112,118,151,173,195,226,228,314],"medical":[37],"devices":[38],"help":[40],"them":[41],"cope":[42],"their":[44,75],"health-condition.":[45],"However":[46],"by":[50,71],"ignored":[54],"or":[55,147,213],"even":[56],"rejected.":[57],"A":[58,129],"possible":[59],"approach":[60],"address":[62],"this":[63,87,92],"issue":[64],"open":[67],"up":[68],"innovation,":[70,117],"allowing":[72],"caregivers":[76,104,152],"become":[78],"themselves":[79],"active":[80],"contributors":[81],"process.":[85],"context,":[88],"aim":[90],"dissertation":[93],"(1)":[96],"quantify":[97],"extent":[99,141],"which":[101,143],"rare":[106,155],"innovate,":[108],"(2)":[109],"find":[110],"demographic":[111],"non-demographic":[113],"antecedents":[114],"patient":[116,185],"(3)":[119],"assess":[120],"how":[121],"innovations":[123,267],"impact":[124,241],"lives":[126],"patients.":[128],"telephone":[130],"survey":[131],"was":[132],"conducted":[133],"main":[136],"objective":[137],"measuring":[139,258],"respondents":[144,192],"had":[145,193,302],"innovated,":[146,194],"not.":[148],"496":[149],"250":[154],"responded":[157],"survey.":[160],"Following":[161],"data":[163,172],"collection":[164],"performed":[166],"a":[167,174,239,254,329],"descriptive":[168],"analysis":[169],"multiple":[175],"logistic":[176],"regression":[177],"identify":[179],"statistically":[180],"relevant":[181],"predictor":[182],"variables":[183,197],"innovators.":[186],"We":[187],"found":[188],"13%":[190],"emerged":[199],"as":[200],"predictors":[201],"being":[203,211,218,236,250],"an":[204,270],"innovator":[205],"are:":[206],"higher":[207],"education,":[210],"unemployed":[212],"looking":[214],"after":[215],"at":[216],"home,":[217],"aware":[219],"expenses":[222],"disease,":[225],"Information":[227],"Communication":[229],"Technology":[230],"readiness.":[231],"On":[232],"other":[234],"side,":[235],"single":[237],"negative":[240],"on":[242],"propensity":[244],"innovate":[246],"when":[247],"compared":[248],"married.":[251],"Moreover,":[252],"7-point":[255],"Likert":[256],"scale":[257],"quality":[260,289],"life":[262],"patient,":[265],"led":[268],"average":[271],"improvement":[272],"2.4":[274],"points.":[275],"Not":[276],"only":[277],"developing":[280],"completely":[281],"new-to-the-market":[282],"innovations,":[283],"improving":[286],"patients\u2019":[288],"life,":[291],"but":[292],"they":[293],"also":[294],"assume":[295],"risks":[297],"trying":[299],"solutions":[300],"not":[303],"yet":[304],"been":[305],"tested.":[306],"This":[307],"study":[308],"suggests":[309],"current":[312],"producer-based":[313],"paternalistic":[315],"model":[317],"should":[318],"be":[319],"revised,":[320],"so":[321],"given":[324],"chance":[326],"playing":[328],"more":[330],"proactive":[331],"role.":[332]},"counts_by_year":[{"year":2015,"cited_by_count":1}],"updated_date":"2026-10-14T16:39:01.820549","created_date":"2025-10-10T00:00:00"}
