{"id":"https://openalex.org/W2091124228","doi":"https://doi.org/10.1017/s1478951515000152","title":"The lived experience of volunteering in a palliative care biography service","display_name":"The lived experience of volunteering in a palliative care biography service","publication_year":2015,"publication_date":"2015-02-12","ids":{"openalex":"https://openalex.org/W2091124228","doi":"https://doi.org/10.1017/s1478951515000152","mag":"2091124228","pmid":"https://pubmed.ncbi.nlm.nih.gov/25672774"},"language":"en","primary_location":{"id":"doi:10.1017/s1478951515000152","doi":"https://doi.org/10.1017/s1478951515000152","is_oa":false,"landing_page_url":"https://doi.org/10.1017/s1478951515000152","pdf_url":null,"source":{"id":"https://openalex.org/S204840698","display_name":"Palliative & Supportive Care","issn_l":"1478-9515","issn":["1478-9515","1478-9523"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative and Supportive Care","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://figshare.com/articles/journal_contribution/The_lived_experience_of_volunteering_in_a_palliative_care_biography_service/20914144","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5023333989","display_name":"Elizabeth Beasley","orcid":"https://orcid.org/0000-0002-8752-9577","observed_orcids":["https://orcid.org/0000-0002-8752-9577"]},"institutions":[{"id":"https://openalex.org/I56590836","display_name":"Monash University","ror":"https://ror.org/02bfwt286","country_code":"AU","type":"education","lineage":["https://openalex.org/I56590836"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Elizabeth Beasley","raw_affiliation_strings":["Faculty of Education, Monash University, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Faculty of Education, Monash University, Melbourne, Australia","institution_ids":["https://openalex.org/I56590836"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032910311","display_name":"Joanne Brooker","orcid":"https://orcid.org/0000-0003-0096-0442","observed_orcids":["https://orcid.org/0000-0003-0096-0442"]},"institutions":[{"id":"https://openalex.org/I56590836","display_name":"Monash University","ror":"https://ror.org/02bfwt286","country_code":"AU","type":"education","lineage":["https://openalex.org/I56590836"]}],"countries":["AU"],"is_corresponding":true,"raw_author_name":"Joanne Brooker","raw_affiliation_strings":["Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia","Department of Psychiatry, Monash University, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia","institution_ids":[]},{"raw_affiliation_string":"Department of Psychiatry, Monash University, Melbourne, Australia","institution_ids":["https://openalex.org/I56590836"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5086626885","display_name":"Narelle Warren","orcid":"https://orcid.org/0000-0003-2623-4078","observed_orcids":["https://orcid.org/0000-0003-2623-4078"]},"institutions":[{"id":"https://openalex.org/I56590836","display_name":"Monash University","ror":"https://ror.org/02bfwt286","country_code":"AU","type":"education","lineage":["https://openalex.org/I56590836"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Narelle Warren","raw_affiliation_strings":["Department of Anthropology, School of Social Sciences, Monash University, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anthropology, School of Social Sciences, Monash University, Melbourne, Australia","institution_ids":["https://openalex.org/I56590836"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009385362","display_name":"Jane M. Fletcher","orcid":"https://orcid.org/0000-0001-5033-8278","observed_orcids":["https://orcid.org/0000-0001-5033-8278"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Jane Fletcher","raw_affiliation_strings":["Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065826470","display_name":"Christopher Boyle","orcid":"https://orcid.org/0000-0001-6196-7619","observed_orcids":["https://orcid.org/0000-0001-6196-7619"]},"institutions":[{"id":"https://openalex.org/I90745801","display_name":"University of New England","ror":"https://ror.org/04r659a56","country_code":"AU","type":"education","lineage":["https://openalex.org/I90745801"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Christopher Boyle","raw_affiliation_strings":["School of Education, University of New England, Armidale, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Education, University of New England, Armidale, Australia","institution_ids":["https://openalex.org/I90745801"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025157731","display_name":"Adriana D. Ventura","orcid":"https://orcid.org/0000-0001-9982-1682","observed_orcids":["https://orcid.org/0000-0001-9982-1682"]},"institutions":[{"id":"https://openalex.org/I149704539","display_name":"Deakin University","ror":"https://ror.org/02czsnj07","country_code":"AU","type":"education","lineage":["https://openalex.org/I149704539"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Adriana Ventura","raw_affiliation_strings":["School of Psychology, Deakin University, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Psychology, Deakin University, Melbourne, Australia","institution_ids":["https://openalex.org/I149704539"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5111796022","display_name":"Susan Burney","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I56590836","display_name":"Monash University","ror":"https://ror.org/02bfwt286","country_code":"AU","type":"education","lineage":["https://openalex.org/I56590836"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Susan Burney","raw_affiliation_strings":["Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia","School of Psychological Sciences, Monash