{"id":"https://openalex.org/W2059999495","doi":"https://doi.org/10.1002/art.22465","title":"Health values of patients with systemic sclerosis","display_name":"Health values of patients with systemic sclerosis","publication_year":2007,"publication_date":"2007-01-31","ids":{"openalex":"https://openalex.org/W2059999495","doi":"https://doi.org/10.1002/art.22465","mag":"2059999495","pmid":"https://pubmed.ncbi.nlm.nih.gov/17266070"},"language":"en","primary_location":{"id":"doi:10.1002/art.22465","doi":"https://doi.org/10.1002/art.22465","is_oa":false,"landing_page_url":"https://doi.org/10.1002/art.22465","pdf_url":null,"source":{"id":"https://openalex.org/S13698240","display_name":"Arthritis Care & Research","issn_l":"0893-7524","issn":["0893-7524","1529-0123","2151-464X","2151-4658"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Arthritis Care & Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073269240","display_name":"Dinesh Khanna","orcid":"https://orcid.org/0000-0003-1412-4453","observed_orcids":["https://orcid.org/0000-0003-1412-4453"]},"institutions":[{"id":"https://openalex.org/I4210143084","display_name":"Cincinnati VA Medical Center","ror":"https://ror.org/045r80n66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1322918889","https://openalex.org/I2799886695","https://openalex.org/I4210127612","https://openalex.org/I4210143084"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]},{"id":"https://openalex.org/I92156820","display_name":"University of Cincinnati Medical Center","ror":"https://ror.org/02p72h367","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I92156820"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dinesh Khanna","raw_affiliation_strings":["University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio, USA. dinesh.khanna@uc.edu","University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio, USA. dinesh.khanna@uc.edu","institution_ids":["https://openalex.org/I4210143084","https://openalex.org/I63135867","https://openalex.org/I92156820"]},{"raw_affiliation_string":"University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio, USA","institution_ids":["https://openalex.org/I4210143084","https://openalex.org/I63135867","https://openalex.org/I92156820"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Mansoor Ahmed","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I92156820","display_name":"University of Cincinnati Medical Center","ror":"https://ror.org/02p72h367","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I92156820"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mansoor Ahmed","raw_affiliation_strings":["University of Cincinnati Medical Center, and Veterans Affairs Medical Center, Cincinnati, Ohio"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati Medical Center, and Veterans Affairs Medical Center, Cincinnati, Ohio","institution_ids":["https://openalex.org/I92156820"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059206584","display_name":"Daniel E. Furst","orcid":"https://orcid.org/0000-0001-7857-2373","observed_orcids":["https://orcid.org/0000-0001-7857-2373","https://orcid.org/0000-0002-4018-7629"]},"institutions":[{"id":"https://openalex.org/I161318765","display_name":"University of California, Los Angeles","ror":"https://ror.org/046rm7j60","country_code":"US","type":"education","lineage":["https://openalex.org/I161318765"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel E. Furst","raw_affiliation_strings":["University of California at Los Angeles**"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of California at Los Angeles**","institution_ids":["https://openalex.org/I161318765"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048162091","display_name":"Shaari S. Ginsburg","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I92156820","display_name":"University of Cincinnati Medical Center","ror":"https://ror.org/02p72h367","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I92156820"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Shaari S. Ginsburg","raw_affiliation_strings":["University of Cincinnati Medical Center, and Veterans Affairs Medical Center, Cincinnati, Ohio"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati Medical Center, and Veterans Affairs Medical Center, Cincinnati, Ohio","institution_ids":["https://openalex.org/I92156820"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063292556","display_name":"Grace S. Park","orcid":"https://orcid.org/0000-0002-2075-5502","observed_orcids":["https://orcid.org/0000-0002-2075-5502"]},"institutions":[{"id":"https://openalex.org/I161318765","display_name":"University of California, Los Angeles","ror":"https://ror.org/046rm7j60","country_code":"US","type":"education","lineage":["https://openalex.org/I161318765"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Grace S. Park","raw_affiliation_strings":["University