{"id":"https://openalex.org/W2115807014","doi":null,"title":"Children with Type 1 diabetes The initial education process and the impact on children and their parents over the first two years","display_name":"Children with Type 1 diabetes The initial education process and the impact on children and their parents over the first two years","publication_year":2014,"publication_date":"2014-01-01","ids":{"openalex":"https://openalex.org/W2115807014","mag":"2115807014"},"language":"en","primary_location":{"id":"pmh:oai:lup.lub.lu.se:f9b410de-1347-43d5-8d08-df31a0b738d9","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/4394069","pdf_url":"https://lup.lub.lu.se/record/4394069","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ISSN: 1652-8220","raw_type":"info:eu-repo/semantics/doctoralThesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://lup.lub.lu.se/record/4394069","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5069465271","display_name":"Lisbeth J\u00f6nsson","orcid":"https://orcid.org/0000-0002-0276-9599","observed_orcids":["https://orcid.org/0000-0002-0276-9599"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"L. J\u00f6nsson","raw_affiliation_strings":["Institutionen f\u00f6r h\u00e4lsovetenskaper"],"raw_orcid":"https://orcid.org/0000-0002-0276-9599","affiliations":[{"raw_affiliation_string":"Institutionen f\u00f6r h\u00e4lsovetenskaper","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5069465271"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10793","display_name":"Diabetes Management and Education","score":0.9574999809265137,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10793","display_name":"Diabetes Management and Education","score":0.9574999809265137,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10560","display_name":"Diabetes Management and Research","score":0.0406000018119812,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11171","display_name":"Diabetes and associated disorders","score":0.0010999999940395355,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/type-1-diabetes","display_name":"type 1 diabetes","score":0.9369999766349792},{"id":"https://openalex.org/keywords/parental-satisfaction","display_name":"parental satisfaction","score":0.6019999980926514},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.8709999918937683},{"id":"https://openalex.org/keywords/children-s-quality-of-life","display_name":"children's quality of life","score":0.7179999947547913},{"id":"https://openalex.org/keywords/family-support","display_name":"family support","score":0.6330000162124634},{"id":"https://openalex.org/keywords/parental-worry","display_name":"parental worry","score":0.6119999885559082},{"id":"https://openalex.org/keywords/self-care","display_name":"self-care","score":0.6380000114440918},{"id":"https://openalex.org/keywords/parental-experiences","display_name":"parental experiences","score":0.3409999907016754},{"id":"https://openalex.org/keywords/parents","display_name":"parents","score":0.5759999752044678},{"id":"https://openalex.org/keywords/hospital-discharge","display_name":"hospital discharge","score":0.492000013589859},{"id":"https://openalex.org/keywords/patient-admission-and-discharge","display_name":"hospital admission and discharge","score":0.3779999911785126},{"id":"https://openalex.org/keywords/knowledge-overload","display_name":"knowledge overload","score":0.42500001192092896}],"concepts":[{"id":"https://openalex.org/C2781232474","wikidata":"https://www.wikidata.org/wiki/Q124407","display_name":"Type 1 diabetes","level":3,"score":0.6168190836906433},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6111496686935425},{"id":"https://openalex.org/C555293320","wikidata":"https://www.wikidata.org/wiki/Q12206","display_name":"Diabetes