{"id":"https://openalex.org/W2149644506","doi":"https://doi.org/10.1542/peds.2012-0393","title":"The Culture of Dysthanasia: Attempting CPR in Terminally Ill Children","display_name":"The Culture of Dysthanasia: Attempting CPR in Terminally Ill Children","publication_year":2013,"publication_date":"2013-02-04","ids":{"openalex":"https://openalex.org/W2149644506","doi":"https://doi.org/10.1542/peds.2012-0393","mag":"2149644506","pmid":"https://pubmed.ncbi.nlm.nih.gov/23382437"},"language":"en","primary_location":{"id":"doi:10.1542/peds.2012-0393","doi":"https://doi.org/10.1542/peds.2012-0393","is_oa":false,"landing_page_url":"https://doi.org/10.1542/peds.2012-0393","pdf_url":null,"source":{"id":"https://openalex.org/S77494981","display_name":"PEDIATRICS","issn_l":"0031-4005","issn":["0031-4005","1098-4275"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","erih-plus","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315734","host_organization_name":"American Academy of Pediatrics","host_organization_lineage":["https://openalex.org/P4310315734"],"host_organization_lineage_names":["American Academy of Pediatrics"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5044740112","display_name":"Jonna D. Clark","orcid":"https://orcid.org/0000-0003-1698-5097","observed_orcids":["https://orcid.org/0000-0003-1698-5097"]},"institutions":[{"id":"https://openalex.org/I1295499534","display_name":"Seattle Children's Hospital","ror":"https://ror.org/01njes783","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1295499534"]},{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]},{"id":"https://openalex.org/I4405272236","display_name":"Treuman Katz Center for Pediatric Bioethics and Palliative Care","ror":"https://ror.org/03tdtdp62","country_code":"US","type":"education","lineage":["https://openalex.org/I4405272236"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Jonna D. Clark","raw_affiliation_strings":["Pediatric Critical Care Medicine, and","Treuman Katz Center for Pediatric Bioethics, Department of Pediatrics, University of Washington School of Medicine, Seattle Children\u2019s Hospital, Seattle, Washington; and"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Pediatric Critical Care Medicine, and","institution_ids":[]},{"raw_affiliation_string":"Treuman Katz Center for Pediatric Bioethics, Department of Pediatrics, University of Washington School of Medicine, Seattle Children\u2019s Hospital, Seattle, Washington; and","institution_ids":["https://openalex.org/I1295499534","https://openalex.org/I201448701","https://openalex.org/I4405272236"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5004592142","display_name":"Denise Marie Dudzinski","orcid":"https://orcid.org/0000-0001-9310-6127","observed_orcids":["https://orcid.org/0000-0001-9310-6127"]},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Denise M. Dudzinski","raw_affiliation_strings":["Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, Washington","institution_ids":["https://openalex.org/I201448701"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5044740112"],"corresponding_institution_ids":["https://openalex.org/I1295499534","https://openalex.org/I201448701","https://openalex.org/I4405272236"],"apc_list":null,"apc_paid":null,"fwci":5.8661,"has_fulltext":false,"cited_by_count":52,"citation_normalized_percentile":{"value":0.96227295,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"131","issue":"3","first_page":"572","last_page":"580"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8939999938011169,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8939999938011169,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.10459999740123749,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cardiopulmonary-resuscitation","display_name":"cardiopulmonary resuscitation","score":0.9819999933242798},{"id":"https://openalex.org/keywords/terminally-ill-children","display_name":"terminally ill children","score":0.7889999747276306},{"id":"https://openalex.org/keywords/pediatric-end-of-life-care","display_name":"pediatric end-of-life care","score":0.7620000243186951},{"id":"https://openalex.org/keywords/parental-decision-making","display_name":"parental decision-making","score":0.8209999799728394},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.6240000128746033},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.7369999885559082},{"id":"https://openalex.org/keywords/parent-child-relationship","display_name":"parent-child relationship","score":0.6110000014305115},{"id":"https://openalex.org/keywords/physician-responsibility","display_name":"physician