{"id":"https://openalex.org/W2063959638","doi":"https://doi.org/10.1191/096120300672399292","title":"The rating scale preference measure as an evaluative measure in systemic lupus erythematosus","display_name":"The rating scale preference measure as an evaluative measure in systemic lupus erythematosus","publication_year":2000,"publication_date":"2000-11-01","ids":{"openalex":"https://openalex.org/W2063959638","doi":"https://doi.org/10.1191/096120300672399292","mag":"2063959638","pmid":"https://pubmed.ncbi.nlm.nih.gov/11199925"},"language":"en","primary_location":{"id":"doi:10.1191/096120300672399292","doi":"https://doi.org/10.1191/096120300672399292","is_oa":false,"landing_page_url":"https://doi.org/10.1191/096120300672399292","pdf_url":null,"source":{"id":"https://openalex.org/S115920904","display_name":"Lupus","issn_l":"0961-2033","issn":["0961-2033","1477-0962"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Lupus","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5052860753","display_name":"Michael M. Ward","orcid":"https://orcid.org/0000-0003-1857-9367","observed_orcids":["https://orcid.org/0000-0003-1857-9367"]},"institutions":[{"id":"https://openalex.org/I204866599","display_name":"VA Palo Alto Health Care System","ror":"https://ror.org/00nr17z89","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1322918889","https://openalex.org/I204866599","https://openalex.org/I2799886695","https://openalex.org/I4210125474"]},{"id":"https://openalex.org/I4210137306","display_name":"Stanford Medicine","ror":"https://ror.org/03mtd9a03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"M M Ward","raw_affiliation_strings":["VA Palo Alto Health Care System, Palo Alto, CA, USA; Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA; VA Palo Alto Health Care System 111G, 3801 Miranda Avenue, Palo Alto, CA 94304, USA","Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","VA Palo Alto Health Care System, Palo Alto, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"VA Palo Alto Health Care System, Palo Alto, CA, USA; Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA; VA Palo Alto Health Care System 111G, 3801 Miranda Avenue, Palo Alto, CA 94304, USA","institution_ids":["https://openalex.org/I204866599","https://openalex.org/I97018004"]},{"raw_affiliation_string":"Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"raw_affiliation_string":"VA Palo Alto Health Care System, Palo Alto, CA, USA","institution_ids":["https://openalex.org/I204866599"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5012414702","display_name":"A S Marx","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204866599","display_name":"VA Palo Alto Health Care System","ror":"https://ror.org/00nr17z89","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1322918889","https://openalex.org/I204866599","https://openalex.org/I2799886695","https://openalex.org/I4210125474"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"A S Marx","raw_affiliation_strings":["VA Palo Alto Health Care System, Palo Alto, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"VA Palo Alto Health Care System, Palo Alto, CA, USA","institution_ids":["https://openalex.org/I204866599"]}]},{"author_position":"last","author":{"id":null,"display_name":"N N Barry","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210137306","display_name":"Stanford Medicine","ror":"https://ror.org/03mtd9a03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"N N Barry","raw_affiliation_strings":["Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Immunology and Rheumatology, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":4150,"currency":"USD","value_usd":4150},"apc_paid":null,"fwci":0.2215,"has_fulltext":false,"cited_by_count":10,"citation_normalized_percentile":{"value":0.56831742,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":94},"biblio":{"volume":"9","issue":"9","first_page":"696","last_page":"701"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10308","display_name":"Systemic Lupus Erythematosus Research","score":0.9872999787330627,"subfield":{"id":"https://openalex.org/subfields/2745","display_name":"Rheumatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10308","display_name":"Systemic Lupus Erythematosus Research","score":0.9872999787330627,"subfield":{"id":"https://openalex.org/subfields/2745","display_name":"Rheumatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.009200000204145908,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11330","display_name":"Systemic Sclerosis and Related Diseases","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2734","display_name":"Pathology and Forensic Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/systemic-lupus-erythematosus","display_name":"systemic lupus erythematosus","score":0.9779999852180481},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9900000095367432},{"id":"https://openalex.org/keywords/construct-validity","display_name":"construct validity","score":0.8489999771118164},{"id":"https://openalex.org/keywords/sensitivity-to-change","display_name":"sensitivity