{"id":"https://openalex.org/W2108488457","doi":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","title":"Alone together: A grounded theory study of experienced burden, coping, and support needs of spouses of persons with a bipolar disorder","display_name":"Alone together: A grounded theory study of experienced burden, coping, and support needs of spouses of persons with a bipolar disorder","publication_year":2009,"publication_date":"2009-11-02","ids":{"openalex":"https://openalex.org/W2108488457","doi":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","mag":"2108488457","pmid":"https://pubmed.ncbi.nlm.nih.gov/19883415"},"language":"en","primary_location":{"id":"doi:10.1111/j.1447-0349.2009.00634.x","doi":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","pdf_url":null,"source":{"id":"https://openalex.org/S175683280","display_name":"International Journal of Mental Health Nursing","issn_l":"1445-8330","issn":["1445-8330","1447-0349"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International Journal of Mental Health Nursing","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5111568894","display_name":"Trijntje Y. G. van der Voort","orcid":"https://orcid.org/0000-0001-5992-5516","observed_orcids":["https://orcid.org/0000-0001-5992-5516"]},"institutions":[{"id":"https://openalex.org/I4210097975","display_name":"Dimence","ror":"https://ror.org/010jxjq13","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210097975"]}],"countries":["NL"],"is_corresponding":true,"raw_author_name":"Trijntje Y. G. Van Der Voort","raw_affiliation_strings":["Dimence, Center for Mental Health Care, Rijssensestraat 127, 7441 AB Nijverdal, the Netherlands. nvdvoort@home.nl","Dimence, Center for Mental Health Care,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Dimence, Center for Mental Health Care, Rijssensestraat 127, 7441 AB Nijverdal, the Netherlands. nvdvoort@home.nl","institution_ids":["https://openalex.org/I4210097975"]},{"raw_affiliation_string":"Dimence, Center for Mental Health Care,","institution_ids":["https://openalex.org/I4210097975"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009314004","display_name":"Peter J. J. Goossens","orcid":"https://orcid.org/0000-0003-3647-5510","observed_orcids":["https://orcid.org/0000-0003-3647-5510"]},"institutions":[{"id":"https://openalex.org/I2801398864","display_name":"Saxion","ror":"https://ror.org/005t9n460","country_code":"NL","type":"education","lineage":["https://openalex.org/I2801398864"]},{"id":"https://openalex.org/I2802934949","display_name":"Radboud University Medical Center","ror":"https://ror.org/05wg1m734","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2802934949"]},{"id":"https://openalex.org/I4210097975","display_name":"Dimence","ror":"https://ror.org/010jxjq13","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210097975"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Peter J. J. Goossens","raw_affiliation_strings":["Dimence, Center for Mental Health Care,","Expertise Center Health, Social Care and Technology, Saxion University of Applied Sciences, Deventer,","Radboud University Nijmegen Medical Centre, Nijmegen, and"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Dimence, Center for Mental Health Care,","institution_ids":["https://openalex.org/I4210097975"]},{"raw_affiliation_string":"Expertise Center Health, Social Care and Technology, Saxion University of Applied Sciences, Deventer,","institution_ids":["https://openalex.org/I2801398864"]},{"raw_affiliation_string":"Radboud University Nijmegen Medical Centre, Nijmegen, and","institution_ids":["https://openalex.org/I2802934949"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5052223249","display_name":"Jaap J. van der Bijl","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Jaap J. Van Der Bijl","raw_affiliation_strings":["University Medical Center, Utrecht, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Medical Center, Utrecht, the Netherlands","institution_ids":["https://openalex.org/I3018483916"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5111568894"],"corresponding_institution_ids":["https://openalex.org/I4210097975"],"apc_list":{"value":5050,"currency":"USD","value_usd":5050},"apc_paid":null,"fwci":4.586,"has_fulltext":false,"cited_by_count":65,"citation_normalized_percentile":{"value":0.9380499,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"18","issue":"6","first_page":"434","last_page":"443"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.9922000169754028,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.9922000169754028,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10854","display_name":"Bipolar Disorder and Treatment","score":0.003599999938160181,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.0010999999940395355,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/bipolar-disorder","display_name":"bipolar