mellitus","level":2,"score":0.5839743614196777},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.5085910558700562},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.48440390825271606},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4772852957248688},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.4630117416381836},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.4492015242576599},{"id":"https://openalex.org/C2777180221","wikidata":"https://www.wikidata.org/wiki/Q3025883","display_name":"Type 2 diabetes","level":3,"score":0.4453818202018738},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3523467183113098},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.3329334259033203},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3263874053955078},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.32034748792648315},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C134018914","wikidata":"https://www.wikidata.org/wiki/Q162606","display_name":"Endocrinology","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:lup.lub.lu.se:f9b410de-1347-43d5-8d08-df31a0b738d9","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/4394069","pdf_url":"https://lup.lub.lu.se/record/4394069","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ISSN: 1652-8220","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:2115807014","doi":null,"is_oa":false,"landing_page_url":"http://portal.research.lu.se/ws/files/4120416/4394076.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:lup.lub.lu.se:f9b410de-1347-43d5-8d08-df31a0b738d9","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/4394069","pdf_url":"https://lup.lub.lu.se/record/4394069","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ISSN: 1652-8220","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9940000176429749},{"display_name":"Quality education","id":"https://metadata.un.org/sdg/4","score":0.6164000034332275}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2115807014.pdf","grobid_xml":"https://content.openalex.org/works/W2115807014.grobid-xml"},"referenced_works_count":115,"referenced_works":["https://openalex.org/W60071547","https://openalex.org/W70665751","https://openalex.org/W1487931717","https://openalex.org/W1521578411","https://openalex.org/W1525677827","https://openalex.org/W1532859087","https://openalex.org/W1567127047","https://openalex.org/W1586176502","https://openalex.org/W1591387239","https://openalex.org/W1622527855","https://openalex.org/W1749232127","https://openalex.org/W1823926927","https://openalex.org/W1845297071","https://openalex.org/W1910238086","https://openalex.org/W1947834136","https://openalex.org/W1968957694","https://openalex.org/W1972291359","https://openalex.org/W1979295763","https://openalex.org/W1979803802","https://openalex.org/W1982687009","https://openalex.org/W1984989721","https://openalex.org/W1986460614","https://openalex.org/W1987445308","https://openalex.org/W1992103610","https://openalex.org/W1994388567","https://openalex.org/W1994657143","https://openalex.org/W1995588734","https://openalex.org/W2005608377","https://openalex.org/W2006246999","https://openalex.org/W2009517399","https://openalex.org/W2011757299","https://openalex.org/W2015852058","https://openalex.org/W2017468626","https://openalex.org/W2019398887","https://openalex.org/W2020492185","https://openalex.org/W2023296689","https://openalex.org/W2025032106","https://openalex.org/W2025561399","https://openalex.org/W2028260546","https://openalex.org/W2029343285","https://openalex.org/W2032184464","https://openalex.org/W2036639090","https://openalex.org/W2039380198","https://openalex.org/W2039669403","https://openalex.org/W2041122268","https://openalex.org/W2042170563","https://openalex.org/W2042650427","https://openalex.org/W2052083700","https://openalex.org/W2052608879","https://openalex.org/W2052970000","https://openalex.org/W2054147343","https://openalex.org/W2054835080","https://openalex.org/W2055996361","https://openalex.org/W2056144694","https://openalex.org/W2057987247","