{"id":"https://openalex.org/W2081176664","doi":"https://doi.org/10.1007/s11764-011-0173-y","title":"Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study","display_name":"Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study","publication_year":2011,"publication_date":"2011-01-27","ids":{"openalex":"https://openalex.org/W2081176664","doi":"https://doi.org/10.1007/s11764-011-0173-y","mag":"2081176664","pmid":"https://pubmed.ncbi.nlm.nih.gov/21274648","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/3159756"},"language":"en","primary_location":{"id":"doi:10.1007/s11764-011-0173-y","doi":"https://doi.org/10.1007/s11764-011-0173-y","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s11764-011-0173-y","pdf_url":"https://link.springer.com/content/pdf/10.1007/s11764-011-0173-y.pdf","source":{"id":"https://openalex.org/S43800363","display_name":"Journal of Cancer Survivorship","issn_l":"1932-2259","issn":["1932-2259","1932-2267"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cancer Survivorship","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://link.springer.com/content/pdf/10.1007/s11764-011-0173-y.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"the AYA HOPE Study Collaborative Group","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140884","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210140884"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"the AYA HOPE Study Collaborative Group","raw_affiliation_strings":["National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA","institution_ids":["https://openalex.org/I4210140884"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104456793","display_name":"Linda C. Harlan","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I126307644","display_name":"University of Iowa","ror":"https://ror.org/036jqmy94","country_code":"US","type":"education","lineage":["https://openalex.org/I126307644"]},{"id":"https://openalex.org/I4210140884","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210140884"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Linda C. Harlan","raw_affiliation_strings":["National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD 20892-7344, USA. lh50w@nih.gov","Department of Epidemiology, University of Iowa, Iowa City, IA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD 20892-7344, USA. lh50w@nih.gov","institution_ids":["https://openalex.org/I4210140884"]},{"raw_affiliation_string":"Department of Epidemiology, University of Iowa, Iowa City, IA, USA","institution_ids":["https://openalex.org/I126307644"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081108863","display_name":"Charles F. Lynch","orcid":"https://orcid.org/0000-0002-9542-6439","observed_orcids":["https://orcid.org/0000-0002-9542-6439"]},"institutions":[{"id":"https://openalex.org/I126307644","display_name":"University of Iowa","ror":"https://ror.org/036jqmy94","country_code":"US","type":"education","lineage":["https://openalex.org/I126307644"]},{"id":"https://openalex.org/I1321488844","display_name":"Cancer Prevention Institute of California","ror":"https://ror.org/03bx60s49","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1321488844"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Charles F. Lynch","raw_affiliation_strings":["Department of Epidemiology, University of Iowa, Iowa City, IA, USA","Cancer Prevention Institute of California, Fremont, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Epidemiology, University of Iowa, Iowa City, IA, USA","institution_ids":["https://openalex.org/I126307644"]},{"raw_affiliation_string":"Cancer Prevention Institute of California, Fremont, CA, USA","institution_ids":["https://openalex.org/I1321488844"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091575846","display_name":"Theresa H.M. Keegan","orcid":"https://orcid.org/0000-0002-1961-4008","observed_orcids":["https://orcid.org/0000-0002-1961-4008"]},"institutions":[{"id":"https://openalex.org/I1174212","display_name":"University of Southern California","ror":"https://ror.org/03taz7m60","country_code":"US","type":"education","lineage":["https://openalex.org/I1174212"]},{"id":"https://openalex.org/I1321488844","display_name":"Cancer Prevention Institute of California","ror":"https://ror.org/03bx60s49","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1321488844"]},{"id":"https://openalex.org/I4210137306","display_name":"Stanford Medicine","ror":"https://ror.org/03mtd9a03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Theresa H. M. Keegan","raw_affiliation_strings":["Cancer Prevention Institute of California, Fremont, CA, USA","Department of Health Research and Policy, Stanford University School of Medicine, Stanford, CA, USA","Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cancer Prevention Institute of California, Fremont, CA, USA","institution_ids":["https://openalex.org/I1321488844"]},{"raw_affiliation_string":"Department of Health Research