{"id":"https://openalex.org/W2139185994","doi":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","title":"Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health?","display_name":"Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health?","publication_year":2012,"publication_date":"2012-06-01","ids":{"openalex":"https://openalex.org/W2139185994","doi":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","mag":"2139185994","pmid":"https://pubmed.ncbi.nlm.nih.gov/22709387"},"language":"en","primary_location":{"id":"doi:10.1111/j.1468-0009.2012.00662.x","doi":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","pdf_url":null,"source":{"id":"https://openalex.org/S1650206","display_name":"Milbank Quarterly","issn_l":"0887-378X","issn":["0887-378X","1468-0009"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-b","anvur-class-a","anvur-scientific","cwts-core","dongbi-c","fnege-3","jufo-3","ki-jl-1","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Milbank Quarterly","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3460203","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5002063692","display_name":"Sue Zi\u00e9bland","orcid":"https://orcid.org/0000-0002-6496-4859","observed_orcids":["https://orcid.org/0000-0002-6496-4859"]},"institutions":[{"id":"https://openalex.org/I40120149","display_name":"University of Oxford","ror":"https://ror.org/052gg0110","country_code":"GB","type":"education","lineage":["https://openalex.org/I40120149"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"SUE ZIEBLAND","raw_affiliation_strings":["Department of Primary Health Care Sciences, University of Oxford, 23\u201338 Hythe Bridge Street, Oxford OX1 2ET, United Kingdom.sue.ziebland@phc.ox.ac.uk","Department of Primary Health Care Sciences, University of Oxford, 23\u201338 Hythe Bridge Street, Oxford OX1 2ET, United"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Primary Health Care Sciences, University of Oxford, 23\u201338 Hythe Bridge Street, Oxford OX1 2ET, United Kingdom.sue.ziebland@phc.ox.ac.uk","institution_ids":["https://openalex.org/I40120149"]},{"raw_affiliation_string":"Department of Primary Health Care Sciences, University of Oxford, 23\u201338 Hythe Bridge Street, Oxford OX1 2ET, United","institution_ids":["https://openalex.org/I40120149"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5086357167","display_name":"Sally Wyke","orcid":"https://orcid.org/0000-0002-7509-8247","observed_orcids":["https://orcid.org/0000-0002-7509-8247"]},"institutions":[{"id":"https://openalex.org/I7882870","display_name":"University of Glasgow","ror":"https://ror.org/00vtgdb53","country_code":"GB","type":"education","lineage":["https://openalex.org/I7882870"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"SALLY WYKE","raw_affiliation_strings":["University of Glasgow, Institute for Health and Wellbeing"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Glasgow, Institute for Health and Wellbeing","institution_ids":["https://openalex.org/I7882870"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5002063692"],"corresponding_institution_ids":["https://openalex.org/I40120149"],"apc_list":{"value":4430,"currency":"USD","value_usd":4430},"apc_paid":null,"fwci":45.334,"has_fulltext":false,"cited_by_count":553,"citation_normalized_percentile":{"value":0.99871373,"is_in_top_1_percent":true,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":100},"biblio":{"volume":"90","issue":"2","first_page":"219","last_page":"249"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/peer-support","display_name":"peer support","score":0.6499999761581421},{"id":"https://openalex.org/keywords/health-information-seeking","display_name":"health information seeking","score":0.5809999704360962},{"id":"https://openalex.org/keywords/e-health","display_name":"e-health","score":0.515999972820282},{"id":"https://openalex.org/keywords/patient-blogs","display_name":"patient blogs","score":0.48399999737739563},{"id":"https://openalex.org/keywords/social-networking","display_name":"social networking","score":0.7179999947547913},{"id":"https://openalex.org/keywords/illness-narratives","display_name":"illness narratives","score":0.5590000152587891},{"id":"https://openalex.org/keywords/health-data-visualization","display_name":"health data visualization","score":0.36500000953674316},{"id":"https://openalex.org/keywords/patient-participation-in-health-care","display_name":"patient participation in health care","score":0.492000013589859},{"id":"https://openalex.org/keywords/health-and-illness","display_name":"health