{"id":"https://openalex.org/W2042011817","doi":"https://doi.org/10.1177/1359105311422955","title":"Challenges faced by parents of children diagnosed with autism spectrum disorder","display_name":"Challenges faced by parents of children diagnosed with autism spectrum disorder","publication_year":2011,"publication_date":"2011-10-21","ids":{"openalex":"https://openalex.org/W2042011817","doi":"https://doi.org/10.1177/1359105311422955","mag":"2042011817","pmid":"https://pubmed.ncbi.nlm.nih.gov/22021276"},"language":"en","primary_location":{"id":"doi:10.1177/1359105311422955","doi":"https://doi.org/10.1177/1359105311422955","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1359105311422955","pdf_url":null,"source":{"id":"https://openalex.org/S62445580","display_name":"Journal of Health Psychology","issn_l":"1359-1053","issn":["1359-1053","1461-7277"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","doyens","erih-plus","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Health Psychology","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/2299/16986","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5067949614","display_name":"Amanda Ludlow","orcid":"https://orcid.org/0000-0003-2843-7290","observed_orcids":["https://orcid.org/0000-0003-2843-7290"]},"institutions":[{"id":"https://openalex.org/I51216347","display_name":"Anglia Ruskin University","ror":"https://ror.org/0009t4v78","country_code":"GB","type":"education","lineage":["https://openalex.org/I51216347"]},{"id":"https://openalex.org/I79619799","display_name":"University of Birmingham","ror":"https://ror.org/03angcq70","country_code":"GB","type":"education","lineage":["https://openalex.org/I79619799"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Amanda Ludlow","raw_affiliation_strings":["Department of Psychology, University of Birmingham, UK","Department of Psychology, Anglia Ruskin University, Cambridge, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, University of Birmingham, UK","institution_ids":["https://openalex.org/I79619799"]},{"raw_affiliation_string":"Department of Psychology, Anglia Ruskin University, Cambridge, UK","institution_ids":["https://openalex.org/I51216347"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072279345","display_name":"Charlotte Skelly","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I51216347","display_name":"Anglia Ruskin University","ror":"https://ror.org/0009t4v78","country_code":"GB","type":"education","lineage":["https://openalex.org/I51216347"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Charlotte Skelly","raw_affiliation_strings":["Department of Psychology, Anglia Ruskin University, Cambridge, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, Anglia Ruskin University, Cambridge, UK","institution_ids":["https://openalex.org/I51216347"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5067670399","display_name":"Poul Rohleder","orcid":"https://orcid.org/0000-0002-5052-0464","observed_orcids":["https://orcid.org/0000-0002-5052-0464"]},"institutions":[{"id":"https://openalex.org/I51216347","display_name":"Anglia Ruskin University","ror":"https://ror.org/0009t4v78","country_code":"GB","type":"education","lineage":["https://openalex.org/I51216347"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Poul Rohleder","raw_affiliation_strings":["Department of Psychology, Anglia Ruskin University, Cambridge, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, Anglia Ruskin University, Cambridge, UK","institution_ids":["https://openalex.org/I51216347"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3650,"currency":"USD","value_usd":3650},"apc_paid":null,"fwci":8.7041,"has_fulltext":true,"cited_by_count":401,"citation_normalized_percentile":{"value":0.97941012,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":97,"max":100},"biblio":{"volume":"17","issue":"5","first_page":"702","last_page":"711"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.0026000000070780516,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/autism-spectrum-disorder","display_name":"autism spectrum disorder","score":0.9980000257492065},{"id":"https://openalex.org/keywords/parents-of-children-with-autism","display_name":"parents of autistic children","score":0.8809999823570251},{"id":"https://openalex.org/keywords/parental-experiences","display_name":"parental experiences","score":0.7820000052452087},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.7590000033378601},{"id":"https://openalex.org/keywords/behavioral-problems","display_name":"behavioral problems","score":0.9549999833106995},{"id":"https://openalex.org/keywords/social-stigma","display_name":"social stigma","score":0.7049999833106995},{"id":"https://openalex.org/keywords/lack-of-support","display_name":"lack of