and Policy, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"raw_affiliation_string":"Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","institution_ids":["https://openalex.org/I1174212"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090789371","display_name":"Ann S. Hamilton","orcid":"https://orcid.org/0000-0001-5898-2308","observed_orcids":["https://orcid.org/0000-0001-5898-2308"]},"institutions":[{"id":"https://openalex.org/I1174212","display_name":"University of Southern California","ror":"https://ror.org/03taz7m60","country_code":"US","type":"education","lineage":["https://openalex.org/I1174212"]},{"id":"https://openalex.org/I75420490","display_name":"Louisiana State University Health Sciences Center New Orleans","ror":"https://ror.org/01qv8fp92","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I121820613","https://openalex.org/I75420490"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ann S. Hamilton","raw_affiliation_strings":["Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","Epidemiology Program/Louisiana Tumor Registry, School of Public Health, Louisiana State University Health Sciences Center, New Orleans, LA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","institution_ids":["https://openalex.org/I1174212"]},{"raw_affiliation_string":"Epidemiology Program/Louisiana Tumor Registry, School of Public Health, Louisiana State University Health Sciences Center, New Orleans, LA, USA","institution_ids":["https://openalex.org/I75420490"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075691677","display_name":"Xiao\u2010Cheng Wu","orcid":"https://orcid.org/0000-0003-3663-5027","observed_orcids":["https://orcid.org/0000-0003-3663-5027"]},"institutions":[{"id":"https://openalex.org/I185443292","display_name":"Wayne State University","ror":"https://ror.org/01070mq45","country_code":"US","type":"education","lineage":["https://openalex.org/I185443292"]},{"id":"https://openalex.org/I4210090317","display_name":"The Barbara Ann Karmanos Cancer Institute","ror":"https://ror.org/00ee40h97","country_code":"US","type":"facility","lineage":["https://openalex.org/I2800590384","https://openalex.org/I4210090317"]},{"id":"https://openalex.org/I75420490","display_name":"Louisiana State University Health Sciences Center New Orleans","ror":"https://ror.org/01qv8fp92","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I121820613","https://openalex.org/I75420490"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Xiao-Cheng Wu","raw_affiliation_strings":["Epidemiology Program/Louisiana Tumor Registry, School of Public Health, Louisiana State University Health Sciences Center, New Orleans, LA, USA","Karmanos Cancer Institute and Department of Pathology, Wayne State University School of Medicine, Detroit, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Epidemiology Program/Louisiana Tumor Registry, School of Public Health, Louisiana State University Health Sciences Center, New Orleans, LA, USA","institution_ids":["https://openalex.org/I75420490"]},{"raw_affiliation_string":"Karmanos Cancer Institute and Department of Pathology, Wayne State University School of Medicine, Detroit, MI, USA","institution_ids":["https://openalex.org/I185443292","https://openalex.org/I4210090317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075644145","display_name":"Ikuko Kato","orcid":"https://orcid.org/0000-0001-7489-8632","observed_orcids":["https://orcid.org/0000-0001-7489-8632"]},"institutions":[{"id":"https://openalex.org/I126307644","display_name":"University of Iowa","ror":"https://ror.org/036jqmy94","country_code":"US","type":"education","lineage":["https://openalex.org/I126307644"]},{"id":"https://openalex.org/I185443292","display_name":"Wayne State University","ror":"https://ror.org/01070mq45","country_code":"US","type":"education","lineage":["https://openalex.org/I185443292"]},{"id":"https://openalex.org/I4210090317","display_name":"The Barbara Ann Karmanos Cancer Institute","ror":"https://ror.org/00ee40h97","country_code":"US","type":"facility","lineage":["https://openalex.org/I2800590384","https://openalex.org/I4210090317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ikuko Kato","raw_affiliation_strings":["Karmanos Cancer Institute and Department of Pathology, Wayne State University School of Medicine, Detroit, MI, USA","Department of Epidemiology, University of Iowa, Iowa City, IA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Karmanos Cancer Institute and Department of Pathology, Wayne State University School of Medicine, Detroit, MI, USA","institution_ids":["https://openalex.org/I185443292","https://openalex.org/I4210090317"]},{"raw_affiliation_string":"Department of Epidemiology, University of Iowa, Iowa City, IA, USA","institution_ids":["https://openalex.org/I126307644"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104278440","display_name":"Michele M. West","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I126307644","display_name":"University