{"id":"https://openalex.org/W2008371572","doi":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","title":"Dying in America \u2014 An Examination of Policies that Deter Adequate End-of-life Care in Nursing Homes","display_name":"Dying in America \u2014 An Examination of Policies that Deter Adequate End-of-life Care in Nursing Homes","publication_year":2005,"publication_date":"2005-01-01","ids":{"openalex":"https://openalex.org/W2008371572","doi":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","mag":"2008371572","pmid":"https://pubmed.ncbi.nlm.nih.gov/16083088"},"language":"en","primary_location":{"id":"doi:10.1111/j.1748-720x.2005.tb00495.x","doi":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","pdf_url":null,"source":{"id":"https://openalex.org/S171945920","display_name":"The Journal of Law Medicine & Ethics","issn_l":"1073-1105","issn":["1073-1105","1748-720X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Law, Medicine & Ethics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5037719329","display_name":"Diane E. Hoffmann","orcid":"https://orcid.org/0000-0002-3439-9967","observed_orcids":["https://orcid.org/0000-0002-3439-9967"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Diane E. Hoffmann","raw_affiliation_strings":["Law & Health Care Program at the University of Maryland School of Law, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Law & Health Care Program at the University of Maryland School of Law, USA","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5046658371","display_name":"Anita J. Tarzian","orcid":"https://orcid.org/0000-0002-0237-5311","observed_orcids":["https://orcid.org/0000-0002-0237-5311"]},"institutions":[{"id":"https://openalex.org/I126744593","display_name":"University of Maryland, Baltimore","ror":"https://ror.org/04rq5mt64","country_code":"US","type":"education","lineage":["https://openalex.org/I126744593"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Anita J. Tarzian","raw_affiliation_strings":["University of Maryland, Baltimore, Baltimore, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Maryland, Baltimore, Baltimore, United States","institution_ids":["https://openalex.org/I126744593"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3550,"currency":"USD","value_usd":3550},"apc_paid":null,"fwci":3.4816,"has_fulltext":false,"cited_by_count":24,"citation_normalized_percentile":{"value":0.91502144,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":96},"biblio":{"volume":"33","issue":"2","first_page":"294","last_page":"309"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11376","display_name":"Geriatric Care and Nursing Homes","score":0.0038999998942017555,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.0017000000225380063,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.996999979019165},{"id":"https://openalex.org/keywords/nursing-homes","display_name":"nursing homes","score":0.9769999980926514},{"id":"https://openalex.org/keywords/hospice-care","display_name":"hospice care","score":0.8420000076293945},{"id":"https://openalex.org/keywords/medicare-hospice-benefit","display_name":"Medicare hospice benefit","score":0.9200000166893005},{"id":"https://openalex.org/keywords/long-term-care","display_name":"long-term care","score":0.828000009059906},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.7649999856948853},{"id":"https://openalex.org/keywords/analgesics","display_name":"analgesics","score":0.6880000233650208},{"id":"https://openalex.org/keywords/patient-autonomy","display_name":"patient autonomy","score":0.6460000276565552},{"id":"https://openalex.org/keywords/dignity-of-dying","display_name":"dignity of death","score":0.527999997138977},{"id":"https://openalex.org/keywords/long-term-care-policy","display_name":"long-term care policy","score":0.6700000166893005}],"concepts":[{"id":"https://openalex.org/C2778745096","wikidata":"https://www.wikidata.org/wiki/Q274782","display_name":"Dignity","level":2,"score":0.8505790829658508},{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.6953317523002625},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.6945058107376099},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.5758821964263916},{"id":"https://openalex.org/C2778137410","wikidata":"https://www.wikidata.org/wiki/Q2732820","display_name":"Government (linguistics)","level":2,"score":0.5570724606513977},{"id":"https://openalex.org/C2780837026","wikidata":"https://www.wikidata.org/wiki/Q1026040","display_name":"Grief","level":2,"score":0.5554665327072144},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.5194065570831299},{"id":"https://openalex.org/C3017577407","wikidata":"https://www.wikidata.org/wiki/Q608152","display_name":"Hospice care","level":3,"score":0.4885433614253998},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4464970827102661},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.36867690086364746},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.18709468841552734},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.1411203145980835},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.11582636833190918},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003266","descriptor_name":"Continuity of Patient Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004608","descriptor_name":"Eligibility