of California at Los Angeles**"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of California at Los Angeles**","institution_ids":["https://openalex.org/I161318765"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111975680","display_name":"Richard Hornung","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1285204247","display_name":"Cincinnati Children's Hospital Medical Center","ror":"https://ror.org/01hcyya48","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1285204247"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Richard Hornung","raw_affiliation_strings":["Institute for the Study of Health, University of Cincinnati, and Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute for the Study of Health, University of Cincinnati, and Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5066954006","display_name":"Joel Tsevat","orcid":"https://orcid.org/0000-0002-0413-8969","observed_orcids":["https://orcid.org/0000-0002-0413-8969"]},"institutions":[{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]},{"id":"https://openalex.org/I92156820","display_name":"University of Cincinnati Medical Center","ror":"https://ror.org/02p72h367","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I92156820"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joel Tsevat","raw_affiliation_strings":["University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati Medical Center, Institute for the Study of Health, University of Cincinnati, and Veterans Affairs Medical Center, Cincinnati, Ohio","institution_ids":["https://openalex.org/I63135867","https://openalex.org/I92156820"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":4640,"currency":"USD","value_usd":4640},"apc_paid":null,"fwci":5.667,"has_fulltext":false,"cited_by_count":56,"citation_normalized_percentile":{"value":0.96033038,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"57","issue":"1","first_page":"86","last_page":"93"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11330","display_name":"Systemic Sclerosis and Related Diseases","score":0.9359999895095825,"subfield":{"id":"https://openalex.org/subfields/2734","display_name":"Pathology and Forensic Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11330","display_name":"Systemic Sclerosis and Related Diseases","score":0.9359999895095825,"subfield":{"id":"https://openalex.org/subfields/2734","display_name":"Pathology and Forensic Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.06080000102519989,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10841","display_name":"Economic and Environmental Valuation","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/systemic-sclerosis","display_name":"systemic sclerosis","score":0.9950000047683716},{"id":"https://openalex.org/keywords/health-values","display_name":"health values","score":0.7739999890327454},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.781000018119812},{"id":"https://openalex.org/keywords/willingness-to-accept","display_name":"willingness to accept","score":0.753000020980835},{"id":"https://openalex.org/keywords/standard-gamble","display_name":"standard gamble","score":0.8569999933242798},{"id":"https://openalex.org/keywords/time-trade-off","display_name":"time trade-off","score":0.9990000128746033},{"id":"https://openalex.org/keywords/limited-cutaneous-systemic-sclerosis","display_name":"limited cutaneous systemic sclerosis","score":0.8209999799728394},{"id":"https://openalex.org/keywords/diffuse-cutaneous-systemic-sclerosis","display_name":"diffuse cutaneous systemic sclerosis","score":1.0},{"id":"https://openalex.org/keywords/disease-severity","display_name":"disease severity","score":0.8619999885559082},{"id":"https://openalex.org/keywords/depression","display_name":"depression","score":0.6460000276565552},{"id":"https://openalex.org/keywords/disability","display_name":"disability","score":0.3700000047683716}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7904729843139648},{"id":"https://openalex.org/C14184104","wikidata":"https://www.wikidata.org/wiki/Q1362526","display_name":"Visual analogue scale","level":2,"score":0.533258855342865},{"id":"https://openalex.org/C2776867660","wikidata":"https://www.wikidata.org/wiki/Q1814941","display_name":"Depression (economics)","level":2,"score":0.4958208501338959},{"id":"https://openalex.org/C2776237627","wikidata":"https://www.wikidata.org/wiki/Q133549","display_name":"SF-36","level":4,"score":0.47754916548728943},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.44078588485717773},{"id":"https://openalex.org/C30036603","wikidata":"https://www.wikidata.org/wiki/Q17125150","display_name":"Severity of illness","level":2,"score":0.43065518140792847},{"id":"https://openalex.org/C83849319","wikidata":"https://www.wikidata.org/wiki/Q7295720","display_name":"Rating