{"id":"https://openalex.org/W2103458302","doi":"https://doi.org/10.1177/1049732311420169","title":"Assessing Content Validity of the Patient Generated Index Using Cognitive Interviews","display_name":"Assessing Content Validity of the Patient Generated Index Using Cognitive Interviews","publication_year":2011,"publication_date":"2011-08-22","ids":{"openalex":"https://openalex.org/W2103458302","doi":"https://doi.org/10.1177/1049732311420169","mag":"2103458302","pmid":"https://pubmed.ncbi.nlm.nih.gov/21859908"},"language":"en","primary_location":{"id":"doi:10.1177/1049732311420169","doi":"https://doi.org/10.1177/1049732311420169","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1049732311420169","pdf_url":null,"source":{"id":"https://openalex.org/S32648145","display_name":"Qualitative Health Research","issn_l":"1049-7323","issn":["1049-7323","1552-7557"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Qualitative Health Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5079650122","display_name":"Susan S. Tavernier","orcid":"https://orcid.org/0000-0002-9103-7022","observed_orcids":["https://orcid.org/0000-0002-9103-7022"]},"institutions":[{"id":"https://openalex.org/I223532165","display_name":"University of Utah","ror":"https://ror.org/03r0ha626","country_code":"US","type":"education","lineage":["https://openalex.org/I223532165"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Susan S. Tavernier","raw_affiliation_strings":["University of Utah, Salt Lake City, Utah, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Utah, Salt Lake City, Utah, USA","institution_ids":["https://openalex.org/I223532165"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047500200","display_name":"Annette M Totten","orcid":"https://orcid.org/0000-0002-9100-8678","observed_orcids":["https://orcid.org/0000-0002-9100-8678"]},"institutions":[{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Annette M. Totten","raw_affiliation_strings":["Oregon Health & Science University, Portland, Oregon, USA","2Oregon Health and Science University, Portland, Oregon, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Oregon Health & Science University, Portland, Oregon, USA","institution_ids":["https://openalex.org/I165690674"]},{"raw_affiliation_string":"2Oregon Health and Science University, Portland, Oregon, USA","institution_ids":["https://openalex.org/I165690674"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5061749358","display_name":"Susan Larsen Beck","orcid":"https://orcid.org/0000-0002-1820-0129","observed_orcids":["https://orcid.org/0000-0002-1820-0129"]},"institutions":[{"id":"https://openalex.org/I223532165","display_name":"University of Utah","ror":"https://ror.org/03r0ha626","country_code":"US","type":"education","lineage":["https://openalex.org/I223532165"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Susan L. Beck","raw_affiliation_strings":["University of Utah, Salt Lake City, Utah, USA","#N#1University of Utah, Salt Lake City, Utah, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Utah, Salt Lake City, Utah, USA","institution_ids":["https://openalex.org/I223532165"]},{"raw_affiliation_string":"#N#1University of Utah, Salt Lake City, Utah, USA","institution_ids":["https://openalex.org/I223532165"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":4400,"currency":"USD","value_usd":4400},"apc_paid":null,"fwci":0.4134,"has_fulltext":false,"cited_by_count":16,"citation_normalized_percentile":{"value":0.66651173,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"21","issue":"12","first_page":"1729","last_page":"1738"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.5893999934196472,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.5893999934196472,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13117","display_name":"Health Education and Validation","score":0.24500000476837158,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.04879999905824661,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-generated-index","display_name":"Patient Generated Index","score":0.996999979019165},{"id":"https://openalex.org/keywords/content-validity","display_name":"content validity","score":0.8769999742507935},{"id":"https://openalex.org/keywords/cognitive-interviewing","display_name":"cognitive interviewing","score":0.7870000004768372},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9909999966621399},{"id":"https://openalex.org/keywords/cancer","display_name":"cancer","score":0.6169999837875366},{"id":"https://openalex.org/keywords/patient-reported-outcomes","display_name":"patient-reported outcomes","score":0.6389999985694885},{"id":"https://openalex.org/keywords/response-errors","display_name":"response errors","score":0.5759999752044678},{"id":"https://openalex.org/keywords/questionnaire-design","display_name":"questionnaire design","score":0.4830000102519989}],"concepts":[{"id":"https://openalex.org/C58916136","wikidata":"https://www.wikidata.org/wiki/Q1663508","display_name":"Content validity","level":3,"score":0.655693531036377},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.5987549424171448},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5941999554634094},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.5618396401405334},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.5197767615318298},{"id":"https://openalex.org/C88006597","wikidata":"https://www.wikidata.org/wiki/Q690117","display_name":"Disk formatting","level":2,"score":0.4942000210285187},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.4624294340610504},{"id":"https://openalex.org/C49453240","wikidata":"https://www.wikidata.org/wiki/Q1592163","display_name":"Construct validity","level":3,"score":0.4525628685951233},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.44737139344215393},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.4296817481517792},{"id":"https://openalex.org/C2777382242","wikidata":"https://www.wikidata.org/wiki/Q6017816","display_name":"Index (typography)","level":2,"score":0.4277998208999634},{"id":"https://openalex.org/C2780801425","wikidata":"https://www.wikidata.org/wiki/Q5164392","display_name":"Construct (python library)","level":2,"score":0.4116969704627991},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4115932881832123},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4049980044364929},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3398522138595581},{"id":"https://openalex.org/C171606756","wikidata":"https://www.wikidata.org/wiki/Q506132","display_name":"Psychometrics","level":2,"score":0.29521703720092773},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.24617230892181396},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.166297048330307},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.1598573923110962},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002173","descriptor_name":"Cancer