to change","score":0.9980000257492065},{"id":"https://openalex.org/keywords/patient-global-assessment","display_name":"patient global assessment","score":0.9399999976158142},{"id":"https://openalex.org/keywords/disease-activity-assessment","display_name":"disease activity assessment","score":0.7910000085830688},{"id":"https://openalex.org/keywords/simultaneous-localization-and-mapping","display_name":"SLAM","score":0.6729999780654907},{"id":"https://openalex.org/keywords/eclam","display_name":"ECLAM","score":0.9769999980926514},{"id":"https://openalex.org/keywords/bilag","display_name":"BILAG","score":0.9559999704360962},{"id":"https://openalex.org/keywords/sledai","display_name":"SLEDAI","score":0.9829999804496765},{"id":"https://openalex.org/keywords/physician-s-global-assessment","display_name":"physician global assessment","score":0.7749999761581421},{"id":"https://openalex.org/keywords/clinical-trial-endpoints","display_name":"clinical trial endpoints","score":0.8130000233650208}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7748994827270508},{"id":"https://openalex.org/C83849319","wikidata":"https://www.wikidata.org/wiki/Q7295720","display_name":"Rating scale","level":2,"score":0.6914604902267456},{"id":"https://openalex.org/C2776912625","wikidata":"https://www.wikidata.org/wiki/Q1485","display_name":"Systemic lupus erythematosus","level":3,"score":0.6341037750244141},{"id":"https://openalex.org/C49453240","wikidata":"https://www.wikidata.org/wiki/Q1592163","display_name":"Construct validity","level":3,"score":0.5214849710464478},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.5117823481559753},{"id":"https://openalex.org/C23131810","wikidata":"https://www.wikidata.org/wiki/Q818574","display_name":"Observational study","level":2,"score":0.49548375606536865},{"id":"https://openalex.org/C2779517570","wikidata":"https://www.wikidata.org/wiki/Q7144954","display_name":"Patient-reported outcome","level":3,"score":0.48194241523742676},{"id":"https://openalex.org/C2778755073","wikidata":"https://www.wikidata.org/wiki/Q10858537","display_name":"Scale (ratio)","level":2,"score":0.472688227891922},{"id":"https://openalex.org/C2775915377","wikidata":"https://www.wikidata.org/wiki/Q188297","display_name":"Lupus erythematosus","level":3,"score":0.4708402156829834},{"id":"https://openalex.org/C121244757","wikidata":"https://www.wikidata.org/wiki/Q1783487","display_name":"Convergent validity","level":4,"score":0.43674004077911377},{"id":"https://openalex.org/C2780200951","wikidata":"https://www.wikidata.org/wiki/Q1531566","display_name":"Global Assessment of Functioning","level":3,"score":0.4357057213783264},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.4088176190853119},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.35269978642463684},{"id":"https://openalex.org/C171606756","wikidata":"https://www.wikidata.org/wiki/Q506132","display_name":"Psychometrics","level":2,"score":0.32630079984664917},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.2596178650856018},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.24230298399925232},{"id":"https://openalex.org/C203014093","wikidata":"https://www.wikidata.org/wiki/Q101929","display_name":"Immunology","level":1,"score":0.2154134213924408},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.12936782836914062},{"id":"https://openalex.org/C2780221984","wikidata":"https://www.wikidata.org/wiki/Q131191","display_name":"Body mass index","level":2,"score":0.1272113025188446},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.06220883131027222},{"id":"https://openalex.org/C159654299","wikidata":"https://www.wikidata.org/wiki/Q79460","display_name":"Antibody","level":2,"score":0.0},{"id":"https://openalex.org/C3018868096","wikidata":"https://www.wikidata.org/wiki/Q2693233","display_name":"Internal consistency","level":3,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008180","descriptor_name":"Lupus Erythematosus, Systemic","qualifier_ui":"Q000503","qualifier_name":"physiopathology","is_major_topic":true},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011446","descriptor_name":"Prospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012680","descriptor_name":"Sensitivity and Specificity","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012720","descriptor_name":"Severity of Illness Index","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018434","descriptor_name":"Sickness Impact Profile","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1191/096120300672399292","doi":"https://doi.org/10.1191/096120300672399292","is_oa":false,"landing_page_url":"https://doi.org/10.1191/096120300672399292","pdf_url":null,"source":{"id":"https://openalex.org/S115920904","display_name":"Lupus","issn_l":"0961-2033","issn":["0961-2033","1477-0962"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Lupus","raw_type":"journal-article"},{"id":"pmid:11199925","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/11199925","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Lupus","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9940000176429749,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[{"id":"https://openalex.org/G2681803775","display_name":null,"funder_award_id":"AR-20610","funder_id":"https://openalex.org/F4320337362","funder_display_name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases"},{"id":"https://openalex.org/G4722999443","display_name":"MULTIPURPOSE