and illness","score":0.36899998784065247}],"concepts":[{"id":"https://openalex.org/C2776035688","wikidata":"https://www.wikidata.org/wiki/Q1606558","display_name":"Affect (linguistics)","level":2,"score":0.582179069519043},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5689800381660461},{"id":"https://openalex.org/C110875604","wikidata":"https://www.wikidata.org/wiki/Q75","display_name":"The Internet","level":2,"score":0.4992027282714844},{"id":"https://openalex.org/C554936623","wikidata":"https://www.wikidata.org/wiki/Q199657","display_name":"Reading (process)","level":2,"score":0.4917493164539337},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.48961812257766724},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.4648780822753906},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.44220292568206787},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3876364529132843},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.3140883445739746},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.20524752140045166},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.17634320259094238},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.17214086651802063},{"id":"https://openalex.org/C46312422","wikidata":"https://www.wikidata.org/wiki/Q11024","display_name":"Communication","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D009862","descriptor_name":"Online Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009862","descriptor_name":"Online Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009862","descriptor_name":"Online Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009862","descriptor_name":"Online Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D060756","descriptor_name":"Social Networking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D060756","descriptor_name":"Social Networking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D060756","descriptor_name":"Social Networking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D060756","descriptor_name":"Social Networking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":8,"locations":[{"id":"doi:10.1111/j.1468-0009.2012.00662.x","doi":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1468-0009.2012.00662.x","pdf_url":null,"source":{"id":"https://openalex.org/S1650206","display_name":"Milbank Quarterly","issn_l":"0887-378X","issn":["0887-378X","1468-0009"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-b","anvur-class-a","anvur-scientific","cwts-core","dongbi-c","fnege-3","jufo-3","ki-jl-1","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Milbank Quarterly","raw_type":"journal-article"},{"id":"pmid:22709387","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22709387","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Milbank quarterly","raw_type":"Journal Article"},{"id":"pmh:oai:europepmc.org:2458892","doi":null,"is_oa":false,"landing_page_url":"http://europepmc.org/articles/PMC3460203","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:3460203","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3460203","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Milbank Q","raw_type":"Text"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.261.236","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.261.236","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"http://www.milbank.org/uploads/documents/featured-articles/pdf/Health-and-Illness-in-a-Connected-World.pdf","raw_type":"text"},{"id":"pmh:oai:eprints.gla.ac.uk:65878","doi":null,"is_oa":false,"landing_page_url":"http://eprints.gla.ac.uk/65878/","pdf_url":null,"source":{"id":"https://openalex.org/S4210235606","display_name":"ENLIGHTEN (Jurnal Bimbingan dan Konseling Islam)","issn_l":"2622-8912","issn":["2622-8912","2622-8920"],"is_oa":false,"is_in_doaj":true,"is_core":false,"listed_in":["doaj"],"host_organization":"https://openalex.org/I4405259220","host_organization_name":"Institut Agama Islam Negeri Langsa","host_organization_lineage":["https://openalex.org/I4405259220"],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Articles"},{"id":"pmh:oai:repository.ubn.ru.nl:2066/108074","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2066/108074","pdf_url":null,"source":{"id":"https://openalex.org/S4306401067","display_name":"Radboud Repository (Radboud University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145872427","host_organization_name":"Radboud University Nijmegen","host_organization_lineage":["https://openalex.org/I145872427"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Milbank