{"id":"https://openalex.org/W2032620508","doi":"https://doi.org/10.1158/1055-9965.disp12-b27","title":"Abstract B27: Researchers' attitudes about sharing biospecimens or biospecimen data: Findings from a regional survey.","display_name":"Abstract B27: Researchers' attitudes about sharing biospecimens or biospecimen data: Findings from a regional survey.","publication_year":2012,"publication_date":"2012-10-01","ids":{"openalex":"https://openalex.org/W2032620508","doi":"https://doi.org/10.1158/1055-9965.disp12-b27","mag":"2032620508"},"language":"en","primary_location":{"id":"doi:10.1158/1055-9965.disp12-b27","doi":"https://doi.org/10.1158/1055-9965.disp12-b27","is_oa":false,"landing_page_url":"https://doi.org/10.1158/1055-9965.disp12-b27","pdf_url":null,"source":{"id":"https://openalex.org/S8391440","display_name":"Cancer Epidemiology Biomarkers & Prevention","issn_l":"1055-9965","issn":["1055-9965","1538-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320273","host_organization_name":"American Association for Cancer Research","host_organization_lineage":["https://openalex.org/P4310320273"],"host_organization_lineage_names":["American Association for Cancer Research"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Cancer Epidemiology, Biomarkers & Prevention","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5072816119","display_name":"Mai H. Oushy","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I10052268","display_name":"New Mexico State University","ror":"https://ror.org/00hpz7z43","country_code":"US","type":"education","lineage":["https://openalex.org/I10052268"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mai H. Oushy","raw_affiliation_strings":["1New Mexico State University, Las Cruces, NM,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1New Mexico State University, Las Cruces, NM,","institution_ids":["https://openalex.org/I10052268"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111494293","display_name":"Alan E.C. Holden","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I165951966","display_name":"The University of Texas at San Antonio Health Science Center","ror":"https://ror.org/02f6dcw23","country_code":"US","type":"education","lineage":["https://openalex.org/I165951966","https://openalex.org/I45438204"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alan E.C. Holden","raw_affiliation_strings":["2University of Texas Health Science Center, San Antonio, TX"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"2University of Texas Health Science Center, San Antonio, TX","institution_ids":["https://openalex.org/I165951966"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5073350927","display_name":"Leticia O. Vilchis","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I10052268","display_name":"New Mexico State University","ror":"https://ror.org/00hpz7z43","country_code":"US","type":"education","lineage":["https://openalex.org/I10052268"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Leticia O. Vilchis","raw_affiliation_strings":["1New Mexico State University, Las Cruces, NM,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1New Mexico State University, Las Cruces, NM,","institution_ids":["https://openalex.org/I10052268"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009827705","display_name":"Amelie G. Ram\u00edrez","orcid":"https://orcid.org/0000-0002-5310-1337","observed_orcids":["https://orcid.org/0000-0002-5310-1337"]},"institutions":[{"id":"https://openalex.org/I165951966","display_name":"The University of Texas at San Antonio Health Science Center","ror":"https://ror.org/02f6dcw23","country_code":"US","type":"education","lineage":["https://openalex.org/I165951966","https://openalex.org/I45438204"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Amelie G. Ramirez","raw_affiliation_strings":["2University of Texas Health Science Center, San Antonio, TX"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"2University of Texas Health Science Center, San Antonio, TX","institution_ids":["https://openalex.org/I165951966"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5109243014","display_name":"Kipling J. Gallion","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I165951966","display_name":"The University of Texas at San Antonio Health Science Center","ror":"https://ror.org/02f6dcw23","country_code":"US","type":"education","lineage":["https://openalex.org/I165951966","https://openalex.org/I45438204"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kipling J. Gallion","raw_affiliation_strings":["2University of Texas Health Science Center, San Antonio, TX"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"2University of Texas Health Science Center, San Antonio, TX","institution_ids":["https://openalex.org/I165951966"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010257142","display_name":"Hugo Vilchis","orcid":"https://orcid.org/0000-0001-7841-8835","observed_orcids":["https://orcid.org/0000-0001-7841-8835"]},"institutions":[{"id":"https://openalex.org/I10052268","display_name":"New Mexico State University","ror":"https://ror.org/00hpz7z43","country_code":"US","type":"education","lineage":["https://openalex.org/I10052268"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hugo Vilchis","raw_affiliation_strings":["1New Mexico State