{"id":"https://openalex.org/W2139920818","doi":"https://doi.org/10.1352/1944-7558-116.3.246","title":"Modeling the Social Determinants of Caregiver Burden Among Families of Children With Developmental Disabilities","display_name":"Modeling the Social Determinants of Caregiver Burden Among Families of Children With Developmental Disabilities","publication_year":2011,"publication_date":"2011-05-01","ids":{"openalex":"https://openalex.org/W2139920818","doi":"https://doi.org/10.1352/1944-7558-116.3.246","mag":"2139920818","pmid":"https://pubmed.ncbi.nlm.nih.gov/21591847"},"language":"en","primary_location":{"id":"doi:10.1352/1944-7558-116.3.246","doi":"https://doi.org/10.1352/1944-7558-116.3.246","is_oa":false,"landing_page_url":"https://doi.org/10.1352/1944-7558-116.3.246","pdf_url":null,"source":{"id":"https://openalex.org/S4210192384","display_name":"American Journal on Intellectual and Developmental Disabilities","issn_l":"1944-7558","issn":["1944-7558","1944-7515","1944-7588"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","erih-plus","jufo-2","ki-jl-2","medline","norway-2","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4324113816","host_organization_name":"American Association on Intellectual and Developmental Disabilities","host_organization_lineage":["https://openalex.org/P4324113816"],"host_organization_lineage_names":["American Association on Intellectual and Developmental Disabilities"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American Journal on Intellectual and Developmental Disabilities","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5031120275","display_name":"Beth M. McManus","orcid":"https://orcid.org/0000-0002-2481-0812","observed_orcids":["https://orcid.org/0000-0002-2481-0812"]},"institutions":[{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Beth M. McManus","raw_affiliation_strings":["Harvard University School of Public Health","Harvard University School of Public Health; Boston MA USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Harvard University School of Public Health","institution_ids":["https://openalex.org/I136199984"]},{"raw_affiliation_string":"Harvard University School of Public Health; Boston MA USA","institution_ids":["https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5037593758","display_name":"Adam C. Carle","orcid":"https://orcid.org/0000-0002-3552-6534","observed_orcids":["https://orcid.org/0000-0002-3552-6534"]},"institutions":[{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Adam Carle","raw_affiliation_strings":["University of Cincinnati School of Medicine"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati School of Medicine","institution_ids":["https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112498552","display_name":"Dolores Acevedo\u2010Garc\u00eda","orcid":"https://orcid.org/0000-0003-4334-1852","observed_orcids":["https://orcid.org/0000-0003-4334-1852"]},"institutions":[{"id":"https://openalex.org/I12912129","display_name":"Northeastern University","ror":"https://ror.org/04t5xt781","country_code":"US","type":"education","lineage":["https://openalex.org/I12912129"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dolores Acevedo-Garcia","raw_affiliation_strings":["Northeastern University","northeastern Univ"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Northeastern University","institution_ids":["https://openalex.org/I12912129"]},{"raw_affiliation_string":"northeastern Univ","institution_ids":["https://openalex.org/I12912129"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047100651","display_name":"Michael Lee Ganz","orcid":"https://orcid.org/0000-0002-9702-2999","observed_orcids":["https://orcid.org/0000-0002-9702-2999"]},"institutions":[{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Michael Ganz","raw_affiliation_strings":["Harvard University, School of Public Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Harvard University, School of Public Health","institution_ids":["https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003508353","display_name":"Penny Hauser\u2010Cram","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I103531236","display_name":"Boston College","ror":"https://ror.org/02n2fzt79","country_code":"US","type":"education","lineage":["https://openalex.org/I103531236"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Penny Hauser-Cram","raw_affiliation_strings":["Boston College"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Boston College","institution_ids":["https://openalex.org/I103531236"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5109177862","display_name":"Marie Clare