{"id":"https://openalex.org/W2104771986","doi":"https://doi.org/10.1186/1477-7525-3-70","title":"The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents","display_name":"The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents","publication_year":2005,"publication_date":"2005-11-13","ids":{"openalex":"https://openalex.org/W2104771986","doi":"https://doi.org/10.1186/1477-7525-3-70","mag":"2104771986","pmid":"https://pubmed.ncbi.nlm.nih.gov/16283947","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/1326227"},"language":"en","primary_location":{"id":"doi:10.1186/1477-7525-3-70","doi":"https://doi.org/10.1186/1477-7525-3-70","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1477-7525-3-70","pdf_url":null,"source":{"id":"https://openalex.org/S77368557","display_name":"Health and Quality of Life Outcomes","issn_l":"1477-7525","issn":["1477-7525"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health and Quality of Life Outcomes","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1186/1477-7525-3-70","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5074635148","display_name":"Rolanda M. Baars","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2800006345","display_name":"Leiden University Medical Center","ror":"https://ror.org/05xvt9f17","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2800006345"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Rolanda M Baars","raw_affiliation_strings":["Department of Paediatrics, Leiden University Medical Center, The Netherlands. R.M.Baars@lumc.nl","Department of Paediatrics, Leiden University Medical Center, Leiden, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatrics, Leiden University Medical Center, The Netherlands. R.M.Baars@lumc.nl","institution_ids":["https://openalex.org/I2800006345"]},{"raw_affiliation_string":"Department of Paediatrics, Leiden University Medical Center, Leiden, The Netherlands","institution_ids":["https://openalex.org/I2800006345"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071276387","display_name":"Clare I. Atherton","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I98677209","display_name":"University of Edinburgh","ror":"https://ror.org/01nrxwf90","country_code":"GB","type":"education","lineage":["https://openalex.org/I98677209"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Clare I Atherton","raw_affiliation_strings":["Department of Psychiatry, University of Edinburgh, Edinburgh, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychiatry, University of Edinburgh, Edinburgh, UK","institution_ids":["https://openalex.org/I98677209"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111977475","display_name":"Hendrik Maria Koopman","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2800006345","display_name":"Leiden University Medical Center","ror":"https://ror.org/05xvt9f17","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2800006345"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Hendrik M Koopman","raw_affiliation_strings":["Department of Paediatrics, Leiden University Medical Center, Leiden, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatrics, Leiden University Medical Center, Leiden, The Netherlands","institution_ids":["https://openalex.org/I2800006345"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031669206","display_name":"Monika Bullinger","orcid":"https://orcid.org/0000-0001-8876-0159","observed_orcids":["https://orcid.org/0000-0001-8876-0159"]},"institutions":[{"id":"https://openalex.org/I159176309","display_name":"Universit\u00e4t Hamburg","ror":"https://ror.org/00g30e956","country_code":"DE","type":"education","lineage":["https://openalex.org/I159176309"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Monika Bullinger","raw_affiliation_strings":["Department of Medical Psychology, University of Hamburg, Hamburg, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Psychology, University of Hamburg, Hamburg, Germany","institution_ids":["https://openalex.org/I159176309"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036643309","display_name":"Mick Power","orcid":"https://orcid.org/0000-0001-9481-9225","observed_orcids":["https://orcid.org/0000-0001-9481-9225"]},"institutions":[{"id":"https://openalex.org/I2801618995","display_name":"Royal Edinburgh Hospital","ror":"https://ror.org/04jxcef68","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1324252669","https://openalex.org/I2801618995"]},{"id":"https://openalex.org/I98677209","display_name":"University