Quarterly, 90, 2, pp. 219-49","raw_type":"Article / Letter to editor"},{"id":"pmh:ru:oai:repository.ubn.ru.nl:2066/108074","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2066/108074","pdf_url":null,"source":{"id":"https://openalex.org/S4306401067","display_name":"Radboud Repository (Radboud University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145872427","host_organization_name":"Radboud University Nijmegen","host_organization_lineage":["https://openalex.org/I145872427"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Milbank Quarterly, 90, 219 - 49","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:3460203","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3460203","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Milbank Q","raw_type":"Text"},"sustainable_development_goals":[{"score":0.9537000060081482,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.7900000214576721,"display_name":"Quality education","id":"https://metadata.un.org/sdg/4"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G1539994774","display_name":"Examining the role of patients' experiences as a resource for choice and decision-making in health care","funder_award_id":"RP-PG-0608-10147","funder_id":"https://openalex.org/F4320319990","funder_display_name":"National Institute for Health and Care Research"}],"funders":[{"id":"https://openalex.org/F4320319990","display_name":"National Institute for Health and Care Research","ror":"https://ror.org/0187kwz08"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":88,"referenced_works":["https://openalex.org/W95020966","https://openalex.org/W1511023022","https://openalex.org/W1552997246","https://openalex.org/W1596030851","https://openalex.org/W1887964395","https://openalex.org/W1904700060","https://openalex.org/W1964246132","https://openalex.org/W1968916202","https://openalex.org/W1969145440","https://openalex.org/W1969656025","https://openalex.org/W1973215933","https://openalex.org/W1973389377","https://openalex.org/W1974111805","https://openalex.org/W1980800732","https://openalex.org/W1986894783","https://openalex.org/W1993029621","https://openalex.org/W1996502380","https://openalex.org/W2002719249","https://openalex.org/W2005905305","https://openalex.org/W2012127239","https://openalex.org/W2017687165","https://openalex.org/W2019981573","https://openalex.org/W2023489446","https://openalex.org/W2026239978","https://openalex.org/W2038279512","https://openalex.org/W2039087324","https://openalex.org/W2041387180","https://openalex.org/W2042506773","https://openalex.org/W2045175397","https://openalex.org/W2045833544","https://openalex.org/W2046271604","https://openalex.org/W2059691530","https://openalex.org/W2060536886","https://openalex.org/W2064602288","https://openalex.org/W2065397139","https://openalex.org/W2071538827","https://openalex.org/W2072682434","https://openalex.org/W2080610040","https://openalex.org/W2081753990","https://openalex.org/W2083904749","https://openalex.org/W2084504961","https://openalex.org/W2085940393","https://openalex.org/W2087531239","https://openalex.org/W2087682727","https://openalex.org/W2092312383","https://openalex.org/W2093151539","https://openalex.org/W2099874636","https://openalex.org/W2100220330","https://openalex.org/W2105000278","https://openalex.org/W2105099865","https://openalex.org/W2105716093","https://openalex.org/W2105752956","https://openalex.org/W2109091500","https://openalex.org/W2110150155","https://openalex.org/W2111030771","https://openalex.org/W2112439808","https://openalex.org/W2116043351","https://openalex.org/W2116854600","https://openalex.org/W2117553781","https://openalex.org/W2117763712","https://openalex.org/W2118359500","https://openalex.org/W2122214702","https://openalex.org/W2130105625","https://openalex.org/W2132202888","https://openalex.org/W2140703068","https://openalex.org/W2140709434","https://openalex.org/W2141085468","https://openalex.org/W2145452196","https://openalex.org/W2156274258","https://openalex.org/W2161250982","https://openalex.org/W2162013407","https://openalex.org/W2168699925","https://openalex.org/W2170207495","https://openalex.org/W2170360109","https://openalex.org/W2170430486","https://openalex.org/W2171810782","https://openalex.org/W2340966270","https://openalex.org/W2408553960","https://openalex.org/W2478759695","https://openalex.org/W2559825393","https://openalex.org/W2613415461","https://openalex.org/W2784068094","https://openalex.org/W2830290158","https://openalex.org/W3124592541","https://openalex.org/W4233717222","https://openalex.org/W4235809384","https://openalex.org/W4243614717","https://openalex.org/W7015378702"],"related_works":["https://openalex.org/W2291261743","https://openalex.org/W1540119434","https://openalex.org/W4229598134","https://openalex.org/W2071657884","https://openalex.org/W4285126926","https://openalex.org/W2290390358","https://openalex.org/W2765982327","https://openalex.org/W213396585","https://openalex.org/W2358660055","https://openalex.org/W4237671428"],"abstract_inverted_index":{"CONTEXT:":[0],"The":[1,34,227,270],"use":[2],"of":[3,12,46,72,76,90,108,134,185,223,229,236,255,259,268,272,277,301],"the":[4,44,70,86,111,122,135,149,177,186,212,232,239,275],"Internet":[5],"for":[6,62,179,298],"peer-to-peer":[7],"connection":[8],"has":[9,176,296],"been":[10],"one":[11],"its":[13],"most":[14],"dramatic":[15],"and":[16,31,81,88,113,131,145,157,181,199,214,234,238,251,261,283,295,310],"transformational":[17],"features.":[18],"Yet":[19],"this":[20,38],"is":[21],"a":[22,29,59,91,105,118,129,158,265],"new":[23,92],"field":[24],"with":[25,79,154,195,244],"no":[26],"agreement":[27],"on":[28,69,99,288],"theoretical":[30],"methodological":[32],"basis.":[33],"scientific":[35],"base":[36],"underpinning":[37],"activity":[39],"needs":[40],"strengthening,":[41],"especially":[42],"given":[43],"explosion":[45],"web":[47],"resources":[48],"that":[49,249],"feature":[50,267],"experiences":[51,78,171,258,294],"posted":[52],"by":[53],"patients":[54],"themselves.":[55],"This":[56],"review":[57,101,107],"informs":[58],"National":[60],"Institute":[61],"Health":[63],"Research":[64],"(NIHR)":[65],"(UK)":[66],"research":[67],"program":[68],"impact":[71,94],"online":[73,169,224],"patients'":[74,170,293],"accounts":[75,254],"their":[77,256,302,305],"health":[80,82,114,201,260,278,289,307],"care,":[83],"which":[84,124,168],"includes":[85],"development":[87],"validation":[89],"e-health":[93],"questionnaire.":[95],"METHODS:":[96],"We":[97,116,137,163],"drew":[98],"realist":[100],"methods":[102],"to":[103,120,210,241,285],"conduct":[104],"conceptual":[106],"literature":[109],"in":[110,274,304],"social":[112,286],"sciences.":[115],"developed":[117],"matrix":[119],"summarize":[121],"results,":[123],"we":[125,141],"then":[126,146],"distilled":[127],"from":[128],"wide":[130],"diverse":[132],"reading":[133,139,250],"literature.":[136],"continued":[138],"until":[140],"reached":[142],"data":[143],"saturation":[144],"further":[147],"refined":[148],"results":[150],"after":[151],"testing":[152],"them":[153],"expert":[155],"colleagues":[156],"public":[159],"user":[160],"panel.":[161],"FINDINGS:":[162],"identified":[164,187],"seven":[165],"domains":[166,188],"through":[167,281],"could":[172],"affect":[173],"health.":[174],"Each":[175],"potential":[178],"positive":[180],"negative":[182],"impacts.":[183],"Five":[184],"(finding":[189],"information,":[190],"feeling":[191],"supported,":[192],"maintaining":[193],"relationships":[194],"others,":[196],"affecting":[197],"behavior,":[198],"experiencing":[200],"services)":[202],"are":[203,217],"relatively":[204],"well":[205],"rehearsed,":[206],"while":[207],"two":[208],"(learning":[209],"tell":[211],"story":[213],"visualizing":[215],"disease)":[216],"less":[218],"acknowledged":[219],"but":[220],"important":[221],"features":[222],"resources.":[225],"CONCLUSIONS:":[226],"value":[228],"first-person":[230],"accounts,":[231],"appeal":[233],"memorability":[235],"stories,":[237],"need":[240],"make":[242],"contact":[243],"peers":[245],"all":[246],"strongly":[247],"suggest":[248],"hearing":[252],"others'":[253],"own":[257,306],"illnesss":[262],"will":[263],"remain":[264],"key":[266],"e-health.":[269],"act":[271],"participating":[273],"creation":[276],"information":[279],"(e.g.,":[280],"blogging":[282],"contributing":[284],"networking":[287],"topics)":[290],"also":[291],"influences":[292],"implications":[297],"our":[299],"understanding":[300],"role":[303],"care":[308],"management":[309],"information.":[311]},"counts_by_year":[{"year":2026,"cited_by_count":47},{"year":2025,"cited_by_count":29},{"year":2024,"cited_by_count":38},{"year":2023,"cited_by_count":24},{"year":2022,"cited_by_count":39},{"year":2021,"cited_by_count":43},{"year":2020,"cited_by_count":61},{"year":2019,"cited_by_count":52},{"year":2018,"cited_by_count":45},{"year":2017,"cited_by_count":42},{"year":2016,"cited_by_count":47},{"year":2015,"cited_by_count":35},{"year":2014,"cited_by_count":26},{"year":2013,"cited_by_count":20},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-22T09:42:04.148104","created_date":"2025-10-10T00:00:00"}