ARTHRITIS AND MUSCULOSKELETAL DISEASES CENT","funder_award_id":"P60AR020610","funder_id":"https://openalex.org/F4320337362","funder_display_name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases"}],"funders":[{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337362","display_name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases","ror":"https://ror.org/006zn3t30"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":31,"referenced_works":["https://openalex.org/W78569768","https://openalex.org/W102306444","https://openalex.org/W140905800","https://openalex.org/W197724971","https://openalex.org/W1515115115","https://openalex.org/W1537598136","https://openalex.org/W1542566329","https://openalex.org/W1965683411","https://openalex.org/W1974237426","https://openalex.org/W1976057442","https://openalex.org/W1987445308","https://openalex.org/W1988369869","https://openalex.org/W1999648143","https://openalex.org/W2013700562","https://openalex.org/W2023304339","https://openalex.org/W2049131824","https://openalex.org/W2064999867","https://openalex.org/W2065756007","https://openalex.org/W2092648035","https://openalex.org/W2125991752","https://openalex.org/W2126563911","https://openalex.org/W2133729231","https://openalex.org/W2405426849","https://openalex.org/W2413267001","https://openalex.org/W2414929000","https://openalex.org/W2415651329","https://openalex.org/W2416946994","https://openalex.org/W2467392721","https://openalex.org/W2474718295","https://openalex.org/W2944885898","https://openalex.org/W4213306416"],"related_works":["https://openalex.org/W2467392721","https://openalex.org/W2568677562","https://openalex.org/W2602814108","https://openalex.org/W2901844031","https://openalex.org/W2035965743","https://openalex.org/W2301820799","https://openalex.org/W2022376170","https://openalex.org/W2418949980","https://openalex.org/W2895306621","https://openalex.org/W1965683411"],"abstract_inverted_index":{"Preference":[0],"measures":[1,188],"may":[2,268],"be":[3],"useful":[4],"tools":[5],"to":[6,20,75,167,199,214,266],"assess":[7],"patients'":[8],"overall":[9],"health-related":[10,255],"quality":[11,256],"of":[12,22,41,46,55,64,85,148,163,175,216,225,247,254,257],"life.":[13],"We":[14],"studied":[15],"the":[16,23,42,58,83,92,104,119,137,155,160,172,180,185,202,217,226,232,239,245,248],"validity":[17,79,162,246],"and":[18,35,60,97,101,127],"sensitivity":[19,213,265],"change":[21,168,177,200,215,267],"rating":[24,93,138,192,218,249],"scale":[25,94,139,193,219,250],"preference":[26,95,194],"measure":[27,96,195,253,276],"in":[28,49,57,91,103,136,146,154,178,259,277],"patients":[29,260],"with":[30,39,144,261],"systemic":[31],"lupus":[32],"erythematosus":[33],"(SLE),":[34],"compared":[36],"its":[37,263],"properties":[38],"those":[40],"patient":[43,98,156,203,227],"global":[44,99,106,157,182,204,228],"assessment":[45,100,183,205,229],"SLE":[47,186],"activity,":[48],"a":[50,252],"prospective":[51],"longitudinal":[52],"observational":[53],"study":[54],"changes":[56,88,102,145,153],"symptoms":[59],"clinical":[61,278],"disease":[62],"activity":[63,187],"23":[65],"patients.":[66],"Patients":[67],"were":[68,140,152],"assessed":[69,81],"every":[70],"two":[71],"weeks":[72],"for":[73],"up":[74],"40":[76],"weeks.":[77],"Construct":[78],"was":[80,169,196,220,236],"by":[82],"strength":[84],"correlations":[86],"between":[87],"over":[89],"time":[90],"physician":[105,181],"assessment,":[107,158],"Systemic":[108,128],"Lupus":[109,115,122,129],"Activity":[110,116,132],"Measure":[111,117],"(SLAM),":[112],"European":[113],"Consensus":[114],"(ECLAM),":[118],"British":[120],"Isles":[121],"Assessment":[123],"Group":[124],"index":[125],"(BILAG),":[126],"Erythematosus":[130],"Disease":[131],"Index":[133],"(SLEDAI).":[134],"Changes":[135],"more":[141],"highly":[142],"correlated":[143],"each":[147],"these":[149,242],"standards":[150],"than":[151,201,222],"demonstrating":[159],"construct":[161],"this":[164],"measure.":[165],"Sensitivity":[166],"measured":[170],"using":[171],"two-week":[173],"interval":[174],"greatest":[176],"either":[179,231],"or":[184,234],"as":[189,238,251,273],"standards.":[190,211],"The":[191,212],"less":[197,221,271],"sensitive":[198],"when":[206,230],"tested":[207],"against":[208],"four":[209],"different":[210],"one-half":[223],"that":[224],"SLAM":[233],"ECLAM":[235],"used":[237],"standard.":[240],"Although":[241],"results":[243],"support":[244],"life":[258],"SLE,":[262],"limited":[264],"make":[269],"it":[270],"attractive":[272],"an":[274],"endpoint":[275],"trials.":[279]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}