{"id":"https://openalex.org/W2053158368","doi":"https://doi.org/10.1002/ppul.10391","title":"Transition programs in cystic fibrosis centers: Perceptions of team members","display_name":"Transition programs in cystic fibrosis centers: Perceptions of team members","publication_year":2003,"publication_date":"2003-12-11","ids":{"openalex":"https://openalex.org/W2053158368","doi":"https://doi.org/10.1002/ppul.10391","mag":"2053158368","pmid":"https://pubmed.ncbi.nlm.nih.gov/14679482"},"language":"en","primary_location":{"id":"doi:10.1002/ppul.10391","doi":"https://doi.org/10.1002/ppul.10391","is_oa":false,"landing_page_url":"https://doi.org/10.1002/ppul.10391","pdf_url":null,"source":{"id":"https://openalex.org/S144578311","display_name":"Pediatric Pulmonology","issn_l":"1099-0496","issn":["1099-0496","8755-6863"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Pulmonology","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5005915390","display_name":"Patrick A. Flume","orcid":"https://orcid.org/0000-0002-1560-6879","observed_orcids":["https://orcid.org/0000-0002-1560-6879"]},"institutions":[{"id":"https://openalex.org/I153297377","display_name":"Medical University of South Carolina","ror":"https://ror.org/012jban78","country_code":"US","type":"education","lineage":["https://openalex.org/I153297377"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Patrick A. Flume","raw_affiliation_strings":["Department of Medicine, Medical University of South Carolina, Charleston, South Carolina 29425, USA. flumepa@musc.edu","Department of Medicine, Medical University of South Carolina, Charleston, South Carolina","Department of Pediatrics, Medical University of South Carolina, Charleston, South Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Medical University of South Carolina, Charleston, South Carolina 29425, USA. flumepa@musc.edu","institution_ids":["https://openalex.org/I153297377"]},{"raw_affiliation_string":"Department of Medicine, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]},{"raw_affiliation_string":"Department of Pediatrics, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Lloyd A. Taylor","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I153297377","display_name":"Medical University of South Carolina","ror":"https://ror.org/012jban78","country_code":"US","type":"education","lineage":["https://openalex.org/I153297377"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lloyd A. Taylor","raw_affiliation_strings":["Center for Health Care Research, Medical University of South Carolina, Charleston, South Carolina","College of Health Professions, Medical University of South Carolina, Charleston, South Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Health Care Research, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]},{"raw_affiliation_string":"College of Health Professions, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5040257434","display_name":"Deborah L. Anderson","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I153297377","display_name":"Medical University of South Carolina","ror":"https://ror.org/012jban78","country_code":"US","type":"education","lineage":["https://openalex.org/I153297377"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Deborah L. Anderson","raw_affiliation_strings":["College of Health Professions, Medical University of South Carolina, Charleston, South Carolina","Department of Pediatrics, Medical University of South Carolina, Charleston, South Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"College of Health Professions, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]},{"raw_affiliation_string":"Department of Pediatrics, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Sue Gray","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I153297377","display_name":"Medical University of South Carolina","ror":"https://ror.org/012jban78","country_code":"US","type":"education","lineage":["https://openalex.org/I153297377"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sue Gray","raw_affiliation_strings":["Department of Medicine, Medical University of South Carolina, Charleston, South Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5101541153","display_name":"David A. Turner","orcid":"https://orcid.org/0000-0002-0957-1382","observed_orcids":["https://orcid.org/0000-0002-0957-1382"]},"institutions":[{"id":"https://openalex.org/I153297377","display_name":"Medical University of South Carolina","ror":"https://ror.org/012jban78","country_code":"US","type":"education","lineage":["https://openalex.org/I153297377"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"David Turner","raw_affiliation_strings":["Department of Medicine, Medical University of South Carolina, Charleston, South Carolina"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Medical University of South Carolina, Charleston, South