of Iowa","ror":"https://ror.org/036jqmy94","country_code":"US","type":"education","lineage":["https://openalex.org/I126307644"]},{"id":"https://openalex.org/I84218800","display_name":"University of California, Davis","ror":"https://ror.org/05rrcem69","country_code":"US","type":"education","lineage":["https://openalex.org/I84218800"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Michele M. West","raw_affiliation_strings":["Department of Epidemiology, University of Iowa, Iowa City, IA, USA","Department of Public Health Sciences, UC Davis School of Medicine, Davis, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Epidemiology, University of Iowa, Iowa City, IA, USA","institution_ids":["https://openalex.org/I126307644"]},{"raw_affiliation_string":"Department of Public Health Sciences, UC Davis School of Medicine, Davis, CA, USA","institution_ids":["https://openalex.org/I84218800"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055181826","display_name":"Rosemary Donaldson Cress","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210089486","display_name":"Fred Hutch Cancer Center","ror":"https://ror.org/007ps6h72","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210089486"]},{"id":"https://openalex.org/I4210111905","display_name":"Public Health Institute","ror":"https://ror.org/019621n74","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210111905"]},{"id":"https://openalex.org/I84218800","display_name":"University of California, Davis","ror":"https://ror.org/05rrcem69","country_code":"US","type":"education","lineage":["https://openalex.org/I84218800"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Rosemary D. Cress","raw_affiliation_strings":["Department of Public Health Sciences, UC Davis School of Medicine, Davis, CA, USA","Public Health Institute/California Cancer Registry, Sacramento, CA, USA","Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health Sciences, UC Davis School of Medicine, Davis, CA, USA","institution_ids":["https://openalex.org/I84218800"]},{"raw_affiliation_string":"Public Health Institute/California Cancer Registry, Sacramento, CA, USA","institution_ids":["https://openalex.org/I4210111905"]},{"raw_affiliation_string":"Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA","institution_ids":["https://openalex.org/I4210089486"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Stephen M. Schwartz","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210089486","display_name":"Fred Hutch Cancer Center","ror":"https://ror.org/007ps6h72","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210089486"]},{"id":"https://openalex.org/I4210140884","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210140884"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Stephen M. Schwartz","raw_affiliation_strings":["Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA","National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA","institution_ids":["https://openalex.org/I4210089486"]},{"raw_affiliation_string":"National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA","institution_ids":["https://openalex.org/I4210140884"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020538297","display_name":"Ashley Wilder Smith","orcid":"https://orcid.org/0000-0001-9674-5717","observed_orcids":["https://orcid.org/0000-0001-9674-5717"]},"institutions":[{"id":"https://openalex.org/I1174212","display_name":"University of Southern California","ror":"https://ror.org/03taz7m60","country_code":"US","type":"education","lineage":["https://openalex.org/I1174212"]},{"id":"https://openalex.org/I4210140884","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210140884"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ashley W. Smith","raw_affiliation_strings":["National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA","Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"National Cancer Institute, 6130 Executive Blvd, MSC 7344, Bethesda, MD, 20892-7344, USA","institution_ids":["https://openalex.org/I4210140884"]},{"raw_affiliation_string":"Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","institution_ids":["https://openalex.org/I1174212"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043249159","display_name":"Dennis Deapen","orcid":"https://orcid.org/0000-0002-0037-0277","observed_orcids":["https://orcid.org/0000-0002-0037-0277"]},"institutions":[{"id":"https://openalex.org/I1174212","display_name":"University of Southern California","ror":"https://ror.org/03taz7m60","country_code":"US","type":"education","lineage":["https://openalex.org/I1174212"]},{"id":"https://openalex.org/I927589877","display_name":"Kelly Services (United States)","ror":"https://ror.org/00xwgwv92","country_code":"US","type":"company","lineage":["https://openalex.org/I927589877"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dennis Deapen","raw_affiliation_strings":["Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","Kelly