{"id":"https://openalex.org/W2089600308","doi":"https://doi.org/10.1017/s0022215111003197","title":"The \u2018patient journey\u2019 of adults with sudden-onset acquired hearing impairment: a pilot study","display_name":"The \u2018patient journey\u2019 of adults with sudden-onset acquired hearing impairment: a pilot study","publication_year":2012,"publication_date":"2012-01-03","ids":{"openalex":"https://openalex.org/W2089600308","doi":"https://doi.org/10.1017/s0022215111003197","mag":"2089600308","pmid":"https://pubmed.ncbi.nlm.nih.gov/22214561"},"language":"en","primary_location":{"id":"doi:10.1017/s0022215111003197","doi":"https://doi.org/10.1017/s0022215111003197","is_oa":false,"landing_page_url":"https://doi.org/10.1017/s0022215111003197","pdf_url":null,"source":{"id":"https://openalex.org/S110757056","display_name":"The Journal of Laryngology & Otology","issn_l":"0022-2151","issn":["0022-2151","1748-5460"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of Laryngology & Otology","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5083307722","display_name":"Vinaya K C Manchaiah","orcid":"https://orcid.org/0000-0002-1254-8407","observed_orcids":["https://orcid.org/0000-0002-1254-8407"]},"institutions":[{"id":"https://openalex.org/I102134673","display_name":"Link\u00f6ping University","ror":"https://ror.org/05ynxx418","country_code":"SE","type":"education","lineage":["https://openalex.org/I102134673"]},{"id":"https://openalex.org/I39586589","display_name":"Swansea University","ror":"https://ror.org/053fq8t95","country_code":"GB","type":"education","lineage":["https://openalex.org/I39586589"]}],"countries":["GB","SE"],"is_corresponding":true,"raw_author_name":"V K C Manchaiah","raw_affiliation_strings":["Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom. V.K.C.Manchaiah@swansea.ac.uk","Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom","Linnaeus Centre HEAD, The Swedish Institute for Disability Research, Department of Behavioral Science and Learning, Link\u00f6ping University, Link\u00f6ping, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom. V.K.C.Manchaiah@swansea.ac.uk","institution_ids":["https://openalex.org/I39586589"]},{"raw_affiliation_string":"Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom","institution_ids":["https://openalex.org/I39586589"]},{"raw_affiliation_string":"Linnaeus Centre HEAD, The Swedish Institute for Disability Research, Department of Behavioral Science and Learning, Link\u00f6ping University, Link\u00f6ping, Sweden","institution_ids":["https://openalex.org/I102134673"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5109267062","display_name":"D. Stephens","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I79510175","display_name":"Cardiff University","ror":"https://ror.org/03kk7td41","country_code":"GB","type":"education","lineage":["https://openalex.org/I79510175"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"D Stephens","raw_affiliation_strings":["Department of Psychological Medicine and Neurology, School of Medicine, Cardiff University, Cardiff, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychological Medicine and Neurology, School of Medicine, Cardiff University, Cardiff, United Kingdom","institution_ids":["https://openalex.org/I79510175"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5083307722"],"corresponding_institution_ids":["https://openalex.org/I102134673","https://openalex.org/I39586589"],"apc_list":{"value":3550,"currency":"USD","value_usd":3550},"apc_paid":null,"fwci":1.3782,"has_fulltext":false,"cited_by_count":22,"citation_normalized_percentile":{"value":0.78808785,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"126","issue":"5","first_page":"475","last_page":"481"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10283","display_name":"Hearing Loss and Rehabilitation","score":0.6714000105857849,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10283","display_name":"Hearing Loss and Rehabilitation","score":0.6714000105857849,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10542","display_name":"Vestibular and auditory disorders","score":0.30320000648498535,"subfield":{"id":"https://openalex.org/subfields/2808","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.006300000008195639,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-journey","display_name":"patient journey","score":0.9089999794960022},{"id":"https://openalex.org/keywords/patient-self-assessment","display_name":"patient self-assessment","score":0.6930000185966492},{"id":"https://openalex.org/keywords/process-mapping","display_name":"process mapping","score":0.45500001311302185}],"concepts":[{"id":"https://openalex.org/C548259974","wikidata":"https://www.wikidata.org/wiki/Q569965","display_name":"Audiology","level":1,"score":0.6991332769393921},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.6684449911117554},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5090298652648926},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.4925254285335541},{"id":"https://openalex.org/C2993918154","wikidata":"https://www.wikidata.org/wiki/Q12131","display_name":"Functional impairment","level":2,"score":0.4785652458667755},{"id":"https://openalex.org/C3019806175","wikidata":"https://www.wikidata.org/wiki/Q11974939","display_name":"Health