scale","level":2,"score":0.4240197241306305},{"id":"https://openalex.org/C2780084366","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demographics","level":2,"score":0.4224080741405487},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.41236284375190735},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.3760729432106018},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.35543137788772583},{"id":"https://openalex.org/C149923435","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demography","level":1,"score":0.29898566007614136},{"id":"https://openalex.org/C3019006561","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Health related quality of life","level":3,"score":0.14357775449752808},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.1413855254650116},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C139719470","wikidata":"https://www.wikidata.org/wiki/Q39680","display_name":"Macroeconomics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003362","descriptor_name":"Cost-Benefit Analysis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003661","descriptor_name":"Decision Support Techniques","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004185","descriptor_name":"Disability Evaluation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006304","descriptor_name":"Health Status","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010147","descriptor_name":"Pain Measurement","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012595","descriptor_name":"Scleroderma, Systemic","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":true},{"descriptor_ui":"D012595","descriptor_name":"Scleroderma, Systemic","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D012595","descriptor_name":"Scleroderma, Systemic","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D012720","descriptor_name":"Severity of Illness Index","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016014","descriptor_name":"Linear Models","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D019057","descriptor_name":"Quality-Adjusted Life Years","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1002/art.22465","doi":"https://doi.org/10.1002/art.22465","is_oa":false,"landing_page_url":"https://doi.org/10.1002/art.22465","pdf_url":null,"source":{"id":"https://openalex.org/S13698240","display_name":"Arthritis Care & Research","issn_l":"0893-7524","issn":["0893-7524","1529-0123","2151-464X","2151-4658"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Arthritis Care & Research","raw_type":"journal-article"},{"id":"pmid:17266070","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/17266070","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Arthritis and rheumatism","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[{"id":"https://openalex.org/G210753883","display_name":"Mentorship and Research in Spirituality and Health","funder_award_id":"K24AT001676","funder_id":"https://openalex.org/F4320337593","funder_display_name":"National Center for Complementary and Integrative Health"},{"id":"https://openalex.org/G479333536","display_name":null,"funder_award_id":"HD-051953","funder_id":"https://openalex.org/F4320337611","funder_display_name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development"},{"id":"https://openalex.org/G556959741","display_name":"Cincinnati Interdisciplinary Women's Health Research Career Training Grant","funder_award_id":"K12HD051953","funder_id":"https://openalex.org/F4320337611","funder_display_name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development"}],"funders":[{"id":"https://openalex.org/F4320337593","display_name":"National Center for Complementary and Integrative Health","ror":"https://ror.org/00190t495"},{"id":"https://openalex.org/F4320337611","display_name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development","ror":"https://ror.org/04byxyr05"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":40,"referenced_works":["https://openalex.org/W2635715","https://openalex.org/W572973386","https://openalex.org/W614531583","https://openalex.org/W1537598136","https://openalex.org/W1963260125","https://openalex.org/W1969868683","https://openalex.org/W1978796821","https://openalex.org/W1985004174","https://openalex.org/W1985486447","https://openalex.org/W2019728745","https://openalex.org/W2021992293","https://openalex.org/W2022725035","https://openalex.org/W2028921539","https://openalex.org/W2029676614","https://openalex.org/W2034936794","https://openalex.org/W2037377025","https://openalex.org/W2041462345","https://openalex.org/W2042321008","https://openalex.org/W2052749622","https://openalex.org/W2062417170","https://openalex.org/W2069098068","https://openalex.org/W2079261419","https://openalex.org/W2090841051","https://openalex.org/W2098471340","https://openalex.org/W2112778345","https://openalex.org/W2125473291","https://openalex.org/W2144