responsibility","score":0.3100000023841858}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8296926021575928},{"id":"https://openalex.org/C2777055891","wikidata":"https://www.wikidata.org/wiki/Q185325","display_name":"Cardiopulmonary resuscitation","level":3,"score":0.7225939035415649},{"id":"https://openalex.org/C2779547435","wikidata":"https://www.wikidata.org/wiki/Q1121492","display_name":"Directive","level":2,"score":0.5895820260047913},{"id":"https://openalex.org/C2780253743","wikidata":"https://www.wikidata.org/wiki/Q132382","display_name":"Presumption","level":2,"score":0.5413065552711487},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.4699088931083679},{"id":"https://openalex.org/C188198153","wikidata":"https://www.wikidata.org/wiki/Q1613840","display_name":"Limiting","level":2,"score":0.4275052547454834},{"id":"https://openalex.org/C2778165595","wikidata":"https://www.wikidata.org/wiki/Q5491454","display_name":"Resuscitation","level":2,"score":0.3484842777252197},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.2968425452709198},{"id":"https://openalex.org/C194828623","wikidata":"https://www.wikidata.org/wiki/Q2861470","display_name":"Emergency medicine","level":1,"score":0.09409812092781067},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.09044539928436279},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007223","descriptor_name":"Infant","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010287","descriptor_name":"Parent-Child Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010819","descriptor_name":"Physician's Role","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D016414","descriptor_name":"Resuscitation Orders","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D016414","descriptor_name":"Resuscitation Orders","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D016887","descriptor_name":"Cardiopulmonary Resuscitation","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D016887","descriptor_name":"Cardiopulmonary Resuscitation","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D019452","descriptor_name":"Terminally Ill","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1542/peds.2012-0393","doi":"https://doi.org/10.1542/peds.2012-0393","is_oa":false,"landing_page_url":"https://doi.org/10.1542/peds.2012-0393","pdf_url":null,"source":{"id":"https://openalex.org/S77494981","display_name":"PEDIATRICS","issn_l":"0031-4005","issn":["0031-4005","1098-4275"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","erih-plus","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315734","host_organization_name":"American Academy of Pediatrics","host_organization_lineage":["https://openalex.org/P4310315734"],"host_organization_lineage_names":["American Academy of Pediatrics"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"journal-article"},{"id":"pmid:23382437","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/23382437","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"Case Reports"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9476000070571899,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":76,"referenced_works":["https://openalex.org/W60922551","https://openalex.org/W84599900","https://openalex.org/W124281288","https://openalex.org/W614062325","https://openalex.org/W1419262330","https://openalex.org/W1615900851","https://openalex.org/W1833130763","https://openalex.org/W1966168551","https://openalex.org/W1973410007","https://openalex.org/W1976913505","https://openalex.org/W1981829134","https://openalex.org/W1985808336","https://openalex.org/W1989441498","https://openalex.org/W1995891857","https://openalex.org/W1997103919","https://openalex.org/W2001267688","https://openalex.org/W2001275919","https://openalex.org/W2002761397","https://openalex.org/W2005429377","https://openalex.org/W2015927762","https://openalex.org/W2016383608","https://openalex.org/W2018947367","https://openalex.org/W2019534215","https://openalex.org/W2019605574","https://openalex.org/W2021284884","https://openalex.org/W2030882007","https://openalex.org/W2034208664","https://openalex.org/W2038933470","https://openalex.org/W2042143165","https://openalex.org/W2043048647","https://openalex.org/W2044031400","https://openalex.org/W2044962169","https://openalex.org/W2045097933","https://openalex.org/W2048352642","https://openalex.org/W2058878928","https://openalex.org/W2060312460","https://openalex.org/W2062306304","https://openalex.org/W2062738076","https://openalex.org/W2065112291","https://openalex.org/W2067149985","https://openalex.org/W2068161313","https://openalex.org/W2077393627","https://openalex.org/W2079659844","https://openalex.org/W2081020039","https://openalex.org/W2086