University, Las Cruces, NM,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1New Mexico State University, Las Cruces, NM,","institution_ids":["https://openalex.org/I10052268"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5102777290","display_name":"Mary A. O\u2019Connell","orcid":"https://orcid.org/0000-0003-4430-6733","observed_orcids":["https://orcid.org/0000-0003-4430-6733"]},"institutions":[{"id":"https://openalex.org/I10052268","display_name":"New Mexico State University","ror":"https://ror.org/00hpz7z43","country_code":"US","type":"education","lineage":["https://openalex.org/I10052268"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mary A. O'Connell","raw_affiliation_strings":["1New Mexico State University, Las Cruces, NM,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1New Mexico State University, Las Cruces, NM,","institution_ids":["https://openalex.org/I10052268"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"21","issue":"10_Supplement","first_page":"B27","last_page":"B27"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9077000021934509,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9077000021934509,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.08449999988079071,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T14201","display_name":"Data Analysis and Archiving","score":0.0008999999845400453,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/biospecimen-sharing","display_name":"biospecimen sharing","score":0.9660000205039978},{"id":"https://openalex.org/keywords/researcher-attitudes","display_name":"researcher attitudes","score":0.890999972820282},{"id":"https://openalex.org/keywords/biobanking","display_name":"biobanking","score":0.8259999752044678},{"id":"https://openalex.org/keywords/cancer-disparities","display_name":"cancer disparities","score":0.8100000023841858},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.8379999995231628},{"id":"https://openalex.org/keywords/research-data-sharing","display_name":"research data sharing","score":0.40799999237060547},{"id":"https://openalex.org/keywords/barriers-to-data-sharing","display_name":"barriers to data sharing","score":0.625},{"id":"https://openalex.org/keywords/the-cancer-genome-atlas","display_name":"TCGA","score":0.6629999876022339},{"id":"https://openalex.org/keywords/gender-differences","display_name":"gender differences","score":0.3540000021457672}],"concepts":[{"id":"https://openalex.org/C2780932742","wikidata":"https://www.wikidata.org/wiki/Q4915239","display_name":"Biorepository","level":3,"score":0.9412359595298767},{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.8507135510444641},{"id":"https://openalex.org/C137403100","wikidata":"https://www.wikidata.org/wiki/Q41710","display_name":"Ethnic group","level":2,"score":0.5802273154258728},{"id":"https://openalex.org/C2250968","wikidata":"https://www.wikidata.org/wiki/Q1512929","display_name":"Health equity","level":3,"score":0.5041838884353638},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.46838027238845825},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.42430227994918823},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4019958972930908},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.39478278160095215},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.16220837831497192},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.13528349995613098},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.11241421103477478},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1158/1055-9965.disp12-b27","doi":"https://doi.org/10.1158/1055-9965.disp12-b27","is_oa":false,"landing_page_url":"https://doi.org/10.1158/1055-9965.disp12-b27","pdf_url":null,"source":{"id":"https://openalex.org/S8391440","display_name":"Cancer Epidemiology Biomarkers & Prevention","issn_l":"1055-9965","issn":["1055-9965","1538-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320273","host_organization_name":"American Association for Cancer Research","host_organization_lineage":["https://openalex.org/P4310320273"],"host_organization_lineage_names":["American Association for Cancer Research"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Cancer Epidemiology, Biomarkers & Prevention","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.7578999996185303,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"},{"score":0.5683000087738037,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2204253940","https://openalex.org/W2078807208","https://openalex.org/W7096447224","https://openalex.org/W2036666727","https://openalex.org/W2093776574","https://openalex.org/W2064129593","https://openalex.org/W2921813296","https://openalex.org/W2081116753","https://openalex.org/W2892356922","https://openalex.org/W4313891313"],"abstract_inverted_index":{"Abstract":[0],"Introduction:":[1],"The":[2,104,157,194],"support":[3],"and":[4,13,33,55,60,71,117,153,219,294,320,374,394,415,423,481],"efficient":[5],"management":[6],"of":[7,20,35,108,112,136,188,193,201,228,265,300,347,361,466,474],"cancer":[8],"health":[9],"disparities":[10],"research,":[11],"training,":[12],"infrastructure":[14],"is":[15],"highly":[16],"dependent":[17],"on":[18,297,315,471],"biobanking":[19],"well-annotated":[21],"biospecimens":[22,59,252,275,368,454],"from":[23,76,253,276,459],"different":[24],"racial