{"id":"https://openalex.org/W2145453073","doi":"https://doi.org/10.1136/bmjspcare-2013-000535","title":"Should we involve terminally ill patients in teaching medical students? A systematic review of patient's views","display_name":"Should we involve terminally ill patients in teaching medical students? A systematic review of patient's views","publication_year":2014,"publication_date":"2014-02-12","ids":{"openalex":"https://openalex.org/W2145453073","doi":"https://doi.org/10.1136/bmjspcare-2013-000535","mag":"2145453073","pmid":"https://pubmed.ncbi.nlm.nih.gov/24644203"},"language":"en","primary_location":{"id":"doi:10.1136/bmjspcare-2013-000535","doi":"https://doi.org/10.1136/bmjspcare-2013-000535","is_oa":false,"landing_page_url":"https://doi.org/10.1136/bmjspcare-2013-000535","pdf_url":null,"source":{"id":"https://openalex.org/S4210204300","display_name":"BMJ Supportive & Palliative Care","issn_l":"2045-435X","issn":["2045-435X","2045-4368"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-a","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319945","host_organization_name":"BMJ","host_organization_lineage":["https://openalex.org/P4310319945"],"host_organization_lineage_names":["BMJ"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMJ Supportive & Palliative Care","raw_type":"journal-article"},"parent_works":[],"lineage":["https://openalex.org/W2145453073"],"child_works_count":0,"type":"review","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5102995979","display_name":"Dylan Harris","orcid":"https://orcid.org/0000-0003-0238-0257","observed_orcids":["https://orcid.org/0000-0003-0238-0257"]},"institutions":[{"id":"https://openalex.org/I4210125554","display_name":"Prince Charles Hospital","ror":"https://ror.org/02cetwy62","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1302211766","https://openalex.org/I2801244131","https://openalex.org/I4210125554"]},{"id":"https://openalex.org/I4210159167","display_name":"Prince Charles Hospital","ror":"https://ror.org/05efbh861","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4210159167"]}],"countries":["AU","GB"],"is_corresponding":true,"raw_author_name":"Dylan Gareth Harris","raw_affiliation_strings":["Department of Palliative Care, Prince Charles Hospital, Merthyr Tydfil, UK","Prince Charles Hospital"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Palliative Care, Prince Charles Hospital, Merthyr Tydfil, UK","institution_ids":["https://openalex.org/I4210159167"]},{"raw_affiliation_string":"Prince Charles Hospital","institution_ids":["https://openalex.org/I4210125554","https://openalex.org/I4210159167"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018944921","display_name":"Bernadette Coles","orcid":"https://orcid.org/0000-0003-0695-2865","observed_orcids":["https://orcid.org/0000-0003-0695-2865"]},"institutions":[{"id":"https://openalex.org/I4210150388","display_name":"Velindre Cancer Centre","ror":"https://ror.org/049sr1d03","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799279586","https://openalex.org/I4210150388"]},{"id":"https://openalex.org/I79510175","display_name":"Cardiff University","ror":"https://ror.org/03kk7td41","country_code":"GB","type":"education","lineage":["https://openalex.org/I79510175"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Bernadette Coles","raw_affiliation_strings":["Department of Information Services, Cardiff University, Velindre Hospital, Cardiff, UK","Cardiff University, Velindre Hospital"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Information Services, Cardiff University, Velindre Hospital, Cardiff, UK","institution_ids":["https://openalex.org/I4210150388","https://openalex.org/I79510175"]},{"raw_affiliation_string":"Cardiff University, Velindre Hospital","institution_ids":["https://openalex.org/I4210150388","https://openalex.org/I79510175"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5057401984","display_name":"Hannah Willoughby","orcid":"https://orcid.org/0000-0002-3597-5532","observed_orcids":["https://orcid.org/0000-0002-3597-5532"]},"institutions":[{"id":"https://openalex.org/I79510175","display_name":"Cardiff University","ror":"https://ror.org/03kk7td41","country_code":"GB","type":"education","lineage":["https://openalex.org/I79510175"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Hannah May Willoughby","raw_affiliation_strings":["Department of Postgraduate General Practice Education, Cardiff University School of Medicine, Cardiff, UK","CARDIFF UNIVERSITY SCHOOL OF MEDICINE"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Postgraduate General Practice Education, Cardiff