professionals","level":3,"score":0.4139525294303894},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.364254891872406},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.30149057507514954},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.2263524830341339},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.1338147521018982},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.12790748476982117},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001291","descriptor_name":"Attitude of Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003639","descriptor_name":"Hearing Loss, Sudden","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D003639","descriptor_name":"Hearing Loss, Sudden","qualifier_ui":"Q000534","qualifier_name":"rehabilitation","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019986","descriptor_name":"Persons with Hearing Disabilities","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D019986","descriptor_name":"Persons with Hearing Disabilities","qualifier_ui":"Q000534","qualifier_name":"rehabilitation","is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1017/s0022215111003197","doi":"https://doi.org/10.1017/s0022215111003197","is_oa":false,"landing_page_url":"https://doi.org/10.1017/s0022215111003197","pdf_url":null,"source":{"id":"https://openalex.org/S110757056","display_name":"The Journal of Laryngology & Otology","issn_l":"0022-2151","issn":["0022-2151","1748-5460"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of Laryngology & Otology","raw_type":"journal-article"},{"id":"pmid:22214561","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22214561","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of laryngology and otology","raw_type":"Journal Article"},{"id":"pmh:oai:cronfa.swan.ac.uk:cronfa10362","doi":null,"is_oa":false,"landing_page_url":"https://cronfa.swan.ac.uk/Record/cronfa10362","pdf_url":null,"source":{"id":"https://openalex.org/S4306401612","display_name":"Cronfa (Swansea University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I39586589","host_organization_name":"Swansea University","host_organization_lineage":["https://openalex.org/I39586589"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9940000176429749,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":17,"referenced_works":["https://openalex.org/W127795371","https://openalex.org/W1517880201","https://openalex.org/W1597044509","https://openalex.org/W1963863431","https://openalex.org/W1974562079","https://openalex.org/W1979290264","https://openalex.org/W1990659585","https://openalex.org/W1994950560","https://openalex.org/W2000516398","https://openalex.org/W2015106084","https://openalex.org/W2035827204","https://openalex.org/W2070447196","https://openalex.org/W2109800298","https://openalex.org/W2111256197","https://openalex.org/W2123327789","https://openalex.org/W2127799273","https://openalex.org/W2137588072"],"related_works":["https://openalex.org/W1597044509","https://openalex.org/W71994339","https://openalex.org/W2111190583","https://openalex.org/W7096109427","https://openalex.org/W4392644174","https://openalex.org/W2047560288","https://openalex.org/W7004921018","https://openalex.org/W3202931347","https://openalex.org/W2575073638","https://openalex.org/W2002611884"],"abstract_inverted_index":{"OBJECTIVE:":[0],"A":[1,69],"previous":[2,124],"study":[3,16,125],"examined":[4,17],"the":[5,18,39,82,98,109,114,120,123,127,134,196],"'patient":[6],"journey'":[7],"of":[8,129,199],"adults":[9,21,46],"with":[10,22,47,139,145,150],"gradual-onset":[11,151],"acquired":[12,24,49,75,141,152],"hearing":[13,25,50,76,142,153,167,200],"impairment.":[14,154,201],"This":[15],"same":[19],"for":[20,73,164],"sudden-onset":[23,48,74,140],"impairment,":[26,51,143],"and":[27,43,61,84,122,166],"assessed":[28],"differences.":[29],"STUDY":[30],"DESIGN:":[31],"Data":[32,55],"were":[33,56,106],"collected":[34],"from":[35,44],"16":[36],"audiologists,":[37],"using":[38,58,63],"Ida":[40],"Institute":[41],"template,":[42],"four":[45],"through":[52],"semi-structured":[53],"interviews.":[54],"analysed":[57],"thematic":[59],"analysis":[60],"presented":[62],"a":[64,130,178,185],"process":[65],"mapping":[66],"model.":[67],"RESULTS:":[68],"patient":[70],"journey":[71,135,157],"template":[72],"impairment":[77],"was":[78,95,126],"developed":[79],"based":[80],"on":[81],"professionals'":[83],"patients'":[85],"perspectives.":[86],"The":[87,116],"main":[88,117],"difference":[89,118],"between":[90,119],"these":[91],"two":[92],"groups'":[93],"perspectives":[94],"seen":[96],"in":[97,133],"self-evaluation":[99],"phase:":[100],"some":[101],"stages":[102],"within":[103],"this":[104],"phase":[105,132],"recognised":[107],"by":[108,113,137,148],"patients":[110,138,149],"but":[111],"not":[112],"professionals.":[115],"current":[121],"absence":[128],"pre-awareness":[131],"described":[136,147],"compared":[144],"that":[146],"CONCLUSION:":[155],"Patient":[156],"templates":[158,172],"could":[159],"be":[160,174],"useful":[161],"counselling":[162],"tools":[163],"ear":[165],"healthcare":[168],"specialists.":[169],"However,":[170],"such":[171],"should":[173],"used":[175],"only":[176],"as":[177],"baseline;":[179],"it":[180],"is":[181],"important":[182],"to":[183,189],"take":[184],"detailed":[186],"case":[187],"history":[188],"understand":[190],"each":[191],"patient's":[192],"unique":[193],"experience,":[194],"including":[195],"psychosocial":[197],"impact":[198]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":2},{"year":2021,"cited_by_count":5},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":2},{"year":2015,"cited_by_count":3},{"year":2014,"cited_by_count":2},{"year":2013,"cited_by_count":2},{"year":2012,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}