/ethnic":[25],"populations.":[26],"This":[27,406],"pilot":[28],"study":[29],"assessed":[30],"interests,":[31],"attitudes":[32,218,451],"barriers":[34],"biomedical":[36],"researchers":[37,245,267,306],"in":[38,62,209,236,292,327,369,410,478],"NCI":[39,417],"Center":[40],"to":[41,57,89,98,132,224,250,273,311,330,340,353,380],"Reduce":[42],"Cancer":[43,195,475,494],"Health":[44,476],"Disparities'":[45],"regional":[46,398,461],"network":[47,399],"G/BMaP":[48],"Region":[49],"4":[50],"(AZ,":[51],"CO,":[52],"NM,":[53],"OK,":[54],"TX)":[56],"sharing":[58,453],"participating":[61],"a":[63,92,139,256,279,316,370,378,460],"virtual":[64,140,318,371],"national":[65,317,372],"biorepository.":[66],"Methods:":[67],"Participants":[68],"were":[69,96,142,159,179,191,239,246,269,307,337,350,387],"identified":[70],"their":[72,210,367,384],"email":[73,102],"addresses":[74],"obtained":[75],"NIH":[77,416],"RePORT":[78],"db.":[79],"Email":[80],"invitations":[81],"for":[82,383],"anonymous":[83],"participation,":[84],"with":[85,222,241],"embedded":[86],"informed":[87,260,282],"consent,":[88,261],"participate":[90],"via":[91],"secure":[93],"state-specific":[94],"link":[95],"sent":[97],"605":[99],"individuals":[100],"(valid":[101],"addresses).":[103],"survey":[105],"instrument":[106],"consisted":[107],"24":[109],"questions,":[110,114],"comprised":[111],"one-choice/multiple-choice":[113],"Likert":[115],"scales,":[116],"few":[118],"open-ended":[119],"responses.":[120],"Demographic":[121],"data,":[122],"professional":[123],"role,":[124],"specimen":[125,313,342],"collection":[126],"types,":[127],"as":[128,130],"well":[129],"willingness":[131],"share":[133,312,331,341,354,364],"specific":[134,280],"types":[135,346],"information":[137,314,343],"through":[138],"biorepository":[141],"collected.":[143],"Statistical":[144],"analysis":[145],"was":[146,408],"performed":[147],"using":[148,205,255,278],"SPSS":[149],"(Chi-square,":[150],"Factor":[151],"Analysis":[152],"One-Way":[154],"ANOVA).":[155],"Results:":[156],"respondents":[158,189,203,229,238,362],"principal":[160],"investigators":[161],"at":[162],"PhD":[163],"granting":[164],"institutions":[165],"(91.1%)":[166],"conducting":[167],"basic":[168,328],"(62.3%),":[169],"translational":[170],"(43.9%),":[171],"clinical":[172],"(8.8%)":[173],"or":[174,234,455],"epidemiological":[175],"(5.3%)":[176],"research;":[177],"most":[178],"non-Hispanic":[180],"White":[181],"(63.4%),":[182],"males":[183],"(60.6%).":[184],"While":[185],"the":[186,202,263,298,467,472,482],"majority":[187,264],"(67.5%)":[190],"aware":[192],"Genome":[196],"Atlas":[197],"(TCGA),":[198],"only":[199],"20.9%":[200],"reported":[204],"this":[206],"biospecimen":[207,456],"database":[208],"research.":[211,385],"We":[212,287],"found":[213],"almost":[214],"no":[215],"differences":[216,291],"regarding":[217],"behavioral":[220],"intentions":[221],"respect":[223],"any":[225],"sociodemographic":[226],"characteristic":[227],"including":[230],"ethnicity,":[231],"gender,":[232],"age":[233],"state":[235],"which":[237],"based":[240,296],"one":[242],"exception.":[243],"Male":[244],"more":[247,271,309,351],"likely":[248,272,310,322,339,352],"(54.5%)":[249],"collect":[251,274],"donors":[254,277],"general":[257],"research":[258,301,329,335],"purpose":[259,281],"while":[262],"female":[266],"(73.7%)":[268],"significantly":[270,308],"consent":[283],"(p":[284],"=":[285],"0.048).":[286],"did":[288],"find":[289],"significant":[290],"response":[293],"attitude":[295],"type":[299],"conducted":[302],"by":[303,412],"participants.":[304],"Basic":[305],"biorepository,":[319],"less":[321,338],"than":[323,344,359],"participants":[324,336],"not":[325],"engaged":[326],"grant":[332,355],"information.":[333,356],"Clinical":[334],"other":[345],"researchers,":[348],"they":[349],"Conclusions:":[357],"More":[358],"half":[360],"would":[363,375],"data":[365],"about":[366,391,452],"biorespository":[373],"use":[376],"such":[377],"repository":[379],"locate":[381],"biopecimens":[382],"There":[386],"recurring":[388],"concerns":[389],"voiced":[390],"legal":[392],"issues":[393],"sample":[395],"quality.":[396],"A":[397],"structure":[400],"could":[401],"help":[402],"reduce":[403],"these":[404],"concerns.":[405],"work":[407],"supported":[409],"part":[411],"NM":[413],"AES":[414],"grants":[418],"5":[419],"U54":[420,425],"CA132383":[421],"(O'Connell)":[422],"1":[424],"CA153511":[426],"(Ramirez).":[427],"Citation":[428],"Format:":[429],"Mai":[430],"H.":[431],"Oushy,":[432],"Alan":[433],"E.C.":[434],"Holden,":[435],"Leticia":[436],"O.":[437],"Vilchis,":[438,446],"Amelie":[439],"G.":[440],"Ramirez,":[441],"Kipling":[442],"J.":[443],"Gallion,":[444],"Hugo":[445],"Mary":[447],"A.":[448],"O'Connell.":[449],"Researchers'":[450],"data:":[457],"Findings":[458],"survey.":[462],"[abstract].":[463],"In:":[464],"Proceedings":[465],"Fifth":[468],"AACR":[469],"Conference":[470],"Science":[473],"Disparities":[477],"Racial/Ethnic":[479],"Minorities":[480],"Medically":[483],"Underserved;":[484],"2012":[485],"Oct":[486],"27-30;":[487],"San":[488],"Diego,":[489],"CA.":[490],"Philadelphia":[491],"(PA):":[492],"AACR;":[493],"Epidemiol":[495],"Biomarkers":[496],"Prev":[497],"2012;21(10":[498],"Suppl):Abstract":[499],"nr":[500],"B27.":[501]},"counts_by_year":[],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2016-06-24T00:00:00"}