{"id":"https://openalex.org/W2046352872","doi":"https://doi.org/10.1159/000189633","title":"Researchers\u2019 Perceptions of the Ethical Implications of Pharmacogenomics Research with Children","display_name":"Researchers\u2019 Perceptions of the Ethical Implications of Pharmacogenomics Research with Children","publication_year":2009,"publication_date":"2009-01-01","ids":{"openalex":"https://openalex.org/W2046352872","doi":"https://doi.org/10.1159/000189633","mag":"2046352872","pmid":"https://pubmed.ncbi.nlm.nih.gov/19204423"},"language":"en","primary_location":{"id":"doi:10.1159/000189633","doi":"https://doi.org/10.1159/000189633","is_oa":true,"landing_page_url":"https://doi.org/10.1159/000189633","pdf_url":"https://www.karger.com/Article/Pdf/189633","source":{"id":"https://openalex.org/S157450843","display_name":"Public Health Genomics","issn_l":"1422-2795","issn":["1422-2795","1422-2833","1662-4246","1662-8063"],"is_oa":false,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310317820","host_organization_name":"Karger Publishers","host_organization_lineage":["https://openalex.org/P4310317820"],"host_organization_lineage_names":["Karger Publishers"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Public Health Genomics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://www.karger.com/Article/Pdf/189633","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5111903274","display_name":"Denise M. Avard","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I70931966","display_name":"Universit\u00e9 de Montr\u00e9al","ror":"https://ror.org/0161xgx34","country_code":"CA","type":"education","lineage":["https://openalex.org/I70931966"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"D. Avard","raw_affiliation_strings":["Law Faculty, Centre de Recherche en Droit Public, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9, Canada. denise.avard@umontreal.ca","Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Law Faculty, Centre de Recherche en Droit Public, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9, Canada. denise.avard@umontreal.ca","institution_ids":["https://openalex.org/I70931966"]},{"raw_affiliation_string":"Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada","institution_ids":["https://openalex.org/I70931966"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032503038","display_name":"T. Silverstein","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I70931966","display_name":"Universit\u00e9 de Montr\u00e9al","ror":"https://ror.org/0161xgx34","country_code":"CA","type":"education","lineage":["https://openalex.org/I70931966"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"T. Silverstein","raw_affiliation_strings":["Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","Pharmacogenomics \u0612 Research \u0612 Social","Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","institution_ids":["https://openalex.org/I70931966"]},{"raw_affiliation_string":"Pharmacogenomics \u0612 Research \u0612 Social","institution_ids":[]},{"raw_affiliation_string":"Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada","institution_ids":["https://openalex.org/I70931966"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020335824","display_name":"Guillaume Sillon","orcid":"https://orcid.org/0000-0001-9573-1209","observed_orcids":["https://orcid.org/0000-0001-9573-1209"]},"institutions":[{"id":"https://openalex.org/I70931966","display_name":"Universit\u00e9 de Montr\u00e9al","ror":"https://ror.org/0161xgx34","country_code":"CA","type":"education","lineage":["https://openalex.org/I70931966"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"G. Sillon","raw_affiliation_strings":["Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","institution_ids":["https://openalex.org/I70931966"]},{"raw_affiliation_string":"Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9., Canada","institution_ids":["https://openalex.org/I70931966"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5018546125","display_name":"Yann Joly","orcid":"https://orcid.org/0000-0002-8775-2322","observed_orcids":["https://orcid.org/0000-0002-8775-2322"]},"institutions":[{"id":"https://openalex.org/I70931966","display_name":"Universit\u00e9 de Montr\u00e9al","ror":"https://ror.org/0161xgx34","country_code":"CA","type":"education","lineage":["https://openalex.org/I70931966"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Y. Joly","raw_affiliation_strings":["Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9. , Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre de recherche en droit public , Law Faculty , Universit\u00e9 de Montr\u00e9al , Montr\u00e9al , Qu\u00e9. , Canada","institution_ids":["https://openalex.org/I70931966"]},{"raw_affiliation_string":"Centre de recherche en droit public, Law Faculty, Universit\u00e9 de Montr\u00e9al, Montr\u00e9al, Qu\u00e9. , Canada","institution_ids":["https://openalex.org/I70931966"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I70931966"],"apc_list":null,"apc_paid":null,"fwci":4.0088,"has_fulltext":true,"cited_by_count":36,"citation_normalized_percentile":{"value":0.93029866,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"12","issue":"3","first_page":"191","last_page":"201"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9951000213623047,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9951000213623047,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.0035000001080334187,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/children","display_name":"children","score":0.6129999756813049},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.8849999904632568},{"id":"https://openalex.org/keywords/pediatric-research","display_name":"pediatric