https://openalex.org/W2060719917","https://openalex.org/W2066616789","https://openalex.org/W2072539232","https://openalex.org/W2072835025","https://openalex.org/W2077120430","https://openalex.org/W2080725203","https://openalex.org/W2080859403","https://openalex.org/W2081807769","https://openalex.org/W2087447435","https://openalex.org/W2087915367","https://openalex.org/W2088731625","https://openalex.org/W2091675347","https://openalex.org/W2092103287","https://openalex.org/W2093013550","https://openalex.org/W2097630855","https://openalex.org/W2098439533","https://openalex.org/W2099314626","https://openalex.org/W2099926618","https://openalex.org/W2101504906","https://openalex.org/W2104718642","https://openalex.org/W2106896704","https://openalex.org/W2107441744","https://openalex.org/W2108534942","https://openalex.org/W2111825817","https://openalex.org/W2121910560","https://openalex.org/W2122328334","https://openalex.org/W2123388267","https://openalex.org/W2124525165","https://openalex.org/W2124797042","https://openalex.org/W2127372143","https://openalex.org/W2129533174","https://openalex.org/W2131095907","https://openalex.org/W2133704756","https://openalex.org/W2134252728","https://openalex.org/W2135118042","https://openalex.org/W2136411263","https://openalex.org/W2140685328","https://openalex.org/W2142225512","https://openalex.org/W2145735444","https://openalex.org/W2148034076","https://openalex.org/W2148287338","https://openalex.org/W2148504512","https://openalex.org/W2151734850","https://openalex.org/W2151980808","https://openalex.org/W2155662067","https://openalex.org/W2157845498","https://openalex.org/W2159733106","https://openalex.org/W2160179456","https://openalex.org/W2161793197","https://openalex.org/W2163363722","https://openalex.org/W2165369848","https://openalex.org/W2166260767","https://openalex.org/W2166410494","https://openalex.org/W2168448906","https://openalex.org/W2168721574","https://openalex.org/W2317005935","https://openalex.org/W2410312538","https://openalex.org/W2415219339","https://openalex.org/W2769264260","https://openalex.org/W2980835636"],"related_works":["https://openalex.org/W2049022494","https://openalex.org/W4404905500","https://openalex.org/W4385934620","https://openalex.org/W4307392430","https://openalex.org/W31560298","https://openalex.org/W2145969206","https://openalex.org/W2969503680","https://openalex.org/W7029247838","https://openalex.org/W1885738797","https://openalex.org/W2047826505"],"abstract_inverted_index":{"The":[0,201,224,383,409,505],"overall":[1,273,310,486],"aim":[2],"of":[3,106,135,177,184,203,341,435,451,514],"this":[4,508],"thesis":[5,509],"was":[6,115,124,287,309,352,364,471],"to":[7,33,39,55,102,143,166,215,228,260,270,295,317,321,325,345,368,405,501,518,537,562,568,572,581,598,612],"investigate":[8],"the":[9,14,25,34,46,107,127,147,167,194,204,208,211,219,230,237,242,246,256,262,266,285,297,301,306,315,334,370,375,420,425,457,502,512,525,527,533,538,544,546,553,565,573,579,586],"initial":[10,49,108],"diabetes":[11,47,69,109,212,238,267,292,523,547],"education":[12,50,213,225,316,335,566],"process,":[13],"impact":[15,149],"on":[16,150,275,280,543,555,589],"children":[17,153,440,458,476],"and":[18,21,29,79,96,126,139,145,152,162,172,174,190,199,221,232,248,253,258,349,358,373,388,399,401,428,444,462,480,495,497,529,576,591,605],"their":[19,104,113,222,249,281,329,379,406,445,463,481,489,530,617,622],"parents":[20,151,233,250,446,465],"parental":[22,478],"satisfaction":[23,192],"with":[24,59,64,117,131,193,251,289,488,520,602],"care":[26,195],"received":[27,196],"one":[28,80,161,400,454,496],"two":[30,76,132,163,402,422,468,498],"years":[31,164,403,423,443,461,469,499,535],"subsequent":[32,165,404,500,536],"child\u2019s":[35,168,243,263,371,407,426,490,503,528,539],"diagnosis.":[36,408,504,540],"In":[37,91,141],"order":[38,142,294],"seek":[40],"a":[41,60,339,346,365,432,448],"deeper":[