support","score":0.7590000033378601},{"id":"https://openalex.org/keywords/family-impact","display_name":"family impact","score":0.9330000281333923},{"id":"https://openalex.org/keywords/support-needs","display_name":"support needs","score":0.43799999356269836}],"concepts":[{"id":"https://openalex.org/C2778538070","wikidata":"https://www.wikidata.org/wiki/Q1436063","display_name":"Autism spectrum disorder","level":3,"score":0.6830795407295227},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.6730772852897644},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.6709461212158203},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6031600832939148},{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.5727505683898926},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5225638747215271},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.48967936635017395},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.47153574228286743},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.3810396194458008},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.22417518496513367},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002659","descriptor_name":"Child Development Disorders, Pervasive","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004739","descriptor_name":"England","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010287","descriptor_name":"Parent-Child Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":7,"locations":[{"id":"doi:10.1177/1359105311422955","doi":"https://doi.org/10.1177/1359105311422955","is_oa":false,"landing_page_url":"https://doi.org/10.1177/1359105311422955","pdf_url":null,"source":{"id":"https://openalex.org/S62445580","display_name":"Journal of Health Psychology","issn_l":"1359-1053","issn":["1359-1053","1461-7277"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-d","doyens","erih-plus","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Health Psychology","raw_type":"journal-article"},{"id":"pmid:22021276","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22021276","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of health psychology","raw_type":"Journal Article"},{"id":"pmh:oai:uhra.herts.ac.uk:5112","doi":null,"is_oa":false,"landing_page_url":"https://uhra.herts.ac.uk/view/author_id/a=2Eludlow=40herts=2Eac=2Euk.html>,","pdf_url":null,"source":{"id":"https://openalex.org/S4306400241","display_name":"University of Hertfordshire Research Archive (University of Hertfordshire)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I141584323","host_organization_name":"University of Hertfordshire","host_organization_lineage":["https://openalex.org/I141584323"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"Article"},{"id":"pmh:oai:arro.anglia.ac.uk:304966","doi":null,"is_oa":false,"landing_page_url":"https://arro.anglia.ac.uk/id/eprint/304966/1/Challenges%20faced%20by%20parents%20of%20children%20diagnosed%20with%20autism%20spectrum%20disorder.pdf","pdf_url":"https://arro.anglia.ac.uk/id/eprint/304966/1/Challenges%20faced%20by%20parents%20of%20children%20diagnosed%20with%20autism%20spectrum%20disorder.pdf","source":{"id":"https://openalex.org/S4306402145","display_name":"Anglia Ruskin Research Online (Anglia Ruskin University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I51216347","host_organization_name":"Anglia Ruskin University","host_organization_lineage":["https://openalex.org/I51216347"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Journal Article"},{"id":"pmh:oai:uhra.herts.ac.uk:2299/16986","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2299/16986","pdf_url":"http://hdl.handle.net/2299/16986","source":{"id":"https://openalex.org/S4306400241","display_name":"University of Hertfordshire Research Archive (University of Hertfordshire)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I141584323","host_organization_name":"University of Hertfordshire","host_organization_lineage":["https://openalex.org/I141584323"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},{"id":"pmh:oai:figshare.com:article/23753205","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/journal_contribution/Challenges_faced_by_parents_of_children_diagnosed_with_autism_spectrum_disorder/23753205","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:pure.atira.dk:openaire_cris_publications/189a1b9e-a84b-49ed-9a77-34816f3182bf","doi":null,"is_oa":false,"landing_page_url":"https://research.birmingham.ac.uk/en/publications/189a1b9e-a84b-49ed-9a77-34816f3182bf","pdf_url":null,"source":{"id":"https://openalex.org/S4306402634","display_name":"University of Birmingham Research Portal (University of Birmingham)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I79619799","host_organization_name":"University of