608955","https://openalex.org/W2096758262","https://openalex.org/W2098905831","https://openalex.org/W2103913731","https://openalex.org/W2108973449","https://openalex.org/W2114579527","https://openalex.org/W2116004489","https://openalex.org/W2118624544","https://openalex.org/W2123618194","https://openalex.org/W2133632136","https://openalex.org/W2136222911","https://openalex.org/W2152474896","https://openalex.org/W2153838460","https://openalex.org/W2158004319","https://openalex.org/W2159632972","https://openalex.org/W2159838161","https://openalex.org/W2161040069","https://openalex.org/W2161072482","https://openalex.org/W2162348980","https://openalex.org/W2164916705","https://openalex.org/W2165127940","https://openalex.org/W2334719177","https://openalex.org/W2419950993","https://openalex.org/W2429921057","https://openalex.org/W2602034602","https://openalex.org/W2610736075","https://openalex.org/W2749163104","https://openalex.org/W4205142879","https://openalex.org/W4241969137","https://openalex.org/W4251300701","https://openalex.org/W4298355176","https://openalex.org/W4300950752"],"related_works":["https://openalex.org/W1994091331","https://openalex.org/W2162718743","https://openalex.org/W1970574941","https://openalex.org/W2159632972","https://openalex.org/W4415474797","https://openalex.org/W2108237309","https://openalex.org/W2167888417","https://openalex.org/W60922551","https://openalex.org/W4214513469","https://openalex.org/W3166367214"],"abstract_inverted_index":{"Both":[0],"dying":[1,218,245],"children":[2],"and":[3,27,48,51,95,140,146,170,192,197,227],"their":[4,63,217],"families":[5],"are":[6,186],"treated":[7],"with":[8,127,189],"disrespect":[9],"when":[10],"the":[11,28,41,44,49,92,102,114,128,137,144,162,190,195,199,229,232,236,244],"presumption":[12],"of":[13,25,31,43,54,68,91,98,150,194,231,239],"consent":[14],"to":[15,20,36,39,59,73,81,84,87,112,130,174,209],"cardiopulmonary":[16,99],"resuscitation":[17],"(CPR)":[18],"applies":[19],"all":[21],"hospitalized":[22],"children,":[23],"regardless":[24],"prognosis":[26],"likely":[29],"efficacy":[30],"CPR.":[32,132,203],"This":[33],"\"opt-out\"":[34],"approach":[35,173],"CPR":[37,61,69,108],"fails":[38],"appreciate":[40],"nuances":[42],"special":[45],"parent-child":[46,233],"relationship":[47,234],"moral":[50,141],"emotional":[52],"complexity":[53],"enlisting":[55],"parents":[56,126,211],"in":[57,161,179,187,235],"decisions":[58],"withhold":[60],"from":[62,153],"children.":[64],"The":[65],"therapeutic":[66,115,200],"goal":[67,116],"is":[70,80,109],"not":[71,124],"merely":[72,119],"resume":[74],"spontaneous":[75],"circulation,":[76],"but":[77],"rather":[78],"it":[79],"provide":[82,182],"circulation":[83],"vital":[85],"organs":[86],"allow":[88],"for":[89,143,156,202,216],"treatment":[90],"underlying":[93],"proximal":[94],"distal":[96],"etiologies":[97],"arrest.":[100],"When":[101],"treating":[103],"providers":[104],"agree":[105],"that":[106,185,213,224],"attempting":[107],"highly":[110],"unlikely":[111],"achieve":[113],"or":[117],"will":[118],"prolong":[120],"dying,":[121],"we":[122,166,207],"should":[123,135],"burden":[125],"decision":[129,145],"forgo":[131],"Rather,":[133],"physicians":[134,181],"carry":[136],"primary":[138],"professional":[139],"responsibility":[142],"use":[147],"a":[148,168,240],"model":[149],"informed":[151],"assent":[152],"parents,":[154],"allowing":[155],"respectful":[157],"disagreement.":[158],"As":[159],"emphasized":[160],"palliative":[163],"care":[164],"literature,":[165],"recommend":[167],"directive":[169],"collaborative":[171],"goal-oriented":[172],"conversations":[175],"about":[176],"limiting":[177],"resuscitation,":[178],"which":[180],"explicit":[183],"recommendations":[184],"alignment":[188],"goals":[191],"hopes":[193],"family":[196],"emphasize":[198],"indications":[201],"Through":[204],"this":[205],"approach,":[206],"hope":[208],"help":[210],"understand":[212],"\"doing":[214],"everything\"":[215],"child":[219],"means":[220],"providing":[221],"medical":[222],"therapies":[223],"ameliorate":[225],"suffering":[226],"foster":[228],"intimacy":[230],"final":[237],"days":[238],"child's":[241],"life,":[242],"making":[243],"process":[246],"more":[247],"humane.":[248]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":4},{"year":2022,"cited_by_count":4},{"year":2021,"cited_by_count":6},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":4},{"year":2018,"cited_by_count":6},{"year":2017,"cited_by_count":2},{"year":2016,"cited_by_count":4},{"year":2015,"cited_by_count":5},{"year":2014,"cited_by_count":6},{"year":2013,"cited_by_count":3}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2016-06-24T00:00:00"}