of Edinburgh","ror":"https://ror.org/01nrxwf90","country_code":"GB","type":"education","lineage":["https://openalex.org/I98677209"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Mick Power","raw_affiliation_strings":["Department of Psychiatry, University of Edinburgh, Edinburgh, UK","Section of Clinical and Health Psychology, Royal Edinburgh Hospital, University of Edinburgh, Morningside Park, Edinburgh, EH 10 5HF, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychiatry, University of Edinburgh, Edinburgh, UK","institution_ids":["https://openalex.org/I98677209"]},{"raw_affiliation_string":"Section of Clinical and Health Psychology, Royal Edinburgh Hospital, University of Edinburgh, Morningside Park, Edinburgh, EH 10 5HF, United Kingdom","institution_ids":["https://openalex.org/I2801618995","https://openalex.org/I98677209"]}]},{"author_position":"last","author":{"id":null,"display_name":"the DISABKIDS group*","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"the DISABKIDS group*","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5036643309"],"corresponding_institution_ids":["https://openalex.org/I2801618995","https://openalex.org/I98677209"],"apc_list":{"value":3190,"currency":"USD","value_usd":3190},"apc_paid":{"value":3190,"currency":"USD","value_usd":3190},"fwci":18.7426,"has_fulltext":true,"cited_by_count":253,"citation_normalized_percentile":{"value":0.98984695,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":"3","issue":"1","first_page":"70","last_page":"70"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.7476000189781189,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.7476000189781189,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.13989999890327454,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11292","display_name":"Pediatric Pain Management Techniques","score":0.02930000051856041,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/disabkids","display_name":"DISABKIDS","score":0.9509999752044678},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9819999933242798},{"id":"https://openalex.org/keywords/children-and-adolescents","display_name":"children and adolescents","score":0.8489999771118164},{"id":"https://openalex.org/keywords/chronic-disease","display_name":"chronic disease","score":0.8560000061988831},{"id":"https://openalex.org/keywords/instrument-development","display_name":"instrument development","score":0.7289999723434448},{"id":"https://openalex.org/keywords/asthma","display_name":"asthma","score":0.9039999842643738},{"id":"https://openalex.org/keywords/juvenile-idiopathic-arthritis","display_name":"juvenile idiopathic arthritis","score":1.0},{"id":"https://openalex.org/keywords/atopic-dermatitis","display_name":"atopic dermatitis","score":0.9810000061988831},{"id":"https://openalex.org/keywords/cerebral-palsy","display_name":"cerebral palsy","score":1.0},{"id":"https://openalex.org/keywords/cystic-fibrosis","display_name":"cystic fibrosis","score":1.0},{"id":"https://openalex.org/keywords/diabetes-mellitus","display_name":"diabetes mellitus","score":0.9710000157356262},{"id":"https://openalex.org/keywords/epilepsy","display_name":"epilepsy","score":1.0},{"id":"https://openalex.org/keywords/cross-national-validation","display_name":"cross-national validation","score":0.5320000052452087},{"id":"https://openalex.org/keywords/factor-structure","display_name":"factor structure","score":0.4059999883174896},{"id":"https://openalex.org/keywords/cognitive-interviewing","display_name":"cognitive interviewing","score":0.42899999022483826}],"concepts":[{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.602471649646759},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5365476608276367},{"id":"https://openalex.org/C2779978724","wikidata":"https://www.wikidata.org/wiki/Q1436482","display_name":"Worry","level":3,"score":0.5161041021347046},{"id":"https://openalex.org/C106906290","wikidata":"https://www.wikidata.org/wiki/Q1140909","display_name":"Cronbach's alpha","level":3,"score":0.5055215358734131},{"id":"https://openalex.org/C2777267654","wikidata":"https://www.wikidata.org/wiki/Q3519023","display_name":"Test (biology)","level":2,"score":0.5015027523040771},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5011696815490723},{"id":"https://openalex.org/C2776042228","wikidata":"https://www.wikidata.org/wiki/Q35869","display_name":"Asthma","level":2,"score":0.46446365118026733},{"id":"https://openalex.org/C49453240","wikidata":"https://www.wikidata.org/wiki/Q1592163","display_name":"Construct