{"id":"https://openalex.org/W2094067786","doi":"https://doi.org/10.1016/s0277-9536(01)00356-2","title":"Amyotrophic lateral sclerosis and hopelessness: psychosocial factors","display_name":"Amyotrophic lateral sclerosis and hopelessness: psychosocial factors","publication_year":2002,"publication_date":"2002-10-28","ids":{"openalex":"https://openalex.org/W2094067786","doi":"https://doi.org/10.1016/s0277-9536(01)00356-2","mag":"2094067786","pmid":"https://pubmed.ncbi.nlm.nih.gov/12409126"},"language":"en","primary_location":{"id":"doi:10.1016/s0277-9536(01)00356-2","doi":"https://doi.org/10.1016/s0277-9536(01)00356-2","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s0277-9536(01)00356-2","pdf_url":null,"source":{"id":"https://openalex.org/S106822843","display_name":"Social Science & Medicine","issn_l":"0277-9536","issn":["0277-9536","1873-5347"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","erih-plus","fnege-1","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Social Science & Medicine","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5061237772","display_name":"Janice M. Plahuta","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I143302722","display_name":"University of Kentucky","ror":"https://ror.org/02k3smh20","country_code":"US","type":"education","lineage":["https://openalex.org/I143302722"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Janice M Plahuta","raw_affiliation_strings":["PhD Program in Gerontology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA. jmplah0@uky.edu","#N##TAB##TAB##TAB##TAB# Univ. of Kentucky#N##TAB##TAB##TAB#"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"PhD Program in Gerontology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA. jmplah0@uky.edu","institution_ids":["https://openalex.org/I143302722"]},{"raw_affiliation_string":"#N##TAB##TAB##TAB##TAB# Univ. of Kentucky#N##TAB##TAB##TAB#","institution_ids":["https://openalex.org/I143302722"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110636119","display_name":"B. Jan McCulloch","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I143302722","display_name":"University of Kentucky","ror":"https://ror.org/02k3smh20","country_code":"US","type":"education","lineage":["https://openalex.org/I143302722"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"B.Jan McCulloch","raw_affiliation_strings":["Department of Family Studies and Ph.D. Program in Gerontology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Family Studies and Ph.D. Program in Gerontology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA","institution_ids":["https://openalex.org/I143302722"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057215950","display_name":"Edward J. Kasarskis","orcid":"https://orcid.org/0000-0001-5584-7506","observed_orcids":["https://orcid.org/0000-0001-5584-7506"]},"institutions":[{"id":"https://openalex.org/I143302722","display_name":"University of Kentucky","ror":"https://ror.org/02k3smh20","country_code":"US","type":"education","lineage":["https://openalex.org/I143302722"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Edward J Kasarskis","raw_affiliation_strings":["Department of Neurology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA","#N##TAB##TAB##TAB##TAB# Univ. of Kentucky#N##TAB##TAB##TAB#"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Neurology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA","institution_ids":["https://openalex.org/I143302722"]},{"raw_affiliation_string":"#N##TAB##TAB##TAB##TAB# Univ. of Kentucky#N##TAB##TAB##TAB#","institution_ids":["https://openalex.org/I143302722"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103621440","display_name":"Mark A. Ross","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I143302722","display_name":"University of Kentucky","ror":"https://ror.org/02k3smh20","country_code":"US","type":"education","lineage":["https://openalex.org/I143302722"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mark A Ross","raw_affiliation_strings":["Department of Neurology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Neurology, University of Kentucky, 101 Sanders-Brown Building, Lexington, KY 40536-0230, USA","institution_ids":["https://openalex.org/I143302722"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038577101","display_name":"Rhoda A. Walter","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Rhoda A Walter","raw_affiliation_strings":["New Road Map Foundation, Seattle, WA, USA","New Road Map Foundation"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"New Road Map Foundation, Seattle, WA, USA","institution_ids":[]},{"raw_affiliation_string":"New Road Map Foundation","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044744253","display_name":"Evelyn McDonald","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Evelyn R McDonald","raw_affiliation_strings":["New Road Map Foundation, Seattle, WA, USA","New Road Map Foundation"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"New Road Map Foundation, Seattle, WA, USA","institution_ids":[]},{"raw_affiliation_string":"New Road Map Foundation","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5061237772"],"corresponding_institution_ids":["https://openalex.org/I143302722"],"apc_list":{"value":3800,"currency":"USD","value_usd":3800},"apc_paid":null,"fwci":6.0329,"has_fulltext":false,"cited_by_count":73,"citation_normalized_percentile":{"value":0.95735757,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"55","issue":"12","first_page":"2131","last_page":"2140"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12485","display_name":"Optimism, Hope, and Well-being","score":0.8759999871253967,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12485","display_name":"Optimism, Hope, and Well-being","score":0.8759999871253967,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.061500001698732376,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.020099999383091927,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/amyotrophic-lateral-sclerosis","display_name":"amyotrophic lateral sclerosis","score":1.0},{"id":"https://openalex.org/keywords/hopelessness","display_name":"hopelessness","score":0.9990000128746033},{"id":"https://openalex.org/keywords/psychosocial-factors","display_name":"psychosocial factors","score":0.9430000185966492},{"id":"https://openalex.org/keywords/health-locus-of-control","display_name":"health locus of control","score":0.9990000128746033},{"id":"https://openalex.org/keywords/meaning-of-life","display_name":"meaning of life","score":0.996999979019165},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.9049999713897705},{"id":"https://openalex.org/keywords/spiritual-coping","display_name":"spiritual