{"id":"https://openalex.org/W2065979293","doi":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","title":"The Role of Caregivers after a Stillbirth: Views and Experiences of Parents","display_name":"The Role of Caregivers after a Stillbirth: Views and Experiences of Parents","publication_year":2004,"publication_date":"2004-05-21","ids":{"openalex":"https://openalex.org/W2065979293","doi":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","mag":"2065979293","pmid":"https://pubmed.ncbi.nlm.nih.gov/15153133"},"language":"en","primary_location":{"id":"doi:10.1111/j.0730-7659.2004.00291.x","doi":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","pdf_url":null,"source":{"id":"https://openalex.org/S179726395","display_name":"Birth","issn_l":"0730-7659","issn":["0730-7659","1523-536X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5071070685","display_name":"Karin S\u00e4flund","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1335113835","display_name":"Karolinska University Hospital","ror":"https://ror.org/00m8d6786","country_code":"SE","type":"healthcare","lineage":["https://openalex.org/I1335113835"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Karin S\u00e4flund","raw_affiliation_strings":["Division of Nursing Research, Borgm\u00e4starvillan, Karolinska Hospital, S-171 76 Stockholm, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Nursing Research, Borgm\u00e4starvillan, Karolinska Hospital, S-171 76 Stockholm, Sweden","institution_ids":["https://openalex.org/I1335113835"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5080887685","display_name":"Berit Sj\u00f6gren","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Berit Sj\u00f6gren","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5051012045","display_name":"Regina Wredling","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Regina Wredling","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":4850,"currency":"USD","value_usd":4850},"apc_paid":null,"fwci":3.5997,"has_fulltext":false,"cited_by_count":121,"citation_normalized_percentile":{"value":0.91949917,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"31","issue":"2","first_page":"132","last_page":"137"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.9848999977111816,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.9848999977111816,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10209","display_name":"Global Maternal and Child Health","score":0.006399999838322401,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11060","display_name":"Infant Development and Preterm Care","score":0.002099999925121665,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/stillbirth","display_name":"stillbirth","score":1.0},{"id":"https://openalex.org/keywords/caregiver-role","display_name":"caregiver role","score":0.6809999942779541},{"id":"https://openalex.org/keywords/parental-experiences","display_name":"parental experiences","score":0.628000020980835},{"id":"https://openalex.org/keywords/bereavement-support","display_name":"bereavement support","score":0.7580000162124634},{"id":"https://openalex.org/keywords/grief","display_name":"grief","score":0.6899999976158142},{"id":"https://openalex.org/keywords/hospital-care-organization","display_name":"hospital care organization","score":0.7450000047683716}],"concepts":[{"id":"https://openalex.org/C2778447849","wikidata":"https://www.wikidata.org/wiki/Q2648051","display_name":"Obligation","level":2,"score":0.7732923030853271},{"id":"https://openalex.org/C2780837026","wikidata":"https://www.wikidata.org/wiki/Q1026040","display_name":"Grief","level":2,"score":0.7236288785934448},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5490090250968933},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5139057636260986},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.49378976225852966},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.46636781096458435},{"id":"https://openalex.org/C3018916638","wikidata":"https://www.wikidata.org/wiki/Q752118","display_name":"Emotional support","level":3,"score":0.45270344614982605},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4468730390071869},{"id":"https://openalex.org/C51575053","wikidata":"https://www.wikidata.org/wiki/Q72468","display_name":"Bureaucracy","level":3,"score":0.42936277389526367},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3356117308139801},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.31792527437210083},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.22479265928268433},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.17898306250572205},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C94625758","wikidata":"https://www.wikidata.org/wiki/Q7163","display_name":"Politics","level":2,"score":0.0},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000739","descriptor_name":"Anecdotes