{"id":"https://openalex.org/W2132030895","doi":null,"title":"Denying Intimacy: The Role of Reason and Institutional Order in the Lives of People with an Intellectual Disability","display_name":"Denying Intimacy: The Role of Reason and Institutional Order in the Lives of People with an Intellectual Disability","publication_year":2001,"publication_date":"2001-01-01","ids":{"openalex":"https://openalex.org/W2132030895","mag":"2132030895"},"language":"en","primary_location":{"id":"pmh:oai:ses.library.usyd.edu.au:2123/513","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2123/513","pdf_url":"http://hdl.handle.net/2123/513","source":{"id":"https://openalex.org/S4306402414","display_name":"The Sydney eScholarship Repository (The University of Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I129604602","host_organization_name":"The University of Sydney","host_organization_lineage":["https://openalex.org/I129604602"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/2123/513","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5086925215","display_name":"Jani Klotz","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Jani Klotz","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5086925215"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":9,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.9682999849319458,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.9682999849319458,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.0272000003606081,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12948","display_name":"Inclusion and Disability in Education and Sport","score":0.0012000000569969416,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.9980000257492065},{"id":"https://openalex.org/keywords/sociality","display_name":"sociality","score":0.9200000166893005},{"id":"https://openalex.org/keywords/mutuality","display_name":"mutuality","score":0.9789999723434448},{"id":"https://openalex.org/keywords/intimacy","display_name":"intimacy","score":0.7630000114440918},{"id":"https://openalex.org/keywords/family-relationships","display_name":"family relationships","score":0.4350000023841858},{"id":"https://openalex.org/keywords/institutional-care","display_name":"institutional care","score":0.753000020980835},{"id":"https://openalex.org/keywords/group-homes","display_name":"group homes","score":0.5619999766349792},{"id":"https://openalex.org/keywords/day-centers","display_name":"day centers","score":0.6460000276565552},{"id":"https://openalex.org/keywords/symbolic-practices","display_name":"symbolic practices","score":0.49399998784065247},{"id":"https://openalex.org/keywords/intelligence-testing","display_name":"intelligence testing","score":0.6150000095367432},{"id":"https://openalex.org/keywords/pathologization","display_name":"pathologization","score":0.8550000190734863},{"id":"https://openalex.org/keywords/institutional-order","display_name":"institutional order","score":0.43299999833106995},{"id":"https://openalex.org/keywords/wittgenstein-s-language-games","display_name":"Wittgenstein's language games","score":0.5799999833106995}],"concepts":[{"id":"https://openalex.org/C182306322","wikidata":"https://www.wikidata.org/wiki/Q1779371","display_name":"Order (exchange)","level":2,"score":0.694560706615448},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.5131166577339172},{"id":"https://openalex.org/C107993555","wikidata":"https://www.wikidata.org/wiki/Q1662673","display_name":"Gender studies","level":1,"score":0.4414263367652893},{"id":"https://openalex.org/C2993659695","wikidata":"https://www.wikidata.org/wiki/Q6909116","display_name":"Moral order","level":2,"score":0.41073182225227356},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4080321192741394},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.39973247051239014},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.3569677174091339},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.3455190062522888},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.22024956345558167},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.10023856163024902},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.09082639217376709},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:ses.library.usyd.edu.au:2123/513","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2123/513","pdf_url":"http://hdl.handle.net/2123/513","source":{"id":"https://openalex.org/S4306402414","display_name":"The Sydney eScholarship Repository (The University of Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I129604602","host_organization_name":"The University of Sydney","host_organization_lineage":["https://openalex.org/I129604602"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"pmh:oai:uilis.unsyiah.ac.id:5650","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2123/513","pdf_url":null,"source":{"id":"https://openalex.org/S4377196378","display_name":"UPT. Syiah Kuala University Library (Syiah Kuala University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187494767","host_organization_name":"Universitas Syiah Kuala","host_organization_lineage":["https://openalex.org/I187494767"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":null},{"id":"mag:2132030895","doi":null,"is_oa":false,"landing_page_url":"https://ses.library.usyd.edu.au/bitstream/2123/513/3/adt-NU20031216.12462701front.