research","score":0.7360000014305115},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.9309999942779541},{"id":"https://openalex.org/keywords/assent","display_name":"assent","score":0.75},{"id":"https://openalex.org/keywords/return-of-research-results","display_name":"return of research results","score":0.7760000228881836},{"id":"https://openalex.org/keywords/biobanking","display_name":"biobanking","score":0.7350000143051147},{"id":"https://openalex.org/keywords/privacy","display_name":"privacy","score":0.5860000252723694},{"id":"https://openalex.org/keywords/research-risk-and-benefit","display_name":"research risk and benefit","score":0.5550000071525574},{"id":"https://openalex.org/keywords/vulnerable-populations","display_name":"vulnerable populations","score":0.45500001311302185},{"id":"https://openalex.org/keywords/researcher-perceptions","display_name":"researcher perceptions","score":0.42399999499320984}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.8424897789955139},{"id":"https://openalex.org/C85973986","wikidata":"https://www.wikidata.org/wiki/Q1091731","display_name":"Exploratory research","level":2,"score":0.7323204874992371},{"id":"https://openalex.org/C170734499","wikidata":"https://www.wikidata.org/wiki/Q1152227","display_name":"Pharmacogenomics","level":2,"score":0.6488267183303833},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.6221031546592712},{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.6155375242233276},{"id":"https://openalex.org/C95713431","wikidata":"https://www.wikidata.org/wiki/Q631425","display_name":"Vulnerability (computing)","level":2,"score":0.5393156409263611},{"id":"https://openalex.org/C2986663376","wikidata":"https://www.wikidata.org/wiki/Q9465","display_name":"Ethical issues","level":2,"score":0.5166445374488831},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5158507227897644},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4539565443992615},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.44687631726264954},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.4255704879760742},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.41977640986442566},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3599119186401367},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.26332515478134155},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.1929275095462799},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.15201231837272644},{"id":"https://openalex.org/C98274493","wikidata":"https://www.wikidata.org/wiki/Q128406","display_name":"Pharmacology","level":1,"score":0.09145155549049377},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.08814147114753723},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010597","descriptor_name":"Pharmacogenetics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D010597","descriptor_name":"Pharmacogenetics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D010597","descriptor_name":"Pharmacogenetics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D010597","descriptor_name":"Pharmacogenetics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D012108","descriptor_name":"Research Personnel","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1159/000189633","doi":"https://doi.org/10.1159/000189633","is_oa":true,"landing_page_url":"https://doi.org/10.1159/000189633","pdf_url":"https://www.karger.com/Article/Pdf/189633","source":{"id":"https://openalex.org/S157450843","display_name":"Public Health Genomics","issn_l":"1422-2795","issn":["1422-2795","1422-2833","1662-4246","1662-8063"],"is_oa":false,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310317820","host_organization_name":"Karger Publishers","host_organization_lineage":["https://openalex.org/P4310317820"],"host_organization_lineage_names":["Karger Publishers"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Public Health Genomics","raw_type":"journal-article"},{"id":"pmid:19204423","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/19204423","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Public health genomics","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:2790793","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/2790793","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Public Health Genomics","raw_type":"Text"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/514199","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10822/514199","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"323476","raw_type":null}],"best_oa_location":{"id":"doi:10.1159/000189633","doi":"https://doi.org/10.1159/000189633","is_oa":true,"landing_page_url":"https://doi.org/10.1159/000189633","pdf_url":"https://www.karger.com/Article/Pdf/189633","source":{"id":"https://openalex.org/S157450843","display_name":"Public Health