as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001601","descriptor_name":"Bereavement","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005313","descriptor_name":"Fetal Death","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011256","descriptor_name":"Pregnancy Outcome","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013548","descriptor_name":"Sweden","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013997","descriptor_name":"Time Factors","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1111/j.0730-7659.2004.00291.x","doi":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.0730-7659.2004.00291.x","pdf_url":null,"source":{"id":"https://openalex.org/S179726395","display_name":"Birth","issn_l":"0730-7659","issn":["0730-7659","1523-536X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth","raw_type":"journal-article"},{"id":"pmid:15153133","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15153133","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth (Berkeley, Calif.)","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.8048999905586243,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":13,"referenced_works":["https://openalex.org/W94462664","https://openalex.org/W233129002","https://openalex.org/W1573406423","https://openalex.org/W1976802184","https://openalex.org/W1979664827","https://openalex.org/W1988198903","https://openalex.org/W2113524576","https://openalex.org/W2114948736","https://openalex.org/W2132859762","https://openalex.org/W2146544746","https://openalex.org/W2398168005","https://openalex.org/W2999453631","https://openalex.org/W3023670350"],"related_works":["https://openalex.org/W1523827248","https://openalex.org/W2316092631","https://openalex.org/W2273692205","https://openalex.org/W2743705117","https://openalex.org/W4406813454","https://openalex.org/W7127644952","https://openalex.org/W4282939033","https://openalex.org/W2739940423","https://openalex.org/W2132126920","https://openalex.org/W2952536435"],"abstract_inverted_index":{"BACKGROUND:":[0],"The":[1,20,60,98,110],"clinical":[2,195],"role":[3],"of":[4,12,22,43,57,77,91,132,135,142],"the":[5,10,29,35,72,78,108,115,122,128,133,136,140,147,155,165,184,188],"caregiver":[6],"to":[7,17,26,153,163,170],"parents":[8,42,88,99,162,206],"in":[9,89,102,119,121,130,194],"event":[11],"a":[13,55,66,210],"stillbirth":[14,79],"has":[15],"yet":[16],"be":[18,192],"defined.":[19],"aim":[21],"this":[23],"paper":[24],"was":[25,63],"focus":[27],"on":[28],"caregivers'":[30,73],"support":[31,87],"as":[32,80],"revealed":[33],"by":[34,187],"parents'":[36],"experiences.":[37],"METHOD:":[38],"One":[39],"or":[40,48],"both":[41,103],"31":[44],"stillborn":[45],"infants":[46],"(>":[47],"=28":[49],"weeks)":[50],"were":[51,117],"interviewed":[52],"twice,":[53],"for":[54,161,204],"total":[56],"57":[58],"interviews.":[59],"data":[61],"analysis":[62],"conducted":[64],"using":[65],"qualitative":[67],"approach.":[68],"RESULTS:":[69],"Parents":[70],"identified":[71,186],"behavior":[74],"and":[75,93,105,125,138,157,169,175,197,202],"handling":[76],"important.":[81],"Findings":[82,144],"showed":[83],"that":[84,113,146,183],"caregivers":[85,167],"should":[86,191],"moments":[90],"chaos":[92],"at":[94],"other":[95],"difficult":[96],"times.":[97],"needed":[100],"assistance":[101],"facing":[104],"separating":[106],"from":[107,127],"baby.":[109],"six":[111],"\"qualities\"":[112,185],"summarized":[114],"findings":[116,190],"\"support":[118],"chaos,\"\"support":[120],"meeting":[123],"with":[124],"separation":[126],"baby,\"\"support":[129],"bereavement,\"\"explanation":[131],"stillbirth,\"\"organization":[134],"care,\"":[137],"\"understanding":[139],"nature":[141],"grief.\"":[143],"indicate":[145],"hospital":[148],"is":[149],"under":[150],"an":[151],"obligation":[152],"organize":[154],"care":[156],"make":[158],"it":[159],"possible":[160],"see":[164],"same":[166],"again,":[168],"offer":[171],"extra":[172],"ultrasound":[173],"investigations":[174],"checkups":[176],"without":[177],"unnecessary":[178],"bureaucracy.":[179],"CONCLUSION:":[180],"We":[181],"suggest":[182],"study":[189],"implemented":[193],"care,":[196],"could":[198],"facilitate":[199],"active":[200],"guidance":[201],"counseling":[203],"bereaved":[205],"who":[207],"have":[208],"experienced":[209],"stillbirth.":[211]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":4},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":3},{"year":2019,"cited_by_count":6},{"year":2018,"cited_by_count":7},{"year":2017,"cited_by_count":8},{"year":2016,"cited_by_count":8},{"year":2015,"cited_by_count":10},{"year":2014,"cited_by_count":8},{"year":2013,"cited_by_count":8},{"year":2012,"cited_by_count":7}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}