{"id":"https://openalex.org/W2065735871","doi":"https://doi.org/10.1089/10966210360510082","title":"Issues in End-of-Life Care: Patient, Caregiver, and Clinician Perceptions","display_name":"Issues in End-of-Life Care: Patient, Caregiver, and Clinician Perceptions","publication_year":2003,"publication_date":"2003-02-01","ids":{"openalex":"https://openalex.org/W2065735871","doi":"https://doi.org/10.1089/10966210360510082","mag":"2065735871","pmid":"https://pubmed.ncbi.nlm.nih.gov/12710572"},"language":"en","primary_location":{"id":"doi:10.1089/10966210360510082","doi":"https://doi.org/10.1089/10966210360510082","is_oa":false,"landing_page_url":"https://doi.org/10.1089/10966210360510082","pdf_url":null,"source":{"id":"https://openalex.org/S155536936","display_name":"Journal of Palliative Medicine","issn_l":"1096-6218","issn":["1096-6218","1557-7740"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320443","host_organization_name":"Mary Ann Liebert, Inc.","host_organization_lineage":["https://openalex.org/P4310320443","https://openalex.org/P4310320017"],"host_organization_lineage_names":["Mary Ann Liebert, Inc.","SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Palliative Medicine","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5086860929","display_name":"Stuart J. Farber","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]},{"id":"https://openalex.org/I4210150356","display_name":"University of Washington Tacoma","ror":"https://ror.org/05n8t2628","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701","https://openalex.org/I4210150356"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Stuart J. Farber","raw_affiliation_strings":["Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington; Tacoma Family Medicine, Tacoma, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington; Tacoma Family Medicine, Tacoma, Washington","institution_ids":["https://openalex.org/I201448701","https://openalex.org/I4210150356"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5087801004","display_name":"Thomas R. Egnew","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]},{"id":"https://openalex.org/I4210150356","display_name":"University of Washington Tacoma","ror":"https://ror.org/05n8t2628","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701","https://openalex.org/I4210150356"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Thomas R. Egnew","raw_affiliation_strings":["Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington; Tacoma Family Medicine, Tacoma, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington; Tacoma Family Medicine, Tacoma, Washington","institution_ids":["https://openalex.org/I201448701","https://openalex.org/I4210150356"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058229285","display_name":"Janet L. Herman-Bertsch","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Janet L. Herman-Bertsch","raw_affiliation_strings":["Tacoma Family Medicine, Tacoma, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Tacoma Family Medicine, Tacoma, Washington","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046648419","display_name":"Thomas R. Taylor","orcid":"https://orcid.org/0000-0001-7906-790X","observed_orcids":["https://orcid.org/0000-0001-7906-790X"]},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Thomas R. Taylor","raw_affiliation_strings":["Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Family Medicine, University of Washington, School of Medicine, Seattle, Washington","institution_ids":["https://openalex.org/I201448701"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5111807044","display_name":"Gregory Eliyu Guldin","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I60065076","display_name":"Pacific Lutheran University","ror":"https://ror.org/01vh5nd96","country_code":"US","type":"education","lineage":["https://openalex.org/I60065076"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Gregory E. Guldin","raw_affiliation_strings":["Department of Anthropology, Pacific Lutheran University, Tacoma, Washington"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anthropology, Pacific Lutheran University, Tacoma, Washington","institution_ids":["https://openalex.org/I60065076"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":6.3492,"has_fulltext":false,"cited_by_count":113,"citation_normalized_percentile":{"value":0.96309644,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":99},"biblio":{"volume":"6","issue":"1","first_page":"19","last_page":"31"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.0010999999940395355,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14208","display_name":"Death, Funerary