disorder","score":0.996999979019165},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.9160000085830688},{"id":"https://openalex.org/keywords/coping","display_name":"coping","score":0.8140000104904175},{"id":"https://openalex.org/keywords/support-needs","display_name":"support needs","score":0.8169999718666077},{"id":"https://openalex.org/keywords/professional-support-for-families","display_name":"professional support for families","score":0.5830000042915344},{"id":"https://openalex.org/keywords/self-effacement","display_name":"self-effacement","score":0.652999997138977},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.4410000145435333},{"id":"https://openalex.org/keywords/former-spouses","display_name":"former spouses","score":0.6259999871253967}],"concepts":[{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.8161868453025818},{"id":"https://openalex.org/C2776174506","wikidata":"https://www.wikidata.org/wiki/Q131755","display_name":"Bipolar disorder","level":3,"score":0.6649275422096252},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.602108895778656},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6015108227729797},{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.5458657145500183},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.46617817878723145},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.45044201612472534},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.4340011477470398},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.3116244673728943},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.29280856251716614},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.09932476282119751},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001714","descriptor_name":"Bipolar Disorder","qualifier_ui":"Q000451","qualifier_name":"nursing","is_major_topic":true},{"descriptor_ui":"D001714","descriptor_name":"Bipolar Disorder","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D003674","descriptor_name":"Defense Mechanisms","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008132","descriptor_name":"Loneliness","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009426","descriptor_name":"Netherlands","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012941","descriptor_name":"Social Responsibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016487","descriptor_name":"Parenting","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018454","descriptor_name":"Spouses","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D020377","descriptor_name":"Self Efficacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D020380","descriptor_name":"Needs Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D054541","descriptor_name":"Family Conflict","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false}],"locations_count":6,"locations":[{"id":"doi:10.1111/j.1447-0349.2009.00634.x","doi":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1447-0349.2009.00634.x","pdf_url":null,"source":{"id":"https://openalex.org/S175683280","display_name":"International Journal of Mental Health Nursing","issn_l":"1445-8330","issn":["1445-8330","1447-0349"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International Journal of Mental Health Nursing","raw_type":"journal-article"},{"id":"pmid:19883415","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/19883415","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International journal of mental health nursing","raw_type":"Journal Article"},{"id":"pmh:oai:repository.ubn.ru.nl:2066/79945","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2066/79945","pdf_url":null,"source":{"id":"https://openalex.org/S4306401067","display_name":"Radboud Repository (Radboud University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145872427","host_organization_name":"Radboud University Nijmegen","host_organization_lineage":["https://openalex.org/I145872427"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of Psychiatric and Mental Health Nursing, 18, 6, pp. 434-43","raw_type":"Article / Letter to editor"},{"id":"pmh:ru:oai:repository.ubn.ru.nl:2066/79945","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2066/79945","pdf_url":null,"source":{"id":"https://openalex.org/S4306401067","display_name":"Radboud Repository (Radboud University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145872427","host_organization_name":"Radboud University Nijmegen","host_organization_lineage":["https://openalex.org/I145872427"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of Psychiatric and Mental Health Nursing, 18, 434 - 