McCormick","orcid":"https://orcid.org/0000-0002-3938-1707","observed_orcids":["https://orcid.org/0000-0002-3938-1707"]},"institutions":[{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Marie McCormick","raw_affiliation_strings":["Harvard University, School of Public Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Harvard University, School of Public Health","institution_ids":["https://openalex.org/I136199984"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":5.5183,"has_fulltext":false,"cited_by_count":62,"citation_normalized_percentile":{"value":0.95388091,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"116","issue":"3","first_page":"246","last_page":"260"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/3616","display_name":"Speech and Hearing"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":1.0},{"id":"https://openalex.org/keywords/developmental-disabilities","display_name":"developmental disabilities","score":0.7400000095367432},{"id":"https://openalex.org/keywords/children-with-special-health-care-needs","display_name":"children with special health care needs","score":0.9210000038146973},{"id":"https://openalex.org/keywords/health-care-access","display_name":"health care access","score":0.5960000157356262},{"id":"https://openalex.org/keywords/health-care-navigation","display_name":"health care navigation","score":0.9350000023841858},{"id":"https://openalex.org/keywords/unmet-healthcare-needs","display_name":"unmet health needs","score":0.9990000128746033},{"id":"https://openalex.org/keywords/socioeconomic-status","display_name":"socioeconomic status","score":0.6520000100135803},{"id":"https://openalex.org/keywords/minority-families","display_name":"minority families","score":0.6290000081062317},{"id":"https://openalex.org/keywords/uninsured-children","display_name":"uninsured children","score":0.9750000238418579},{"id":"https://openalex.org/keywords/parenting-stress","display_name":"parental stress","score":0.46299999952316284},{"id":"https://openalex.org/keywords/social-determinants-of-health","display_name":"social determinants of health","score":0.7799999713897705}],"concepts":[{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.5726205110549927},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.546635091304779},{"id":"https://openalex.org/C2779878486","wikidata":"https://www.wikidata.org/wiki/Q25053589","display_name":"Caregiver burden","level":4,"score":0.49416711926460266},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3393128514289856},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2703413963317871},{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.11848247051239014},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.08315321803092957},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002658","descriptor_name":"Developmental Disabilities","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D002658","descriptor_name":"Developmental Disabilities","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003258","descriptor_name":"Consumer Behavior","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006297","descriptor_name":"Health Services Accessibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006301","descriptor_name":"Health Services Needs and Demand","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008913","descriptor_name":"Minority Groups","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D008960","descriptor_name":"Models, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011203","descriptor_name":"Poverty","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017057","descriptor_name":"Medically Uninsured","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1352/1944-7558-116.3.246","doi":"https://doi.org/10.1352/1944-7558-116.3.246","is_oa":false,"landing_page_url":"https://doi.org/10.1352/1944-7558-116.3.246","pdf_url":null,"source":{"id":"https://openalex.org/S4210192384","display_name":"American Journal on Intellectual and Developmental Disabilities","issn_l":"1944-7558","issn":["1944-7558","1944-7515","1944-7588"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","erih-plus","jufo-2","ki-jl-2","medline","norway-2","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4324113816","host_organization_name":"American Association on Intellectual and Developmental Disabilities","host_organization_lineage":["https://openalex.org/P4324113816"],"host_organization_lineage_names":["American Association on Intellectual and Developmental Disabilities"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American Journal on Intellectual and Developmental Disabilities","raw_type":"journal-article"},{"id":"pmid:21591847","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21591847","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American