{"id":"https://openalex.org/W2114651296","doi":"https://doi.org/10.1161/circgenetics.111.960898","title":"General and Disease-Specific Psychosocial Adjustment in Patients With Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy With Implantable Cardioverter Defibrillators: A Large Cohort Study","display_name":"General and Disease-Specific Psychosocial Adjustment in Patients With Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy With Implantable Cardioverter Defibrillators: A Large Cohort Study","publication_year":2012,"publication_date":"2012-01-12","ids":{"openalex":"https://openalex.org/W2114651296","doi":"https://doi.org/10.1161/circgenetics.111.960898","mag":"2114651296","pmid":"https://pubmed.ncbi.nlm.nih.gov/22238189"},"language":"en","primary_location":{"id":"doi:10.1161/circgenetics.111.960898","doi":"https://doi.org/10.1161/circgenetics.111.960898","is_oa":false,"landing_page_url":"https://doi.org/10.1161/circgenetics.111.960898","pdf_url":null,"source":{"id":"https://openalex.org/S103446830","display_name":"Circulation Cardiovascular Genetics","issn_l":"1942-325X","issn":["1942-325X","1942-3268"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","poland-100","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation: Cardiovascular Genetics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5087814371","display_name":"Cynthia A. James","orcid":"https://orcid.org/0000-0001-8040-4600","observed_orcids":["https://orcid.org/0000-0001-8040-4600","https://orcid.org/0000-0003-0854-0418"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Cynthia A. James","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030808390","display_name":"Crystal Tichnell","orcid":"https://orcid.org/0000-0003-3465-294X","observed_orcids":["https://orcid.org/0000-0003-3465-294X"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Crystal Tichnell","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044491062","display_name":"Brittney A. Murray","orcid":"https://orcid.org/0000-0001-7870-8584","observed_orcids":["https://orcid.org/0000-0001-7870-8584"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Brittney Murray","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5061275653","display_name":"Amy Daly","orcid":"https://orcid.org/0000-0002-5150-0385","observed_orcids":["https://orcid.org/0000-0002-5150-0385"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Amy Daly","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065468335","display_name":"Samuel F. Sears","orcid":"https://orcid.org/0000-0002-7863-3591","observed_orcids":["https://orcid.org/0000-0002-7863-3591"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Samuel F. Sears","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5025889874","display_name":"Hugh G Calkins","orcid":"https://orcid.org/0000-0002-9262-9433","observed_orcids":["https://orcid.org/0000-0002-9262-9433"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I186335123","display_name":"East Carolina University","ror":"https://ror.org/01vx35703","country_code":"US","type":"education","lineage":["https://openalex.org/I186335123"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hugh Calkins","raw_affiliation_strings":["From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"From the Division of Cardiology (C.A.J., C.T., B.M., A.D., H.C.), Department of Medicine, Johns Hopkins University, Baltimore, Maryland; Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I186335123","https://openalex.org/I2799853436"]},{"raw_affiliation_string":"Departments of Psychology and Cardiovascular Sciences (S.F.S.), East Carolina University, Greenville, North Carolina","institution_ids":["https://openalex.org/I186335123"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":4.5207,"has_fulltext":true,"cited_by_count":72,"citation_normalized_percentile":{"value":0.95558187,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":95,"max":99},"biblio":{"volume":"5","issue":"1","first_page":"18","last_page":"24"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11922","display_name":"Cardiovascular Effects of Exercise","score":0.5303000211715698,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11922","display_name":"Cardiovascular Effects of Exercise","score":0.5303000211715698,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11083","display_name":"Cardiac Health and Mental Health","score":0.3068999946117401,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10598","display_name":"Cardiac pacing and defibrillation studies","score":0.1225999966263771,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/arrhythmogenic-right-ventricular-cardiomyopathy","display_name":"arrhythmogenic right ventricular cardiomyopathy","score":0.9229999780654907},{"id":"https://openalex.org/keywords/implantable-cardioverter-defibrillator","display_name":"implantable cardioverter-defibrillator","score":0.9739999771118164},{"id":"https://openalex.org/keywords/psychosocial-adjustment","display_name":"psychosocial