Carolina","institution_ids":["https://openalex.org/I153297377"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5005915390"],"corresponding_institution_ids":["https://openalex.org/I153297377"],"apc_list":{"value":4740,"currency":"USD","value_usd":4740},"apc_paid":null,"fwci":2.261,"has_fulltext":false,"cited_by_count":75,"citation_normalized_percentile":{"value":0.87253713,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"37","issue":"1","first_page":"4","last_page":"7"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12174","display_name":"Hospital Admissions and Outcomes","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2911","display_name":"Leadership and Management"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cystic-fibrosis","display_name":"cystic fibrosis","score":1.0},{"id":"https://openalex.org/keywords/transition-to-adult-care","display_name":"transition to adult care","score":0.8650000095367432},{"id":"https://openalex.org/keywords/multidisciplinary-team","display_name":"multidisciplinary team","score":0.8180000185966492},{"id":"https://openalex.org/keywords/team-member-perceptions","display_name":"team member perceptions","score":0.8080000281333923},{"id":"https://openalex.org/keywords/transfer-criteria","display_name":"transfer criteria","score":0.6959999799728394},{"id":"https://openalex.org/keywords/transition-programs","display_name":"transition programs","score":0.5239999890327454},{"id":"https://openalex.org/keywords/young-adults","display_name":"young adults","score":0.4480000138282776},{"id":"https://openalex.org/keywords/patient-concerns","display_name":"patient concerns","score":0.46000000834465027}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8032554984092712},{"id":"https://openalex.org/C2909537177","wikidata":"https://www.wikidata.org/wiki/Q4685925","display_name":"Adult care","level":3,"score":0.6440539360046387},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5914918780326843},{"id":"https://openalex.org/C205545832","wikidata":"https://www.wikidata.org/wiki/Q17156455","display_name":"Young adult","level":2,"score":0.4676116704940796},{"id":"https://openalex.org/C2776938444","wikidata":"https://www.wikidata.org/wiki/Q178194","display_name":"Cystic fibrosis","level":2,"score":0.46095919609069824},{"id":"https://openalex.org/C16920402","wikidata":"https://www.wikidata.org/wiki/Q205398","display_name":"Social work","level":2,"score":0.44932350516319275},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.4453172981739044},{"id":"https://openalex.org/C2776704448","wikidata":"https://www.wikidata.org/wiki/Q754438","display_name":"Respiratory therapist","level":2,"score":0.4300176203250885},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.24960476160049438},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.2251611053943634},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.09473735094070435},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000367","descriptor_name":"Age Factors","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001291","descriptor_name":"Attitude of Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003266","descriptor_name":"Continuity of Patient Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003550","descriptor_name":"Cystic Fibrosis","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007388","descriptor_name":"Internal Medicine","qualifier_ui":"Q000458","qualifier_name":"organization & administration","is_major_topic":true},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010348","descriptor_name":"Patient Care Team","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010360","descriptor_name":"Patient Transfer","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010372","descriptor_name":"Pediatrics","qualifier_ui":"Q000458","qualifier_name":"organization & administration","is_major_topic":true},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013022","descriptor_name":"South Carolina","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D019538","descriptor_name":"Health Care Surveys","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1002/ppul.10391","doi":"https://doi.org/10.1002/ppul.10391","is_oa":false,"landing_page_url":"https://doi.org/10.1002/ppul.10391","pdf_url":null,"source":{"id":"https://openalex.org/S144578311","display_name":"Pediatric Pulmonology","issn_l":"1099-0496","issn":["1099-0496","8755-6863"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Pulmonology","raw_type":"journal-article"},{"id":"pmid:14679482","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/14679482","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric pulmonology","raw_type":"Journal