validity","level":3,"score":0.4356553256511688},{"id":"https://openalex.org/C171606756","wikidata":"https://www.wikidata.org/wiki/Q506132","display_name":"Psychometrics","level":2,"score":0.3766609728336334},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.35903048515319824},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.35559502243995667},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.15982669591903687},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.13871553540229797},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.11698389053344727},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.08590909838676453},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001007","descriptor_name":"Anxiety","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D005163","descriptor_name":"Factor Analysis, Statistical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":"Q000145","qualifier_name":"classification","is_major_topic":true},{"descriptor_ui":"D013240","descriptor_name":"Stereotyping","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015233","descriptor_name":"Models, Statistical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018434","descriptor_name":"Sickness Impact Profile","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019988","descriptor_name":"Children with Disabilities","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D038622","descriptor_name":"Internationality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1186/1477-7525-3-70","doi":"https://doi.org/10.1186/1477-7525-3-70","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1477-7525-3-70","pdf_url":null,"source":{"id":"https://openalex.org/S77368557","display_name":"Health and Quality of Life Outcomes","issn_l":"1477-7525","issn":["1477-7525"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health and Quality of Life Outcomes","raw_type":"journal-article"},{"id":"pmid:16283947","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/16283947","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health and quality of life outcomes","raw_type":"Journal Article"},{"id":"pmh:oai:scholarbank.nus.edu.sg:10635/178023","doi":null,"is_oa":true,"landing_page_url":"https://scholarbank.nus.edu.sg/handle/10635/178023","pdf_url":null,"source":{"id":"https://openalex.org/S7407052290","display_name":"National University of Singapore","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Unpaywall 20201031","raw_type":"Article"},{"id":"pmh:oai:doaj.org/article:f3df7fd33daa4cc796d7102d90bb642c","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/f3df7fd33daa4cc796d7102d90bb642c","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Health and Quality of Life Outcomes, Vol 3, Iss 1, p 70 (2005)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1186/1477-7525-3-70","doi":"https://doi.org/10.1186/1477-7525-3-70","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1477-7525-3-70","pdf_url":null,"source":{"id":"https://openalex.org/S77368557","display_name":"Health and Quality of Life Outcomes","issn_l":"1477-7525","issn":["1477-7525"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health and Quality of Life Outcomes","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.98580002784729}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/17","display_name":"Partnerships for the goals","score":0.46000000834465027}],"study_designs":[],"awards":[{"id":"https://openalex.org/G2793419135","display_name":null,"funder_award_id":"QLG5-CT-2000-00716","funder_id":"https://openalex.org/F4320320300","funder_display_name":"European Commission"}],"funders":[{"id":"https://openalex.org/F4320320300","display_name":"European Commission","ror":"https://ror.org/00k4n6c32"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":30,"referenced_works":["https://openalex.org/W133618362","https://openalex.org/W270141933","https://openalex.org/W1484188711","https://openalex.org/W1511906507","https://openalex.org/W1515049976","https://openalex.org/W1606460755","https://openalex.org/W1966162005","https://openalex.org/W1977399159","https://openalex.org/W1985689166","https://openalex.org/W1992595298","https://openalex.org/W1999127863","https://openalex.org/W2009539009","https://openalex.org/W2026212420","https://openalex.org/W2031065729","https://openalex.org/W2054244311","https://openalex.org/W2060751644","https://openalex.org/W2068877207","https