Services, Scientific Resources, 6101 Executive Boulevard, Suite 392, Rockville, MD, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA","institution_ids":["https://openalex.org/I1174212"]},{"raw_affiliation_string":"Kelly Services, Scientific Resources, 6101 Executive Boulevard, Suite 392, Rockville, MD, USA","institution_ids":["https://openalex.org/I927589877"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5051309538","display_name":"Sonja M. Stringer","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]},{"id":"https://openalex.org/I4390039356","display_name":"Georgetown Lombardi Comprehensive Cancer Center","ror":"https://ror.org/035zrb927","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I184565670","https://openalex.org/I4390039356"]},{"id":"https://openalex.org/I927589877","display_name":"Kelly Services (United States)","ror":"https://ror.org/00xwgwv92","country_code":"US","type":"company","lineage":["https://openalex.org/I927589877"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sonja M. Stringer","raw_affiliation_strings":["Kelly Services, Scientific Resources, 6101 Executive Boulevard, Suite 392, Rockville, MD, USA","Lombardi Comprehensive Cancer Center, Georgetown University, Washington, DC, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Kelly Services, Scientific Resources, 6101 Executive Boulevard, Suite 392, Rockville, MD, USA","institution_ids":["https://openalex.org/I927589877"]},{"raw_affiliation_string":"Lombardi Comprehensive Cancer Center, Georgetown University, Washington, DC, USA","institution_ids":["https://openalex.org/I184565670","https://openalex.org/I4390039356"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5046800754","display_name":"Arnold L. Potosky","orcid":"https://orcid.org/0000-0001-8087-6667","observed_orcids":["https://orcid.org/0000-0001-8087-6667"]},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]},{"id":"https://openalex.org/I4390039356","display_name":"Georgetown Lombardi Comprehensive Cancer Center","ror":"https://ror.org/035zrb927","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I184565670","https://openalex.org/I4390039356"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Arnold L. Potosky","raw_affiliation_strings":["Lombardi Comprehensive Cancer Center, Georgetown University, Washington, DC, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lombardi Comprehensive Cancer Center, Georgetown University, Washington, DC, USA","institution_ids":["https://openalex.org/I184565670","https://openalex.org/I4390039356"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":15,"corresponding_author_ids":["https://openalex.org/A5104456793"],"corresponding_institution_ids":["https://openalex.org/I126307644","https://openalex.org/I4210140884"],"apc_list":{"value":4790,"currency":"USD","value_usd":4790},"apc_paid":{"value":4790,"currency":"USD","value_usd":4790},"fwci":9.4261,"has_fulltext":true,"cited_by_count":163,"citation_normalized_percentile":{"value":0.98432386,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":"5","issue":"3","first_page":"305","last_page":"314"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9502000212669373,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9502000212669373,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.018200000748038292,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.013199999928474426,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/adolescent-and-young-adult-cancer-survivors","display_name":"adolescent and young adult cancer survivors","score":0.9750000238418579},{"id":"https://openalex.org/keywords/research-recruitment","display_name":"research recruitment","score":0.6330000162124634},{"id":"https://openalex.org/keywords/response-rate","display_name":"response rate","score":0.5730000138282776},{"id":"https://openalex.org/keywords/population-based-cohort-study","display_name":"population-based cohort","score":0.4390000104904175},{"id":"https://openalex.org/keywords/cancer-registry","display_name":"cancer registry","score":0.8769999742507935},{"id":"https://openalex.org/keywords/seer","display_name":"SEER","score":0.8349999785423279},{"id":"https://openalex.org/keywords/survey-follow-up","display_name":"survey follow-up","score":0.5609999895095825},{"id":"https://openalex.org/keywords/barriers-to-research-participation","display_name":"barriers to research participation","score":0.531000018119812},{"id":"https://openalex.org/keywords/racial-and-ethnic-disparities","display_name":"racial and ethnic disparities","score":0.5379999876022339},{"id":"https://openalex.org/keywords/acute-lymphoblastic-leukemia","display_name":"acute lymphoblastic leukemia","score":0.8539999723434448},{"id":"https://openalex.org/keywords/hodgkin-lymphoma","display_name":"Hodgkin's disease","score":0.9819999933242798},{"id":"https://openalex.org/keywords/non-hodgkin-lymphoma","display_name":"non-Hodgkin