43","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:rug:oai:pure.rug.nl:publications/e9828cc4-116a-40ea-bdf7-ff97d2690e1d","doi":null,"is_oa":false,"landing_page_url":"https://www.rug.nl/research/portal/en/publications/alone-together(e9828cc4-116a-40ea-bdf7-ff97d2690e1d).html","pdf_url":null,"source":{"id":"https://openalex.org/S4306400420","display_name":"University of Groningen research database (University of Groningen / Centre for Information Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I169381384","host_organization_name":"University of Groningen","host_organization_lineage":["https://openalex.org/I169381384"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"International Journal of Mental Health Nursing, 18(6), 434 - 443. Wiley","raw_type":"info:eu-repo/semantics/article"},{"id":"mag:2137149139","doi":null,"is_oa":false,"landing_page_url":"https://www.narcis.nl/publication/RecordID/oai%3Arepository.ubn.ru.nl%3A2066%2F79945","pdf_url":null,"source":{"id":"https://openalex.org/S92129386","display_name":"Journal of Psychiatric and Mental Health Nursing","issn_l":"1351-0126","issn":["1351-0126","1365-2850"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"Journal of Psychiatric and Mental Health Nursing","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9476000070571899}],"sustainable_development_goals_aurora":[{"display_name":"Gender equality","id":"https://metadata.un.org/sdg/5","score":0.46000000834465027}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":38,"referenced_works":["https://openalex.org/W79229537","https://openalex.org/W100714596","https://openalex.org/W1521911962","https://openalex.org/W1580378798","https://openalex.org/W1826860130","https://openalex.org/W1844790369","https://openalex.org/W1961990310","https://openalex.org/W1984434413","https://openalex.org/W2000236270","https://openalex.org/W2007480461","https://openalex.org/W2013419753","https://openalex.org/W2027243048","https://openalex.org/W2028280862","https://openalex.org/W2049023158","https://openalex.org/W2056116429","https://openalex.org/W2061634182","https://openalex.org/W2070504353","https://openalex.org/W2087712505","https://openalex.org/W2098171787","https://openalex.org/W2099793118","https://openalex.org/W2116669013","https://openalex.org/W2120608834","https://openalex.org/W2124969157","https://openalex.org/W2127384352","https://openalex.org/W2135565963","https://openalex.org/W2139049808","https://openalex.org/W2140822037","https://openalex.org/W2145471837","https://openalex.org/W2150049965","https://openalex.org/W2152445877","https://openalex.org/W2156005804","https://openalex.org/W2158260773","https://openalex.org/W2162481498","https://openalex.org/W2327721579","https://openalex.org/W2333291448","https://openalex.org/W2519254281","https://openalex.org/W3022607203","https://openalex.org/W3196369884"],"related_works":["https://openalex.org/W2809935913","https://openalex.org/W1826860130","https://openalex.org/W2070453385","https://openalex.org/W2776619269","https://openalex.org/W2286733847","https://openalex.org/W4317437914","https://openalex.org/W2969879265","https://openalex.org/W2567310672","https://openalex.org/W4410212854","https://openalex.org/W4415584633"],"abstract_inverted_index":{"Bipolar":[0],"disorder":[1,40],"is":[2,10,72,107],"a":[3,35,38,84,111],"chronic":[4],"and":[5,41,47,54,62,80,88],"severe":[6],"mental":[7],"disorder.":[8],"Little":[9],"known":[11],"about":[12],"the":[13,16,29,78,97,115],"experiences":[14],"of":[15,18,77,117],"spouses":[17,32,53,98],"such":[19],"patients.":[20],"A":[21,105],"grounded":[22],"theory":[23,106],"study":[24],"was":[25],"undertaken":[26],"to":[27,42,65,74,82],"examine":[28],"burden":[30,61],"for":[31,114,120],"living":[33],"with":[34,37],"partner":[36],"bipolar":[39],"explore":[43],"how":[44],"they":[45,50,58],"cope":[46],"what":[48],"support":[49,91,119],"need.":[51],"Fifteen":[52],"ex-spouses":[55],"were":[56],"interviewed;":[57],"experienced":[59,95],"heavy":[60],"found":[63,73],"themselves":[64],"be":[66],"'alone":[67],"together.'":[68],"Their":[69],"coping":[70],"process":[71],"involve":[75],"appraisal":[76],"situation":[79],"attempts":[81],"achieve":[83],"balance":[85],"between":[86],"self-effacement":[87],"self-fulfilment.":[89],"While":[90],"can":[92],"clearly":[93],"reduce":[94],"burden,":[96],"surprisingly":[99],"receive":[100],"virtually":[101],"no":[102],"professional":[103],"support.":[104],"developed":[108],"that":[109],"constitutes":[110],"starting":[112],"point":[113],"development":[116],"adequate":[118],"spouses.":[121]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":3},{"year":2018,"cited_by_count":7},{"year":2017,"cited_by_count":6},{"year":2016,"cited_by_count":6},{"year":2015,"cited_by_count":5},{"year":2014,"cited_by_count":4},{"year":2013,"cited_by_count":4},{"year":2012,"cited_by_count":5}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}