{"id":"https://openalex.org/W2082124253","doi":"https://doi.org/10.1542/peds.110.3.583","title":"Adult Survivors of Pediatric Illness: The Impact on Pediatric Hospitals","display_name":"Adult Survivors of Pediatric Illness: The Impact on Pediatric Hospitals","publication_year":2002,"publication_date":"2002-09-01","ids":{"openalex":"https://openalex.org/W2082124253","doi":"https://doi.org/10.1542/peds.110.3.583","mag":"2082124253","pmid":"https://pubmed.ncbi.nlm.nih.gov/12205264"},"language":"en","primary_location":{"id":"doi:10.1542/peds.110.3.583","doi":"https://doi.org/10.1542/peds.110.3.583","is_oa":false,"landing_page_url":"https://doi.org/10.1542/peds.110.3.583","pdf_url":null,"source":{"id":"https://openalex.org/S77494981","display_name":"PEDIATRICS","issn_l":"0031-4005","issn":["0031-4005","1098-4275"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","erih-plus","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315734","host_organization_name":"American Academy of Pediatrics","host_organization_lineage":["https://openalex.org/P4310315734"],"host_organization_lineage_names":["American Academy of Pediatrics"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5012834728","display_name":"Denise M. Goodman","orcid":"https://orcid.org/0000-0001-9766-9453","observed_orcids":["https://orcid.org/0000-0001-9766-9453"]},"institutions":[{"id":"https://openalex.org/I1294278766","display_name":"Lurie Children's Hospital","ror":"https://ror.org/03a6zw892","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1294278766"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Denise M. Goodman","raw_affiliation_strings":["Division of Pulmonary and Critical Care Medicine","Division of Pulmonary and Critical Care Medicine, Children's Memorial Hospital, Chicago, Illinois 60614, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Pulmonary and Critical Care Medicine","institution_ids":[]},{"raw_affiliation_string":"Division of Pulmonary and Critical Care Medicine, Children's Memorial Hospital, Chicago, Illinois 60614, USA","institution_ids":["https://openalex.org/I1294278766"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5001093367","display_name":"Eduardo P. Mendez","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1294278766","display_name":"Lurie Children's Hospital","ror":"https://ror.org/03a6zw892","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1294278766"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eduardo Mendez","raw_affiliation_strings":["Clinical Effectiveness and Quality Improvement","Children's Memorial Hospital"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Clinical Effectiveness and Quality Improvement","institution_ids":[]},{"raw_affiliation_string":"Children's Memorial Hospital","institution_ids":["https://openalex.org/I1294278766"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072048271","display_name":"Cheri Throop","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Cheri Throop","raw_affiliation_strings":["Quality Improvement"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Quality Improvement","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5113761953","display_name":"Edward S. Ogata","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1294278766","display_name":"Lurie Children's Hospital","ror":"https://ror.org/03a6zw892","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1294278766"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Edward S. Ogata","raw_affiliation_strings":["Medical Management; Children\u2019s Memorial Hospital, Chicago, Illinois"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Medical Management; Children\u2019s Memorial Hospital, Chicago, Illinois","institution_ids":["https://openalex.org/I1294278766"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.6153,"has_fulltext":false,"cited_by_count":60,"citation_normalized_percentile":{"value":0.88897398,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"110","issue":"3","first_page":"583","last_page":"589"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.4318999946117401,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.4318999946117401,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.14509999752044678,"subfield":{"id":"https://openalex.org/subfields/3616","display_name":"Speech and Hearing"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.12809999287128448,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/children-s-hospitals","display_name":"children's hospitals","score":0.7519999742507935},{"id":"https://openalex.org/keywords/hospital-financial-impact","display_name":"hospital financial impact","score":0.7599999904632568},{"id":"https://openalex.org/keywords/hospitalization","display_name":"hospitalization","score":0.6819999814033508},{"id":"https://openalex.org/keywords/hospital-charges","display_name":"hospital