coping","score":0.7870000004768372},{"id":"https://openalex.org/keywords/psychosocial-interventions","display_name":"psychosocial interventions","score":0.781000018119812},{"id":"https://openalex.org/keywords/disease-severity","display_name":"disease severity","score":0.4959999918937683},{"id":"https://openalex.org/keywords/disease-management","display_name":"disease management","score":0.39500001072883606}],"concepts":[{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.9183565974235535},{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.7998305559158325},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.605425238609314},{"id":"https://openalex.org/C147077947","wikidata":"https://www.wikidata.org/wiki/Q1515895","display_name":"Socioeconomic status","level":3,"score":0.5385919809341431},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.52755206823349},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.5128338932991028},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4918246269226074},{"id":"https://openalex.org/C142052008","wikidata":"https://www.wikidata.org/wiki/Q954027","display_name":"Cross-sectional study","level":2,"score":0.46887969970703125},{"id":"https://openalex.org/C170798268","wikidata":"https://www.wikidata.org/wiki/Q534589","display_name":"Locus of control","level":2,"score":0.44482147693634033},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4351208209991455},{"id":"https://openalex.org/C53059260","wikidata":"https://www.wikidata.org/wiki/Q374758","display_name":"Multilevel model","level":2,"score":0.4170931875705719},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.39645832777023315},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.3679032325744629},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.14215824007987976},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.12669479846954346},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0987924337387085},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.07875820994377136},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.06164145469665527},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000690","descriptor_name":"Amyotrophic Lateral Sclerosis","qualifier_ui":"Q000503","qualifier_name":"physiopathology","is_major_topic":false},{"descriptor_ui":"D000690","descriptor_name":"Amyotrophic Lateral Sclerosis","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006040","descriptor_name":"Goals","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007389","descriptor_name":"Internal-External Control","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009013","descriptor_name":"Morale","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012106","descriptor_name":"Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012495","descriptor_name":"San Francisco","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014861","descriptor_name":"Washington","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015143","descriptor_name":"Philadelphia","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D029181","descriptor_name":"Spirituality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1016/s0277-9536(01)00356-2","doi":"https://doi.org/10.1016/s0277-9536(01)00356-2","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s0277-9536(01)00356-2","pdf_url":null,"source":{"id":"https://openalex.org/S106822843","display_name":"Social Science & Medicine","issn_l":"0277-9536","issn":["0277-9536","1873-5347"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","erih-plus","fnege-1","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Social Science & Medicine","raw_type":"journal-article"},{"id":"pmid:12409126","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12409126","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Social science & medicine (1982)","raw_type":"Journal Article"},{"id":"pmh:oai:RePEc:eee:socmed:v:55:y:2002:i:12:p:2131-2140","doi":null,"is_oa":false,"landing_page_url":"http://www.sciencedirect.com/science/article/pii/S0277-9536(01)00356-2","pdf_url":null,"source":{"id":"https://openalex.org/S4306401271","display_name":"RePEc: Research Papers in Economics","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I77793887","host_organization_name":"Federal Reserve Bank of St. Louis","host_organization_lineage":["https://openalex.org/I77793887"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.44999998807907104,"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":47,"referenced_works":["https://openalex.org/W143153517","https://openalex.org/W564397789","https://openalex.org/W1965436609","https://openalex.org/W1967224240","https://openalex.org/W1968368643","https://openalex.org/W1970469266","https://openalex.org/W1977988586","https://openalex.org/W1978877190","https://openalex.org/W1992558019","https://openalex.org/W2004447366","https://openalex.org/W2006842961","https://openalex.org/W2013668116","https://openalex.org/W2025796334","https://openalex.org/W2027271613","https://openalex.org/W2027775684","https://openalex.org/W2028621311","https://openalex.org/W2029847636","https://openalex.org/W2039877798","https://openalex.org/W2042350105","https://openalex.org/W2045442601","https://openalex.org/W2045685361","https://openalex.org/W2047266812","https://openalex.org/W2050773741","https://openalex.org/W2057915351","https://openalex.org/W2060151000","https://openalex.org/W2063742241","https://openalex.org/W2066768085","https://openalex.org/W2068622375","https://openalex.org/W2073612721","https://openalex.org/W2076142604","https://openalex.org/W2076733981","https://openalex.org/W2080008997","https://openalex.org/W2081305567","https://openalex.org/W2083286896","https://openalex.org/W2085881584","https://openalex.org/W2086689324","https://openalex.org/W2098666074","https://openalex.org/W2100304883","https://openalex.org/W2122845244","https://openalex.org/W2152462550","https://openalex.org/W2153617808","https://openalex.org/W2155061666","https://openalex.org/W2166242343","https://openalex.org/W3101216784","https://openalex.org/W4244809384","https://openalex.org/W4249315256","https://openalex.org/W7117075723"],"related_works":["https://openalex.org/W4393944604","https://openalex.org/W2805368826","https://openalex.org/W2952690613","https://openalex.org/W2170054134","https://openalex.org/W2610808089","https://openalex.org/W2791163918","https://openalex.org/W2114234373","https://openalex.org/W2000113586","https://openalex.org/W1976849761","https://openalex.org/W2938624915"],"abstract_inverted_index":null,"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":4},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":1},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":6},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}