{"id":"https://openalex.org/W2133103787","doi":null,"title":"The last months of lung cancer patients\u2019 lives, in the memory of their relatives. A qualitative study based on in-depth interviews with family members","display_name":"The last months of lung cancer patients\u2019 lives, in the memory of their relatives. A qualitative study based on in-depth interviews with family members","publication_year":2008,"publication_date":"2008-01-01","ids":{"openalex":"https://openalex.org/W2133103787","mag":"2133103787"},"language":"en","primary_location":{"id":"pmh:oai:czasopisma.viamedica.pl:article/29404","doi":null,"is_oa":true,"landing_page_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/view/29404","pdf_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/download/29404/24159","source":{"id":"https://openalex.org/S4377196119","display_name":"Via Medica Journals","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Advances in Palliative Medicine; Vol 7, No 4 (2008); 159-170","raw_type":"Peer-reviewed Article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/download/29404/24159","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5055510438","display_name":"Ma\u0142gorzata Krajnik","orcid":"https://orcid.org/0000-0001-9473-6163","observed_orcids":["https://orcid.org/0000-0001-9473-6163"]},"institutions":[{"id":"https://openalex.org/I3019271933","display_name":"Nicolaus Copernicus University","ror":"https://ror.org/0102mm775","country_code":"PL","type":"education","lineage":["https://openalex.org/I3019271933"]},{"id":"https://openalex.org/I4210148386","display_name":"Collegium Medicum in Bydgoszcz","ror":"https://ror.org/04c5jwj47","country_code":"PL","type":"education","lineage":["https://openalex.org/I3019271933","https://openalex.org/I4210148386"]}],"countries":["PL"],"is_corresponding":false,"raw_author_name":"Ma\u0142gorzata Krajnik","raw_affiliation_strings":["Chair of Palliative Care, Nicolas Copernicus University, Collegium Medicum in Bydgoszcz, Poland"],"raw_orcid":"https://orcid.org/0000-0001-9473-6163","affiliations":[{"raw_affiliation_string":"Chair of Palliative Care, Nicolas Copernicus University, Collegium Medicum in Bydgoszcz, Poland","institution_ids":["https://openalex.org/I3019271933","https://openalex.org/I4210148386"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062169675","display_name":"Amelia Szymanowska","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Amelia Szymanowska","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103399526","display_name":"Anna Adamczyk","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Anna Adamczyk","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029677724","display_name":"Joanna Kozaka","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Joanna Kozaka","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052637796","display_name":"Marcin Tomasz Skrzypski","orcid":"https://orcid.org/0000-0002-4391-4318","observed_orcids":["https://orcid.org/0000-0002-4391-4318"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marcin Skrzypski","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0002-4391-4318","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089705899","display_name":"Barbara Szostakiewicz","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Barbara Szostakiewicz","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5067792919","display_name":"Ewa Jassem","orcid":"https://orcid.org/0000-0003-4239-4776","observed_orcids":["https://orcid.org/0000-0003-4239-4776"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ewa Jassem","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0003-4239-4776","affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.3401,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.6747717,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"7","issue":"4","first_page":"159","last_page":"170"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9355000257492065,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9355000257492065,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.060100000351667404,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14208","display_name":"Death, Funerary Practices, and Mourning","score":0.0007999999797903001,"subfield":{"id":"https://openalex.org/subfields/3314","display_name":"Anthropology"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/non-small-cell-lung-cancer","display_name":"non-small cell lung cancer","score":0.8579999804496765},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.8949999809265137},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.7179999947547913},{"id":"https://openalex.org/keywords/somatic-symptoms","display_name":"somatic symptoms","score":0.6079999804496765},{"id":"https://openalex.org/keywords/pain-and-fatigue","display_name":"pain