Genomics","issn_l":"1422-2795","issn":["1422-2795","1422-2833","1662-4246","1662-8063"],"is_oa":false,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310317820","host_organization_name":"Karger Publishers","host_organization_lineage":["https://openalex.org/P4310317820"],"host_organization_lineage_names":["Karger Publishers"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Public Health Genomics","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.8999999761581421}],"sustainable_development_goals_aurora":[{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.7599999904632568}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320334506","display_name":"Canadian Institutes of Health Research","ror":"https://ror.org/01gavpb45"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2046352872.pdf","grobid_xml":"https://content.openalex.org/works/W2046352872.grobid-xml"},"referenced_works_count":46,"referenced_works":["https://openalex.org/W4951044","https://openalex.org/W147254233","https://openalex.org/W183919141","https://openalex.org/W288138210","https://openalex.org/W600744996","https://openalex.org/W1477654101","https://openalex.org/W1492328462","https://openalex.org/W1522509941","https://openalex.org/W1551526306","https://openalex.org/W1680935729","https://openalex.org/W1887737698","https://openalex.org/W1925825565","https://openalex.org/W1966027213","https://openalex.org/W1973786512","https://openalex.org/W1984077755","https://openalex.org/W1989929953","https://openalex.org/W1995350918","https://openalex.org/W1995920385","https://openalex.org/W2000172206","https://openalex.org/W2003159632","https://openalex.org/W2011407972","https://openalex.org/W2015191233","https://openalex.org/W2018253835","https://openalex.org/W2021091895","https://openalex.org/W2025555222","https://openalex.org/W2046016168","https://openalex.org/W2066772230","https://openalex.org/W2074054230","https://openalex.org/W2074185276","https://openalex.org/W2077250550","https://openalex.org/W2099415836","https://openalex.org/W2099561401","https://openalex.org/W2111753974","https://openalex.org/W2112671732","https://openalex.org/W2117903034","https://openalex.org/W2121343580","https://openalex.org/W2122683375","https://openalex.org/W2125546368","https://openalex.org/W2147458817","https://openalex.org/W2317699519","https://openalex.org/W2333305162","https://openalex.org/W2376879100","https://openalex.org/W2411967615","https://openalex.org/W3206486718","https://openalex.org/W4291677065","https://openalex.org/W4301444774"],"related_works":["https://openalex.org/W4285087457","https://openalex.org/W3113746618","https://openalex.org/W4226051228","https://openalex.org/W3017691140","https://openalex.org/W4384208482","https://openalex.org/W4244742767","https://openalex.org/W2470939431","https://openalex.org/W2024651825","https://openalex.org/W1554172105","https://openalex.org/W2738340482"],"abstract_inverted_index":{"BACKGROUND:":[0],"This":[1,158],"paper":[2],"presents":[3],"the":[4,50,60,65,81,88,94,99,118,124,139,149],"results":[5,84,129],"of":[6,17,21,57,67,83,97,126,152],"an":[7],"exploratory":[8,159],"qualitative":[9],"study":[10,160],"that":[11,110,162],"assesses":[12],"Canadian":[13,41],"pediatric":[14,42,132],"researchers'":[15],"perceptions":[16],"a":[18,32,131],"pre-selected":[19],"group":[20],"ethical":[22,150],"issues":[23],"raised":[24],"by":[25,49,87,138],"pharmacogenomics":[26,156],"research":[27,68,128,133],"with":[28,40,105],"children.":[29],"METHODS:":[30],"As":[31],"pilot":[33],"study,":[34],"we":[35],"conducted":[36],"semi-structured":[37],"telephone":[38],"interviews":[39,46],"pharmacogenomic":[43],"researchers.":[44],"The":[45],"were":[47,85,134],"guided":[48],"following":[51],"themes:":[52],"(1)":[53],"benefits":[54],"and":[55,63,76,115,173],"risks":[56,75],"inclusion,":[58],"(2)":[59],"consent/assent":[61,119],"process,":[62],"(3)":[64],"return":[66],"results.":[69],"RESULTS:":[70],"Issues":[71],"about":[72],"assent,":[73],"consent,":[74],"benefits,":[77],"as":[78,80,93,121,123],"well":[79,122],"communication":[82],"addressed":[86],"respondents.":[89,140],"Some":[90],"issues,":[91],"such":[92,177],"unique":[95],"vulnerability":[96],"children,":[98],"long":[100],"term":[101],"privacy":[102],"concerns":[103],"associated":[104],"biobanking,":[106],"additional":[107],"core":[108],"elements":[109],"need":[111],"to":[112,147,170],"be":[113,145,171],"discussed":[114],"included":[116],"in":[117,130,155],"forms,":[120],"challenges":[125,151],"communicating":[127],"not":[135],"explicitly":[136],"identified":[137],"CONCLUSION:":[141],"Further":[142],"consideration":[143],"should":[144],"given":[146],"address":[148],"including":[153],"children":[154,168],"research.":[157,178],"indicates":[161],"further":[163],"guidance":[164],"is":[165],"needed":[166],"if":[167],"are":[169],"protected":[172],"yet":[174],"benefit":[175],"from":[176]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":3},{"year":2020,"cited_by_count":2},{"year":2017,"cited_by_count":2},{"year":2016,"cited_by_count":1},{"year":2015,"cited_by_count":5},{"year":2014,"cited_by_count":6},{"year":2013,"cited_by_count":1},{"year":2012,"cited_by_count":1}],"updated_date":"2026-10-16T09:59:22.235173","created_date":"2025-10-10T00:00:00"}