University, Melbourne, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cabrini Monash Psycho-Oncology, Cabrini Health, Melbourne, Australia","institution_ids":[]},{"raw_affiliation_string":"School of Psychological Sciences, Monash University, Melbourne, Australia","institution_ids":["https://openalex.org/I56590836"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5032910311"],"corresponding_institution_ids":["https://openalex.org/I56590836"],"apc_list":{"value":3550,"currency":"USD","value_usd":3550},"apc_paid":null,"fwci":2.4069,"has_fulltext":false,"cited_by_count":25,"citation_normalized_percentile":{"value":0.88298428,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"13","issue":"5","first_page":"1417","last_page":"1425"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.6685000061988831,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.6685000061988831,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.227400004863739,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11120","display_name":"Nonprofit Sector and Volunteering","score":0.07500000298023224,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/volunteering","display_name":"volunteering","score":0.5479999780654907},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.9760000109672546},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.9449999928474426},{"id":"https://openalex.org/keywords/volunteer-motivation","display_name":"volunteer motivation","score":0.7260000109672546},{"id":"https://openalex.org/keywords/death-and-dying","display_name":"death and dying","score":0.7210000157356262},{"id":"https://openalex.org/keywords/existential-questions","display_name":"existential questions","score":0.9269999861717224},{"id":"https://openalex.org/keywords/psychosocial-benefits","display_name":"psychosocial benefits","score":0.8410000205039978},{"id":"https://openalex.org/keywords/family-involvement","display_name":"family involvement","score":0.5070000290870667},{"id":"https://openalex.org/keywords/volunteer-support","display_name":"volunteer support","score":0.6200000047683716},{"id":"https://openalex.org/keywords/meaning-making","display_name":"meaning-making","score":0.5130000114440918}],"concepts":[{"id":"https://openalex.org/C520712124","wikidata":"https://www.wikidata.org/wiki/Q36279","display_name":"Biography","level":2,"score":0.7323434352874756},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.6893019676208496},{"id":"https://openalex.org/C2780378061","wikidata":"https://www.wikidata.org/wiki/Q25351891","display_name":"Service (business)","level":2,"score":0.6250043511390686},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.484785258769989},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3747580647468567},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3410238027572632},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3358990550041199},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2556491494178772},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.11114752292633057},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.07268005609512329},{"id":"https://openalex.org/C52119013","wikidata":"https://www.wikidata.org/wiki/Q50637","display_name":"Art history","level":1,"score":0.06274685263633728}],"mesh":[{"descriptor_ui":"D001680","descriptor_name":"Biographies as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007406","descriptor_name":"Interview, Psychological","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D014739","descriptor_name":"Victoria","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014838","descriptor_name":"Volunteers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D019452","descriptor_name":"Terminally Ill","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":6,"locations":[{"id":"doi:10.1017/s1478951515000152","doi":"https://doi.org/10.1017/s1478951515000152","is_oa":false,"landing_page_url":"https://doi.org/10.1017/s1478951515000152","pdf_url":null,"source":{"id":"https://openalex.org/S204840698","display_name":"Palliative & Supportive Care","issn_l":"1478-9515","issn":["1478-9515","1478-9523"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative and Supportive Care","raw_type":"journal-article"},{"id":"pmid:25672774","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/25672774","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative & supportive care","raw_type":"Journal Article"},{"id":"pmh:oai:e-publications.une.edu.au:une:18163","doi":null,"is_oa":false,"landing_page_url":"http://e-publications.une.edu.au/1959.11/17953","pdf_url":null,"source":{"id":"https://openalex.org/S7407064254","display_name":"EPubDev Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"journal article"},{"id":"pmh:oai:digital.library.adelaide.edu.au:2440/133860","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/2440/133860","pdf_url":null,"source":{"id":"https://openalex.org/S4306401835","display_name":"Adelaide Research & Scholarship (AR&S) (University of Adelaide)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I5681781","host_organization_name":"The University of Adelaide","host_organization_lineage":["https://openalex.org/I5681781"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"https://doi.org/10.1017/s1478951515000152","raw_type":"Journal article"},{"id":"pmh:oai:figshare.com:article/20914144","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/journal_contribution/The_lived_experience_of_volunteering_in_a_palliative_care_biography_service/20914144","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:rune.une.edu.au:1959.11/17953","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/1959.11/17953","pdf_url":null,"source":{"id":"https://openalex.org/S7407055448","display_name":"RUNE (Research