adjustment","score":0.9890000224113464},{"id":"https://openalex.org/keywords/device-acceptance","display_name":"device acceptance","score":0.7889999747276306},{"id":"https://openalex.org/keywords/anxiety","display_name":"anxiety","score":0.5699999928474426},{"id":"https://openalex.org/keywords/depression","display_name":"depression","score":0.9990000128746033},{"id":"https://openalex.org/keywords/body-image-concern","display_name":"body image concern","score":0.8970000147819519},{"id":"https://openalex.org/keywords/functional-capacity","display_name":"functional capacity","score":0.7699999809265137},{"id":"https://openalex.org/keywords/risk-factors","display_name":"risk factors","score":0.5350000262260437},{"id":"https://openalex.org/keywords/young-patients","display_name":"young patients","score":0.7860000133514404},{"id":"https://openalex.org/keywords/ventricular-arrhythmias","display_name":"ventricular arrhythmias","score":0.8930000066757202},{"id":"https://openalex.org/keywords/psychological-distress","display_name":"psychological distress","score":0.6489999890327454},{"id":"https://openalex.org/keywords/icd-discharges","display_name":"ICD discharges","score":0.5320000052452087}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8049567937850952},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.7408144474029541},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.6942232847213745},{"id":"https://openalex.org/C2778739829","wikidata":"https://www.wikidata.org/wiki/Q17027611","display_name":"Hospital Anxiety and Depression Scale","level":3,"score":0.6305927038192749},{"id":"https://openalex.org/C2777093960","wikidata":"https://www.wikidata.org/wiki/Q594446","display_name":"Implantable cardioverter-defibrillator","level":2,"score":0.6088899970054626},{"id":"https://openalex.org/C2778797674","wikidata":"https://www.wikidata.org/wiki/Q847583","display_name":"Cardiomyopathy","level":3,"score":0.5569093823432922},{"id":"https://openalex.org/C2777892804","wikidata":"https://www.wikidata.org/wiki/Q2555727","display_name":"Arrhythmogenic right ventricular dysplasia","level":4,"score":0.519973635673523},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.48886817693710327},{"id":"https://openalex.org/C2776867660","wikidata":"https://www.wikidata.org/wiki/Q1814941","display_name":"Depression (economics)","level":2,"score":0.4873571991920471},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.41820329427719116},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.33291441202163696},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.22222954034805298},{"id":"https://openalex.org/C2778198053","wikidata":"https://www.wikidata.org/wiki/Q181754","display_name":"Heart failure","level":2,"score":0.2170516550540924},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C139719470","wikidata":"https://www.wikidata.org/wiki/Q39680","display_name":"Macroeconomics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001007","descriptor_name":"Anxiety","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003710","descriptor_name":"Demography","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003863","descriptor_name":"Depression","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012307","descriptor_name":"Risk Factors","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015331","descriptor_name":"Cohort Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016014","descriptor_name":"Linear Models","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017147","descriptor_name":"Defibrillators, Implantable","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019571","descriptor_name":"Arrhythmogenic Right Ventricular Dysplasia","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":false},{"descriptor_ui":"D019571","descriptor_name":"Arrhythmogenic Right Ventricular Dysplasia","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D019571","descriptor_name":"Arrhythmogenic Right Ventricular Dysplasia","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1161/circgenetics.111.960898","doi":"https://doi.org/10.1161/circgenetics.111.960898","is_oa":false,"landing_page_url":"https://doi.org/10.1161/circgenetics.111.960898","pdf_url":null,"source":{"id":"https://openalex.org/S103446830","display_name":"Circulation Cardiovascular Genetics","issn_l":"1942-325X","issn":["1942-325X","1942-3268"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","poland-100","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation: Cardiovascular Genetics","raw_type":"journal-article"},{"id":"pmid:22238189","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22238189","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation. Cardiovascular