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:ses.library.usyd.edu.au:2123/513","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2123/513","pdf_url":"http://hdl.handle.net/2123/513","source":{"id":"https://openalex.org/S4306402414","display_name":"The Sydney eScholarship Repository (The University of Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I129604602","host_organization_name":"The University of Sydney","host_organization_lineage":["https://openalex.org/I129604602"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.4000000059604645}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2132030895.pdf","grobid_xml":"https://content.openalex.org/works/W2132030895.grobid-xml"},"referenced_works_count":195,"referenced_works":["https://openalex.org/W85576778","https://openalex.org/W121188834","https://openalex.org/W165832744","https://openalex.org/W171264253","https://openalex.org/W172937632","https://openalex.org/W212344417","https://openalex.org/W225010290","https://openalex.org/W262858837","https://openalex.org/W263164394","https://openalex.org/W264982783","https://openalex.org/W304048211","https://openalex.org/W356539818","https://openalex.org/W379449984","https://openalex.org/W399436669","https://openalex.org/W399580203","https://openalex.org/W405449221","https://openalex.org/W560270369","https://openalex.org/W561271972","https://openalex.org/W569257016","https://openalex.org/W573184662","https://openalex.org/W579063972","https://openalex.org/W580567917","https://openalex.org/W588553557","https://openalex.org/W590244649","https://openalex.org/W598403468","https://openalex.org/W602216783","https://openalex.org/W616255730","https://openalex.org/W620337800","https://openalex.org/W622800109","https://openalex.org/W624735557","https://openalex.org/W628565992","https://openalex.org/W635009399","https://openalex.org/W649099984","https://openalex.org/W650495864","https://openalex.org/W652364508","https://openalex.org/W655924880","https://openalex.org/W1482972645","https://openalex.org/W1488328751","https://openalex.org/W1490104791","https://openalex.org/W1492864034","https://openalex.org/W1504657400","https://openalex.org/W1510797915","https://openalex.org/W1512957913","https://openalex.org/W1513361368","https://openalex.org/W1519901312","https://openalex.org/W1520776910","https://openalex.org/W1531406917","https://openalex.org/W1537638333","https://openalex.org/W1550369092","https://openalex.org/W1551900784","https://openalex.org/W1553286440","https://openalex.org/W1558581240","https://openalex.org/W1563595537","https://openalex.org/W1576632330","https://openalex.org/W1590835544","https://openalex.org/W1599047181","https://openalex.org/W1600437457","https://openalex.org/W1601517450","https://openalex.org/W1605019747","https://openalex.org/W1679102524","https://openalex.org/W1679196328","https://openalex.org/W1696836216","https://openalex.org/W1725393480","https://openalex.org/W1730029901","https://openalex.org/W1751493675","https://openalex.org/W1767082038","https://openalex.org/W1781235450","https://openalex.org/W1954930957","https://openalex.org/W1963881747","https://openalex.org/W1967174452","https://openalex.org/W1968245422","https://openalex.org/W1969948936","https://openalex.org/W1972059866","https://openalex.org/W1972223906","https://openalex.org/W1973974771","https://openalex.org/W1974568076","https://openalex.org/W1974928750","https://openalex.org/W1976713060","https://openalex.org/W1977720190","https://openalex.org/W1978511419","https://openalex.org/W1980474157","https://openalex.org/W1982566312","https://openalex.org/W1985201247","https://openalex.org/W1985210477","https://openalex.org/W1985692617","https://openalex.org/W1991587236","https://openalex.org/W1993361194","https://openalex.org/W1994084827","https://openalex.org/W1995265093","https://openalex.org/W1995931969","https://openalex.org/W2001066186","https://openalex.org/W2002667614","https://openalex.org/W2011359911","https://openalex.org/W2011623618","https://openalex.org/W2011633342","https://openalex.org