Determination","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":true},{"descriptor_ui":"D005607","descriptor_name":"Fraud","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":false},{"descriptor_ui":"D006278","descriptor_name":"Medicare","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D006278","descriptor_name":"Medicare","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":true},{"descriptor_ui":"D006291","descriptor_name":"Health Policy","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009735","descriptor_name":"Nursing Homes","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D009735","descriptor_name":"Nursing Homes","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":true},{"descriptor_ui":"D009735","descriptor_name":"Nursing Homes","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011787","descriptor_name":"Quality of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012051","descriptor_name":"Reimbursement Mechanisms","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015203","descriptor_name":"Reproducibility of Results","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017051","descriptor_name":"Hospice Care","qualifier_ui":"Q000191","qualifier_name":"economics","is_major_topic":false},{"descriptor_ui":"D017051","descriptor_name":"Hospice Care","qualifier_ui":"Q000331","qualifier_name":"legislation & jurisprudence","is_major_topic":true},{"descriptor_ui":"D017051","descriptor_name":"Hospice Care","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D033161","descriptor_name":"Government Regulation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1111/j.1748-720x.2005.tb00495.x","doi":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","is_oa":false,"landing_page_url":"https://doi.org/10.1111/j.1748-720x.2005.tb00495.x","pdf_url":null,"source":{"id":"https://openalex.org/S171945920","display_name":"The Journal of Law Medicine & Ethics","issn_l":"1073-1105","issn":["1073-1105","1748-720X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Law, Medicine & Ethics","raw_type":"journal-article"},{"id":"pmid:16083088","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/16083088","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9476000070571899,"display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/1","score":0.8100000023841858,"display_name":"No poverty"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":28,"referenced_works":["https://openalex.org/W11915855","https://openalex.org/W33746461","https://openalex.org/W341180733","https://openalex.org/W639133911","https://openalex.org/W1507030255","https://openalex.org/W1533135625","https://openalex.org/W1547773109","https://openalex.org/W1591353337","https://openalex.org/W2000109210","https://openalex.org/W2001229271","https://openalex.org/W2002015706","https://openalex.org/W2018544060","https://openalex.org/W2041281796","https://openalex.org/W2041990421","https://openalex.org/W2058489075","https://openalex.org/W2065944313","https://openalex.org/W2084117528","https://openalex.org/W2094536157","https://openalex.org/W2103968057","https://openalex.org/W2127536770","https://openalex.org/W2166183496","https://openalex.org/W2317550632","https://openalex.org/W4205726818","https://openalex.org/W4230977391","https://openalex.org/W4241526282","https://openalex.org/W4243890210","https://openalex.org/W4245994164","https://openalex.org/W4253725809"],"related_works":["https://openalex.org/W2000109210","https://openalex.org/W2048356133","https://openalex.org/W2124445835","https://openalex.org/W2483670046","https://openalex.org/W1977349294","https://openalex.org/W1998626049","https://openalex.org/W2731896921","https://openalex.org/W2125130977","https://openalex.org/W1998242232","https://openalex.org/W4249353199"],"abstract_inverted_index":{"The":[0],"quality":[1],"of":[2,123,133],"end-of-life":[3],"care":[4,124,135,148,156],"in":[5,34,68,79,152],"this":[6,63,99,121],"country":[7],"is":[8,12,64,83,143],"often":[9],"poor.":[10],"There":[11],"abundant":[13],"literature":[14],"indicating":[15],"that":[16,37,56,87,119,146],"dying":[17,60],"individuals":[18,67,78],"do":[19],"not":[20,45],"receive":[21],"adequate":[22],"pain":[23],"medication":[24],"or":[25],"palliative":[26],"care,":[27,111],"are":[28,44],"tethered":[29],"to":[30,47,73,94,98,108],"machines":[31],"and":[32,41,43,53,106,112],"tubes":[33],"a":[35,116],"way":[36],"challenges":[38],"their":[39],"dignity":[40],"autonomy,":[42],"helped":[46],"deal":[48],"with":[49],"the":[50,59,104,126,139,153],"emotional":[51],"grief":[52],"psychological":[54],"angst":[55],"may":[57],"accompany":[58],"process.":[61],"While":[62,131],"true":[65,76],"for":[66,77],"many":[69],"settings,":[70],"it":[71],"seems":[72],"be":[74],"especially":[75],"nursing":[80],"homes.":[81],"This":[82],"somewhat":[84],"puzzling":[85],"given":[86],"(1)":[88],"considerable":[89,144],"resources":[90],"have":[91,103,115],"been":[92],"devoted":[93],"bringing":[95],"public":[96],"attention":[97],"problem,":[100],"(2)":[101],"we":[102,114],"knowledge":[105],"expertise":[107],"provide":[109],"such":[110],"(3)":[113],"government-financed":[117],"benefit":[118,129],"covers":[120],"type":[122],"-":[125],"Medicare":[127],"hospice":[128,134,147],"(MHB).":[130],"utilization":[132],"has":[136],"increased":[137],"during":[138],"last":[140],"decade,":[141],"there":[142],"evidence":[145],"remains":[149],"underutilized":[150],"particularly":[151],"long":[154],"term":[155],"setting.":[157]},"counts_by_year":[{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":3},{"year":2015,"cited_by_count":1},{"year":2013,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}