charges","score":0.8220000267028809},{"id":"https://openalex.org/keywords/resource-utilization-health-care","display_name":"resource utilization (health care)","score":0.5849999785423279},{"id":"https://openalex.org/keywords/cystic-fibrosis","display_name":"cystic fibrosis","score":0.8360000252723694},{"id":"https://openalex.org/keywords/cerebral-palsy","display_name":"cerebral palsy","score":0.8180000185966492},{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.7070000171661377},{"id":"https://openalex.org/keywords/congenital-heart-disease","display_name":"congenital heart disease","score":0.9990000128746033},{"id":"https://openalex.org/keywords/transition-to-adult-care","display_name":"transition to adult care","score":0.6050000190734863},{"id":"https://openalex.org/keywords/social-assistance","display_name":"social assistance","score":0.42899999022483826},{"id":"https://openalex.org/keywords/health-care-costs","display_name":"health care costs","score":0.3499999940395355},{"id":"https://openalex.org/keywords/pediatric-health-information-system","display_name":"Pediatric Health Information System","score":0.6520000100135803}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8857623338699341},{"id":"https://openalex.org/C2780084366","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demographics","level":2,"score":0.6362580060958862},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.4766674339771271},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.468995600938797},{"id":"https://openalex.org/C149923435","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demography","level":1,"score":0.44587165117263794},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.384838342666626},{"id":"https://openalex.org/C194828623","wikidata":"https://www.wikidata.org/wiki/Q2861470","display_name":"Emergency medicine","level":1,"score":0.3841440677642822},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000013","descriptor_name":"Congenital Abnormalities","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D000013","descriptor_name":"Congenital Abnormalities","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D003266","descriptor_name":"Continuity of Patient Care","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006776","descriptor_name":"Hospitals, Pediatric","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D006776","descriptor_name":"Hospitals, Pediatric","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017063","descriptor_name":"Outcome Assessment, Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1542/peds.110.3.583","doi":"https://doi.org/10.1542/peds.110.3.583","is_oa":false,"landing_page_url":"https://doi.org/10.1542/peds.110.3.583","pdf_url":null,"source":{"id":"https://openalex.org/S77494981","display_name":"PEDIATRICS","issn_l":"0031-4005","issn":["0031-4005","1098-4275"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","erih-plus","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315734","host_organization_name":"American Academy of Pediatrics","host_organization_lineage":["https://openalex.org/P4310315734"],"host_organization_lineage_names":["American Academy of Pediatrics"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"journal-article"},{"id":"pmid:12205264","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12205264","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatrics","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9940000176429749}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":24,"referenced_works":["https://openalex.org/W143564894","https://openalex.org/W1565177477","https://openalex.org/W1969933106","https://openalex.org/W1972735836","https://openalex.org/W1973274001","https://openalex.org/W1993314559","https://openalex.org/W2008524757","https://openalex.org/W2024787088","https://openalex.org/W2026113826","https://openalex.org/W2041776358","https://openalex.org/W2044650806","https://openalex.org/W2071427434","https://openalex.org/W2083080668","https://openalex.org/W2091296943","https://openalex.org/W2102811155","https://openalex.org/W2137165425","https://openalex.org/W2320807609","https://openalex.org/W2413520705","https://openalex.org/W2418080087","https://openalex.org/W2625828429","https://openalex.org/W3143428552","https://openalex.org/W4231890105","https://openalex.org/W4238352566","https://openalex.org/W4245038090"],"related_works":["https://openalex.org/W4296025752","https://openalex.org/W2130885877","https://openalex.org/W2058632177","https://openalex.org/W4402195177","https://openalex.org/W7100939589","https://openalex.org/W2165514899","https://openalex.org/W1967550078","https://openalex.org/W2013738672","https://openalex.org/W2333147521","https://openalex.org/W4311593627"],"abstract_inverted_index":{"CONTEXT:":[0],"Patients":[1],"now":[2],"live":[3],"well":[4,413],"into":[5],"adulthood":[6],"surviving":[7],"diseases":[8,363],"with":[9,114,264,325,341],"pediatric":[10,32,103,168,365],"onset.":[11,366],"The":[12,219,330,386],"size":[13,140,400],"and":[14,34,83,87,105,126,130,147,166,232,249,274,280,349,404,445],"financial":[15,38,107,131,203,275,428,446],"impact":[16,39,108,204,429],"of":[17,28,40,71,96,99,102,109,154,161,192,202,208,221,252,266,288,297,358,364,372,401,420,425,430,448],"this":[18,402,431,449],"growing":[19,432],"population":[20,374,433],"is":[21,434],"unknown.":[22],"OBJECTIVE:":[23],"To":[24],"describe":[25,215,355],"the":[26,37,58,97,106,134,174,193,225,270,285,370,399,423,427,441],"demographics":[27],"adult":[29,88,92,100,155],"inpatients":[30],"in":[31,124,133,320],"facilities":[33],"to":[35,67,91,141,157,179,214,241,291,307,336,393],"assess":[36],"providing":[41],"care":[42,110,287,319,381],"for":[43,118,183,198,212,398,409],"these":[44],"patients":[45,89,119,181,222,239,289,298,310],"on":[46,277,369],"freestanding":[47],"children's":[48,323,384],"hospitals.":[49],"DESIGN":[50],"AND":[51],"DATA":[52],"SOURCES:":[53],"An":[54],"observational":[55],"study":[56],"using":[57],"Pediatric":[59],"Health":[60,69],"Information":[61],"System,":[62],"a":[63,356,383,395],"proprietary":[64],"database":[65],"available":[66],"Child":[68],"Corporation":[70],"America":[72],"member":[73],"hospitals,":[74,324],"covering":[75],"years":[76,243,293,314],"1994-1999.":[77],"These":[78],"data":[79,132,175,211,387,408],"reflect":[80,158],"inpatient":[81,286,318,380],"services":[82],"exclude":[84,180],"outpatient":[85],"encounters":[86],"transitioned":[90],"providers.":[93],"National":[94],"estimates":[95,419],"number":[98,220],"survivors":[101],"illness":[104],"were":[111,149,196,260,283,339],"calculated.":[112],"Hospitals":[113],">100":[115],"discharge":[116,247],"events":[117],">":[120,261,311],"or":[121,262,312,346],"=age":[122],"21":[123,148,290],"1999,":[125,237],"having":[127],"both":[128],"clinical":[129],"dataset,":[135],"assured":[136],"an":[137,199],"adequate":[138],"sample":[139],"discern":[142],"resource":[143],"utilization.":[144],"Both":[145],"18":[146,240],"used":[150,197,392],"as":[151,229,412,414],"lower":[152,396],"limits":[153],"age":[156,177],"common":[159,167,333],"definitions":[160],"legal":[162],"majority":[163],"(age":[164,170],"18)":[165],"practice":[169],"21).":[171],"We":[172,354,367],"truncated":[173],"at":[176,322,377,382],"64":[178,242,292],"eligible":[182],"Medicare.":[184],"RESULTS:":[185],"Ten":[186],"hospitals":[187],"representing":[188],"all":[189],"geographic":[190],"regions":[191],"United":[194],"States":[195],"in-depth":[200],"analysis":[201],"during":[205],"1999.":[206],"Six":[207],"10":[209],"had":[210],"1994-1999":[213],"trends":[216],"over":[217,224],"time.":[218],"admitted":[223,338],"6-year":[226],"period":[227],"increased,":[228],"did":[230],"average":[231,278],"total":[233,250,272],"adjusted":[234],"charges.":[235],"In":[236],"3863":[238],"old":[244],"incurred":[245],"5051":[246],"episodes":[248],"charges":[251,265,326],"$134.5":[253],"million.":[254,268,329],"Of":[255,269],"these,":[256],"about":[257],"half":[258],"(1785)":[259],"=21":[263,313],"$66":[267],"hospitals'":[271],"discharges":[273],"charges,":[276],"2.1%":[279],"3.1%,":[281],"respectively,":[282],"from":[284,303],"old.":[294],"Forty":[295],"percent":[296],"receive":[299],"public":[300],"aid.":[301],"Extrapolating":[302],"census":[304],"data,":[305],"up":[306],"15":[308],"000":[309],"annually":[315],"may":[316],"seek":[317],"part":[321],"exceeding":[327],"$500":[328],"3":[331],"most":[332],"diagnostic":[334],"groups":[335],"be":[337,391],"those":[340],"cystic":[342],"fibrosis,":[343],"mental":[344],"retardation":[345],"cerebral":[347],"palsy,":[348],"congenital":[350],"heart":[351],"disease.":[352],"CONCLUSIONS:":[353],"subset":[357],"adults":[359],"who":[360],"have":[361],"survived":[362],"focused":[368],"portion":[371],"that":[373,375],"obtains":[376],"least":[378],"some":[379],"hospital.":[385],"reported":[388],"here":[389],"can":[390],"set":[394],"boundary":[397],"population,":[403],"thereby":[405],"provide":[406],"valuable":[407],"health":[410],"planners":[411],"clinicians.":[415],"If":[416],"one":[417],"includes":[418],"expenses":[421],"across":[422],"continuum":[424],"care,":[426],"substantial.":[435],"Public":[436],"policy":[437],"discussions":[438],"should":[439],"include":[440],"medical,":[442],"psychological,":[443],"social,":[444],"needs":[447],"population.":[450]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":1},{"year":2018,"cited_by_count":3},{"year":2017,"cited_by_count":4},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":4},{"year":2013,"cited_by_count":6},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}