/W2012758517","https://openalex.org/W2012930256","https://openalex.org/W2012930664","https://openalex.org/W2015164830","https://openalex.org/W2015902457","https://openalex.org/W2016028423","https://openalex.org/W2017496669","https://openalex.org/W2019550831","https://openalex.org/W2019996499","https://openalex.org/W2020392218","https://openalex.org/W2021551171","https://openalex.org/W2022774613","https://openalex.org/W2022994648","https://openalex.org/W2025226552","https://openalex.org/W2026455074","https://openalex.org/W2031578861","https://openalex.org/W2033392732","https://openalex.org/W2033773265","https://openalex.org/W2033910145","https://openalex.org/W2034178742","https://openalex.org/W2035065325","https://openalex.org/W2036335739","https://openalex.org/W2040092624","https://openalex.org/W2044703027","https://openalex.org/W2045403074","https://openalex.org/W2045520230","https://openalex.org/W2053830634","https://openalex.org/W2061869435","https://openalex.org/W2061869560","https://openalex.org/W2062283032","https://openalex.org/W2064197753","https://openalex.org/W2065059273","https://openalex.org/W2065963788","https://openalex.org/W2069366313","https://openalex.org/W2072814132","https://openalex.org/W2073658697","https://openalex.org/W2073819895","https://openalex.org/W2073998506","https://openalex.org/W2075067508","https://openalex.org/W2077189673","https://openalex.org/W2077334631","https://openalex.org/W2078218270","https://openalex.org/W2078879257","https://openalex.org/W2079179177","https://openalex.org/W2084897402","https://openalex.org/W2086675844","https://openalex.org/W2090183812","https://openalex.org/W2091533084","https://openalex.org/W2092593875","https://openalex.org/W2102524133","https://openalex.org/W2103776282","https://openalex.org/W2104798392","https://openalex.org/W2106035137","https://openalex.org/W2106916177","https://openalex.org/W2114398794","https://openalex.org/W2116856165","https://openalex.org/W2133515792","https://openalex.org/W2134603632","https://openalex.org/W2135050066","https://openalex.org/W2138103302","https://openalex.org/W2141697330","https://openalex.org/W2146034870","https://openalex.org/W2146710708","https://openalex.org/W2149623334","https://openalex.org/W2155907444","https://openalex.org/W2157171464","https://openalex.org/W2157282578","https://openalex.org/W2157747177","https://openalex.org/W2160637268","https://openalex.org/W2163229530","https://openalex.org/W2289202032","https://openalex.org/W2313804301","https://openalex.org/W2315032304","https://openalex.org/W2319353440","https://openalex.org/W2325404630","https://openalex.org/W2332276569","https://openalex.org/W2332467888","https://openalex.org/W2404831466","https://openalex.org/W2409232322","https://openalex.org/W2412132745","https://openalex.org/W2433299895","https://openalex.org/W2462514664","https://openalex.org/W2464873209","https://openalex.org/W2469301163","https://openalex.org/W2469597493","https://openalex.org/W2481814995","https://openalex.org/W2485269854","https://openalex.org/W2494521687","https://openalex.org/W2505623412","https://openalex.org/W2528640565","https://openalex.org/W2597000283","https://openalex.org/W2734093675","https://openalex.org/W2783171685","https://openalex.org/W2890753989","https://openalex.org/W2996523511","https://openalex.org/W3107947577","https://openalex.org/W3133708471","https://openalex.org/W3167580033","https://openalex.org/W4231433775","https://openalex.org/W4232143967"],"related_works":["https://openalex.org/W2755477815","https://openalex.org/W4395081856","https://openalex.org/W832902372","https://openalex.org/W3206008065","https://openalex.org/W2345604842","https://openalex.org/W4380875825","https://openalex.org/W2013328874","https://openalex.org/W1768656054","https://openalex.org/W1530472386","https://openalex.org/W4220801886"],"abstract_inverted_index":{"This":[0,236,532],"thesis":[1,73],"explores":[2],"differences":[3,37,551],"in":[4,97,158,163,301,372,384,473,480,545],"the":[5,33,39,72,75,119,137,198,293,319,337,382,411,418,435,442,450,509],"ways":[6,383],"that":[7,41,152,178,188,257,276,420,440,446,498],"intellectually":[8,50,85,127,201,277,313,362,412,421,451,517,534],"disabled":[9,51,86,128,202,278,314,363,413,422,452,518,535],"people":[10,87,104,279,364,423,453,482,519],"are":[11,142,211,258,265,280,414,434,460,504,522,528],"perceived,":[12],"interpreted":[13],"and":[14,26,38,63,65,81,91,95,148,168,174,186,215,226,234,270,292,303,322,326,369,400,408,437,464,469,489,512],"related":[15],"to":[16,132,144,156,165,296,307,317,346,380,478,538,542,555],"within":[17,403],"a":[18,22,79,181,229,240,308,359,415,483,507,546],"Western":[19],"context.":[20],"Through":[21],"comparison":