846366","https://openalex.org/W2310516540","https://openalex.org/W2325895828","https://openalex.org/W2342686007","https://openalex.org/W2418409153","https://openalex.org/W2423113308","https://openalex.org/W3045389553","https://openalex.org/W4231946526","https://openalex.org/W4249996660","https://openalex.org/W4285719527","https://openalex.org/W4292806894","https://openalex.org/W4388136220","https://openalex.org/W4388136264","https://openalex.org/W6645736948"],"related_works":["https://openalex.org/W7217700082","https://openalex.org/W420801320","https://openalex.org/W1666901382","https://openalex.org/W2062417170","https://openalex.org/W3109734452","https://openalex.org/W1969642974","https://openalex.org/W2021301085","https://openalex.org/W3032475653","https://openalex.org/W2901482985","https://openalex.org/W1968204546"],"abstract_inverted_index":{"OBJECTIVE:":[0],"To":[1],"assess":[2],"health":[3,19,103,154,327,332],"values":[4,288,333],"in":[5,39,226,246,283],"subjects":[6,195,276],"with":[7,29,127,253,277,323,336],"systemic":[8],"sclerosis":[9],"(SSc)":[10],"and":[11,21,34,57,74,112,132,137,146,156,167,174,185,191,207,231,301,304,311,317,345],"determine":[12],"variability":[13],"explained":[14],"by":[15],"demographics,":[16,150,296],"clinical":[17],"factors,":[18],"status,":[20,155],"disease":[22,157,299],"severity.":[23,158],"METHODS:":[24],"We":[25,118],"interviewed":[26],"107":[27,162],"individuals":[28,335],"SSc":[30,130,135],"who":[31],"attended":[32],"national":[33],"local":[35],"Scleroderma":[36],"Foundation":[37],"meetings":[38],"2005.":[40],"Health":[41,76,97,287],"status":[42],"was":[43,87],"measured":[44],"using":[45,89],"the":[46,64,75,101,161,182,284,314],"Short":[47],"Form":[48],"36":[49],"(SF-36)":[50],"Physical":[51],"Component":[52,59],"Summary":[53,60],"(PCS;":[54],"range":[55,62,72,83,95,110,116],"0-100)":[56],"Mental":[58],"(MCS;":[61],"0-100),":[63],"Center":[65],"for":[66,140,149,181,228,248,313,342],"Epidemiologic":[67],"Studies":[68],"Depression":[69],"Scale":[70],"(CES-D;":[71],"0-60),":[73],"Assessment":[77],"Questionnaire":[78],"(HAQ)":[79],"disability":[80],"index":[81],"(DI;":[82],"0-3).":[84],"Disease":[85],"severity":[86],"assessed":[88],"a":[90,214,220,234,239,265,270],"visual":[91],"analog":[92],"scale":[93,105],"(VAS;":[94],"0-150).":[96],"value":[98],"measures":[99],"included":[100],"0-100":[102],"rating":[104],"(RS),":[106],"standard":[107],"gamble":[108],"(SG;":[109],"0.0-1.0),":[111],"time":[113],"trade-off":[114],"(TTO;":[115],"0.0-1.0).":[117],"performed":[119],"univariate":[120],"analyses":[121,139],"to":[122,216,219,236,264,267,292],"compare":[123],"scores":[124,180,209,258,262,280,306],"between":[125],"participants":[126],"limited":[128],"cutaneous":[129,134],"(lcSSc)":[131],"diffuse":[133],"(dcSSc),":[136],"multivariable":[138],"3":[141],"outcome":[142],"measures:":[143],"RS,":[144,205],"SG,":[145,206,315],"TTO,":[147,316],"controlling":[148],"type":[151],"of":[152,223,241,243,273],"SSc,":[153],"RESULTS:":[159],"Of":[160],"participants,":[163],"48":[164],"had":[165,169,196,255],"dcSSc":[166,254,324],"59":[168],"lcSSc.":[170,278,337],"Ninety-seven":[171],"were":[172,176,188,210,281,289],"women":[173],"83":[175],"white.":[177],"The":[178,203],"median":[179,204,240],"PCS,":[183],"MCS,":[184],"HAQ":[186],"DI":[187],"36.9,":[189],"45.5,":[190],"0.9,":[192],"respectively.":[193,251],"Fifty-five":[194],"significant":[197],"depressive":[198],"symptoms":[199],"(CES-D":[200],"score":[201],">or=16).":[202],"TTO":[208,279],"62,":[211],"0.83":[212],"(indicating":[213,233],"willingness":[215,235,266],"accept":[217,268],"up":[218,238],"17%":[221],"risk":[222,272],"immediate":[224],"death":[225],"exchange":[227,247],"perfect":[229,249],"health),":[230,250],"0.88":[232],"give":[237],"12%":[242],"life":[244],"expectancy":[245],"Subjects":[252],"lower":[256,326],"RS":[257,318],"but":[259,329],"higher":[260,330],"SG":[261,331],"(corresponding":[263],"only":[269],"smaller":[271],"death)":[274],"than":[275,334],"similar":[282],"2":[285],"groups.":[286],"variably":[290],"related":[291],"factors":[293],"such":[294],"as":[295],"VAS":[297],"score,":[298],"classification,":[300],"SF-36":[302],"PCS":[303],"MCS":[305],"(R(2)":[307],"=":[308],"0.22,":[309],"0.23,":[310],"0.66":[312],"models,":[319],"respectively).":[320],"CONCLUSION:":[321],"Individuals":[322],"have":[325,340],"ratings":[328],"These":[338],"findings":[339],"implications":[341],"decision":[343],"analysis":[344],"cost-effectiveness":[346],"analysis.":[347]},"counts_by_year":[{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":3},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":2},{"year":2016,"cited_by_count":4},{"year":2015,"cited_by_count":4},{"year":2014,"cited_by_count":1},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":3}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}