42],"understanding":[43,513],"for":[44,210,218,300,355],"how":[45,259,475,515],"team\u2019s":[48],"process":[51,111,308,336,567],"works":[52],"from":[53,71,385,507,524,616],"admission":[54],"discharge":[56],"among":[57],"families":[58],"child":[61,114,220,231,247,286],"newly":[62],"diagnosed":[63,116,288],"type":[65,118,290,340,521],"1":[66,119,291,522],"diabetes,":[67],"three":[68,72],"teams":[70,548],"different":[73,133],"paediatric":[74],"hospitals,":[75],"county":[77],"hospitals":[78],"university":[81],"hospital":[82],"were":[83,99,129,156,395,415,485],"interviewed":[84,101],"through":[85],"focus":[86,554],"groups":[87],"interviews":[88,128,205],"(Paper":[89,170,180,188,197],"I).":[90],"Paper":[92,386],"II,":[93],"10":[94],"mothers":[95,414,604],"8":[97],"fathers":[98],"individually":[100],"describe":[103,144],"perceptions":[105],"educational":[110,307],"when":[112],"diabetes.":[120],"A":[121],"qualitative":[122],"method":[123],"used":[125],"analysed":[130],"types":[134],"content":[136],"analysis,":[137],"inductive":[138],"deductive.":[140],"compare":[146],"disease":[148,257,372,587],"respectively,":[154],"data":[155],"collected":[157],"focusing":[158,279],"parents\u2019":[159,191,393],"HRQOL":[160,179,394],"diagnosis":[169,244,398,427,494,561],"III":[171,198,387],"IV)":[173,189],"children\u2019s":[175,182],"experiences":[176,183,615],"diabetes-specific":[178,185],"III),":[181],"family":[186,277,324,381,575],"support":[187,479],"IV).":[200],"results":[202,384,410],"showed":[206,390,412],"that":[207,305,350,362,391,413],"goal":[209],"is":[214,226,517,609],"achieve":[216],"self-care":[217],"parents.":[223],"aimed":[227],"guide":[229],"towards":[234],"self-help":[235],"whereby":[236],"team":[239,268],"immediately":[240],"after":[241,424,453],"provides":[245],"knowledge":[252,342],"skills":[254],"about":[255],"manage":[261,369],"treatment.":[264],"Furthermore,":[265,607],"tries":[269],"get":[271],"an":[272],"picture":[274],"each":[276,322,556],"by":[278],"daily":[282],"life":[283],"before":[284],"in":[293,328],"optimize":[296],"new":[298],"situation":[299],"family.":[302],"Parents":[303,360,484],"experienced":[304,477],"satisfactory.":[311],"However,":[312],"they":[313,429],"wanted":[314],"be":[318,569,599],"more":[319,550,570],"adapted":[320,571],"individual":[323,558,574],"help":[326],"them":[327],"everyday":[330],"life.":[331,382],"They":[332],"described":[333],"as":[337,619,621],"almost":[338],"overload":[343],"according":[344],"rigid":[347],"schedule":[348],"there":[351,470],"no":[353,472],"time":[354,377],"feeling":[356],"grief":[357],"sadness.":[359],"felt":[361],"it":[363,516,608],"difficult":[366],"task":[367],"at":[374,397,493,560],"same":[376],"continue":[378],"normal":[380],"IV":[389],"both":[392,492,526,603],"affected":[396,418],"also":[411,430,610],"especially":[416,592],"emotionally":[417],"during":[419],"first":[421,534],"had":[431],"higher":[433,449],"degree":[434,450],"worry":[436,452],"than":[437,456],"fathers.":[438,606],"Both":[439],"between":[441,459,474],"5-7":[442],"estimated":[447],"year":[455],"8-18":[460],"respective":[464],"did.":[466],"After":[467],"relationship":[473],"HbA1c":[482],"value.":[483],"satisfied":[487],"healthcare":[491],"findings":[506],"can":[510],"elucidate":[511,585],"live":[519],"parent\u2019s":[531],"perspective":[532],"By":[541],"reflecting":[542],"findings,":[545],"may":[549],"clearly":[551],"increase":[552],"family\u2019s":[557],"needs":[559],"further":[563,584],"develop":[564],"thereby":[577],"promote":[578],"transition":[580],"home.":[582],"To":[583],"effects":[588],"parents,":[590],"mothers,":[593],"longitudinal":[594],"interview":[595],"studies":[596],"need":[597],"carried":[600],"out":[601],"important":[611],"highlight":[613],"children's":[614],"perspectives":[618],"well":[620],"siblings.":[623]},"counts_by_year":[{"year":2019,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}