[23],"of":[24,29,61,69,108,139,160,183,200,218,221,232,285,312,324,341,356,361,388,398,417,444,485],"familial":[25],"institutionalised":[27,475],"forms":[28,217,443],"relatedness,":[30,219],"it":[31,153,271,494],"examines":[32],"interrelation":[34],"between":[35],"these":[36,170,474,497],"consequences":[40],"they":[42,430,456,529],"have":[43,106,223,424,448],"for":[44,54,100,197,242,262,299,410,427],"either":[45,370],"denying":[46],"or":[47,310,376],"acknowledging":[48],"severely":[49],"people's":[52,203,315,536],"capacities":[53,99],"sociality.":[55,263,327],"Drawing":[56],"on":[57,330,462],"Carrithers'":[58],"(1992)":[59],"concept":[60],"sociality":[62,113,428],"mutuality,":[64],"Wittgenstein's":[66],"(1953)":[67],"notion":[68],"language":[70],"games,":[71],"analyses":[74],"means":[76],"by":[77,123,228],"which":[78,112,194,222,385,516,548],"meaningful":[80],"shared":[82],"existence":[83,204],"with":[84,213,244,358,377,449,454],"can":[88,114],"be":[89,115,145,318,539],"negotiated":[90],"developed.":[92],"Although":[93],"limited":[94],"restricted":[96],"their":[98,378,499,550],"symbolic":[101,109,120,230,237,510],"expression,":[102],"such":[103,274,386,481],"do":[105],"modalities":[107],"life":[110,544],"upon":[111,496],"built.":[116],"By":[117],"analysing":[118],"practices":[121,171,256,402,511],"utilised":[122],"my":[124,331,342],"three":[125],"profoundly":[126],"siblings,":[129],"I":[130,150,328],"seek":[131],"show":[133],"how":[134],"relationships":[135],"across":[136],"difference":[138],"intellectual":[140,286,389],"disability":[141,287,390],"able":[143],"symbolically":[146],"mediated":[147],"negotiated.":[149],"argue":[151],"is":[154,189,195,249,272,477,495],"necessary":[155,196,261],"engage":[157],"relations":[159,210,459],"mutual":[161],"interdependence":[162],"order":[164],"even":[166],"recognise":[167],"perceive":[169],"as":[172,205,251,288,348,350,429,492,501,525],"purposeful":[173],"meaningful.":[175],"The":[176,283,396,471],"mutuality":[177,325,468],"ensues":[179],"requires":[180],"level":[182],"intimacy,":[184],"empathy":[185],"commitment":[187],"not":[190,523],"easily":[191],"sustainable,":[192],"but":[193],"maintenance":[199],"social":[206,502,543],"beings.":[207],"These":[208,264,458],"intimate":[209],"contrasted":[212],"clinical":[214,294],"institutional":[216],"both":[220],"been":[224],"informed":[225],"shaped":[227],"scheme":[231,238],"reason":[233,243,248],"normality.":[235],"associates":[239],"capacity":[241,426,500,537],"normal":[245],"humanness,":[246],"where":[247,339],"identified":[250],"particular":[252],"abstract,":[253],"linguistic,":[254],"mental":[255],"then":[259],"deemed":[260],"what":[266],"intelligence":[267],"tests":[268],"measure,":[269],"through":[273,515],"assessments":[275],"rendered":[281],"asocial.":[282],"pathologising":[284],"an":[289,366],"abnormal":[290],"embodiment,":[291],"tendency":[295],"search":[297],"only":[298],"deficits":[300],"functioning":[302],"ability,":[304],"has":[305],"led":[306],"denial":[309],"ignorance":[311],"abilities":[316],"independent":[320],"sustainers":[321],"authors":[323],"draw":[329],"family's":[332],"medical":[333],"notes,":[334],"records":[335],"from":[336],"institution":[338],"two":[340],"siblings":[343],"were":[344],"sent":[345],"live,":[347],"well":[349],"observations":[351],"made":[352],"during":[353],"twelve":[354],"months":[355],"fieldwork":[357],"group":[360,374,406],"attending":[365],"activities":[367],"centre,":[368],"living":[371],"community":[373],"homes":[375,407],"families,":[379],"elucidate":[381],"interpretations":[387],"become":[391],"instituted":[392],"into":[393],"daily":[394],"practice.":[395],"instituting":[397],"training":[399],"management":[401],"day":[404],"centres,":[405],"institutions":[409],"consequence":[416],"perception":[419],"no":[425],"are.":[431],"So":[432],"too":[433],"legal":[436],"structural":[438],"obligations":[439],"inform":[441],"relatedness":[445],"staff":[447],"whom":[455],"work.":[457],"based":[461],"separation":[463],"disengagement":[465],"rather":[466,552],"than":[467,553],"intimacy.":[470],"aim":[472],"environments":[476],"instil":[479],"range":[484],"normative":[486],"social,":[487],"domestic":[488],"vocational":[490],"skills":[491],"though":[493],"beings":[503],"dependent.":[505],"As":[506],"result,":[508],"dispositional":[513],"behaviours":[514],"express":[520],"themselves":[521],"recognised":[524],"such,":[526],"nor":[527],"engaged":[530],"with.":[531],"undermines":[533],"joint":[540],"contributors":[541],"way":[547],"incorporates":[549],"trying":[554],"transform":[556],"them.":[557]},"counts_by_year":[{"year":2019,"cited_by_count":5},{"year":2014,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}