://openalex.org/W2089469640","https://openalex.org/W2141554502","https://openalex.org/W2150377764","https://openalex.org/W2150519667","https://openalex.org/W2162514987","https://openalex.org/W2255756224","https://openalex.org/W2273710274","https://openalex.org/W2314780373","https://openalex.org/W2323149989","https://openalex.org/W2891657467","https://openalex.org/W3141544461","https://openalex.org/W4244455514","https://openalex.org/W4252020109"],"related_works":["https://openalex.org/W2060751644","https://openalex.org/W7097992582","https://openalex.org/W2105654483","https://openalex.org/W2806924842","https://openalex.org/W6977208656","https://openalex.org/W2081963530","https://openalex.org/W6902329088","https://openalex.org/W2083853906","https://openalex.org/W1227135269","https://openalex.org/W3008261076"],"abstract_inverted_index":{"BACKGROUND:":[0],"The":[1,50,165,191,216,232,304],"European":[2,39,189],"DISABKIDS":[3,40,61,77,161,166,237,283,314],"project":[4],"aims":[5],"to":[6,70,104,120,130,141,153,211,225,229,264,278,293],"enhance":[7],"the":[8,28,31,38,60,72,76,110,138,145,155,159,220,236,270,274,282,313],"Health":[9],"Related":[10],"Quality":[11],"of":[12,15,30,37,46,75,109,114,135,175,184,196,219,235,273],"Life":[13],"(HRQoL)":[14],"children":[16,47,297],"and":[17,23,48,93,178,200,253,259,298],"adolescents":[18,299],"with":[19,59,208,291,300,312],"chronic":[20,62,302,315],"medical":[21],"conditions":[22],"their":[24],"families.":[25],"We":[26],"describe":[27],"development":[29],"seven":[32],"cross-nationally":[33],"tested":[34,170],"condition-specific":[35,51,78,126,162,167,193,233,305],"modules":[36,52,80,168,194,234,306],"HRQoL":[41,79,295],"instrument":[42,238,284],"in":[43,57,102,144,171,180,187,214,296,310],"a":[44,132,172,181,242,288,301],"population":[45],"adolescents.":[49],"are":[53],"intended":[54],"for":[55,81,124,158],"use":[56],"conjunction":[58,311],"generic":[63,316],"module.":[64,317],"METHODS:":[65],"Focus":[66],"groups":[67],"were":[68,96,117,151,169,239,262],"used":[69,309],"construct":[71,105],"pilot":[73,99,139,173,258],"version":[74],"asthma,":[82],"juvenile":[83],"idiopathic":[84],"arthritis,":[85],"atopic":[86],"dermatitis,":[87],"cerebral":[88],"palsy,":[89],"cystic":[90],"fibrosis,":[91],"diabetes":[92],"epilepsy.":[94],"Analyses":[95],"conducted":[97,152],"on":[98],"test":[100,107,140,149,183,261],"data":[101],"order":[103],"field":[106,146,182,260],"versions":[108],"modules.":[111,163],"A":[112,256],"series":[113],"factor":[115,250],"analyses":[116,150],"run,":[118],"first,":[119],"determine":[121],"potential":[122],"structures":[123],"each":[125],"module,":[127],"and,":[128],"secondly,":[129],"select":[131],"reduced":[133],"number":[134],"items":[136,213],"from":[137,227],"be":[142,308],"included":[143],"test.":[147],"Post-field":[148],"retest":[154],"domain":[156,199,203],"structure":[157],"final":[160,192,221],"RESULTS:":[164],"study":[174],"360":[176],"respondents,":[177],"subsequently":[179],"1152":[185],"respondents":[186],"7":[188],"countries.":[190],"consist":[195],"an":[197,201],"'Impact'":[198],"additional":[202],"(e.g.":[204],"worry,":[205],"stigma,":[206],"treatment)":[207],"between":[209],"10":[210],"12":[212],"total.":[215],"Cronbach's":[217],"alpha":[218],"domains":[222,275],"was":[223,276],"found":[224],"vary":[226],"0.71":[228],"0.90.":[230],"CONCLUSION:":[231],"developed":[240],"through":[241],"step-by-step":[243],"process":[244],"including":[245],"cognitive":[246],"interview,":[247],"clinical":[248],"expertise,":[249],"analysis,":[251],"correlations":[252],"internal":[254,271],"consistency.":[255],"cross-national":[257],"necessary":[263],"collect":[265],"these":[266],"data.":[267],"In":[268,280],"general,":[269],"consistency":[272],"satisfactory":[277],"high.":[279],"future,":[281],"may":[285],"serve":[286],"as":[287],"useful":[289],"tool":[290],"which":[292],"assess":[294],"condition.":[303],"can":[307]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":8},{"year":2024,"cited_by_count":14},{"year":2023,"cited_by_count":17},{"year":2022,"cited_by_count":15},{"year":2021,"cited_by_count":9},{"year":2020,"cited_by_count":19},{"year":2019,"cited_by_count":16},{"year":2018,"cited_by_count":9},{"year":2017,"cited_by_count":10},{"year":2016,"cited_by_count":15},{"year":2015,"cited_by_count":12},{"year":2014,"cited_by_count":16},{"year":2013,"cited_by_count":19},{"year":2012,"cited_by_count":9}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}
