{"id":"https://openalex.org/W2041664054","doi":"https://doi.org/10.1590/1982-370002332013","title":"Qualidade de Vida e Sobrecarga de Cuidadores de Crian\u00e7as com C\u00e2ncer","display_name":"Qualidade de Vida e Sobrecarga de Cuidadores de Crian\u00e7as com C\u00e2ncer","publication_year":2014,"publication_date":"2014-12-01","ids":{"openalex":"https://openalex.org/W2041664054","doi":"https://doi.org/10.1590/1982-370002332013","mag":"2041664054"},"language":"pt","primary_location":{"id":"doi:10.1590/1982-370002332013","doi":"https://doi.org/10.1590/1982-370002332013","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1982-370002332013","pdf_url":"http://www.scielo.br/pdf/pcp/v34n4/1982-3703-pcp-34-4-1014.pdf","source":{"id":"https://openalex.org/S2739370219","display_name":"Psicologia Ci\u00eancia e Profiss\u00e3o","issn_l":"1414-9893","issn":["1414-9893","1982-3703"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","norway-1","scielo"],"host_organization":"https://openalex.org/P4310312266","host_organization_name":"Conselho Federal de Psicologia","host_organization_lineage":["https://openalex.org/P4310312266"],"host_organization_lineage_names":["Conselho Federal de Psicologia"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"http://www.scielo.br/pdf/pcp/v34n4/1982-3703-pcp-34-4-1014.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5079502281","display_name":"Samkya Fernandes de Oliveira Andrade","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I169045520","display_name":"Universidade Federal da Para\u00edba","ror":"https://ror.org/00p9vpz11","country_code":"BR","type":"education","lineage":["https://openalex.org/I169045520"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Samkya F. de O. Andrade","raw_affiliation_strings":["Universidade Federal da Para\u00edba, Brasil","Universidade Federal da Paraiba, Joao Pessoa, Brasil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Federal da Para\u00edba, Brasil","institution_ids":["https://openalex.org/I169045520"]},{"raw_affiliation_string":"Universidade Federal da Paraiba, Joao Pessoa, Brasil","institution_ids":["https://openalex.org/I169045520"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5028041009","display_name":"Railda Sabino Fernandes Alves","orcid":"https://orcid.org/0000-0001-5093-1952","observed_orcids":["https://orcid.org/0000-0001-5093-1952"]},"institutions":[{"id":"https://openalex.org/I169045520","display_name":"Universidade Federal da Para\u00edba","ror":"https://ror.org/00p9vpz11","country_code":"BR","type":"education","lineage":["https://openalex.org/I169045520"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Railda F. Alves","raw_affiliation_strings":["Universidade Federal da Para\u00edba, Brasil","Universidade Federal da Paraiba, Joao Pessoa, Brasil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Federal da Para\u00edba, Brasil","institution_ids":["https://openalex.org/I169045520"]},{"raw_affiliation_string":"Universidade Federal da Paraiba, Joao Pessoa, Brasil","institution_ids":["https://openalex.org/I169045520"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072697089","display_name":"Myriam Oliveira Melo","orcid":"https://orcid.org/0000-0002-1341-710X","observed_orcids":["https://orcid.org/0000-0002-1341-710X"]},"institutions":[{"id":"https://openalex.org/I169045520","display_name":"Universidade Federal da Para\u00edba","ror":"https://ror.org/00p9vpz11","country_code":"BR","type":"education","lineage":["https://openalex.org/I169045520"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Myriam de O. Melo","raw_affiliation_strings":["Universidade Federal da Para\u00edba, Brasil","Universidade Federal da Paraiba, Joao Pessoa, Brasil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Federal da Para\u00edba, Brasil","institution_ids":["https://openalex.org/I169045520"]},{"raw_affiliation_string":"Universidade Federal da Paraiba, Joao Pessoa, Brasil","institution_ids":["https://openalex.org/I169045520"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5019876697","display_name":"Maria Jo\u00e3o Rodrigues","orcid":"https://orcid.org/0000-0001-8732-710X","observed_orcids":["https://orcid.org/0000-0001-8732-710X"]},"institutions":[{"id":"https://openalex.org/I169045520","display_name":"Universidade Federal da Para\u00edba","ror":"https://ror.org/00p9vpz11","country_code":"BR","type":"education","lineage":["https://openalex.org/I169045520"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Maria J. Rodrigues","raw_affiliation_strings":["Universidade Federal da Para\u00edba, Brasil","Universidade Federal da Paraiba, Joao Pessoa, Brasil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Federal da Para\u00edba, Brasil","institution_ids":["https://openalex.org/I169045520"]},{"raw_affiliation_string":"Universidade Federal da Paraiba, Joao