lymphoma","score":0.9980000257492065},{"id":"https://openalex.org/keywords/germ-cell-tumors","display_name":"germ cell tumors","score":0.9610000252723694},{"id":"https://openalex.org/keywords/sarcoma","display_name":"sarcoma","score":0.7929999828338623}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9022088050842285},{"id":"https://openalex.org/C107130276","wikidata":"https://www.wikidata.org/wiki/Q133805","display_name":"Epidemiology","level":2,"score":0.6092036366462708},{"id":"https://openalex.org/C205545832","wikidata":"https://www.wikidata.org/wiki/Q17156455","display_name":"Young adult","level":2,"score":0.600709080696106},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5591628551483154},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.49712541699409485},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.4831966161727905},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.4521234333515167},{"id":"https://openalex.org/C172400760","wikidata":"https://www.wikidata.org/wiki/Q332796","display_name":"Survivorship curve","level":3,"score":0.4124862551689148},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3860071301460266},{"id":"https://openalex.org/C149923435","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demography","level":1,"score":0.349911630153656},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.2070252001285553},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.19949251413345337},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.11428642272949219},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000465","descriptor_name":"Algorithms","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003266","descriptor_name":"Continuity of Patient Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005500","descriptor_name":"Follow-Up Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000401","qualifier_name":"mortality","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000534","qualifier_name":"rehabilitation","is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011584","descriptor_name":"Psychology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D018426","descriptor_name":"SEER Program","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018579","descriptor_name":"Patient Selection","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":6,"locations":[{"id":"doi:10.1007/s11764-011-0173-y","doi":"https://doi.org/10.1007/s11764-011-0173-y","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s11764-011-0173-y","pdf_url":"https://link.springer.com/content/pdf/10.1007/s11764-011-0173-y.pdf","source":{"id":"https://openalex.org/S43800363","display_name":"Journal of Cancer Survivorship","issn_l":"1932-2259","issn":["1932-2259","1932-2267"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cancer Survivorship","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:3159756","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3159756","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"J Cancer Surviv","raw_type":"Text"},{"id":"pmid:21274648","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21274648","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of cancer survivorship : research and practice","raw_type":"Journal Article"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.289.8094","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.289.8094","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ftp://ftp.ncbi.nlm.nih.gov/pub/pmc/45/86/J_Cancer_Surviv_2011_Sep_28_5(3)_305-314.tar.gz","raw_type":"text"},{"id":"pmh:oai:escholarship.org/ark:/13030/qt7jg6n6qt","doi":null,"is_oa":false,"landing_page_url":"https://escholarship.org/uc/item/7jg6n6qt","pdf_url":null,"source":{"id":"https://openalex.org/S4306400115","display_name":"eScholarship (California Digital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2801248553","host_organization_name":"California Digital Library","host_organization_lineage":["https://openalex.org/I2801248553"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of cancer survivorship : research and practice, vol 5, iss 3","raw_type":"article"},{"id":"pmh:oai:escholarship.org:ark:/13030/qt7jg6n6qt","doi":null,"is_oa":true,"landing_page_url":"https://escholarship.org/uc/item/7jg6n6qt","pdf_url":null,"source":{"id":"https://openalex.org/S4306400115","display_name":"eScholarship (California Digital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2801248553","host_organization_name":"California Digital Library","host_organization_lineage":["https://openalex.org/I2801248553"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of Cancer Survivorship, vol 5, iss 3","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1007/s11764-011-0173-y","doi":"https://doi.org/10.1007/s11764-011-0173-y","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s11764-011-0173-y","pdf_url":"https://link.springer.com/content/pdf/10.1007/s11764-011-0173-y.pdf","source":{"id":"https://openalex.org/S43800363","display_name":"Journal