Birmingham","host_organization_lineage":["https://openalex.org/I79619799"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Ludlow, A, Skelly, C & Rohleder, P 2011, 'Challenges Faced by Parents of Children Diagnosed With Autism Spectrum Disorder.', Journal of Health Psychology. https://doi.org/10.1177/1359105311422955","raw_type":"article"}],"best_oa_location":{"id":"pmh:oai:uhra.herts.ac.uk:2299/16986","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2299/16986","pdf_url":"http://hdl.handle.net/2299/16986","source":{"id":"https://openalex.org/S4306400241","display_name":"University of Hertfordshire Research Archive (University of Hertfordshire)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I141584323","host_organization_name":"University of Hertfordshire","host_organization_lineage":["https://openalex.org/I141584323"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9476000070571899,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2042011817.pdf","grobid_xml":"https://content.openalex.org/works/W2042011817.grobid-xml"},"referenced_works_count":46,"referenced_works":["https://openalex.org/W139853094","https://openalex.org/W611742711","https://openalex.org/W1515172209","https://openalex.org/W1531339197","https://openalex.org/W1573724753","https://openalex.org/W1602427958","https://openalex.org/W1645451701","https://openalex.org/W1970391398","https://openalex.org/W1971942537","https://openalex.org/W1979290264","https://openalex.org/W1981501537","https://openalex.org/W2009238764","https://openalex.org/W2009649883","https://openalex.org/W2010819474","https://openalex.org/W2034418766","https://openalex.org/W2036717104","https://openalex.org/W2044278170","https://openalex.org/W2045661891","https://openalex.org/W2050548202","https://openalex.org/W2057181562","https://openalex.org/W2065896932","https://openalex.org/W2066052791","https://openalex.org/W2066622755","https://openalex.org/W2085734340","https://openalex.org/W2091392558","https://openalex.org/W2092450552","https://openalex.org/W2094779565","https://openalex.org/W2098599769","https://openalex.org/W2126756448","https://openalex.org/W2127728155","https://openalex.org/W2135897145","https://openalex.org/W2141356481","https://openalex.org/W2142644312","https://openalex.org/W2142788651","https://openalex.org/W2142792010","https://openalex.org/W2143198635","https://openalex.org/W2146750786","https://openalex.org/W2148855202","https://openalex.org/W2149879954","https://openalex.org/W2154865829","https://openalex.org/W2157947126","https://openalex.org/W2160397218","https://openalex.org/W2167670743","https://openalex.org/W2168488481","https://openalex.org/W2329192425","https://openalex.org/W4299540889"],"related_works":["https://openalex.org/W2940496069","https://openalex.org/W4413398325","https://openalex.org/W2899651529","https://openalex.org/W795763454","https://openalex.org/W3189439136","https://openalex.org/W7135600622","https://openalex.org/W3162780550","https://openalex.org/W3193720687","https://openalex.org/W4402493250","https://openalex.org/W7217662487"],"abstract_inverted_index":{"Few":[0],"studies":[1],"address":[2],"the":[3,43,63,67,76],"daily":[4],"challenges":[5,30],"faced":[6],"by":[7],"parents":[8,26,77,92],"of":[9,42,59,69],"children":[10],"diagnosed":[11],"with":[12,24,50,54],"autism":[13],"spectrum":[14],"disorder.":[15],"This":[16],"article":[17],"reports":[18],"on":[19],"a":[20],"qualitative":[21],"interview":[22],"study":[23],"20":[25],"exploring":[27],"their":[28],"experiences,":[29],"faced,":[31],"and":[32,66,89],"what":[33],"has":[34],"helped":[35],"them":[36],"to":[37],"cope.":[38],"A":[39],"thematic":[40],"analysis":[41],"data":[44],"identified":[45],"five":[46],"core":[47],"categories:":[48],"Dealing":[49],"challenging":[51],"behaviour;":[52],"dealing":[53],"judgements":[55],"from":[56],"others;":[57],"lack":[58],"support;":[60],"impact":[61],"upon":[62],"family;":[64],"coping":[65],"importance":[68],"appropriate":[70],"support.":[71,84],"The":[72],"findings":[73],"emphasize":[74],"where":[75],"themselves":[78],"believe":[79],"they":[80],"still":[81],"require":[82],"additional":[83],"It":[85],"raises":[86],"key":[87],"strategies":[88],"resources":[90],"that":[91],"have":[93],"found":[94],"helpful.":[95]},"counts_by_year":[{"year":2026,"cited_by_count":20},{"year":2025,"cited_by_count":27},{"year":2024,"cited_by_count":49},{"year":2023,"cited_by_count":42},{"year":2022,"cited_by_count":27},{"year":2021,"cited_by_count":69},{"year":2020,"cited_by_count":29},{"year":2019,"cited_by_count":38},{"year":2018,"cited_by_count":19},{"year":2017,"cited_by_count":21},{"year":2016,"cited_by_count":20},{"year":2015,"cited_by_count":12},{"year":2014,"cited_by_count":15},{"year":2013,"cited_by_count":7},{"year":2012,"cited_by_count":5}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2016-06-24T00:00:00"}