Practices, and Mourning","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3314","display_name":"Anthropology"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":1.0},{"id":"https://openalex.org/keywords/patient-perspectives","display_name":"patient perspectives","score":0.9269999861717224},{"id":"https://openalex.org/keywords/caregiver-perceptions","display_name":"caregiver perceptions","score":0.9819999933242798},{"id":"https://openalex.org/keywords/physicians-perceptions","display_name":"physician perceptions","score":0.8220000267028809},{"id":"https://openalex.org/keywords/family-medicine-residency","display_name":"family medicine residency","score":0.5590000152587891},{"id":"https://openalex.org/keywords/physician-patient-relationship","display_name":"physician-patient relationship","score":0.7559999823570251},{"id":"https://openalex.org/keywords/clinician-expectations","display_name":"clinician expectations","score":0.5799999833106995},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.7670000195503235}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7480423450469971},{"id":"https://openalex.org/C2776135927","wikidata":"https://www.wikidata.org/wiki/Q5242559","display_name":"Referral","level":2,"score":0.6065160036087036},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.5270338654518127},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5207883715629578},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5162181854248047},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.5145999193191528},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.5110408067703247},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.49264436960220337},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.45795994997024536},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.42126885056495667},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.18742847442626953},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.12635740637779236},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001291","descriptor_name":"Attitude of Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001293","descriptor_name":"Attitude to Death","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007398","descriptor_name":"Interpersonal Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010821","descriptor_name":"Physicians, Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011787","descriptor_name":"Quality of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D014861","descriptor_name":"Washington","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015331","descriptor_name":"Cohort Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1089/10966210360510082","doi":"https://doi.org/10.1089/10966210360510082","is_oa":false,"landing_page_url":"https://doi.org/10.1089/10966210360510082","pdf_url":null,"source":{"id":"https://openalex.org/S155536936","display_name":"Journal of Palliative Medicine","issn_l":"1096-6218","issn":["1096-6218","1557-7740"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320443","host_organization_name":"Mary Ann Liebert, Inc.","host_organization_lineage":["https://openalex.org/P4310320443","https://openalex.org/P4310320017"],"host_organization_lineage_names":["Mary Ann Liebert, Inc.","SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Palliative Medicine","raw_type":"journal-article"},{"id":"pmid:12710572","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/12710572","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of palliative medicine","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9537000060081482,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":50,"referenced_works":["https://openalex.org/W57765325","https://openalex.org/W91012177","https://openalex.org/W164942178","https://openalex.org/W207018284","https://openalex.org/W370743743","https://openalex.org/W581322114","https://openalex.org/W1041332842","https://openalex.org/W1483493329","https://openalex.org/W1495403436","https://openalex.org/W1515587369","https://openalex.org/W1573081283","https://openalex.org/W1593512270","https://openalex.org/W1770088013","https://openalex.org/W1966190738","https://openalex.org/W1969851545","https://openalex.org/W1985114007","https://openalex.org/W1987864212","https://openalex.org/W1989740481","https://openalex.org/W2005464225","https://openalex.org/W2019130175","https://openalex.org/W2024819315","https://openalex.org/W