{"id":"https://openalex.org/W2045708785","doi":"https://doi.org/10.1177/1533317507307787","title":"Evidence for Grief as the Major Barrier Faced by Alzheimer Caregivers: A Qualitative Analysis","display_name":"Evidence for Grief as the Major Barrier Faced by Alzheimer Caregivers: A Qualitative Analysis","publication_year":2007,"publication_date":"2007-12-31","ids":{"openalex":"https://openalex.org/W2045708785","doi":"https://doi.org/10.1177/1533317507307787","mag":"2045708785","pmid":"https://pubmed.ncbi.nlm.nih.gov/18166611","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/10846068"},"language":"en","primary_location":{"id":"doi:10.1177/1533317507307787","doi":"https://doi.org/10.1177/1533317507307787","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1533317507307787","pdf_url":null,"source":{"id":"https://openalex.org/S1037846118","display_name":"American Journal of Alzheimer s Disease & Other Dementias\u00ae","issn_l":"0888-4897","issn":["0888-4897","0895-5336","1082-5207","1533-3175","1938-2731","2162-9978","2162-9986"],"is_oa":false,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-b","doyens","jufo-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American Journal of Alzheimer's Disease & Other Dementias\u00ae","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10846068/pdf/10.1177_1533317507307787.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5044940529","display_name":"Jacquelyn B. Frank","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I135191193","display_name":"University of Indianapolis","ror":"https://ror.org/052133d12","country_code":"US","type":"education","lineage":["https://openalex.org/I135191193"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Jacquelyn B. Frank","raw_affiliation_strings":["Center for Aging & Community, University of Indianapolis, Indianapolis, Indiana,","Center for Aging & Community, University of Indianapolis, Indianapolis, IN 46203, USA. jfrank@uindy.edu"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Aging & Community, University of Indianapolis, Indianapolis, Indiana,","institution_ids":["https://openalex.org/I135191193"]},{"raw_affiliation_string":"Center for Aging & Community, University of Indianapolis, Indianapolis, IN 46203, USA. jfrank@uindy.edu","institution_ids":["https://openalex.org/I135191193"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5044940529"],"corresponding_institution_ids":["https://openalex.org/I135191193"],"apc_list":{"value":2650,"currency":"USD","value_usd":2650},"apc_paid":null,"fwci":4.3537,"has_fulltext":true,"cited_by_count":84,"citation_normalized_percentile":{"value":0.93330519,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":99},"biblio":{"volume":"22","issue":"6","first_page":"516","last_page":"527"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10009","display_name":"Dementia and Cognitive Impairment Research","score":0.003800000064074993,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.0007999999797903001,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/anticipatory-grief","display_name":"anticipatory grief","score":0.8190000057220459},{"id":"https://openalex.org/keywords/ambiguous-loss","display_name":"ambiguous loss","score":0.9350000023841858},{"id":"https://openalex.org/keywords/alzheimer-s-disease-caregivers","display_name":"Alzheimer's disease caregivers","score":0.7179999947547913},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.7870000004768372},{"id":"https://openalex.org/keywords/dementia-caregiving","display_name":"dementia caregiving","score":0.75},{"id":"https://openalex.org/keywords/caregiver-barriers","display_name":"caregiver barriers","score":0.7080000042915344},{"id":"https://openalex.org/keywords/caregiver-grief","display_name":"caregiver grief","score":0.38499999046325684}],"concepts":[{"id":"https://openalex.org/C2780837026","wikidata":"https://www.wikidata.org/wiki/Q1026040","display_name":"Grief","level":2,"score":0.935562014579773},{"id":"https://openalex.org/C95730909","wikidata":"https://www.wikidata.org/wiki/Q5282149","display_name":"Disenfranchised grief","level":3,"score":0.7315617203712463},{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.7134009599685669},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6970678567886353},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.5812406539916992},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.5523815155029297},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.47583723068237305},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.45905980467796326},{"id":"https://openalex.org/C172235718","wikidata":"https://www.wikidata.org/wiki/Q6881260","display_name":"Traumatic grief","level":3,"score":0.4491720199584961},{"id":"https://openalex.org/C2775922551","wikidata":"https://www.wikidata.org/wiki/Q7135033","display_name":"Parallels","level":2,"score":0.44733697175979614},{"id":"https://openalex.org/C2779304628","wikidata":"https://www.wikidata.org/wiki/Q3503480","display_name":"Face (sociological concept)","level":2,"score":0.4328339397907257},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.34055137634277344},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.32140052318573},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.277820348739624},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.20024365186691284},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.1846282184123993},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.1681680679321289},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.11198082566261292},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.060555994510650635},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000544","descriptor_name":"Alzheimer Disease","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":false},{"descriptor_ui":"D000544","descriptor_name":"Alzheimer