University School of Medicine, Cardiff, UK","institution_ids":["https://openalex.org/I79510175"]},{"raw_affiliation_string":"CARDIFF UNIVERSITY SCHOOL OF MEDICINE","institution_ids":["https://openalex.org/I79510175"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5102995979"],"corresponding_institution_ids":["https://openalex.org/I4210125554","https://openalex.org/I4210159167"],"apc_list":null,"apc_paid":null,"fwci":0.7118,"has_fulltext":false,"cited_by_count":16,"citation_normalized_percentile":{"value":0.69535284,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":96},"biblio":{"volume":"5","issue":"5","first_page":"522","last_page":"530"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10254","display_name":"Innovations in Medical Education","score":0.5029000043869019,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10254","display_name":"Innovations in Medical Education","score":0.5029000043869019,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.396699994802475,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.03970000147819519,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/dying-patients","display_name":"dying patients","score":0.9909999966621399},{"id":"https://openalex.org/keywords/patient-involvement-in-medical-education","display_name":"patient involvement in medical education","score":0.7720000147819519},{"id":"https://openalex.org/keywords/patient-perspectives","display_name":"patient perspectives","score":0.8109999895095825},{"id":"https://openalex.org/keywords/hospice-care","display_name":"hospice care","score":0.5669999718666077},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.7459999918937683},{"id":"https://openalex.org/keywords/student-supervision","display_name":"student supervision","score":0.6460000276565552}],"concepts":[{"id":"https://openalex.org/C3018228033","wikidata":"https://www.wikidata.org/wiki/Q1364787","display_name":"Terminally ill","level":3,"score":0.8456497192382812},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.45670342445373535},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.43664199113845825},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.40075165033340454},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.25501304864883423},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.19192922115325928}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004501","descriptor_name":"Education, Medical","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D013663","descriptor_name":"Teaching","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D017051","descriptor_name":"Hospice Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D019452","descriptor_name":"Terminally Ill","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1136/bmjspcare-2013-000535","doi":"https://doi.org/10.1136/bmjspcare-2013-000535","is_oa":false,"landing_page_url":"https://doi.org/10.1136/bmjspcare-2013-000535","pdf_url":null,"source":{"id":"https://openalex.org/S4210204300","display_name":"BMJ Supportive & Palliative Care","issn_l":"2045-435X","issn":["2045-435X","2045-4368"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-a","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319945","host_organization_name":"BMJ","host_organization_lineage":["https://openalex.org/P4310319945"],"host_organization_lineage_names":["BMJ"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMJ Supportive & Palliative Care","raw_type":"journal-article"},{"id":"pmid:24644203","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/24644203","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMJ supportive & palliative care","raw_type":"Journal Article"},{"id":"pmh:oai:https://orca.cardiff.ac.uk:84589","doi":null,"is_oa":false,"landing_page_url":"https://orca.cardiff.ac.uk/id/eprint/84589/","pdf_url":null,"source":{"id":"https://openalex.org/S4306401195","display_name":"ORCA Online Research @Cardiff (Cardiff University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I79510175","host_organization_name":"Cardiff University","host_organization_lineage":["https://openalex.org/I79510175"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9537000060081482,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"},{"score":0.8278999924659729,"id":"https://metadata.un.org/sdg/4","display_name":"Quality education"}],"study_designs":[{"id":"https://openalex.org/study-designs/systematic-review","display_name":"Systematic