2026469653","https://openalex.org/W2030991164","https://openalex.org/W2033578133","https://openalex.org/W2034822086","https://openalex.org/W2039388042","https://openalex.org/W2049689046","https://openalex.org/W2049920942","https://openalex.org/W2052377766","https://openalex.org/W2056574026","https://openalex.org/W2067517055","https://openalex.org/W2070504353","https://openalex.org/W2072267443","https://openalex.org/W2079984806","https://openalex.org/W2081439080","https://openalex.org/W2085606175","https://openalex.org/W2094431543","https://openalex.org/W2112737303","https://openalex.org/W2140759036","https://openalex.org/W2141837994","https://openalex.org/W2142727153","https://openalex.org/W2165078174","https://openalex.org/W2278005282","https://openalex.org/W2332160205","https://openalex.org/W2410540472","https://openalex.org/W2411919747","https://openalex.org/W2414364787","https://openalex.org/W2563618576","https://openalex.org/W2905821330","https://openalex.org/W3022268865"],"related_works":["https://openalex.org/W2043163103","https://openalex.org/W1530315629","https://openalex.org/W42849928","https://openalex.org/W2998074289","https://openalex.org/W4304204861","https://openalex.org/W2411919747","https://openalex.org/W7203829550","https://openalex.org/W2115703969","https://openalex.org/W4411195078","https://openalex.org/W2625167586"],"abstract_inverted_index":{"CONTEXT:":[0],"Review":[1],"of":[2,28,50,71,97,100,104,107,130,146,161,165,204],"published":[3,132],"research":[4,22,34],"indicates":[5],"the":[6,48,91,98,176,182],"need":[7],"to":[8,158,174,193,197,224],"better":[9,234],"incorporate":[10],"patient":[11,24,207],"and":[12,25,39,53,76,87,112,181,196,208,212,214,227,231],"caregiver":[13,26,209],"perceptions":[14,49],"when":[15],"providing":[16],"end-of-life":[17],"(EOL)":[18],"care.":[19,237],"Although":[20],"considerable":[21],"regarding":[23],"experience":[27,160],"EOL":[29,64,116,149,162,210,236],"has":[30,35],"been":[31],"done,":[32],"little":[33],"studied":[36],"patients,":[37,51],"caregivers,":[38,52],"clinicians":[40,223],"as":[41],"a":[42,199],"connected":[43,58],"system.":[44],"OBJECTIVE:":[45],"To":[46],"study":[47,69],"physicians":[54,192],"who":[55],"are":[56],"already":[57],"with":[59,136,169,186],"one":[60],"another":[61],"in":[62,85,90],"an":[63],"care":[65],"experience.":[66],"DESIGN:":[67],"Qualitative":[68],"consisting":[70],"in-depth,":[72],"open-ended,":[73],"face-to-face":[74],"interviews":[75,135],"content":[77],"analysis.":[78],"SETTING:":[79],"Community":[80],"family":[81,138],"practice":[82,139],"residency":[83],"programs":[84],"rural":[86],"urban":[88],"settings":[89],"Affiliated":[92],"Family":[93,101],"Practice":[94],"Residency":[95],"Network":[96],"Department":[99],"Medicine,":[102],"University":[103],"Washington":[105],"School":[106],"Medicine.":[108],"PARTICIPANTS:":[109],"Forty-two":[110],"patients":[111],"39":[113,137],"caregivers":[114],"facing":[115,187],"were":[117,141],"interviewed":[118],"either":[119],"alone":[120],"or":[121],"together":[122],"after":[123],"referral":[124],"by":[125],"their":[126,159,191],"physicians.":[127],"Additionally,":[128],"results":[129],"previously":[131],"findings":[133],"from":[134,218],"faculty":[140],"included.":[142],"OUTCOME":[143],"MEASURES:":[144],"Perceptions":[145],"participants":[147],"on":[148],"issues.":[150],"RESULTS:":[151],"Participants":[152,189],"identified":[153],"four":[154],"primary":[155],"issues":[156,211],"related":[157],"care:":[163],"awareness":[164],"impending":[166],"death,":[167],"management/coping":[168],"daily":[170],"living":[171],"while":[172],"attempting":[173],"maintain":[175],"management":[177],"regimen,":[178],"relationship":[179],"fluctuations,":[180],"personal":[183],"experiences":[184],"associated":[185],"EOL.":[188],"expected":[190],"be":[194],"competent":[195],"provide":[198,233],"caring":[200],"relationship.":[201],"CONCLUSIONS:":[202],"Awareness":[203],"these":[205],"crucial":[206],"expectations":[213],"how":[215],"they":[216],"differ":[217],"clinician":[219],"perspectives":[220],"can":[221],"assist":[222],"appropriately":[225],"explore":[226],"address":[228],"patient/caregiver":[229],"concerns":[230],"thereby":[232],"quality":[235]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":5},{"year":2018,"cited_by_count":5},{"year":2017,"cited_by_count":3},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":8},{"year":2014,"cited_by_count":4},{"year":2013,"cited_by_count":7},{"year":2012,"cited_by_count":8}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}