Disease","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D001601","descriptor_name":"Bereavement","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006117","descriptor_name":"Grief","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010555","descriptor_name":"Personality Inventory","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D012718","descriptor_name":"Set, Psychology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017281","descriptor_name":"Cost of Illness","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017748","descriptor_name":"Time Management","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1177/1533317507307787","doi":"https://doi.org/10.1177/1533317507307787","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1533317507307787","pdf_url":null,"source":{"id":"https://openalex.org/S1037846118","display_name":"American Journal of Alzheimer s Disease & Other Dementias\u00ae","issn_l":"0888-4897","issn":["0888-4897","0895-5336","1082-5207","1533-3175","1938-2731","2162-9978","2162-9986"],"is_oa":false,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-b","doyens","jufo-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American Journal of Alzheimer's Disease & Other Dementias\u00ae","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:10846068","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10846068","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10846068/pdf/10.1177_1533317507307787.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Am J Alzheimers Dis Other Demen","raw_type":"Text"},{"id":"pmid:18166611","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/18166611","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"American journal of Alzheimer's disease and other dementias","raw_type":"Journal Article"},{"id":"pmh:oai:thekeep.eiu.edu:hscl_fac-1013","doi":null,"is_oa":false,"landing_page_url":"https://thekeep.eiu.edu/hscl_fac/14","pdf_url":null,"source":{"id":"https://openalex.org/S4377196467","display_name":"The Keep (Eastern Illinois University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I153871386","host_organization_name":"Eastern Illinois University","host_organization_lineage":["https://openalex.org/I153871386"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Faculty Research & Creative Activity","raw_type":"text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:10846068","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10846068","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10846068/pdf/10.1177_1533317507307787.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Am J Alzheimers Dis Other Demen","raw_type":"Text"},"sustainable_development_goals":[{"score":0.8048999905586243,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320306219","display_name":"Alzheimer's Association","ror":"https://ror.org/0375f4d26"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2045708785.pdf","grobid_xml":"https://content.openalex.org/works/W2045708785.grobid-xml"},"referenced_works_count":14,"referenced_works":["https://openalex.org/W596962103","https://openalex.org/W1599777539","https://openalex.org/W1991952617","https://openalex.org/W1993526816","https://openalex.org/W2014238061","https://openalex.org/W2047541825","https://openalex.org/W2048460076","https://openalex.org/W2077555588","https://openalex.org/W2131861424","https://openalex.org/W2147390524","https://openalex.org/W2158720023","https://openalex.org/W2417669062","https://openalex.org/W3031593100","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W7096142423","https://openalex.org/W2016310611","https://openalex.org/W3194447384","https://openalex.org/W1813872095","https://openalex.org/W1993526816","https://openalex.org/W2121181065","https://openalex.org/W7160452078","https://openalex.org/W1934707764","https://openalex.org/W4387356947","https://openalex.org/W4414533504"],"abstract_inverted_index":{"Feelings":[0],"of":[1,17,28,32,45,55,60,88,120,133],"loss":[2,125],"and":[3,15,35,75,96,123,140],"grief":[4,19,34,47,122],"are":[5,142],"frequent":[6],"companions":[7],"for":[8,136],"current":[9,112],"Alzheimer's":[10,113],"family":[11,79],"caregivers.":[12],"Increased":[13],"acknowledgment":[14],"understanding":[16],"caregiver":[18,33,94,138],"among":[20],"researchers":[21],"has":[22],"led":[23],"to":[24,52,116],"more":[25],"comprehensive":[26],"explorations":[27],"the":[29,39,53,65,86,97,107],"multifaceted":[30],"nature":[31],"loss.":[36],"Absent":[37],"from":[38],"literature,":[40],"however,":[41],"is":[42],"an":[43,49,58],"exploration":[44],"anticipatory":[46,71,121],"as":[48,82],"actual":[50],"barrier":[51,109],"task":[54],"caregiving.":[56],"Through":[57],"analysis":[59],"353":[61],"open-ended":[62],"survey":[63],"responses,":[64],"present":[66],"article":[67,104],"explores":[68],"links":[69],"between":[70,93],"grief,":[72],"ambiguous":[73,124],"loss,":[74],"principal":[76],"barriers":[77],"that":[78,106],"members":[80],"face":[81],"dementia":[83],"caregivers":[84,114],"across":[85],"state":[87],"Indiana.":[89],"By":[90],"drawing":[91],"parallels":[92],"responses":[95],"Marwit-Meuser":[98],"Caregiver":[99],"Grief":[100],"Inventory":[101],"subscales,":[102],"this":[103,134],"illustrates":[105],"fundamental":[108],"experienced":[110],"by":[111],"appears":[115],"be":[117],"a":[118],"combination":[119],"rather":[126],"than":[127],"hands-on":[128],"care":[129],"issues.":[130],"The":[131],"implications":[132],"finding":[135],"future":[137],"research":[139],"interventions":[141],"discussed.":[143]},"counts_by_year":[{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":5},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":3},{"year":2019,"cited_by_count":3},{"year":2018,"cited_by_count":8},{"year":2017,"cited_by_count":5},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":8},{"year":2013,"cited_by_count":4},{"year":2012,"cited_by_count":9}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}