Review"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":36,"referenced_works":["https://openalex.org/W145325731","https://openalex.org/W1963505853","https://openalex.org/W1970076371","https://openalex.org/W1978316871","https://openalex.org/W1982340001","https://openalex.org/W1983175695","https://openalex.org/W1997121422","https://openalex.org/W2001064837","https://openalex.org/W2003804414","https://openalex.org/W2005501262","https://openalex.org/W2011742491","https://openalex.org/W2029767360","https://openalex.org/W2030594117","https://openalex.org/W2038344419","https://openalex.org/W2052882893","https://openalex.org/W2065474968","https://openalex.org/W2069723410","https://openalex.org/W2073310641","https://openalex.org/W2087234612","https://openalex.org/W2100369714","https://openalex.org/W2114439486","https://openalex.org/W2122254065","https://openalex.org/W2123954193","https://openalex.org/W2127122490","https://openalex.org/W2146030020","https://openalex.org/W2152636897","https://openalex.org/W2165911620","https://openalex.org/W2167837908","https://openalex.org/W2168524287","https://openalex.org/W2228628739","https://openalex.org/W2412042018","https://openalex.org/W2468996569","https://openalex.org/W2493243191","https://openalex.org/W2500634324","https://openalex.org/W2604465442","https://openalex.org/W2991792334"],"related_works":["https://openalex.org/W2790235633","https://openalex.org/W2029767360","https://openalex.org/W3021525344","https://openalex.org/W2122254065","https://openalex.org/W2167837908","https://openalex.org/W3095108997","https://openalex.org/W162918308","https://openalex.org/W2076444103","https://openalex.org/W2114328782","https://openalex.org/W2807059867"],"abstract_inverted_index":{"OBJECTIVE:":[0],"To":[1],"review":[2,24],"available":[3],"published":[4],"research":[5],"that":[6,162,181],"has":[7],"explored":[8,37],"how":[9,203],"terminally":[10,168],"ill":[11,169],"patients":[12,75,94,118,170,188,230],"feel":[13],"about":[14,47,140],"being":[15,141,248],"involved":[16,103],"in":[17,50,85,104,125,129,149,179,200,209],"undergraduate":[18,51,164],"medical":[19,165],"teaching.":[20,53,130],"METHODS:":[21],"A":[22,71],"systematic":[23],"using":[25,215],"narrative":[26],"synthesis.":[27],"Qualitative":[28],"or":[29,88],"quantitative":[30],"publications":[31,56],"were":[32,76,82,107,119,124,132],"included":[33,77,111],"if":[34,222],"they":[35],"directly":[36],"the":[38,58,110,115,184,187,191,245],"views":[39,116,185],"of":[40,73,117,127,186,197],"adult":[41],"patients,":[42],"with":[43,228,236],"a":[44,86,145,195,233],"terminal":[45],"diagnosis,":[46],"their":[48],"involvement":[49,128,148],"clinical":[52,163,204],"RESULTS:":[54],"Seven":[55],"met":[57],"inclusion":[59],"criteria:":[60],"one":[61,64,237],"case":[62],"report,":[63],"qualitative":[65],"study":[66],"and":[67,97,243],"five":[68],"questionnaire-based":[69],"studies.":[70,80],"total":[72],"269":[74],"across":[78],"all":[79],"Patients":[81],"predominantly":[83],"studied":[84],"hospice":[87,89],"day":[90],"care":[91],"setting.":[92],"Both":[93],"who":[95,98],"had,":[96],"had":[99],"not,":[100],"previously":[101],"been":[102],"student":[105,217],"teaching":[106,150,166,205],"captured":[108],"by":[109,144],"publications.":[112],"In":[113],"general,":[114],"highly":[120],"positive:":[121],"overall":[122,178],"85%-100%":[123],"favour":[126],"There":[131],"also":[133],"some":[134],"negative":[135],"aspects,":[136],"such":[137],"as:":[138],"concerns":[139],"physically":[142],"examined":[143],"student;":[146],"finding":[147],"tiring;":[151],"feeling":[152],"unable":[153],"to":[154,157,202],"decline":[155],"consent":[156,241],"participate.":[158],"CONCLUSIONS:":[159],"An":[160],"assumption":[161],"involving":[167],"may":[171],"be":[172,207],"too":[173],"burdensome":[174],"is":[175],"not":[176],"reflected":[177],"studies":[180],"have":[182],"sought":[183],"themselves.":[189],"Understanding":[190],"patient's":[192],"perspective":[193],"provides":[194],"number":[196],"practical":[198],"points":[199],"relation":[201],"should":[206],"adapted":[208],"this":[210],"patient":[211],"group;":[212],"for":[213],"example,":[214],"smaller":[216],"group":[218],"sizes;":[219],"direct":[220],"supervision":[221],"physical":[223],"examination":[224],"performed;":[225],"short":[226],"encounters":[227],"multiple":[229],"rather":[231],"than":[232],"longer":[234],"encounter":[235],"patient;":[238],"adequate":[239],"informed":[240],"beforehand":[242],"without":[244],"students":[246],"automatically":[247],"present.":[249]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":1},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":2},{"year":2017,"cited_by_count":2},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}