UNE)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal Article"}],"best_oa_location":{"id":"pmh:oai:figshare.com:article/20914144","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/journal_contribution/The_lived_experience_of_volunteering_in_a_palliative_care_biography_service/20914144","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.6240000128746033}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":45,"referenced_works":["https://openalex.org/W655814246","https://openalex.org/W1498141138","https://openalex.org/W1514037600","https://openalex.org/W1577976557","https://openalex.org/W1966254119","https://openalex.org/W1978412393","https://openalex.org/W1979290264","https://openalex.org/W1979293337","https://openalex.org/W1979614038","https://openalex.org/W1984162795","https://openalex.org/W1994580465","https://openalex.org/W1997208552","https://openalex.org/W2001802035","https://openalex.org/W2004527501","https://openalex.org/W2006266555","https://openalex.org/W2012745116","https://openalex.org/W2019171640","https://openalex.org/W2022752912","https://openalex.org/W2032330505","https://openalex.org/W2041223559","https://openalex.org/W2046921715","https://openalex.org/W2055669850","https://openalex.org/W2061158191","https://openalex.org/W2075395580","https://openalex.org/W2075695896","https://openalex.org/W2078933760","https://openalex.org/W2106144261","https://openalex.org/W2111428146","https://openalex.org/W2113578863","https://openalex.org/W2115349551","https://openalex.org/W2119330213","https://openalex.org/W2121541397","https://openalex.org/W2121844133","https://openalex.org/W2123759594","https://openalex.org/W2130244150","https://openalex.org/W2135631625","https://openalex.org/W2139938422","https://openalex.org/W2153142292","https://openalex.org/W2165042173","https://openalex.org/W2166474455","https://openalex.org/W2169774219","https://openalex.org/W2170650832","https://openalex.org/W2171908102","https://openalex.org/W2412776864","https://openalex.org/W2431441579"],"related_works":["https://openalex.org/W2979047013","https://openalex.org/W4324309272","https://openalex.org/W3047676882","https://openalex.org/W2996691656","https://openalex.org/W2599325479","https://openalex.org/W2417448303","https://openalex.org/W2924748192","https://openalex.org/W6977670220","https://openalex.org/W3133192925","https://openalex.org/W3009358776"],"abstract_inverted_index":{"OBJECTIVE:":[0],"Many":[1],"patients":[2,27,129],"approaching":[3],"death":[4],"experience":[5,46],"hopelessness,":[6],"helplessness,":[7],"and":[8,12,31,115,122,124,130,147,158,184,217,222,260],"a":[9,18,51,58,71,75,86,141,160,285],"depressed":[10],"mood,":[11],"these":[13,94],"factors":[14],"can":[15],"contribute":[16],"to":[17,42,99,150,179,269,275],"difficult":[19],"end-of-life":[20],"(EoL)":[21],"period.":[22],"Biography":[23],"services":[24,253],"may":[25],"assist":[26,276],"in":[28,50,54,70,228,250,278,284],"finding":[29],"meaning":[30],"purpose":[32],"at":[33],"this":[34],"time.":[35],"The":[36,62,91],"aim":[37],"of":[38,47,93,120,126,144,154,163,241,282],"our":[39,264],"study":[40,244],"was":[41,82,185,226],"investigate":[43],"the":[44,105,139,164,189,215,229,239,242,251,267,280],"lived":[45],"volunteers":[48,66,140,173,193,274],"involved":[49],"biography":[52,72,252],"service":[53,73],"Melbourne,":[55],"Australia,":[56],"using":[57,85],"qualitative":[59],"methodology.":[60],"METHOD:":[61],"participants":[63],"were":[64,96,200,205,218],"10":[65],"who":[67],"had":[68],"participated":[69],"within":[74],"private":[76],"palliative":[77,286],"care":[78,287],"service.":[79],"Each":[80],"volunteer":[81],"interviewed":[83],"separately":[84],"study-specific":[87],"semistructured":[88],"interview":[89],"guide.":[90],"transcripts":[92],"interviews":[95],"then":[97],"subjected":[98],"thematic":[100],"analysis.":[101],"RESULTS:":[102,234],"Analysis":[103],"yielded":[104],"following":[106],"themes:":[107],"motivations":[108],"for":[109,248,273],"volunteering;":[110,121],"dealing":[111],"with":[112,128,197],"death,":[113],"dying,":[114],"existential":[116,145],"issues;":[117],"psychosocial":[118],"benefits":[119,123],"challenges":[125,281],"working":[127],"their":[131,155,176,180],"families.":[132],"Our":[133],"results":[134,190],"indicated":[135],"that":[136,172,175,192,195,238,254],"volunteering":[137,283],"gave":[138],"deeper":[142,161],"appreciation":[143],"issues,":[146],"helped":[148],"them":[149,277],"be":[151],"more":[152],"appreciative":[153],"own":[156,181],"lives":[157],"gain":[159],"awareness":[162],"struggles":[165],"other":[166],"people":[167],"experience.":[168],"They":[169],"also":[170],"suggested":[171],"felt":[174],"involvement":[177],"contributed":[178],"personal":[182],"development,":[183],"personally":[186],"rewarding.":[187],"Furthermore,":[188],"highlighted":[191],"found":[194],"encounters":[196],"family":[198,258],"members":[199],"sometimes":[201,219],"challenging.":[202],"While":[203],"some":[204],"appreciative,":[206],"others":[207],"imposed":[208],"time":[209],"limits,":[210],"became":[211],"overly":[212],"reliant":[213],"on":[214],"volunteers,":[216],"offended,":[220],"hurt,":[221],"angered":[223],"by":[224],"what":[225],"included":[227],"final":[230],"biography.":[231],"SIGNIFICANCE":[232],"OF":[233],"It":[235],"is":[236],"hoped":[237],"findings":[240,265],"current":[243],"will":[245,255],"provide":[246,270],"direction":[247],"improvements":[249],"benefit":[256],"patients,":[257],"members,":[259],"volunteers.":[261],"In":[262],"particular,":[263],"highlight":[266],"need":[268],"ongoing":[271],"support":[272],"handling":[279],"setting.":[288]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":5}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