genetics","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":37,"referenced_works":["https://openalex.org/W1517404548","https://openalex.org/W1777166542","https://openalex.org/W1795265274","https://openalex.org/W1826526930","https://openalex.org/W1852858730","https://openalex.org/W1970130999","https://openalex.org/W1972786217","https://openalex.org/W1973928296","https://openalex.org/W1987138256","https://openalex.org/W1997737201","https://openalex.org/W2006033475","https://openalex.org/W2010186048","https://openalex.org/W2013670958","https://openalex.org/W2024799108","https://openalex.org/W2029520549","https://openalex.org/W2033551834","https://openalex.org/W2052675296","https://openalex.org/W2056357707","https://openalex.org/W2056914680","https://openalex.org/W2059190915","https://openalex.org/W2060868333","https://openalex.org/W2060999424","https://openalex.org/W2066315068","https://openalex.org/W2070168716","https://openalex.org/W2070319238","https://openalex.org/W2091232106","https://openalex.org/W2105696323","https://openalex.org/W2110302196","https://openalex.org/W2112500498","https://openalex.org/W2121220509","https://openalex.org/W2121778435","https://openalex.org/W2126347959","https://openalex.org/W2127986488","https://openalex.org/W2129968803","https://openalex.org/W2131810639","https://openalex.org/W2139781265","https://openalex.org/W2334451915"],"related_works":["https://openalex.org/W2127124148","https://openalex.org/W2029520549","https://openalex.org/W7101068882","https://openalex.org/W2120564102","https://openalex.org/W2527787376","https://openalex.org/W1990260671","https://openalex.org/W2072111228","https://openalex.org/W2051446314","https://openalex.org/W2078508020","https://openalex.org/W2279159297"],"abstract_inverted_index":{"BACKGROUND:":[0],"Arrhythmogenic":[1],"right":[2],"ventricular":[3,11],"dysplasia/cardiomyopathy":[4],"(ARVD/C)":[5],"is":[6],"characterized":[7],"by":[8,24,208],"frequent":[9],"life-threatening":[10],"arrhythmias,":[12],"diagnosed":[13],"on":[14],"average":[15],"in":[16,43,66,76,91],"the":[17,77],"teens":[18],"to":[19,50,59,100,273],"mid-50s":[20],"and":[21,32,58,122,126,129,164,187,193,221,242,255],"commonly":[22],"treated":[23],"implantable":[25],"cardioverter":[26],"defibrillators":[27],"(ICDs).":[28],"As":[29],"younger":[30,172,209],"age":[31,210],"high":[33],"frequency":[34],"of":[35,106,237,278],"ICD":[36,90,218,225],"discharges":[37],"are":[38,249],"risk":[39,61,252],"factors":[40,62,264],"for":[41,63,93,253,265],"difficulties":[42],"psychosocial":[44,52],"adjustment,":[45],"we":[46],"developed":[47],"a":[48,94,104],"study":[49],"assess":[51],"adjustment":[53,65,232,268],"among":[54,171],"patients":[55,148,173,257,275],"with":[56,88,149,176,229,247,260],"ARVD/C":[57,150,177,248],"determine":[60],"poor":[64,230,266],"this":[67],"high-risk":[68,277],"population.":[69],"METHODS":[70],"AND":[71],"RESULTS:":[72],"Eighty-six":[73],"adults":[74],"enrolled":[75],"Johns":[78],"Hopkins":[79],"ARVD":[80],"Registry":[81],"(38":[82],"male;":[83],"mean":[84],"age,":[85],"45.4\u00b112.9":[86],"years),":[87,102],"an":[89,217,234],"place":[92],"median":[95],"3.2":[96],"years":[97],"(range,":[98],"0.2":[99],"20.1":[101],"completed":[103],"set":[105],"questionnaires":[107],"measuring":[108],"ICD-specific":[109,180],"anxiety":[110,121,190,196,201,240],"(Florida":[111,117,140,157,181,202],"Shock":[112,182,203],"Anxiety":[113,125,183,192,204],"Scale),":[114,128],"device":[115,138,231,261,267],"acceptance":[116,139],"Patient":[118,141,158],"Acceptance":[119,142,159],"Survey),":[120],"depression":[123,243],"(Hospital":[124,191],"Depression":[127,194],"functional":[130,213],"capacity":[131,214],"(Duke":[132],"Activity":[133],"Status":[134],"Index).":[135],"Although":[136],"overall":[137],"Survey":[143,160],"mean,":[144,162,168,185,198],"76.7\u00b115.3)":[145],"was":[146,206],"normative,":[147],"had":[151,178,233],"substantially":[152],"elevated":[153,179,251],"body":[154],"image":[155],"concerns":[156],"subscale":[161,197],"17.9\u00b123.5)":[163],"device-related":[165],"distress":[166],"(subscale":[167],"26.5\u00b119.2),":[169],"particularly":[170],"(P<0.01).":[174],"Patients":[175,246],"Scale":[184,195],"22.9\u00b17.8)":[186],"general":[188],"clinical":[189],"6.2\u00b13.9).":[199],"Device-specific":[200],"Scale)":[205],"predicted":[207],"(P<0.0001),":[211],"poorer":[212],"(P=0.016),":[215],"having":[216],"shock":[219],"(P=0.003),":[220],"shorter":[222],"time":[223],"since":[224],"implant":[226],"(P=0.007).":[227],"Participants":[228],"increased":[235],"likelihood":[236],"clinically":[238,272],"significant":[239],"(P=0.006)":[241],"(P=0.008).":[244],"CONCLUSIONS:":[245],"at":[250,276],"anxiety,":[254],"young":[256],"face":[258],"challenges":[259],"acceptance.":[262],"Risk":[263],"may":[269],"be":[270],"used":[271],"identify":[274],"psychological":[279],"distress.":[280]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":5},{"year":2019,"cited_by_count":6},{"year":2018,"cited_by_count":6},{"year":2017,"cited_by_count":7},{"year":2016,"cited_by_count":4},{"year":2015,"cited_by_count":8},{"year":2014,"cited_by_count":6},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}