Pessoa, Brasil","institution_ids":["https://openalex.org/I169045520"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I169045520"],"apc_list":null,"apc_paid":null,"fwci":1.5394,"has_fulltext":true,"cited_by_count":16,"citation_normalized_percentile":{"value":0.85968673,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":93,"max":97},"biblio":{"volume":"34","issue":"4","first_page":"1014","last_page":"1031"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.46389999985694885,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.46389999985694885,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.23240000009536743,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.13510000705718994,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.9279999732971191},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.9789999723434448},{"id":"https://openalex.org/keywords/pediatric-cancer","display_name":"childhood cancer","score":0.8889999985694885},{"id":"https://openalex.org/keywords/pediatric-oncology","display_name":"pediatric oncology","score":0.8199999928474426},{"id":"https://openalex.org/keywords/mothers-as-caregivers","display_name":"mothers as caregivers","score":0.7110000252723694},{"id":"https://openalex.org/keywords/psychological-burden","display_name":"psychological burden","score":0.6290000081062317},{"id":"https://openalex.org/keywords/guilt","display_name":"guilt","score":0.6269999742507935},{"id":"https://openalex.org/keywords/work-family-interface","display_name":"work-family interface","score":0.5989999771118164},{"id":"https://openalex.org/keywords/zarit-burden-interview","display_name":"Zarit Burden Interview","score":0.6420000195503235},{"id":"https://openalex.org/keywords/whoqol-bref","display_name":"WHOQOL-BREF","score":0.8820000290870667}],"concepts":[{"id":"https://openalex.org/C15708023","wikidata":"https://www.wikidata.org/wiki/Q80083","display_name":"Humanities","level":1,"score":0.5748374462127686},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37347227334976196},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.34075143933296204},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.11722075939178467}],"mesh":[],"locations_count":6,"locations":[{"id":"doi:10.1590/1982-370002332013","doi":"https://doi.org/10.1590/1982-370002332013","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1982-370002332013","pdf_url":"http://www.scielo.br/pdf/pcp/v34n4/1982-3703-pcp-34-4-1014.pdf","source":{"id":"https://openalex.org/S2739370219","display_name":"Psicologia Ci\u00eancia e Profiss\u00e3o","issn_l":"1414-9893","issn":["1414-9893","1982-3703"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","norway-1","scielo"],"host_organization":"https://openalex.org/P4310312266","host_organization_name":"Conselho Federal de Psicologia","host_organization_lineage":["https://openalex.org/P4310312266"],"host_organization_lineage_names":["Conselho Federal de Psicologia"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o","raw_type":"journal-article"},{"id":"pmh:oai:scielo:S1414-98932014000401014","doi":null,"is_oa":true,"landing_page_url":"http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1414-98932014000401014","pdf_url":null,"source":{"id":"https://openalex.org/S4306402641","display_name":"LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Cient\u00edficas)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4383465926","host_organization_name":"LA Referencia","host_organization_lineage":["https://openalex.org/I4383465926"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o v.34 n.4 2014","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:americanae.aecid.es:2603436","doi":null,"is_oa":true,"landing_page_url":"http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1414-98932014000401014","pdf_url":null,"source":{"id":"https://openalex.org/S4306400786","display_name":"Americanae (AECID Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o v.34 n.4 2014","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:dialnet.unirioja.es:ART0001143842","doi":null,"is_oa":false,"landing_page_url":"https://dialnet.unirioja.es/servlet/oaiart?codigo=5864207","pdf_url":null,"source":{"id":"https://openalex.org/S4306401293","display_name":"Dialnet (Universidad de la Rioja)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I168974976","host_organization_name":"Universidad de La Rioja","host_organization_lineage":["https://openalex.org/I168974976"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o, ISSN 1982-3703, Vol. 34, N\u00ba. 4, 2014, pags. 1014-1031","raw_type":"text (article)"},{"id":"pmh:oai:doaj.org/article:3bbac99b99494539828cdfff1ca260fd","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/3bbac99b99494539828cdfff1ca260fd","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o, Vol 34, Iss 4, Pp 1014-1031","raw_type":"article"},{"id":"pmh:oai:redalyc.org:282037810015","doi":null,"is_oa":false,"landing_page_url":"https://www.redalyc.org/articulo.oa?id=282037810015","pdf_url":null,"source":{"id":"https://openalex.org/S4377196100","display_name":"Redalyc (Universidad Aut\u00f3noma del Estado de M\u00e9xico)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I179647637","host_organization_name":"Universidad Aut\u00f3noma del Estado