journal on intellectual and developmental disabilities","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.98580002784729,"id":"https://metadata.un.org/sdg/3"},{"display_name":"Reduced inequalities","score":0.8974000215530396,"id":"https://metadata.un.org/sdg/10"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":58,"referenced_works":["https://openalex.org/W27139926","https://openalex.org/W110146838","https://openalex.org/W640553068","https://openalex.org/W1565893470","https://openalex.org/W1605264820","https://openalex.org/W1715326565","https://openalex.org/W1964699616","https://openalex.org/W1969027278","https://openalex.org/W1987184999","https://openalex.org/W1988361795","https://openalex.org/W1990004504","https://openalex.org/W1996314082","https://openalex.org/W2000824118","https://openalex.org/W2002763669","https://openalex.org/W2015307341","https://openalex.org/W2015711307","https://openalex.org/W2016481108","https://openalex.org/W2016975443","https://openalex.org/W2017939411","https://openalex.org/W2022848904","https://openalex.org/W2028290967","https://openalex.org/W2032681132","https://openalex.org/W2034881193","https://openalex.org/W2039879678","https://openalex.org/W2040322182","https://openalex.org/W2053482372","https://openalex.org/W2059334100","https://openalex.org/W2061364057","https://openalex.org/W2065107858","https://openalex.org/W2068941318","https://openalex.org/W2071587428","https://openalex.org/W2071666535","https://openalex.org/W2084874157","https://openalex.org/W2087806355","https://openalex.org/W2092351994","https://openalex.org/W2093925162","https://openalex.org/W2102841590","https://openalex.org/W2110920678","https://openalex.org/W2111139044","https://openalex.org/W2111514585","https://openalex.org/W2115375295","https://openalex.org/W2117837844","https://openalex.org/W2120898503","https://openalex.org/W2121589271","https://openalex.org/W2133881616","https://openalex.org/W2136693932","https://openalex.org/W2145449127","https://openalex.org/W2148070094","https://openalex.org/W2148365405","https://openalex.org/W2150893541","https://openalex.org/W2153677177","https://openalex.org/W2153717228","https://openalex.org/W2170369193","https://openalex.org/W2262585683","https://openalex.org/W4212982245","https://openalex.org/W4241440213","https://openalex.org/W4298091299","https://openalex.org/W4388367168"],"related_works":["https://openalex.org/W4382602466","https://openalex.org/W2092860910","https://openalex.org/W1517452635","https://openalex.org/W4396223632","https://openalex.org/W2787741962","https://openalex.org/W7165811541","https://openalex.org/W2104389960","https://openalex.org/W2809426907","https://openalex.org/W4406054469","https://openalex.org/W4416345811"],"abstract_inverted_index":{"This":[0],"study":[1],"described":[2],"predictors":[3],"of":[4,9,22,50,54,74,105],"caregiver":[5,114,124],"burden":[6,68],"among":[7],"parents":[8],"children":[10,110],"with":[11,37,72,92],"developmental":[12,39],"disabilities.":[13],"The":[14],"sample,":[15],"obtained":[16],"from":[17],"the":[18,45,48,58,78],"2005-2006":[19],"National":[20],"Survey":[21],"Children":[23],"With":[24],"Special":[25],"Health":[26,59,64],"Care":[27,60,65],"Needs,":[28],"included":[29],"12,225":[30],"children,":[31],"aged":[32],"5":[33],"to":[34],"17":[35],"years,":[36],"a":[38],"disability.":[40],"Structural":[41],"equation":[42],"modeling":[43],"assessed":[44],"relationships":[46],"between":[47],"factors":[49],"Caregiver":[51,67],"Burden,":[52],"Ease":[53],"Accessing":[55],"and":[56,62,76,89,108],"Navigating":[57],"System,":[61],"Unmet":[63],"Needs.":[66],"was":[69],"inversely":[70],"associated":[71,91],"ease":[73],"accessing":[75],"navigating":[77],"health":[79,94],"care":[80,95],"system":[81],"(\u03b2":[82,97],"=":[83,87,98,102],"-0.094,":[84],"SE":[85,100],"(\u03b2)":[86,101],"0.045)":[88],"positively":[90],"unmet":[93],"needs":[96],"0.428,":[99],"0.036).":[103],"Parents":[104],"poor,":[106],"minority,":[107],"uninsured":[109],"experienced":[111],"significantly":[112],"greater":[113],"burden.":[115,125],"Bolstering":[116],"services,":[117],"particularly":[118],"for":[119],"vulnerable":[120],"families,":[121],"may":[122],"ameliorate":[123]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":4},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":6},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":4},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":5},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":7},{"year":2014,"cited_by_count":8},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}
