{"id":"https://openalex.org/W2016195199","doi":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","title":"SIBLING SUPPORT IN PEDIATRIC INFLAMMATORY BOWEL DISEASE (IBD)","display_name":"SIBLING SUPPORT IN PEDIATRIC INFLAMMATORY BOWEL DISEASE (IBD)","publication_year":2005,"publication_date":"2005-10-01","ids":{"openalex":"https://openalex.org/W2016195199","doi":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","mag":"2016195199"},"language":"en","primary_location":{"id":"doi:10.1097/01.mpg.0000182012.84945.56","doi":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","is_oa":false,"landing_page_url":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","pdf_url":null,"source":{"id":"https://openalex.org/S197964821","display_name":"Journal of Pediatric Gastroenterology and Nutrition","issn_l":"0277-2116","issn":["0277-2116","1536-4801"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Pediatric Gastroenterology and Nutrition","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5027114606","display_name":"Debra J. Lobato","orcid":"https://orcid.org/0009-0000-0670-455X","observed_orcids":["https://orcid.org/0009-0000-0670-455X"]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Debra Lobato","raw_affiliation_strings":["Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088150791","display_name":"Yana Markov Wember","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Yana Wember","raw_affiliation_strings":["Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011363813","display_name":"Wendy A. Plante","orcid":"https://orcid.org/0000-0002-3863-1727","observed_orcids":["https://orcid.org/0000-0002-3863-1727"]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wendy Plante","raw_affiliation_strings":["Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049738866","display_name":"Linda B. Shalon","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Linda Shalon","raw_affiliation_strings":["Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000537312","display_name":"Jack H. Nassau","orcid":"https://orcid.org/0000-0003-1544-8046","observed_orcids":["https://orcid.org/0000-0003-1544-8046"]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jack Nassau","raw_affiliation_strings":["Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Nancy Miller","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nancy Miller","raw_affiliation_strings":["Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015715712","display_name":"Kathy Scorpio","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kathy Scorpio","raw_affiliation_strings":["Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074896572","display_name":"Janet Trotta","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Janet Trotta","raw_affiliation_strings":["Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Pediatrics, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5011889522","display_name":"Neal S. LeLeiko","orcid":"https://orcid.org/0000-0001-7699-1400","observed_orcids":["https://orcid.org/0000-0001-7699-1400"]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Neal LeLeiko","raw_affiliation_strings":["Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Psychiatry, Hasbro Children's Hospital/Brown Medical School, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I4210112379"],"apc_list":{"value":3780,"currency":"USD","value_usd":3780},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.12879811,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"41","issue":"4","first_page":"541","last_page":"541"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10134","display_name":"Inflammatory Bowel Disease","score":0.6937999725341797,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10134","display_name":"Inflammatory Bowel Disease","score":0.6937999725341797,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.11079999804496765,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.10270000249147415,"subfield":{"id":"https://openalex.org/subfields/3616","display_name":"Speech and Hearing"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/pediatric-inflammatory-bowel-disease","display_name":"pediatric inflammatory bowel disease","score":0.9010000228881836},{"id":"https://openalex.org/keywords/crohn-s-disease","display_name":"Crohn's disease","score":0.8880000114440918},{"id":"https://openalex.org/keywords/sibling-support","display_name":"sibling support","score":0.9570000171661377},{"id":"https://openalex.org/keywords/family-involvement-in-care","display_name":"family involvement in care","score":0.7590000033378601},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.8569999933242798},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.9869999885559082},{"id":"https://openalex.org/keywords/body-image","display_name":"body image","score":0.8510000109672546},{"id":"https://openalex.org/keywords/treatment-concerns","display_name":"treatment concerns","score":0.6510000228881836},{"id":"https://openalex.org/keywords/family-intervention","display_name":"family