de M\u00e9xico","host_organization_lineage":["https://openalex.org/I179647637"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Psicologia Ci\u00eancia e Profiss\u00e3o (Brasil) Num.4 Vol.34","raw_type":"art\u00edculo cient\u00edfico"}],"best_oa_location":{"id":"doi:10.1590/1982-370002332013","doi":"https://doi.org/10.1590/1982-370002332013","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1982-370002332013","pdf_url":"http://www.scielo.br/pdf/pcp/v34n4/1982-3703-pcp-34-4-1014.pdf","source":{"id":"https://openalex.org/S2739370219","display_name":"Psicologia Ci\u00eancia e Profiss\u00e3o","issn_l":"1414-9893","issn":["1414-9893","1982-3703"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","norway-1","scielo"],"host_organization":"https://openalex.org/P4310312266","host_organization_name":"Conselho Federal de Psicologia","host_organization_lineage":["https://openalex.org/P4310312266"],"host_organization_lineage_names":["Conselho Federal de Psicologia"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psicologia: Ci\u00eancia e Profiss\u00e3o","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2041664054.pdf","grobid_xml":"https://content.openalex.org/works/W2041664054.grobid-xml"},"referenced_works_count":29,"referenced_works":["https://openalex.org/W143812900","https://openalex.org/W1502729914","https://openalex.org/W1527987157","https://openalex.org/W1557818157","https://openalex.org/W1572603756","https://openalex.org/W1651752785","https://openalex.org/W1899012252","https://openalex.org/W1980071211","https://openalex.org/W1983664302","https://openalex.org/W2003752969","https://openalex.org/W2028008496","https://openalex.org/W2039821804","https://openalex.org/W2049501396","https://openalex.org/W2055280172","https://openalex.org/W2060765936","https://openalex.org/W2097937107","https://openalex.org/W2099662951","https://openalex.org/W2100333748","https://openalex.org/W2108642105","https://openalex.org/W2120516192","https://openalex.org/W2156135160","https://openalex.org/W2161776794","https://openalex.org/W2235458913","https://openalex.org/W2297126927","https://openalex.org/W2309212719","https://openalex.org/W2315700476","https://openalex.org/W3156513660","https://openalex.org/W4285719527","https://openalex.org/W7009156173"],"related_works":["https://openalex.org/W6990195047","https://openalex.org/W2619513311","https://openalex.org/W1527987157","https://openalex.org/W6993213995","https://openalex.org/W7163787968","https://openalex.org/W4406033624","https://openalex.org/W7061427538","https://openalex.org/W4376869115","https://openalex.org/W3160238956","https://openalex.org/W6996464502"],"abstract_inverted_index":{"O":[0,116],"objetivo":[1],"do":[2],"estudo":[3],"foi":[4,32,121],"verificar":[5],"a":[6,9,14,35,70,75,148,152,161,167],"rela\u00e7\u00e3o":[7,153],"entre":[8],"qualidade":[10],"de":[11,18,21,28,37,39,54,62,64,118,154,175,178],"vida":[12,138,149],"e":[13,23,78,92,133,141,151,173,181],"sobrecarga":[15,113,162],"em":[16,25],"cuidadores":[17,48,140,157],"crian\u00e7as":[19],"portadoras":[20],"neoplasia":[22],"assistidas":[24],"uma":[26,79,100],"casa":[27],"apoio.":[29],"A":[30,83,110],"metodologia":[31],"quantiqualitativa":[33],"com":[34,58,144],"utiliza\u00e7\u00e3o":[36],"multim\u00e9todos":[38],"pesquisa.":[40],"Os":[41,60,97,156],"participantes":[42],"(N":[43],"=":[44],"23)":[45],"foram":[46],"os":[47,128],"dos":[49,85,139],"pacientes":[50],"acompanhados":[51],"pela":[52,89,93],"Casa":[53],"Apoio":[55],"\u00e0":[56],"Crian\u00e7a":[57],"C\u00e2ncer.":[59],"instrumentos":[61],"coleta":[63],"dados":[65,86,129],"foram:":[66],"um":[67],"question\u00e1rio":[68],"sociodemogr\u00e1fico,":[69],"Escala":[71,76],"Whoqol":[72],"-":[73],"Bref,":[74],"Zarit":[77],"entrevista":[80],"por":[81],"pautas.":[82],"an\u00e1lise":[84,94],"se":[87],"deu":[88],"estat\u00edstica":[90],"descritiva":[91],"da":[95,142],"enuncia\u00e7\u00e3o.":[96],"resultados":[98],"apontam":[99],"amostra":[101],"essencialmente":[102],"feminina":[103],"(95,7%);":[104],"sendo":[105],"82,6%":[106],"formada":[107],"pelas":[108],"m\u00e3es.":[109],"maioria":[111],"apresentou":[112],"intensa":[114],"(54,5%).":[115],"dom\u00ednio":[117],"maior":[119],"preju\u00edzo":[120,145],"o":[122],"psicol\u00f3gico":[123],"(53,98).":[124],"As":[125],"entrevistas":[126],"confirmaram":[127],"obtidos":[130],"nas":[131],"escalas":[132],"mostraram":[134],"mudan\u00e7as":[135],"significativas":[136],"na":[137],"fam\u00edlia,":[143],"marcadamente":[146],"para":[147],"social":[150],"trabalho.":[155],"sentem-se":[158],"sobrecarregados,":[159],"mas":[160],"permanece":[163],"velada,":[164],"j\u00e1":[165],"que":[166],"sua":[168],"manifesta\u00e7\u00e3o":[169],"pode":[170],"revelar":[171],"emo\u00e7\u00f5es":[172],"sentimentos":[174],"culpa,":[176],"dif\u00edceis":[177],"serem":[179],"admitidos":[180],"elaborados.":[182]},"counts_by_year":[{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":3},{"year":2016,"cited_by_count":2}],"updated_date":"2026-11-03T10:50:19.383937","created_date":"2016-06-24T00:00:00"}