{"id":"https://openalex.org/W2011280948","doi":"https://doi.org/10.1016/s0022-510x(98)00209-3","title":"The psychological impact of MND on patients and carers","display_name":"The psychological impact of MND on patients and carers","publication_year":1998,"publication_date":"1998-10-01","ids":{"openalex":"https://openalex.org/W2011280948","doi":"https://doi.org/10.1016/s0022-510x(98)00209-3","mag":"2011280948","pmid":"https://pubmed.ncbi.nlm.nih.gov/9851660"},"language":"en","primary_location":{"id":"doi:10.1016/s0022-510x(98)00209-3","doi":"https://doi.org/10.1016/s0022-510x(98)00209-3","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s0022-510x(98)00209-3","pdf_url":null,"source":{"id":"https://openalex.org/S169054600","display_name":"Journal of the Neurological Sciences","issn_l":"0022-510X","issn":["0022-510X","1878-5883"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the Neurological Sciences","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5043201746","display_name":"Laura H. Goldstein","orcid":"https://orcid.org/0000-0001-9387-3035","observed_orcids":["https://orcid.org/0000-0001-9387-3035"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Laura H Goldstein","raw_affiliation_strings":["Department of Psychology, Institute of Psychiatry, London, UK","Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, Institute of Psychiatry, London, UK","institution_ids":[]},{"raw_affiliation_string":"Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Michelle Adamson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Michelle Adamson","raw_affiliation_strings":["Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003781193","display_name":"Lorraine Jeffrey","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lorraine Jeffrey","raw_affiliation_strings":["King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024503162","display_name":"Keren Down","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Keren Down","raw_affiliation_strings":["King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000996442","display_name":"Teresa Barby","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Teresa Barby","raw_affiliation_strings":["King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Claire Wilson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Claire Wilson","raw_affiliation_strings":["Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychology, Institute of Psychiatry, De Crespigny Park, London, SE5 8AF, UK","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5055795746","display_name":"P. Nigel Leigh","orcid":"https://orcid.org/0000-0002-6702-0378","observed_orcids":["https://orcid.org/0000-0002-6702-0378"]},"institutions":[{"id":"https://openalex.org/I183935753","display_name":"King's College London","ror":"https://ror.org/0220mzb33","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I183935753"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"P.Nigel Leigh","raw_affiliation_strings":["Department of Clinical Neurosciences, Institute of Psychiatry and King's College School of Medicine and Dentistry, Denmark Hill, London, SE5, UK","King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Clinical Neurosciences, Institute of Psychiatry and King's College School of Medicine and Dentistry, Denmark Hill, London, SE5, UK","institution_ids":["https://openalex.org/I183935753"]},{"raw_affiliation_string":"King's MND Care and Research Centre, Denmark Hill, London, SE5 9RS, UK","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5043201746"],"corresponding_institution_ids":[],"apc_list":{"value":3640,"currency":"USD","value_usd":3640},"apc_paid":null,"fwci":5.7299,"has_fulltext":false,"cited_by_count":96,"citation_normalized_percentile":{"value":0.94886364,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":99},"biblio":{"volume":"160","issue":null,"first_page":"S114","last_page":"S121"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.6894999742507935,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.6894999742507935,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.1973000019788742,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10009","display_name":"Dementia and Cognitive Impairment Research","score":0.04610000178217888,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/motor-neuron-disease","display_name":"motor neuron disease","score":0.9449999928474426},{"id":"https://openalex.org/keywords/psychological-impact","display_name":"psychological impact","score":0.7609999775886536},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.8650000095367432},{"id":"https://openalex.org/keywords/anxiety","display_name":"anxiety","score":0.8209999799728394},{"id":"https://openalex.org/keywords/depression","display_name":"depression","score":1.0},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.9900000095367432},{"id":"https://openalex.org/keywords/relationship-strain","display_name":"relationship strain","score":0.5640000104904175},{"id":"https://openalex.org/keywords/functional-disability","display_name":"functional disability","score":0.7229999899864197},{"id":"https://openalex.org/keywords/social-performance","display_name":"social performance","score":0.5339999794960022},{"id":"https://openalex.org/keywords/communication-change","display_name":"communication change","score":0.8199999928474426},{"id":"https://openalex.org/keywords/symptom-duration","display_name":"symptom duration","score":0.6570000052452087}],"concepts":[{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.6927014589309692},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.672809898853302},{"id":"https://openalex.org/C2778466831","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Motor neurone disease","level":4,"score":0.627726137638092},{"id":"https://openalex.org/C2776867660","wikidata":"https://www.wikidata.org/wiki/Q1814941","display_name":"Depression (economics)","level":2,"score":0.5986582040786743},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5679457187652588},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.5204265713691711},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.4609411954879761},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.44758573174476624},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.420273095369339},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.31885993480682373},{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.09513062238693237},{"id":"https://openalex.org/C139719470","wikidata":"https://www.wikidata.org/wiki/Q39680","display_name":"Macroeconomics","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D004185","descriptor_name":"Disability Evaluation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011581","descriptor_name":"Psychological Tests","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013315","descriptor_name":"Stress, Psychological","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":true},{"descriptor_ui":"D016472","descriptor_name":"Motor Neuron Disease","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":false},{"descriptor_ui":"D016472","descriptor_name":"Motor Neuron Disease","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1016/s0022-510x(98)00209-3","doi":"https://doi.org/10.1016/s0022-510x(98)00209-3","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s0022-510x(98)00209-3","pdf_url":null,"source":{"id":"https://openalex.org/S169054600","display_name":"Journal of the Neurological Sciences","issn_l":"0022-510X","issn":["0022-510X","1878-5883"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the Neurological Sciences","raw_type":"journal-article"},{"id":"pmid:9851660","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9851660","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the neurological sciences","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9940000176429749}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":28,"referenced_works":["https://openalex.org/W9000087","https://openalex.org/W1964177214","https://openalex.org/W1965662780","https://openalex.org/W1987364828","https://openalex.org/W2003902497","https://openalex.org/W2013668116","https://openalex.org/W2047621420","https://openalex.org/W2050607563","https://openalex.org/W2050773741","https://openalex.org/W2050925914","https://openalex.org/W2064530737","https://openalex.org/W2064644599","https://openalex.org/W2071185686","https://openalex.org/W2072743331","https://openalex.org/W2073612721","https://openalex.org/W2089521211","https://openalex.org/W2101191370","https://openalex.org/W2115209495","https://openalex.org/W2122323914","https://openalex.org/W2144871118","https://openalex.org/W2153617808","https://openalex.org/W2155648052","https://openalex.org/W2166281097","https://openalex.org/W2327344628","https://openalex.org/W2399064275","https://openalex.org/W2581594249","https://openalex.org/W2614309736","https://openalex.org/W2993865775"],"related_works":["https://openalex.org/W2149560570","https://openalex.org/W2081111711","https://openalex.org/W2058533572","https://openalex.org/W2111961624","https://openalex.org/W1987364828","https://openalex.org/W2567205705","https://openalex.org/W2055917237","https://openalex.org/W3043195177","https://openalex.org/W7048778568","https://openalex.org/W2112532444"],"abstract_inverted_index":null,"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":6},{"year":2018,"cited_by_count":4},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":3},{"year":2015,"cited_by_count":5},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":8},{"year":2012,"cited_by_count":7}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}