and fatigue","score":0.6179999709129333},{"id":"https://openalex.org/keywords/spiritual-care","display_name":"spiritual care","score":0.7329999804496765},{"id":"https://openalex.org/keywords/chaplaincy","display_name":"chaplaincy","score":0.9330000281333923},{"id":"https://openalex.org/keywords/psychosocial-support","display_name":"psychosocial support","score":0.8450000286102295},{"id":"https://openalex.org/keywords/holistic-care","display_name":"holistic care","score":0.652999997138977},{"id":"https://openalex.org/keywords/financial-burden-of-caregiving","display_name":"financial burden of caregiving","score":0.7269999980926514},{"id":"https://openalex.org/keywords/complementary-therapy","display_name":"complementary therapy","score":0.47600001096725464},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.6269999742507935},{"id":"https://openalex.org/keywords/hospice-care","display_name":"hospice care","score":0.4259999990463257}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7341403365135193},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.685573160648346},{"id":"https://openalex.org/C2778654693","wikidata":"https://www.wikidata.org/wiki/Q254327","display_name":"Anorexia","level":2,"score":0.6117695569992065},{"id":"https://openalex.org/C2780247198","wikidata":"https://www.wikidata.org/wiki/Q633403","display_name":"Weakness","level":2,"score":0.6046900749206543},{"id":"https://openalex.org/C2776256026","wikidata":"https://www.wikidata.org/wiki/Q47912","display_name":"Lung cancer","level":2,"score":0.5517152547836304},{"id":"https://openalex.org/C2777014857","wikidata":"https://www.wikidata.org/wiki/Q1383410","display_name":"Exacerbation","level":2,"score":0.4841628670692444},{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.44423651695251465},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.44194748997688293},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3892488181591034},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.3466199040412903},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.3323889374732971},{"id":"https://openalex.org/C141071460","wikidata":"https://www.wikidata.org/wiki/Q40821","display_name":"Surgery","level":1,"score":0.2258501946926117},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.16846048831939697},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.1469568908214569},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:czasopisma.viamedica.pl:article/29404","doi":null,"is_oa":true,"landing_page_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/view/29404","pdf_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/download/29404/24159","source":{"id":"https://openalex.org/S4377196119","display_name":"Via Medica Journals","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Advances in Palliative Medicine; Vol 7, No 4 (2008); 159-170","raw_type":"Peer-reviewed Article"},{"id":"mag:2133103787","doi":null,"is_oa":false,"landing_page_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/view/29404","pdf_url":null,"source":{"id":"https://openalex.org/S2764770564","display_name":"Advances in Palliative Medicine","issn_l":"1898-3863","issn":["1898-3863"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"Advances in Palliative Medicine","raw_type":null}],"best_oa_location":{"id":"pmh:oai:czasopisma.viamedica.pl:article/29404","doi":null,"is_oa":true,"landing_page_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/view/29404","pdf_url":"https://journals.viamedica.pl/advances_in_palliative_medicine/article/download/29404/24159","source":{"id":"https://openalex.org/S4377196119","display_name":"Via Medica Journals","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Advances in Palliative Medicine; Vol 7, No 4 (2008); 159-170","raw_type":"Peer-reviewed Article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.98580002784729}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2133103787.pdf","grobid_xml":"https://content.openalex.org/works/W2133103787.grobid-xml"},"referenced_works_count":28,"referenced_works":["https://openalex.org/W30194960","https://openalex.org/W38408661","https://openalex.org/W183905289","https://openalex.org/W1904695471","https://openalex.org/W1971294547","https://openalex.org/W1977679092","https://openalex.org/W1982243395","https://openalex.org/W1983293794","https://openalex.org/W1987416929","https://openalex.org/W1990039431","https://openalex.org/W2003260521","https://openalex.org/W2015684471","https://openalex.org/W2022983038","https://openalex.org/W2046867396","https://openalex.org/W2052851533","https://openalex.org/W2071684342","https://openalex.org/W2077884282","https://openalex.org/W2078928365","https://openalex.org/W2097149048","https://openalex.org/W2108361166","https://openalex.org/W2112737303","https://