{"id":"https://openalex.org/W2009807288","doi":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","title":"Fair shares? Supporting families caring for adult persons with intellectual disabilities","display_name":"Fair shares? Supporting families caring for adult persons with intellectual disabilities","publication_year":2005,"publication_date":"2005-06-30","ids":{"openalex":"https://openalex.org/W2009807288","doi":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","mag":"2009807288","pmid":"https://pubmed.ncbi.nlm.nih.gov/16011553"},"language":"en","primary_location":{"id":"doi:10.1111/j.1365-2788.2005.00697.x","doi":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","pdf_url":null,"source":{"id":"https://openalex.org/S67377460","display_name":"Journal of Intellectual Disability Research","issn_l":"0964-2633","issn":["0964-2633","1365-2788"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-c","erih-plus","jufo-2","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Intellectual Disability Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5077629437","display_name":"Roy McConkey","orcid":"https://orcid.org/0000-0002-8102-7402","observed_orcids":["https://orcid.org/0000-0002-8102-7402"]},"institutions":[{"id":"https://openalex.org/I138801177","display_name":"University of Ulster","ror":"https://ror.org/01yp9g959","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"R. McConkey","raw_affiliation_strings":["School of Nursing, University of Ulster, Northern Ireland. r.mcconkey@ulster.ac.uk","School of Nursing, University of Ulster, Northern Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Nursing, University of Ulster, Northern Ireland. r.mcconkey@ulster.ac.uk","institution_ids":["https://openalex.org/I138801177"]},{"raw_affiliation_string":"School of Nursing, University of Ulster, Northern Ireland","institution_ids":["https://openalex.org/I138801177"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5077629437"],"corresponding_institution_ids":["https://openalex.org/I138801177"],"apc_list":{"value":3920,"currency":"USD","value_usd":3920},"apc_paid":null,"fwci":3.0815,"has_fulltext":false,"cited_by_count":72,"citation_normalized_percentile":{"value":0.90065962,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"49","issue":"8","first_page":"600","last_page":"612"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9951000213623047,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9951000213623047,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.003800000064074993,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.953000009059906},{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.8169999718666077},{"id":"https://openalex.org/keywords/adult-care","display_name":"adult care","score":0.5400000214576721},{"id":"https://openalex.org/keywords/carer-support-services","display_name":"carer support services","score":0.8460000157356262},{"id":"https://openalex.org/keywords/unmet-needs","display_name":"unmet needs","score":0.7839999794960022},{"id":"https://openalex.org/keywords/access-to-services","display_name":"access to services","score":0.6729999780654907},{"id":"https://openalex.org/keywords/northern-ireland","display_name":"Northern Ireland","score":0.652999997138977}],"concepts":[{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.6029909253120422},{"id":"https://openalex.org/C2780378061","wikidata":"https://www.wikidata.org/wiki/Q25351891","display_name":"Service (business)","level":2,"score":0.5500919222831726},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5069558620452881},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.4935520887374878},{"id":"https://openalex.org/C198531522","wikidata":"https://www.wikidata.org/wiki/Q485146","display_name":"Sample (material)","level":2,"score":0.47211921215057373},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3709603548049927},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3704744875431061},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36968034505844116},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.30711930990219116},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.08781540393829346},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C185592680","wikidata":"https://www.wikidata.org/wiki/Q2329","display_name":"Chemistry","level":0,"score":0.0},{"id":"https://openalex.org/C136264566","wikidata":"https://www.wikidata.org/wiki/Q159810","display_name":"Economy","level":1,"score":0.0},{"id":"https://openalex.org/C43617362","wikidata":"https://www.wikidata.org/wiki/Q170050","display_name":"Chromatography","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003631","descriptor_name":"Day Care, Medical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008607","descriptor_name":"Intellectual Disability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012114","descriptor_name":"Residential Treatment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012144","descriptor_name":"Respite Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1111/j.1365-2788.2005.00697.x","doi":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1365-2788.2005.00697.x","pdf_url":null,"source":{"id":"https://openalex.org/S67377460","display_name":"Journal of Intellectual Disability Research","issn_l":"0964-2633","issn":["0964-2633","1365-2788"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-c","erih-plus","jufo-2","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Intellectual Disability Research","raw_type":"journal-article"},{"id":"pmid:16011553","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/16011553","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of intellectual disability research : JIDR","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9629999995231628,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"},{"score":0.5683000087738037,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":21,"referenced_works":["https://openalex.org/W208673591","https://openalex.org/W1624566040","https://openalex.org/W1801902995","https://openalex.org/W1958329379","https://openalex.org/W2015993371","https://openalex.org/W2016943924","https://openalex.org/W2026692938","https://openalex.org/W2038834508","https://openalex.org/W2046906258","https://openalex.org/W2050076207","https://openalex.org/W2057472129","https://openalex.org/W2062699377","https://openalex.org/W2066701609","https://openalex.org/W2095388705","https://openalex.org/W2097034055","https://openalex.org/W2108703050","https://openalex.org/W2109228210","https://openalex.org/W2125001978","https://openalex.org/W2139116653","https://openalex.org/W2145789170","https://openalex.org/W3005040952"],"related_works":["https://openalex.org/W2161826072","https://openalex.org/W2132902388","https://openalex.org/W1940543067","https://openalex.org/W6945448501","https://openalex.org/W3142659920","https://openalex.org/W1944608842","https://openalex.org/W1599157508","https://openalex.org/W2046057008","https://openalex.org/W2122182905","https://openalex.org/W2503459548"],"abstract_inverted_index":{"BACKGROUND:":[0],"Although":[1],"the":[2,21,26,58,61,83,90,126,145,178,189],"majority":[3],"of":[4,20,23,73,82,89,114,125,152,161,180,188],"adult":[5],"persons":[6],"with":[7,60,69,104,109],"intellectual":[8],"disabilities":[9],"are":[10,202],"cared":[11,94],"for":[12,95,128,164,199],"by":[13,96],"their":[14,24,32,119,137],"families,":[15],"remarkably":[16],"little":[17],"is":[18,38],"known":[19],"characteristics":[22,121,179],"carers,":[25],"support":[27,156,166],"services":[28,167],"they":[29,130],"receive":[30],"and":[31,107,122],"unmet":[33,162],"needs.":[34],"A":[35,63,158],"particular":[36],"concern":[37],"whether":[39],"or":[40],"not":[41],"carers":[42,77,106,115,182],"have":[43],"equitable":[44],"access":[45,154],"to":[46,155,173,177,185,195],"services.":[47,157],"METHOD:":[48],"Information":[49],"was":[50,67,144,150,168],"gathered":[51],"from":[52],"service":[53],"staff":[54],"who":[55],"knew":[56],"best":[57],"person":[59,127,142],"disability.":[62],"standard":[64],"pro":[65],"forma":[66],"used":[68],"a":[70],"representative":[71],"sample":[72],"over":[74],"1500":[75],"family":[76,181],"in":[78,118,123,141,192],"Northern":[79],"Ireland":[80],"(26%":[81],"estimated":[84],"population).":[85],"RESULTS:":[86],"Nearly":[87],"half":[88],"people":[91],"were":[92],"being":[93],"both":[97],"parents,":[98],"but":[99],"around":[100],"one":[101],"third":[102],"lived":[103],"lone":[105],"20%":[108],"another":[110],"relative.":[111],"These":[112],"subgroups":[113],"varied":[116],"significantly":[117],"personal":[120],"terms":[124],"whom":[129],"cared.":[131],"However,":[132],"Regression":[133],"Analyses":[134],"identified":[135],"that":[136,149],"relative's":[138],"higher":[139],"dependency":[140],"care":[143],"only":[146],"common":[147],"variable":[148],"predictive":[151],"carers'":[153],"possible":[159],"measure":[160],"need":[163,172],"various":[165],"derived.":[169],"CONCLUSIONS:":[170],"Services":[171],"pay":[174],"greater":[175],"attention":[176],"so":[183],"as":[184],"overcome":[186],"some":[187],"present":[190],"inequities":[191],"supports":[193],"offered":[194],"them.":[196],"Further":[197],"areas":[198],"future":[200],"research":[201],"identified.":[203]},"counts_by_year":[{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":4},{"year":2017,"cited_by_count":2},{"year":2016,"cited_by_count":5},{"year":2015,"cited_by_count":3},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":5}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}