Article"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.886.5650","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.886.5650","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"https://www.researchgate.net/profile/Lloyd_Taylor2/publication/8956831_Transition_programs_in_cystic_fibrosis_centers_perceptions_of_team_members/links/542950b90cf26120b7b5b8e3.pdf?origin%3Dpublication_detail","raw_type":"text"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.904.9188","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.904.9188","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"http://www.hscj.ufl.edu/jaxhats/docs/CF-clinic-transition-team-perspect.pdf","raw_type":"text"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":10,"referenced_works":["https://openalex.org/W198308450","https://openalex.org/W1565177477","https://openalex.org/W1973510614","https://openalex.org/W2024787088","https://openalex.org/W2044650806","https://openalex.org/W2070567440","https://openalex.org/W2108890275","https://openalex.org/W2401543517","https://openalex.org/W2402599107","https://openalex.org/W2422122616"],"related_works":["https://openalex.org/W7097508563","https://openalex.org/W2108890275","https://openalex.org/W2070567440","https://openalex.org/W2403022365","https://openalex.org/W2024787088","https://openalex.org/W2011602184","https://openalex.org/W2027905114","https://openalex.org/W2051666663","https://openalex.org/W7213283923","https://openalex.org/W2115855100"],"abstract_inverted_index":{"We":[0,113],"previously":[1,270],"surveyed":[2],"cystic":[3],"fibrosis":[4],"(CF)":[5],"center":[6],"directors":[7],"and":[8,132,149,193,223,310,344,348,366],"adult":[9,24,48,150,160,170,181,252,329],"patients":[10,161,205,247,283,326],"with":[11,43,52,137],"CF":[12,44,53,69,100],"to":[13,22,47,82,98,105,234,266],"assess":[14],"their":[15,159,180],"perceptions":[16,260],"regarding":[17,316],"transition":[18,74,238,308,324,357,362],"from":[19,45,57,164,334],"a":[20,33,60,133,168,177,352],"pediatric":[21,46,148],"an":[23,84,165,232,311,328,341],"setting.":[25],"An":[26,93],"important":[27],"finding":[28],"in":[29,78,167,272,282,293,343,355,372],"those":[30],"studies":[31],"was":[32,81,96,228],"lack":[34],"of":[35,40,67,142,154,189,237,242,246,256,261,306,313,325,361],"standard":[36,307],"programs":[37,309,360],"for":[38,86,146,198,231],"transfer":[39,215],"young":[41],"adults":[42],"care":[49,56,163],"settings.":[50],"Patients":[51],"typically":[54],"receive":[55,162],"clinics":[58],"utilizing":[59],"multidisciplinary":[61],"approach,":[62],"suggesting":[63],"that":[64,158,176,186,204,337,373],"every":[65],"member":[66],"the":[68,73,103,143,235,240,251,322,356],"team":[70,88,109,135,253,294,338,367],"can":[71],"impact":[72],"process.":[75,358,374],"Our":[76],"purpose":[77],"this":[79,335],"study":[80,336],"gain":[83],"appreciation":[85],"various":[87],"members'":[89,259],"perspectives":[90],"on":[91,346],"transition.":[92,317],"Internet":[94],"survey":[95],"offered":[97],"all":[99],"centers":[101],"across":[102],"country":[104],"be":[106,207,364,370],"completed":[107,116,120],"by":[108,121,209,301],"members,":[110],"excluding":[111],"physicians.":[112],"received":[114],"291":[115],"surveys,":[117],"nearly":[118,173],"half":[119,141],"nurses,":[122],"but":[123,172],"our":[124],"respondents":[125,144,155],"included":[126,216],"social":[127],"workers,":[128],"nutritionists,":[129],"respiratory":[130],"therapists,":[131],"few":[134],"members":[136,295,339,368],"other":[138],"training.":[139],"Nearly":[140],"work":[145],"both":[147],"teams.":[151],"The":[152],"majority":[153],"(71.8%)":[156],"reported":[157,175,300],"internist":[166],"separate":[169],"program,":[171],"20%":[174],"pediatrician":[178],"follows":[179],"patients.":[182],"A":[183],"minority":[184],"thought":[185],"age":[187,210],"(37.4%":[188],"respondents),":[190],"marriage":[191],"(16.2%),":[192],"pregnancy":[194],"(27.1%)":[195],"were":[196,264],"criteria":[197],"transfer,":[199],"though":[200],"most":[201],"(86.2%)":[202],"suggested":[203],"should":[206,363,369],"transferred":[208],"21":[211],"years.":[212],"Criteria":[213],"precluding":[214],"patient/family":[217],"resistance":[218],"(45%),":[219],"disease":[220],"severity":[221],"(34%),":[222],"developmental":[224],"delay":[225],"(31.3%).":[226],"It":[227,331],"uncommon":[229],"(11.4%)":[230],"introduction":[233],"concept":[236],"at":[239],"time":[241,255],"diagnosis.":[243],"Over":[244],"one-half":[245],"did":[248],"not":[249],"meet":[250],"until":[254],"transfer.":[257],"Team":[258],"patients'":[262,314],"concerns":[263,315],"similar":[265],"what":[267,278,288,297],"we":[268,279,289,298],"had":[269],"measured":[271,281,291],"physicians,":[273,302],"again":[274],"far":[275],"greater":[276],"than":[277],"have":[280,290,299,340],"themselves.":[284],"In":[285],"many":[286],"ways,":[287],"here":[292],"reflects":[296],"demonstrating":[303],"slow":[304],"development":[305],"overestimate":[312],"These":[318],"differences":[319],"may":[320],"impede":[321],"successful":[323],"into":[327],"program.":[330],"is":[332],"clear":[333],"interest":[342],"opinions":[345],"transition,":[347],"are":[349],"likely":[350],"play":[351],"vital":[353],"role":[354],"Standard":[359],"developed,":[365],"engaged":[371]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":3},{"year":2019,"cited_by_count":4},{"year":2018,"cited_by_count":5},{"year":2017,"cited_by_count":4},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":7},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":6}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}