Care Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002173","descriptor_name":"Cancer Care Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002173","descriptor_name":"Cancer Care Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003071","descriptor_name":"Cognition","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003071","descriptor_name":"Cognition","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003071","descriptor_name":"Cognition","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007600","descriptor_name":"Judgment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007600","descriptor_name":"Judgment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007600","descriptor_name":"Judgment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000532","qualifier_name":"radiotherapy","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000532","qualifier_name":"radiotherapy","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000532","qualifier_name":"radiotherapy","is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D018434","descriptor_name":"Sickness Impact Profile","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018434","descriptor_name":"Sickness Impact Profile","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018434","descriptor_name":"Sickness Impact Profile","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1177/1049732311420169","doi":"https://doi.org/10.1177/1049732311420169","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1049732311420169","pdf_url":null,"source":{"id":"https://openalex.org/S32648145","display_name":"Qualitative Health Research","issn_l":"1049-7323","issn":["1049-7323","1552-7557"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Qualitative Health Research","raw_type":"journal-article"},{"id":"pmid:21859908","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21859908","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Qualitative health research","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9763000011444092}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[{"id":"https://openalex.org/G2113313789","display_name":"Oncology Nursing PhD Using Distance Education Technology","funder_award_id":"R25CA093831","funder_id":"https://openalex.org/F4320337351","funder_display_name":"National Cancer Institute"}],"funders":[{"id":"https://openalex.org/F4320310094","display_name":"University of Washington","ror":"https://ror.org/00cvxb145"},{"id":"https://openalex.org/F4320313510","display_name":"Sigma Theta Tau International","ror":"https://ror.org/01c82hv29"},{"id":"https://openalex.org/F4320337351","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":36,"referenced_works":["https://openalex.org/W2115473","https://openalex.org/W187930007","https://openalex.org/W1555161819","https://openalex.org/W1564392956","https://openalex.org/W1586047194","https://openalex.org/W1597676647","https://openalex.org/W1882716867","https://openalex.org/W1904205969","https://openalex.org/W1979117682","https://openalex.org/W1995259553","https://openalex.org/W1997332242","https://openalex.org/W2018053534","https://openalex.org/W2018401122","https://openalex.org/W2038759628","https://openalex.org/W2045693335","https://openalex.org/W2049155642","https://openalex.org/W2056092070","https://openalex.org/W2060052626","https://openalex.org/W2070110092","https://openalex.org/W2071782474","https://openalex.org/W2075102910","https://openalex.org/W2076668534","https://openalex.org/W2076765496","https://openalex.org/W2082139959","https://openalex.org/W2087538883","https://openalex.org/W2103572190","https://openalex.org/W2113103985","https://openalex.org/W2118298571","https://openalex.org/W2119246378","https://openalex.org/W2135908602","https://openalex.org/W2151903962","https://openalex.org/W2167571044","https://openalex.org/W2175883809","https://openalex.org/W4213270426","https://openalex.org/W4247849097","https://openalex.org/W4300987477"],"related_works":["https://openalex.org/W4380136770","https://openalex.org/W2067674665","https://openalex.org/W4380568662","https://openalex.org/W3135512811","https://openalex.org/W2279151839","https://openalex.org/W2964200250","https://openalex.org/W2728743471","https://openalex.org/W2016749656","https://openalex.org/W2019962676","https://openalex.org/W2906877784"],"abstract_inverted_index":{"The":[0,41],"effects":[1],"of":[2,9,19,43,57,81,106],"cancer":[3],"and":[4,14,38,63,92,112],"its":[5,30],"treatment":[6],"on":[7,67,145],"quality":[8,18],"life":[10,20],"contribute":[11],"to":[12,27,75,88,126,130,137],"patient":[13,79],"clinician":[15],"decisions.":[16],"Health-related":[17],"(HRQL)":[21],"is":[22],"a":[23],"subjective":[24],"concept,":[25],"leading":[26],"variation":[28],"in":[29,109],"definition.":[31],"This":[32],"presents":[33],"challenges":[34,51],"when":[35],"measuring":[36],"HRQL":[37,116],"evaluating":[39],"interventions.":[40],"designers":[42],"the":[44,82,84,90,95,103,107,139,142],"Patient":[45],"Generated":[46],"Index":[47],"(PGI)":[48],"addressed":[49],"these":[50,68],"by":[52,61],"having":[53],"individuals":[54],"identify":[55],"areas":[56],"their":[58],"lives":[59],"affected":[60],"illness":[62],"treatment,":[64],"then":[65],"report":[66],"self-defined":[69],"areas.":[70],"We":[71,134],"used":[72,87],"cognitive":[73,140],"interviews":[74],"collect":[76],"information":[77],"about":[78],"understanding":[80],"PGI,":[83,91],"response":[85,132],"processes":[86],"complete":[89],"how":[93],"well":[94],"PGI":[96,108,128,143],"reflected":[97],"participant":[98,115],"HRQL.":[99],"Interview":[100],"data":[101],"support":[102,123],"content":[104],"validity":[105],"comprehensively":[110],"defining":[111],"adequately":[113],"sampling":[114],"as":[117],"an":[118],"individualized":[119],"construct.":[120],"Findings":[121],"also":[122],"our":[124],"recommendation":[125],"revise":[127],"formatting":[129],"reduce":[131,138],"errors.":[133],"make":[135],"recommendations":[136],"demands":[141],"places":[144],"respondents.":[146]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2021,"cited_by_count":2},{"year":2019,"cited_by_count":3},{"year":2016,"cited_by_count":4},{"year":2015,"cited_by_count":3},{"year":2014,"cited_by_count":2},{"year":2013,"cited_by_count":1}],"updated_date":"2026-10-15T10:00:46.086208","created_date":"2025-10-10T00:00:00"}