of Cancer Survivorship","issn_l":"1932-2259","issn":["1932-2259","1932-2267"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cancer Survivorship","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2081176664.pdf","grobid_xml":"https://content.openalex.org/works/W2081176664.grobid-xml"},"referenced_works_count":17,"referenced_works":["https://openalex.org/W69611060","https://openalex.org/W1965444055","https://openalex.org/W1987263246","https://openalex.org/W2001485240","https://openalex.org/W2011658050","https://openalex.org/W2016648625","https://openalex.org/W2027813801","https://openalex.org/W2038109956","https://openalex.org/W2040838599","https://openalex.org/W2041227572","https://openalex.org/W2041344443","https://openalex.org/W2092736117","https://openalex.org/W2135607230","https://openalex.org/W2138316434","https://openalex.org/W2161600701","https://openalex.org/W2411446454","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W7095878430","https://openalex.org/W4289110780","https://openalex.org/W4400282388","https://openalex.org/W2616321364","https://openalex.org/W4387369279","https://openalex.org/W1634767790","https://openalex.org/W2214055178","https://openalex.org/W2892142083","https://openalex.org/W2897416913","https://openalex.org/W7073532789"],"abstract_inverted_index":{"INTRODUCTION:":[0],"Cancer":[1],"is":[2,32,248],"rare":[3],"in":[4,17,19,28,62,245],"adolescents":[5],"and":[6,56,64,91,103,108,123,157,179],"young":[7],"adults":[8],"(AYA),":[9],"but":[10,250],"these":[11],"patients":[12,119],"have":[13],"seen":[14],"little":[15],"improvement":[16],"survival":[18],"contrast":[20],"to":[21,39,51,127,161,188],"most":[22,134],"other":[23],"age":[24,65],"groups.":[25],"Furthermore,":[26],"participation":[27],"research":[29,231],"by":[30,87],"AYAs":[31],"typically":[33],"low.":[34],"We":[35],"conducted":[36],"a":[37,45,105,150,241],"study":[38,218],"examine":[40,52],"the":[41,68,117,142,162,166,194,198,203,211],"feasibility":[42],"of":[43,48,54,70,116,139,165,191,213],"recruiting":[44],"population-based":[46,230],"sample":[47],"AYA":[49,214,233],"survivors":[50,192],"issues":[53],"treatment":[55],"health":[57],"outcomes.":[58],"METHODS:":[59],"Individuals":[60],"diagnosed":[61],"2007-08":[63],"15-39":[66],"at":[67],"time":[69],"diagnosis":[71,102,160],"with":[72,171],"acute":[73],"lymphocytic":[74],"leukemia,":[75],"Hodgkin":[76],"lymphoma,":[77,79],"non-Hodgkin":[78],"germ":[80],"cell":[81],"cancer":[82,94,154,215,221,234],"or":[83],"sarcoma":[84],"were":[85,125,131,168,185],"identified":[86],"7":[88],"Surveillance,":[89],"Epidemiology,":[90],"End-Results":[92],"(SEER)":[93],"registries,":[95],"mailed":[96],"surveys":[97],"within":[98],"14":[99],"months":[100,158],"after":[101],"again":[104],"year":[106],"later,":[107],"had":[109],"medical":[110],"records":[111],"reviewed.":[112],"RESULTS:":[113],"525":[114],"(43%)":[115],"eligible":[118],"responded,":[120],"39%":[121],"refused":[122],"17%":[124],"lost":[126],"follow-up.":[128],"Extensive":[129],"efforts":[130],"required":[132],"for":[133,226],"potential":[135],"respondents":[136,140],"(87%).":[137],"76%":[138],"completed":[141,197],"paper":[143],"rather":[144],"than":[145],"online":[146],"survey":[147,167,196],"version.":[148],"In":[149],"multivariate":[151],"model,":[152],"age,":[153],"site,":[155],"education":[156],"from":[159],"first":[163],"mailing":[164],"not":[169],"associated":[170],"participation,":[172],"although":[173],"males":[174],"(p":[175,182],"<":[176,183],"0.01),":[177],"Hispanics":[178],"non-Hispanic":[180],"blacks":[181],"0.001)":[184],"less":[186],"likely":[187],"participate.":[189],"91%":[190],"completing":[193],"initial":[195],"subsequent":[199],"survey.":[200],"DISCUSSION:":[201],"Despite":[202],"response":[204,243],"rate,":[205],"those":[206],"who":[207],"participated":[208],"adequately":[209],"reflected":[210],"population":[212,247],"survivors.":[216,235],"The":[217],"demonstrates":[219],"that":[220],"registries":[222],"are":[223],"valuable":[224],"foundations":[225],"conducting":[227],"observational,":[228],"longitudinal":[229],"on":[232],"IMPLICATIONS":[236],"FOR":[237],"CANCER":[238],"SURVIVORS:":[239],"Achieving":[240],"reasonable":[242],"rate":[244],"this":[246],"possible,":[249],"requires":[251],"extensive":[252],"resources.":[253]},"counts_by_year":[{"year":2026,"cited_by_count":5},{"year":2025,"cited_by_count":9},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":9},{"year":2022,"cited_by_count":12},{"year":2021,"cited_by_count":11},{"year":2020,"cited_by_count":10},{"year":2019,"cited_by_count":18},{"year":2018,"cited_by_count":10},{"year":2017,"cited_by_count":15},{"year":2016,"cited_by_count":17},{"year":2015,"cited_by_count":10},{"year":2014,"cited_by_count":12},{"year":2013,"cited_by_count":10},{"year":2012,"cited_by_count":8}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}