intervention","score":0.7739999890327454},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.4429999887943268}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9408026933670044},{"id":"https://openalex.org/C2776194465","wikidata":"https://www.wikidata.org/wiki/Q31184","display_name":"Sibling","level":2,"score":0.7807357907295227},{"id":"https://openalex.org/C2778260677","wikidata":"https://www.wikidata.org/wiki/Q917447","display_name":"Inflammatory bowel disease","level":3,"score":0.7321174144744873},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.6594756245613098},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.5544464588165283},{"id":"https://openalex.org/C20387591","wikidata":"https://www.wikidata.org/wiki/Q930752","display_name":"Specialty","level":2,"score":0.4825279414653778},{"id":"https://openalex.org/C2779280984","wikidata":"https://www.wikidata.org/wiki/Q1472","display_name":"Crohn's disease","level":3,"score":0.43899986147880554},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.3965703845024109},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.38529494404792786},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.3144517242908478},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.24299085140228271},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.0},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.0},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1097/01.mpg.0000182012.84945.56","doi":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","is_oa":false,"landing_page_url":"https://doi.org/10.1097/01.mpg.0000182012.84945.56","pdf_url":null,"source":{"id":"https://openalex.org/S197964821","display_name":"Journal of Pediatric Gastroenterology and Nutrition","issn_l":"0277-2116","issn":["0277-2116","1536-4801"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Pediatric Gastroenterology and Nutrition","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W1987997841","https://openalex.org/W1999227289","https://openalex.org/W7099817722","https://openalex.org/W4410032954","https://openalex.org/W2730561877","https://openalex.org/W2069521436","https://openalex.org/W3131986263","https://openalex.org/W2324956590","https://openalex.org/W2280290743","https://openalex.org/W2310275387"],"abstract_inverted_index":{"Objective:":[0],"A":[1],"supportive":[2],"family":[3,136],"environment":[4],"is":[5,35],"an":[6],"important":[7,293],"predictor":[8],"of":[9,26,60,65,153,156,182,196,208,279],"psychological":[10],"outcomes":[11],"and":[12,30,57,62,67,78,107,166,183,225,281,286],"medication":[13,160,282],"adherence":[14,64,161,283],"in":[15,40,120,190,237,270,284,298],"pediatric":[16,299],"chronic":[17],"conditions,":[18],"including":[19],"IBD.":[20,70,289,300],"Siblings":[21],"are":[22],"a":[23,27,88,118,122,186,244],"fundamental":[24],"part":[25],"child's":[28],"familial":[29],"social":[31],"network,":[32],"yet":[33],"little":[34],"known":[36],"about":[37,228],"siblings'":[38,52],"involvement":[39,189],"IBD":[41,55,82,93,147,149,159,170,178,191,200,229,238,240,271],"care.":[42,171,192],"This":[43],"ongoing":[44],"pilot":[45],"study":[46],"examines":[47],"the":[48,58,146,177],"relationship":[49],"between":[50],"healthy":[51,125,187],"support":[53,168,174,198,249,269],"with":[54,69,81,164,169,199,204,254,276,288],"care":[56,201,272],"quality":[59,155,207,278],"life":[61,157,209,280],"treatment":[63,230,255],"children":[66,285],"adolescents":[68,287],"Method:":[71],"Participants":[72],"to":[73],"date":[74],"include":[75],"12":[76],"child":[77],"adolescent":[79],"patients":[80,94,150,241],"(83%":[83],"Crohn's":[84],"disease)":[85],"recruited":[86],"through":[87],"Pediatric":[89],"GI":[90],"specialty":[91],"clinic.":[92],"(age":[95,127],"range:":[96,128],"11-17":[97],"years;":[98,130],"M":[99,131],"=":[100,132,211,214,220,232,258],"13.7)":[101],"were":[102,143],"58%":[103,142],"female,":[104],"83%":[105],"Caucasian,":[106],"had":[108,115],"well-controlled":[109],"disease":[110],"by":[111],"parent":[112],"report":[113],"(75%":[114],"not":[116],"experienced":[117],"flare-up":[119],"over":[121],"year).":[123],"One":[124],"sibling":[126,167,173,197,248,268],"10-18":[129],"13.2)":[133],"from":[134],"each":[135],"was":[137,202],"randomly":[138],"selected":[139],"for":[140,295],"reference;":[141],"older":[144],"than":[145],"patient.":[148],"completed":[151],"measures":[152],"IBD-specific":[154],"(IMPACT-II),":[158],"(completed":[162],"conjointly":[163],"parent),":[165],"The":[172],"measure":[175],"assessed":[176],"patient's":[179],"perceived":[180],"frequency":[181,195],"attitude":[184,246],"toward":[185,247],"sibling's":[188],"Results:":[193],"Greater":[194],"associated":[203,275],"better":[205,216],"overall":[206],"(r":[210,219,231,257],".56,":[212],"p":[213,222,234,260],".06),":[215],"body":[217],"image":[218],".57,":[221],"<":[223,235,261],".05),":[224],"fewer":[226,252],"concerns":[227],".61,":[233],".05)":[236],"patients.":[239],"who":[242],"reported":[243,251],"positive":[245],"also":[250],"difficulties":[253],"management":[256],"\u2212.67,":[259],".05).":[262],"Conclusion:":[263],"Preliminary":[264],"findings":[265],"suggest":[266],"that":[267],"may":[273,291],"be":[274],"higher":[277],"Findings":[290],"have":[292],"implications":[294],"family-based":[296],"interventions":[297]},"counts_by_year":[],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2016-06-24T00:00:00"}