openalex.org/W2127248987","https://openalex.org/W2146140918","https://openalex.org/W2151841305","https://openalex.org/W2153465535","https://openalex.org/W2168456843","https://openalex.org/W2400655241","https://openalex.org/W3151231921"],"related_works":["https://openalex.org/W7210086962","https://openalex.org/W2151841305","https://openalex.org/W7145872341","https://openalex.org/W2802495655","https://openalex.org/W2139370331","https://openalex.org/W2161131093","https://openalex.org/W1987636291","https://openalex.org/W7208310752","https://openalex.org/W1987416929","https://openalex.org/W2087853133"],"abstract_inverted_index":{"Background.":[0],"The":[1,40,175,196],"aim":[2],"of":[3,16,31,43,71,81,108,111,133,141,146,152,158,183,281,288,309,340,350,387],"the":[4,13,32,66,77,85,87,94,106,109,121,131,134,139,144,147,156,181,203,233,254,269,272,278,293,306,327,336,347,355,360,377,382],"study":[5,126,333],"was":[6,89,275,285,314],"to":[7,53,64,74,102,129,179,317,376,381],"assess":[8],"how":[9],"family":[10,41],"members":[11,42],"remember":[12],"final":[14,247],"months":[15,189],"their":[17,23,29,82,246,323,351],"loved":[18,352],"ones":[19,353],"2\u20138":[20],"years":[21,55],"after":[22,56],"death.":[24],"We":[25],"focused":[26,276],"particularly":[27],"on":[28,105,277],"recognition":[30],"patients\u2019":[33],"physical,":[34],"psychosocial":[35,383],"and":[36,62,79,214,227,290,312,325,342,354,384],"spiritual":[37,310,385],"needs.":[38],"Methods.":[39],"45":[44],"non":[45],"small-cell":[46],"lung":[47],"cancer":[48,170],"patients":[49,257],"who":[50],"died":[51],"up":[52],"7":[54],"radical":[57],"surgical":[58],"treatment":[59],"were":[60,100,127,177,258],"telephoned":[61],"asked":[63,101],"meet":[65],"research":[67],"team.":[68],"Only":[69],"20":[70,234],"them":[72],"agreed":[73],"talk":[75],"about":[76],"dying":[78,142],"death":[80],"relatives;":[83],"for":[84],"rest":[86],"issue":[88],"still":[90],"too":[91],"painful.":[92],"During":[93],"meeting":[95],"with":[96,143,164,260,346],"two":[97],"researchers,":[98],"participants":[99],"comment":[103],"freely":[104],"points":[107],"Assessment":[110],"Dying":[112],"in":[113,124,207,322,326,364],"Lung":[114],"Cancer":[115],"Patients":[116],"questionnaire.":[117],"Results.":[118],"Almost":[119],"all":[120],"relatives":[122,204,301],"interviewed":[123,205],"our":[125],"able":[128,178],"recognize":[130],"beginning":[132,140],"terminal":[135],"phase.":[136],"They":[137],"connected":[138],"deterioration":[145],"physical":[148,199,279,378],"and/or":[149,160],"psychological":[150,289,348],"status":[151],"patients,":[153],"such":[154,168,318],"as":[155,169,186],"exacerbation":[157],"weakness":[159],"other":[161],"symptoms":[162,200],"or":[163,172,263,265,329],"clearly":[165],"distinguished":[166],"incidents":[167],"recurrence":[171],"hip":[173],"fracture.":[174],"majority":[176],"define":[180],"length":[182],"this":[184],"phase":[185],"being":[187],"several":[188],"(median":[190],"=":[191,212,217,221,225,230],"3,":[192],"range":[193],"1\u201311":[194],"months).":[195],"most":[197],"common":[198],"mentioned":[201],"by":[202,253,266,359],"were,":[206],"sequential":[208],"order:":[209],"pain":[210],"(n":[211,216,220,224,229],"13)":[213],"fatigue":[215],"13),":[218],"anorexia":[219],"9),":[222],"dyspnoea":[223],"7)":[226],"cachexia":[228],"7).":[231],"Of":[232],"decedents,":[235],"18":[236],"regularly":[237],"received":[238],"painkillers":[239],"at":[240,242],"least":[241],"some":[243],"period":[244],"during":[245],"months.":[248],"Apart":[249],"from":[250],"medicines":[251],"prescribed":[252],"doctors,":[255],"9":[256],"treated":[259],"\u201canticancer\u201d":[261],"herbs,":[262],"homeopathy,":[264],"bioenergotherapy.":[267],"From":[268],"relatives\u2019":[270],"perspectives,":[271],"main":[273,307],"approach":[274],"aspects":[280,386],"care":[282,366,371],"while":[283],"there":[284,313],"a":[286,319],"lack":[287],"social":[291],"support,":[292],"latter":[294],"often":[295],"causing":[296],"severe":[297],"financial":[298,356],"burden.":[299],"Most":[300],"believed":[302],"that":[303,335,369],"chaplains":[304],"are":[305],"source":[308],"comfort":[311],"easy":[315],"access":[316],"service":[320],"both":[321],"parish":[324],"hospice":[328],"hospitals.":[330],"Conclusion.":[331],"Our":[332],"showed":[334],"families":[337],"remembered":[338],"feelings":[339],"loneliness":[341],"helplessness":[343],"when":[344],"confronted":[345],"suffering":[349],"burdens":[357],"caused":[358],"caregivers.":[361],"Professionals":[362],"involved":[363],"palliative":[365],"should":[367],"acknowledge":[368],"holistic":[370],"requires":[372],"sensitivity,":[373],"not":[374],"only":[375],"but":[379],"also":[380],"end-of-life":[388],"care.":[389]},"counts_by_year":[],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}